The Drawing Board

a journey in chronic pain

Mary Ann Farley

Mary Ann Farley
Location
Hoboken, New Jersey, USA
Birthday
January 18
Company
www.maryannfarley.com
Bio
In 1999, at the very same time I was diagnosed with a serious blood clotting disorder (Essential Thrombocythemia), I also felt my face explode in a type of pain that no one could explain. After 13 months, I finally learned that it was osteonecrosis of the jaw (also known as NICO), a complication of the blood/bone marrow illness. I've had untold numbers of surgeries during this time, having spent most of it in pain. In 2004, the blood condition caused an internal massive hemmorhage during which I lost 70% of my blood volume, which in turn made the jaw infection much worse. This blog will detail my journey with chronic pain and all of its accompanying complications and emotions. I'll try to be as honest as possible without shooting myself.

Mary Ann Farley's Links

Salon.com
OCTOBER 11, 2009 11:29AM

The Healing Power of Honesty

Rate: 31 Flag
Well, Open Salon has done it again. In my darkest hour, I poured my heart out in a post, feeling somewhat guilty for expressing such a bleak mood concerning the bleak circumstances of my life, yet instead of chastisement (which at this stage of my life I still fear), OSers opened their hearts in ways that completely caught me off guard.

And quite simply, things changed.

I suppose the change was set in motion a few days earlier when I was drawing and writing in my illustrated journal (as opposed to my reflective journal, where I write multiple pages at a time). In an effort to break the logjam of isolation, I began doing some illustrations accompanied by scribbled thoughts inspired by the image, yet instead of it being a satisfying exercise as it had always been, it felt empty and boring.

It wasn't until the sixth entry of this new Moleskine journal that I realized what the problem was: I hadn't been honest in the previous five, and when I began to write from my center, when I acknowledged that things had taken a bad turn pain-wise, the satisfaction returned, and momentum began anew with hardly any effort at all.

Of course, there was a certain amount of effort in taking up the pen and paint, but it was a small one, and one I enjoy, regardless of the satisfaction level. What I love about these little sketches is that I always learn something, even if the drawing is a monumental failure, so the effort is never wasted.

These drawings and written thoughts led me directly to an enlightenment of sorts, and that, in turn, led me to a new blog post, where I simply poured my heart out, setting aside what others might think. It all flowed out of me in a single sitting, and when I clicked "publish," I just sent it out to the universe, response be damned, and once again, I wasn't disappointed.

The comments I received helped in so many ways. Some people simply posted their compassion, while others offered more hard-core suggestions, all of which were concrete things I could try. No matter how short or long the response, I suddenly didn't feel so alone, and I connected with others on a level I don't come across in my day to day life.

This boost from so many open hearts filled me with a much-needed and newfound energy that I hadn't felt since the new round of pain started over a month ago, and little breakthroughs began happening all over the place. One thing I realized is that I need to give up my art studio and bring everything home. For a few years, I've been struggling with the realization that I no longer have the energy to get there, nor can I afford it, yet giving it up felt like a failure to me. It would have been the period at the end of the sentence that my life has drastically changed these past five years, that I no longer can physically do the things I've always done.

Yet in accepting this fact, I can see all the good that will come of it. In having all of my art materials here at home, I will most likely paint more, not less (which has been my fear), and I'll have some extra cash in my bank account to boot, which I so desperately need. I've been spending a few thousand dollars a year to keep my studio, but it's become more of a storage place than a place of creativity, as when I go there, my isolation seems to feel more intense. Some studio mates have moved out due to their own financial issues, and it's just not the same place it used to be. And so it is time that I make my own changes.

Another astounding, even life-changing, insight was that this strange malaise actually began when I went on the Percocet in early September. While I definitely needed something to curtail the breakthrough pain, I suddenly realized that perhaps Percocet wasn't the answer, as for some, it does indeed cause depression. And in my case, when depression increases, so does the pain, so I found myself in a loop of pain, depression and pills.

To have this light bulb go off above my head was akin to an angel whispering in my ear, so my doctor changed my breakthrough pain medication back to Vicodin, and indeed the weight caused by the Percocet lifted. I will definitely note this little incident in the "not all meds work the same for all people" file for future reference.

While these insights might not seem like a big deal to others, I truly don't think I would have had them had I not been honest with myself and others, and I actually feel inspired to give up the studio, to bring all my cherished paints and paintings home here with me. In the last two days or so, I've been actively thinking of how I'll rearrange things in this small one-bedroom railroad, and I think it'll work.

It seems that momentum has been once again set in motion, and I am thrilled. But it wouldn't have happened without my taking the risk of being honest with others, and without their compassion in turn.

So thank you, Open Salon. While it was important for me to be honest, it was equally important that you offered such comfort and support. I would not have found this new place without it.


Note to those reading this on Blogger: This blog is cross-posted on Open Salon, a social networking site in the form of a blog.


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Wow. Whatever your pain level, your writing is so lucid and enjoyable. And I love that beagle. Have you thought about posting more of your illustrations? (Maybe you have. I'm going to go back and check.) I'd love to see some of them on cartoon Saturday.

Have you read Lynda Barry's What It Is? Her recent book about creative process, writing and illustrating. I have this vision of you at home drawing, doodling and writing away, and coming out with this awesome graphic novel.

Good luck. But I know it must be hard to give up your studio. I'm sure with your talent though, your professionalism won't atrophe.
Hey Mary Ann, just back online now after a moving hiatus. I so appreciate your honesty, the painful part as well as the inspiration. It is in fact all of a piece. And because of your honesty and lucidity, it's not difficult to read but is engaging.

I too love the illustrations. The dog is wonderful. Wishing you relief and healing.

blessings, M
So great to know that OS made a difference.

I LOVE your work. LOVE it.
"While these insights might not be a big deal to others"...,
This was a big deal and I for one am so glad that every things starting to "click' again. Good Luck!!
Mary Ann, you're journey hasn't been one any of us would have found pleasant - you've written about it beautifully. The fact that you've written about it all is its own kind of honesty; now you've simply found a deeper path on your journey.
I am glad you are feeling better.
It takes bravery to change and you are very brave. I am so glad to hear of your changes and how much more comfortable it seems now. My best to you and yes I would love to see more drawings!
I am glad, too. Congratulations on getting through a terrible time with grace and honesty. You are very special.
Cute beagle. Kind of looks like my dog.

Rated and Dugg
:~)

Excellent. It's so great when inspiration finally hangs out with us for awhile. And glad things are better right now. Blessings, Mary Ann.
You are a gifted writer and it appears, illustrator also. I hope you can hold on to those creative gifts in the painful moments.
You're more than welcome Mary Ann. Just let me take that inspiration for a spin sometime. I need you too.
Many times OS'ers feed us bloggers, the compassion and understanding we hunger for. ~R~
mary ann, i am not an artist, but i have to think that being surrounded by the tools of your trade - especially things which give such tactile pleasure as paints and brushes - will be a good thing. if you dont already know this, i have a friend who got a simple 4 drawer plastic dresser thing at walmart and keeps all her things in there - cheap and accessible and neat, all at once.

much love and hugs and glad to hear you have turned a corner.
What a delightful post. We often hear about the bad side of OS (which I have not experienced). It's so nice to hear about the bright side. Thank you for sharing this -- and may the momentum continue!
I love what you express. I appreciate how you are working to incorporate all of this. I encourage you to KEEP ON. You are asking for what you need and, selfishly, I need you to do this so I can learn.
wonderful. wonderful.

Life sucks. You, Mary, profoundly do not. You made me cry with this.

I like your art.
Mary Ann,

Again, your clarity and your ability to express this is Such Gift, to me and it seems, others. I am sooooo glad for you finding answers. And perhaps joy, or light, or lightness in the process. Yeah for Mary Ann. Yeah for us all.
PS love the pink girl!
oh wow, what a beautifully written and healing post! you are such a courageous and inspiring woman. i'm in awe. LOVE your artwork. it's superb. the canine-american? fabulous. i have two wonderpups/service dogs that insist on being called C-As. they are quite militant in their politics. is that your lovely pup? i was just thinking that the whole service dog thing might work so well for you. i have my own carp and their presence and touch adn company enhance my life as much as the seizure-alerting and panic-alerting do. info: deltasociety.org. sorry for being a nag. i just love to share whatever abundance i still have.

being honest makes everything change. thank you for sharing this part of your journey. it's extremely validating for others and especially for me because my stuff is a lot funny but overall it's brutally honest and many people can't deal with it. but those aren't teh poeple i want in my life anyway. i can't wait to hear about the studio you set up in your home adn to see your new artwork and read the text. love love love and gratitude
It's nice to know you're loved by people, isn't it? Your drawings are amazing. You may recall that is how we first met (when I asked if I could display one of your paintings "Eleanor Rigby" on my blog in February of this year). http://scrivenblog.blogspot.com/2007/02/jesus-pushes-back.html

You are amazing.
You continue to amaze and inspire.
Your gift is the gift you continue to give to others. I wish more came your way.
It´s great you´ve been able to take some decisions which will help you enjoy and feel better, you deserve it.
Kisses,
Marcela
Thank you for sharing your drawings, love them actually!! And the writing, as always, grand read!!

Rated, but of course!! :)
Rated! I would like to comment, to applaud your honesty and strength, but compared to what you write, my words seem trite. Keep on keeping on!
mmmmmmmmmmmm

such a lovely post, full of you, your honest, pure self.

the lessons you share with us are so powerful and organic. universal.

you are the gift to us.

thank you, dear, dear woman.
Don't think I really need to say anything here except no thanks are needed. Glad to see you're back drawing and painting again. :-D

Rated.
it is a bit like being part of a healing community around here. the positive feedback makes me feel less like a fake -- quiets the loud critic in my head.

I've had times in my life when I was in severe pain -- but being a recoverying addict, I was terrified of drugs. I studied meditation techniques and was able to concentrate on that (thank god for short and long term disability) so I didn't have to use the drugs for long. I can't afford depression -- it's wasted too much of my time already.

That momentum you're talking about -- although it can be elusive, recognizing that it's gone is the major obstacle I believe.

I'm so happy that you shared this.
Your drawings are amazing. I'm so glad you're able to share here, it benefits us as much as you. (in my humble opinion)
Thanks for the update, and I'm glad you are (at least mentally) doing better.
I have to tell you that I listing to your albums through your website recently, and was absolutely floored. Beautiful. You have a new fan.
MJ
I am so so glad!
THOSE PICTURES ARE INCREDIBLE. INCREDIBLE.
Holy crap! I was sick with the flu all weekend and wasn't on my computer. Thank you all SO MUCH for these amazing comments. It will take me some time to digest them all, but again...WOW. You folks are amazing.

I'm overwhelemed and humbled.
Mary Ann, your spirit and honesty awe me.
I was off of here for a few days so it is very nice to come back to this very upbeat report. Good on you! You have an innate strength that does come out when the chips are down, and am very glad for you that has happened.

God bless,

Monte
Change can be a wonderful thing, even when it feels like we're going backwards. We're not, just going in a different direction. Sometimes we're forced to, and sometimes we choose to, but it's what we choose to do with it that matters, and you have chosen to see the positive side of it. You're awesome.
Excellent post, Mary Ann! So much emotion, wisdom and relevance. Loved it!
Yeah, that's the formula. Being honest (with yourself at least, with others if it's safe) and moving, beginning to do something, even if you don't know how it will end. I always hated the 80s mantra, "you create your own reality." No, shit gets foisted on you. Then you respond, make a plan, work some stuff, and get a little control back. You are an inspiration to me. Thank you for the stuff you write and how well you write it. I'd love to cruise through those notebooks.
You are so beautiful and strong. I am speechless, really, except to say thank you for sharing all of it.
Cathleen