The Drawing Board

a journey in chronic pain

Mary Ann Farley

Mary Ann Farley
Location
Hoboken, New Jersey, USA
Birthday
January 18
Company
www.maryannfarley.com
Bio
In 1999, at the very same time I was diagnosed with a serious blood clotting disorder (Essential Thrombocythemia), I also felt my face explode in a type of pain that no one could explain. After 13 months, I finally learned that it was osteonecrosis of the jaw (also known as NICO), a complication of the blood/bone marrow illness. I've had untold numbers of surgeries during this time, having spent most of it in pain. In 2004, the blood condition caused an internal massive hemmorhage during which I lost 70% of my blood volume, which in turn made the jaw infection much worse. This blog will detail my journey with chronic pain and all of its accompanying complications and emotions. I'll try to be as honest as possible without shooting myself.

Mary Ann Farley's Links

Salon.com
NOVEMBER 1, 2009 10:00AM

Pills For Enlightenment

Rate: 24 Flag

It would seem impossible that I could live a life without painkillers at this moment. This morning was a bad one that required one morphine pill, a Xanax and three Vicodins to get the pain to a somewhat bearable level, but I can no longer stand what these medications are doing to my spirit.

As I felt the pain battle for supremacy in my face and jaw (despite the meds), I decided to just lay on the couch at one point and give in, to not fight, to boldly tell it to get as bad as it wants to get--that I can take it.

It's always remarkably relaxing when I do this, as I suppose in these moments I can compartmentalize the pain, set it aside, and live with it instead of fighting it. But for some reason, I seem to do this only when I arrive at the point where I'm realizing it's winning handsomely, and the only way to win the war, so to speak, is to surrender the battle.

When I do this, the pain does ease up somewhat, and I wondered this morning if this tactic would be successful if I went off pain medication altogether. It seemed like such a shockingly bold move, even stupid, but the idea intrigued me.

Yet when I significantly decreased my pain meds in an experiment last week, the pain skyrocketed, and it took two days to get it down again. It's actually been pretty bad ever since.

But I literally can't stand this medication fog anymore. As I've been so isolated and sedentary for most of the past year, I joined a gym this week, and man, what an effort not only to exercise, but just to walk over there! My malaise fought me every inch of the way, and the depressing thought kept creeping in, "Why am I bothering?"

What's keeping my hope afloat, though, are the memories of more joyous times, when, despite my problems and issues, life could also feel electric and exciting, and I would be wildly filled with creative ideas that gave me more than enough fuel to execute them.

But my days are so very different now. And I have to wonder how they fit into the overall pattern of success/defeat that has defined so much of my life. If everything around us is truly connected by some kind of universal web, where past, present and future are illusions of our three-dimensional world, and if I go on the assumption that I'm here on this earthly plane to learn deep truths via the gift of free choice, then what is the lesson?

Of course, my malady may be nothing more than a freak occurrence of bad luck, but for the sake of argument, if this ordeal does somehow reflect a bigger picture, what in that picture am I missing?


When I think along these lines (which always seem to effortlessly surface during these moments of surrender), it all feels so profoundly obvious to me--that of course this is all connected, you numnut, but you just don't want to go there. You don't want to face the sheer terror of the wild blue yonder before you, and instead would prefer to stay in your hovel of pain and medication, where the space is oh so small, but oh so familiar.

As I've written about before, most of my adult life was devoted to music, to being the best singer/songwriter I could be. Those were heady times indeed, but when one is so singularly focused on JUST ONE THING in life and that thing no longer exists, it's hard to feel anchored to the earth anymore, despite my other artistic endeavors.

And why was my life devoted to JUST ONE THING? Because I felt so incapable of succeeding in love relationships. Time after time, I made such poor choices in men, which had less to do with them and more to do with my low self-esteem. And let's face it...a life without love, or even the potential for love, is hardly a life at all. I dare say my fear of intimacy borders on something pathological, and I am the less for it.

Of course, now that I'm so ill, in such pain and on so many medications, I continue to feel myself unworthy of a love relationship, but of course this is just more of my bullshit. I'm aware that I'm actually quite good (for the most part) at handling extremely difficult physical conditions, and I'm also aware that no one is perfect; that we all have our proverbial crosses to bear and baggage to unload. Pain and illness does not deem me unlovable, but in my own mind, it gives me an excuse to melodramatically retreat, which is made all the easier by the fatigue created by the meds.

It's a vicious cycle indeed. Pain and fatigue keep me isolated, yet isolation keeps me away from any possibility of love, which would restore much-needed balance in my life, whether the pain was there or not.

It's certainly no easy thing to wake up with severe pain in the morning, and would be harder still to take a stab at not medicating it, but something has got to give. I've become frozen in time, remembering the person I used to be, yet only vaguely seeing the person I could become. And therein, perhaps, lies the rub.

With all previous definitions of myself shattered, who am I now, and who do I want to be? Where do I go from here? I can't see it, and this terrifies me, frankly. And with pain taking up so much real estate in my brain, it's difficult to formulate a new vision for myself or for anything...even some nutty creative endeavor.

Before all this happened, I was actually feeling okay about setting the music aside for awhile, by exploring new paths, by venturing forward full speed ahead in faith and love.

But of course, my faith was shattered, too, when pain exploded onto the scene. God not only vacated his co-pilot seat in my life; he actually hit the ejector button, leaving me to crash land in some foreign sea all on my own. I've been trying hard ever since not to drown.

And so my present is now largely defined by reruns of Criminal Minds. Nothing soothes the tortured soul, it seems, like stories of sociopathic serial killers.

I watched a preacher today during a Sunday morning TV program, and he talked about faith, about putting our troubles in God's hands. He focused mainly on the recession and the joblessness that many of his followers were no doubt experiencing, noting Bible passages that basically said to quit worrying, have faith that God will provide, and just enjoy your life.

When it comes to money and my freelance work, I can get with that. But how those parables apply to someone in chronic pain still has me stumped. Maybe they don't apply, or can't. Once again, I'm reminded of Buddhist teachings that say there will always be suffering in life; the trick is to rise above it (no matter how harsh the circumstances), relinquish your attachments, and enjoy the bliss that ensues.

But I'm told by this one Buddhist sect that I'll have to chant two to three hours a day to attain this enlightenment. Huh? What? Is this a joke? I get impatient with how long it takes to walk to my kitchen. Can't they just make a pill for it?


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Note: Watercolors are some new entries in my illustrated journal. I'm using them as inspiration to get back to my flamenco classes! (Click on images to enlarge.)




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Please don't ever give up on yourself.
MaryAnn,
When I saw the pictures you created, my first impression was that the streaks of yellowish goldish in the first one was energy. I thought of it as healing energy running through your body. And the yellow in the 2nd one was just surrounding your body. It is beautiful, it reflects a woman enjoying movement and being supported. People who imagineer healing light from above often picture golden light for healing body illness. Blessings on all your stirrings.
I read your posts always hoping that the pain has subsided; your coping mechanisms are always teaching me. I too have been putting thoughts to the visual. Some in therapy feel that expression in colors helps to alleviate stress. I wish you the best. As little willie has commented, "Please don't give up on yourself."
I love your artwork - perhaps you are now making music with a brush instead of an instrument? Be well!
Bluesurly makes a good point. I liked both the text and visuals.

Willie and Chuck also have a good point.

Rated
I agree! The energy in your paintings really stands out! I'm with Chuck! In fact, I downloaded the song just this weekend, "Don't Give Up," from iTunes... go have a listen.
As I said before, meditation is the answer to kicking the pain, first kick the pain killers and then the pain. It is rough but you can do it. The two hour thing with the chanting and all is not required...what is required is to detox both in body and mind.
I enjoyed your paintings, I'm glad you have a creative outlet. It sounds to me like you're on the fence about a lot of things, who you are, what you believe, self esteem issues. I pray your struggle will become clarity and your pain will become peace.
"Nothing soothes the tortured soul, it seems, like stories of sociopathic serial killers."

Damn right!! :)
Beautiful energy amongst the questions. Taking time to create is not lazy or being a bum, it helps us cope. Keep writing as you can, keep painting as you can. Let these things bring you comfort as they can.
Your artwork shows beautiful movement. Your words express hope. You are so brave and talented and I hope your pain subsides with all my heart.
I believe a pain regiment is as important as a life regiment. If you have to take meds, like I do, then thats what you do. My life changed a 180% and I thought my life was over. Fuck that. I got mad. I refuse to buckle in to this nightmare. I refuse to let the damn pain win. I win if it kills me!
Oh, sweetie. I wish I knew. I wish I had one word of worthy advice, but sadly I do not.

I do love how you write and I love your artwork. I wish I knew your music - I can only imagine.

I'm just sorry that life is like this for you, and for others. Just so sorry.
Beautiful illustrations, sorry for the painful life situation. Hoping for the best for you...
I wish I had healing words for you. I can see how the chronic pain can envelope every aspect of your life. I hope you eventually find a way to win your battle.
That dancing lady made me cry! You are such a great voice and spirit. Zumapick!
There are no good answers to chronic pain. At least I have not found them with mine.

I take the meds but they only dull the pain, not eliminate it. One of them I had to cut way back because I just never wanted to get up the next day. I could have slept 20 hours a day.

I still approach my pain about the way I told you before: I figure I have to play the hand I am dealt. I don't know what, if anything, I am supposed to "learn" from the pain and the total change in my lifestyle, but that is the hand I have to play since there is no other on the horizon.

If you took that tack I think that perhaps your painting, drawing and art are speaking to you telling you that art is something that fits regardless of the pain. Your art is very good and I hope that you will continue it regardless. I agree with several others here who think you have real talent in that area that you can apply immediately.

You continue in my prayers.

Monte
Your water color illustrations are elegant and just gorgeous! Your words are so definitive of the pain most of us cannot begin to imagine. You are so brave and so vibrant through the haze that is your daily existence. You are so strong, imaginative and a fighter beyond comparison. Cling to your healthy, natural core. And if there's a pill that will see you through to a better day...well, so be it.
Hugs, girl!
Dear Mary,

What beautiful diary of your life you have written. The anguish and hope and desire to attain a life without pain touch me. The love and companionship you seek and deserve and yet deny and postpone is heartbreaking and inspirational.

"...a life without love, or even the potential for love, is hardly a life at all."

To breath and think and feel and long for love, all that is life. Your life is yours, but the cross is not your's to bear alone. Ask and you shall receive.

Believe.
Are you familiar with the book Full Catastrophe Living by Jon Kabat-Zinn? I've not read it, but my wife has and talked to me about it. K-Z is a doctor who teaches mindful meditation as a way to help patients cope with severe pain.

Also, your beautiful art might even inspire me to take up flamenco!
fascinating post
it hurts me so much to imagine your level of suffering
I think you should be gentle with yourself, whatever it takes to get through this
whatever it takes
this is an extraordinary situation, and all the normal rules may not apply
very excellent post
i feel there is a God
and this will all have some meaning eventually
all I know now is that you have made heroic efforts to deal with the situation, and that is all anyone can do
This is probably not helpful in the least, but since I have no practical help: the vividness of your art seems such a reflection of your spirit . . . matched by your determination to find a way to deal with the pain.
I deal with my chronic pain through meditation and it absolutely took kicking the pills in an effort to get to a place where I could meditate. It was a horribly hard road. I feel for you. It is hard when you have been on them for some time as the pain receptors go into withdraws as soon as you even begin to lower doses. If you are ever serious about this, I hope you receive assistance and not try to do it on your own (I did it on my own and it almost killed me). Whatever you decide to do, please know your writing and your art is beautiful. It is a special thing you share with us.

"God not only vacated his co-pilot seat in my life; he actually hit the ejector button, leaving me to crash land in some foreign sea all on my own. I've been trying hard ever since not to drown."

I completely related to this and remember this feeling like it was yesterday. You are not alone - thank you for your bravery in sharing your experience here.
This is a wonderful post not alone for our beautiful heartfelt prose but also the intensely feminine illustrations. I hope you'll continue to paint like this and share the results with us! Pain is suffering. Your descriptions of its power to hurt you and to inhibit you tug at my heart. I am glad you meditate and that you are seeking other forms of release apart from medication. You are a woman of many talents, obviously, not least the ability to look within yourself.
Thank you all so much for these tender thoughts. Even though I don't reply to each as much as I should, please know that I take them into my heart in a very deep way.
First of all, you are beautiful! Inside and out. You are so strong. our mention of the pain killers reminded me of an article in Spirituality & Health that I read about a year ago. It's about breaking addiction by some method - grinding the pills with a pestle and mortar and taking them in a liquid, and then slowly weaning yourself off them that way. What about medical marijuana? Do you think that could help the pain at all? It may be less harmful to the spirit than the chemical pharmaceuticals. Anyway, keep writing friend. Your spirit will prevail.