The Drawing Board

a journey in chronic pain

Mary Ann Farley

Mary Ann Farley
Location
Hoboken, New Jersey, USA
Birthday
January 18
Company
www.maryannfarley.com
Bio
In 1999, at the very same time I was diagnosed with a serious blood clotting disorder (Essential Thrombocythemia), I also felt my face explode in a type of pain that no one could explain. After 13 months, I finally learned that it was osteonecrosis of the jaw (also known as NICO), a complication of the blood/bone marrow illness. I've had untold numbers of surgeries during this time, having spent most of it in pain. In 2004, the blood condition caused an internal massive hemmorhage during which I lost 70% of my blood volume, which in turn made the jaw infection much worse. This blog will detail my journey with chronic pain and all of its accompanying complications and emotions. I'll try to be as honest as possible without shooting myself.

Mary Ann Farley's Links

Salon.com
NOVEMBER 6, 2009 3:00PM

Musings from the Brooding Aftermath

Rate: 19 Flag
Ever since I can remember, I've always questioned the meaning of life, even as a teenager, which back then made me think that I was insane...seriously. While all of my friends seemed to go about the daily business of boys, school, skin issues and just general life, I always had a type of tape loop going in the back of my brain, wondering why any of us were here, and wondering why everyone else wasn't wondering the same.

Of course, I was also hiding my depression and OCD behavior back then, as well as the dark goings-on at home, so I'm sure that added to my questions about the meaning of it all.


But I was never able to just enjoy life with ease, as the plaguing questions about it seemed to thwart its pleasures. Don't get me wrong: I liked having fun, and had the detention notes to prove it. But there was this inner brooding during my teen years that could only be pierced by art, in any of its forms, and so my life-long love affair with music, painting, books and film began, as the artists in these fields were at least asking the same questions as I was, and in their work I could find a camaraderie of sorts.

My first true encounter with art as enlightenment came as a double-whammy in nearly identical experiences. In each case, I was sitting in my living room, my face just a few feet from the TV screen, during two different family affairs where noise and conversation made me sit close to the set.

The first film was Midnight Cowboy, and the second, The Graduate, the former being the more intense experience, as I recall.

During those difficult days, there was little in my world that I could connect to, as I knew I didn't want the life my parents and relatives had chosen, as no one in my world seemed very happy. I thought something was just fundamentally wrong with marriage as an institution, as opposed to what was the real culprit: everyone's inability to say what they were really thinking and feeling. In hindsight, a life mate and kids might have been wonderful experiences for me, but in the kids department, I think it's fair to say that ship has sailed. I do hope some wonderful romance is in my future.

That aside, I remember that by the end of Midnight Cowboy, I felt so moved, and perhaps for the first time, so connected to this strange earthly plane that beforehand had felt so meaningless. Here was a story about two people who felt so forsaken themselves, who had been cast off by society, living in their perspective dreamworlds that held little hope for anything more than what they could eek out on that particular day. They were outcasts, oddballs, losers and lost, just like me, no matter what my good grades, quick smile and bevy of friends might have suggested otherwise.

Suddenly I realized that a whole other world existed out there than the one I lived in...a world where people not only thought about the greater questions of life, but actually created something from them that made us all feel just a little closer, if only through our compassion for these characters and their plight.

Of course, The Graduate spoke loud and clear to me, as well, as what young person couldn't identify with Dustin Hoffman's Benjamin Braddock, who was also seeking something more meaningful than what the culture around him could offer. Even though his world was of the white collar variety (and mine, blue), the issues were universal, and I will be forever grateful to these filmmakers and screenwriters for doing whatever it took to get these stories to the screen.

I suppose it's not surprising that as I was to go on to become a singer/songwriter, my songs would be so story-based. As some reviewers would observe, the songs wouldn't so much tell the story as to suggest it; the lyrics were the words going through the characters' heads in "the brooding aftermath" of what had just occurred, according to one (thank you, Linus Gelber).

Of course, my music is behind me now, even though I still pick up the guitar now and then. Yet there seems to be some kind of curious irony happening that the questions I asked about life's meaning as a teenager are as profound as they ever were, only now the result of an untreatable pain condition. At its very core, the unfathomableness of this experience (and those like it) flies in the face of any argument that declares the human experience as one of destiny and inherent meaning.

The one thing I can truly believe, though, the one thing that has been so sustaining this past year, is that while the experience of pain may indeed be meaningless, I can choose to give it meaning, when I'm able, by writing this blog.

I've been gifted with the ability to write, to communicate, and while I haven't been able to muster up a single tune about this awful experience, I have been able to get it down here, to at least attempt an explanation of what it's like, if for no other reason than to give voice to an ordeal that has rendered too many mute, some permanently.

This condition carries the awful nickname of "the suicide disease," as so many patients simply give up when they exhaust all avenues for relief; that's how bad it is.

But there is something in me that feels compelled not to give in, to continue to be the private eye who will solve the case, if not to get out of pain, then to discover a means to gracefully weave it into my life, if that's even possible. (I'm investigating all of the many ideas so many of you sent in your comments...thank you!)

It's as though I can't let my pain-mates down, which in many ways has been the thrust of so many of my creative pursuits over the years, even before I found myself in these particular dire straits. I must at least try to speak for us, and try even harder to solve the riddle of how to live when the unthinkable happens. I'm not sure if that earns me a gold star, or just an inflated ego for a short while as yet another coping mechanism that, like so many others, will ultimately give way under the weight and wear of all things relentless.

I hurt so bad today, and I've got just one Vicodin left until tomorrow. And it's only 12:39 p.m. as I write this.

Maddone.



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Some kind readers have asked about my music. Full streaming songs can be heard for free here:
http://maryannfarley.com/index_files/buy.htm

Paintings are watercolors from my illustrated journal.

And Linus Gelber's full review is here: http://www.musicdish.com/mag/index.php3?id=2427
A sampling: "There are stories in her music, but they are private ones; her characters show but don't tell. We meet them instead in their pondering aftermaths, musing brokenly about what has gone before and how it got them here."



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Comments

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Mary Ann, your writing has so much power, such wonderful rhythm and command of language and image. I must believe that it helps others; I hope that it helps you.
Thank you, Pilgrim. Your comments are always a balm to me. As is your blog. Think I'll take a stroll over there now! :)
Bravo! You've done it again.
I loved this post. I have had so many of these feelings. But I have to tell you - I admire your journal illustrations - you have a wonderful style.

You are very talented.
Sounds, Mary Ann, like a struggle with Karma. Karma is the only force that blocks miracles. Hang on, the ride may just get less bumpy, soon.
Heal...
Very nicely written, ma'am!
Chuck, Kathy, Duane, Kathy R., and Prof.--Thank you for your continuing support and bearing witness. You've no idea how grateful I am.
I don't know what to say.... I'm sorry just isn't enough. I do hope you find the answer! Wonderful writing
mary ann - i dont mean to be selfish, but i feel like one reason you are here, is for all of us. to share with us and to friend us and to let us learn from you and all those sorts of things. that said, i hate that you have such pain, and wish i could help in a substantial way.

hugs and love.
Lunchlady and Jane...You bring tears to my eyes! Yeah, this blows. That's for sure. Thank you so much for stopping by.
I wish you luck on your painful journey to find relief for yourself and others with your affliction. I love your writing and will go check out your music soon. Your words always have a very nice lilting flow to them. Love your paintings and wish you would share more of them with us. You are a woman of many talents!
Oh, sweetheart, I didn't realize you had Trigeminal Neuralgia. Damn. I am familiar with that, by proxy, and I send great sympathy and caring to you. Have you read Deborah Young's posts about her husbands recent struggles with it? Heartbreaking.

Art saves lives - I believe that. And thankfully, art comes in so many forms and venues... we can keep finding and discovering it throughout our lives.

Keep speaking, writing, creating. We are here, eager for your gifts.

P.S. Thanks for your kind comments on my poems today. I love to see your words. xoxo
As you know, when I first discovered your blog, I went back and read all of your old posts. And was simply blown away that you were able to express all of those huge and powerful emotions with grace and clarity--even in the midst of horrific pain. This one is as good as the others, with the added bonus of sharing your music. I went to the site above and listened to at least parts of each song on the first album, "Daddy's Little Girl." It's truly a gorgeous piece of work, Mary Ann. Lyrical, haunting, strong, and almost palpably painful in places. It's also funny (i.e. Bad Haircut) and poignant. Your rendition of "You Have to be Carefully Taught" is the best I've ever heard (it's one of my all-time favorite songs, BTW).

So I thank you for your writing, your paintings, and now your songs. I so appreciate your ability to write even when the pain is nearly unbearable. I don't know the answers to the questions you've tussled with, either--but I think we all must keep asking them and searching for answers that will satisfy at least part of our minds.

Rated. D
Mary, you are a very brave women. When I went to the link, I found out how painful this must be. It also said, and I do this, become friends with the pain. I know that sounds impossible, but after over 20 years, you either make friends are go the suicide route and I just know you are to smart and strong for that. I do hope they come up with a different treatment so you can get back to your art!
R
Mary Ann, your serene music is at odds with what you're going through. Very Kate Bushy :-) I hope creating it provides a reprieve if only fleeting from your pain.

peace
Well done. I am honored to be reading your writing. Your illustrations are badges of honor.

Zumapick.
Thanks for sharing this, I will have to check the music out when I'm at work, banging my head into the wall!! :)

Rated because I still keep questioning my purpose in this thing called life.
Never saw The Graduate, but Midnight Cowboy had a huge impact on me as a kid. You are a true artist, Mary Ann. Your writing, music, and paintings all give such meaning to your pain. I am inspired. In fact, you may remember that's how I met you online, when I requested to post your painting of "Eleanor Rigby" on one of my blog entries. Thank you for sharing yourself so transparently. It is powerful for me.
Hi, Mary Ann. This is an excellent post and I do like the idea of making an offering so to speak of your journey with pain for those of us who are trapped in chronic pain with no clear way out even remotely on the horizon. I guess there is strength in numbers, even if it is numbers of us who struggle. I am sorry for your continued struggles and pray that however you do it you find some respite from time to time.

God bless,

Monte
Dear Mary,

Thank you for the wonderful music... I just spent a lovely couple of hours enjoying the arts.
You are all a gift from God to me. Thank you for bearing witness and writing such words of deep support. It's important for me to know you're there, not just to support me personally, but to offer your own writing, which I love (or you wouldn't be a favorite!).