The Drawing Board

a journey in chronic pain

Mary Ann Farley

Mary Ann Farley
Location
Hoboken, New Jersey, USA
Birthday
January 18
Company
www.maryannfarley.com
Bio
In 1999, at the very same time I was diagnosed with a serious blood clotting disorder (Essential Thrombocythemia), I also felt my face explode in a type of pain that no one could explain. After 13 months, I finally learned that it was osteonecrosis of the jaw (also known as NICO), a complication of the blood/bone marrow illness. I've had untold numbers of surgeries during this time, having spent most of it in pain. In 2004, the blood condition caused an internal massive hemmorhage during which I lost 70% of my blood volume, which in turn made the jaw infection much worse. This blog will detail my journey with chronic pain and all of its accompanying complications and emotions. I'll try to be as honest as possible without shooting myself.

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NOVEMBER 10, 2009 12:34PM

That Lovely Ring of Truth

Rate: 20 Flag
While shaving my head a few minutes ago (when's the last time you heard a woman say that?), I thought about my old therapist, for some reason. A couple of months ago, her daughter had called to tell me that she'd finally passed away of Alzheimer's.

I was a patient of this woman for about 18 years, right up until I could see that something was terribly amiss in her behavior about 10 years ago. I believe I've told my story about her here (I can't even remember my own posts anymore), but it isn't important in terms of my thoughts about her this morning.

It was her courage and fearlessness that popped into my mind, and how she taught me over the years to never really fear what was in my heart, no matter how dark it felt at any given moment.

No matter how distraught I could get over things in my life--past, present or future--MH always helped me face my fears head-on, particularly the ones I could have about my own sanity.

She seemed to embody a fundamental truth about life, which is that in the realm of emotions, there is nothing so dark that can't be faced, as when a truth is spoken, you truly are set free.

In that moment, one realizes that the agonizing torment of a particular situation doesn't really need a resolution at all, as when that spark of enlightenment, of insight, occurs, all things really do feel right again. For me, faith wasn't just restored; it was perhaps born for the first time--faith in the therapeutic process, faith in a power greater than myself, and faith--true faith--in another human being.

This was the wondrous feeling I'd so often get while driving home after a session. Never would I feel so relaxed, so at home in the world, as when I'd leave her office after an incredibly intense and satisfying therapeutic exchange. It was such a comfort, and so empowering, to feel that I no longer needed to cower, to appease, to ruminate, or to obsess in order to feel safe in a dangerous world. As time went by and my true self began to emerge (I actually began playing guitar and writing songs at age 35), it was as though an inner garden had sprung to life, and I was embarking at last on the journey of my becoming.

But then I was stricken with such pain and illness in '99 (at age 40). Everything I thought I knew shattered into a million pieces, and shattered even more in '05, when the pain took up round-the-clock surveillance of my soul, seeing just how much pressure it could exert before I cracked. It didn't take long.

So now I'm left wondering: All those strides I'd made with MH, all the new beliefs I'd developed, all the faith that lit my spirit, all the magic I'd feel from those mysterious "helping hands" that seemed to bring me exactly what I needed when I needed it...where did it all go?

Did these things just happen in my imagination? Did I really learn any fundamental truths at all? Yes, dark demons did get chased away by my courage and by my newfound faith in MH's therapeutic process and in a larger force at work in my life. But as I looked in the mirror at my new closely clipped head this morning, I wondered: Why can't I get rid of the demons now?

I suppose the world feels far more random to me these days, and far more unfair than I ever could have imagined. Still, if all things really are relative (another leap of faith), then surely there must be something I could apply to my physical state right now from the lessons I learned so many years ago about what restores health in the emotional realm.

OK, so when I stared down a fear, when I spoke the truth--no matter how painful that uttering might have been--something would give way, and a little bit of health would return effortlessly. Restoring my sanity didn't happen overnight, of course, but each step was built on a solid foundation, which provided sturdy and steady ground for what was to come next.

If indeed I'm on the right track with this line of thinking, what "physical" truth am I not facing right now? Well, for one thing, I suppose I've given up on taking care of myself. As the constant pain has worn my sense of hope down to a tiny nub, lighting that next cigarette, drinking that next cup of coffee (loaded with sugar, 'natch), or sipping that little bit of wine (not to mention popping the painkillers) has begun to feel like the only way I can feel just a tiny bit good again, if only for a minute.

But these things are bad for me (no matter how "moderate" I may or may not be), just like the lies I believed about myself so long ago. I can see now how much foul food was fed to my soul, so to speak, during my childhood, and when I purged it, my mental health seemed to take care of itself.

So I'm going to do an experiment. Tomorrow I'll be having a colonoscopy, which requires a liquid diet of me today. I have to go to the store to stock up anyway on juice and broth, so while I'm there, I'm going to pick up tons of fresh fruits and veggies...as many as I can carry...and practice a modified vegetarian/vegan diet for the next five days.

Not only will I remove caffeine, nicotine, alcohol and processed sugars from my plate, but I will add in things I don't usually eat, like fruit smoothies in the morning (with a scoop of whey protein).

If I say I'll do it for a week, I'll freak out, so let's keep it to five days.

I read an old acronym recently, using the word CARE, meaning circulation, assimilation, recreation and elimination...the four things we need to pay attention to in order to be healthy.

If I'm not giving my body the fundamental "truths" it needs to heal itself in these four areas, then how can I expect to ever get out of pain?

Of course, no amount of nutrition is going to cure my bone marrow disease or bring down my high platelet count (I don't think so, but who knows?), but I have to believe that I can at least purge a resistant infection, or cool down the wiring of wayward nerves with proper nutritional attention.

As my pal Tom mentioned this morning, "Action is always the answer," which had that lovely ring of truth. I could ruminate to death on the "meaning" of all this crap, inherent or otherwise, but at the end of the day, if it's to happen at all, it's action that will get me out of pain...something that will happen as a result of something I DO.

I will start this new eating plan tomorrow. I'll post results as they develop.


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Note: Pictures are random selections from my illustrated journal. They have nothing whatsoever to do with this essay. :)


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I wish you all the luck in the world. This maybe a way to cleanse your mind and body, which intern might cleanse your pain sensory nerves. Who knows, if you don't try it you always wonder. Keep in touch!
R~~
I do hope that this will begin to give you that sense of confidence and control that you want. Action is the key to taking control of our lives rather than letting them control us.

Good luck.

Monte
I enjoyed this very much, both the words and the random drawings.
I try to remember what John Lennon said: There are no problems, only solutions.
Good luck! I will be interested to hear how this goes for you. I have taken out caffeine and alcohol for medical reasons and I am probably the only person in the entire world who misses them every day. What can I say: I like coffee (a lot of it!), chocolate and wine. Maybe you will convince me I should feel otherwise.
Yes, Mary Ann, this is exciting! Even making the decision to try something you haven't done before (or at least for a long time) is a step in the right direction. And even if your horrible pain doesn't go away completely, perhaps you'll find new ways of dealing with it, when you're more healthy overall. Please do keep us informed about what happens next! Rated. D
Oh very good. People keep saying that what we eat has to do with things.

Are you working with an anesthesiologist at one of the university hospitals? It's a new field, but I met one of them at a lecture a couple of years ago, and they have things.
Ambitious experiment - which tells me there is merit in it! Wishing you peace and strength as you gently purge your system . . . and looking forward to reading about whatever comes of it. Blessings on you, Mary Ann . . .
I think you are on to something. Physical/mental/spritual health are all connected. I don't see how this couldn't help you. I, too, sometimes ruminate at the expense of action, so I am glad that you are doing.
Keep us posted!
Best of luck to you, Mary Ann. While merely suffering from beign overweight (certainly a self-imposed condition), I went to more healthy eating, very little wine (alas), and regular exercise last year. Felt better than I had in years. And a dear friend of ours who developed, and survived, breast cancer adopted a vegan diet and a calmer lifestyle and is still going strong 30 years later. I hope your experiment works for you!
As a lover of meat, a veggie diet is out of the question for me, but I do like fruits and vegetables too. I had a toothache recently that crippled me for most of a week, so I must take my hat off to you for having the courage to deal with all your chronic pain. I do hope you 'experiment' yields you some positive results. Action is the key. I like that and will borrow that from time to time. Best of luck to you!
Wishing you good luck and will look for your posts as you report progress!
Thank you everyone! I'm on Day Two here, and so far, results are very interesting! As a few of you mentioned, I agree that coffee and sugar are far more powerful than we realize in any number of ailments.

I'm leery of reporting any good news, because it's too early to tell, and I don't want to put the whammy on it. :)

One interesting thing: I don't usually have an appetite in the morning, which is why I drink coffee. But this morning, in taking coffee out of the equation, I found that I was *quite* hungry while making my morning smoothie, which was milk, yogurt, protein powder, bananas and raw almonds. Oh, and some real maple sugar. It was delicious! Hmmmm....interesting.

Again, thank you for all your support!
I don't think you are doing anything wrong, it just happened
however, some changes may help, why not see?
Wowza! This is way cool, MaryAnn! All the best to you. I can only see Good in this. May this be gentler and easier than you could ever imagine......
Wishing I could go to the market with you.

I like you much.
Before I even read this, I have to say you look very pretty bald. Seriously. Now I have to go back and read.
So much here resonates with me. I, too, believe in the power of good therapy and of looking long and deep into the black holes of our hearts where fright lives. I have experienced great transformation in doing so. And I would wonder, too, looking in the mirror, what the fuck did I leave behind to cause such pain when I thought I'd been so complete? I'd come to your same conclusion, that life is random and unfair, when I had thought it was somehow within my control, at least my health anyway. I hope you find some meaning and compassion in this crazy dance. I'm making you a favorite because I want to know how you're doing.
I think it's great you're really trying to take care of yourself! Just remember that going cold-turkey on caffeine and sugar can also do a real number on your system so don't get discouraged if you feel more "off" before you start feeling better.

And part of the story or not, I really do love your artwork. The spritz bottle of Murphy's made me think of that wonderful smell on wood and leather. Yum!
Hey MAF.

Great post with a real "ring of truth". I love Tom's wisdom: "Action is always the answer". Truth and freedom always go together, as you pointed out in paragraph. Jesus also said that (John 8.32).

On a side note, I love your artwork. Thanks for including it whether or not it applies to the post.

Your Friend,
Dave