The Drawing Board

a journey in chronic pain

Mary Ann Farley

Mary Ann Farley
Location
Hoboken, New Jersey, USA
Birthday
January 18
Company
www.maryannfarley.com
Bio
In 1999, at the very same time I was diagnosed with a serious blood clotting disorder (Essential Thrombocythemia), I also felt my face explode in a type of pain that no one could explain. After 13 months, I finally learned that it was osteonecrosis of the jaw (also known as NICO), a complication of the blood/bone marrow illness. I've had untold numbers of surgeries during this time, having spent most of it in pain. In 2004, the blood condition caused an internal massive hemmorhage during which I lost 70% of my blood volume, which in turn made the jaw infection much worse. This blog will detail my journey with chronic pain and all of its accompanying complications and emotions. I'll try to be as honest as possible without shooting myself.

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JULY 27, 2010 10:29AM

Faith, Art and Power Ball

Rate: 8 Flag

It's been so long since I’ve made an entry. In re-reading my last post, it's inspiring to report that my apparent acceptance of this chronic pain has had a lasting effect, one that has produced a stretch of creativity I haven't had in years.

My new apartment is exploding in colors, with the walls recently painted purple and light moss green, and new paintings hanging everywhere. I’ve also been experimenting with a new painting technique, whereby I stencil antique lace patterns on a canvas, then embellish them with images and pastels that work within the shapes. And I’ve been creating dozens of my baseball card-sized paintings that feature my little glamour girlies as exercises in color and composition.

I’m even getting up at the crack of dawn, excited about the day, and about the morning in particular, when all is quiet, except for my cat, who is beyond excited herself at the prospect of her favorite wet food so early in the day.

Yet the pain persists, and during the past few days has been worse than it’s been all spring and summer. The other day I was helping my friends move and I forgot to take my second dose of daily pain medication, which perhaps was the mistake that set off this new round of trouble. When one suffers with pain, it’s important to stay ahead of it by taking the meds before the pain seriously sets in, as once it starts, it’s much harder to bring down.

Yet something has decidedly changed in my response to chronic pain, and I’m a little baffled by it. During the past few years, a new round of screeching pain would have sent me reeling in sadness and a sense of defeat, but something in me has indeed changed as I find myself annoyed by it, of course, but somehow unperturbed by its relentless pursuit of my soul, which is what it felt like for so long.

I’d like to say I’m not letting it in anymore, but that would be lying a bit, as the fear pain brings on is very real—the fear of what’s really happening in my face and jaw (is the bottom-line condition getting worse?), the fear of what all these medications are doing to my body (can my compromised liver handle them?), and the fear that, well, I somehow may die of all this, and I’ve no idea why I fear that, frankly. If there’s an afterlife, great, and if not, well then I won’t know about it, will I?

There are still moments in the day, too, where exhaustion overcomes me, probably due to the meds, and my life can continue to feel like an endurance test. I also wonder if this creativity burst is a true personal achievement, or the result of me recently cutting my Zoloft in half, in which case I could be experiencing a touch of hypomania (which has occurred in the past) instead of a divine insight that has produced a creativity spurt.

While antidepressants can be lifesavers when our brain chemistry results in profound depression, they can also tend to trim off ALL extremes—not just the lows but the highs as well. And they can affect our mojo, which is why I can’t remember the last time I had a sexual thought. I must confess that’s been the real reason I’ve decided to go off Zoloft, as how in the world will I find romance in my life if a bowl of ice cream seems more exciting than a passionate kiss?

Yet the decrease in Zoloft can’t account for the slow return of my faith, which has perhaps surprised me most of all in recent months, particularly since the whole notion of God as I understood him for so many years has had nothing to do with it.

When my life fell apart in 2004, I now wonder if my sense of shattered faith was really just the beginnings of a long grieving process for a loss I just couldn’t accept—the loss of a pain-free, healthy body. As I was raised to be so damn perfect, even an imperfect body was so unacceptable to me, as I could no longer be the achievement-oriented Mary Ann, who defined herself so completely by her accomplishments.

Pain has been a cruel teacher, but the lesson has nevertheless been learned that accomplishment should be the by-product of a life well-lived, not the goal. There’s certainly nothing new about that insight, but it’s new to me, and also liberating, as finally it’s just okay to enjoy the day for no damn purpose at all.

One of my biggest pleasures in life now is going to the dollar store with my mom and loading up on gifts for my 3- and 5-year-old nieces, who think us the greatest nana and aunt of all time, due to our apparent bottomless treasure chest of water pistols, angel wings, and beautiful jewelry sets, all compliments of Dollar Daze house of goodies.

What I love, too, during these outings with my mom is our hilarious bickering, which is much like that of comedienne Kathy Griffin and her mom Maggie on My Life on the D List. My nutty mother simply can’t resist telling me that a stop sign is coming up, to which I’ll reply, “You mean that red octagon shape with the letters S-T-O-P on it?” It goes on like this during our travels to the food store, post office, and of course, the liquor store, where much like Maggie, my mom buys the cheapest white wine on the shelf, not because it’s a bargain, but because that’s the one she likes.

If anyone had told me 15 years ago that these are the things that would bring me the most happiness in my life, I might have looked at them with a befuddled stare, as the ambitious Mary Ann back then was the destined-for-greatness singer/songwriter, which I now know had about as much chance of success as me winning the multi-state Power Ball.

Tens of thousands are called in the entertainment field, but few are anointed for that kind of accomplishment. In no other field is sheer damn luck such a component of whether or not one succeeds. If you’re an attorney and you work hard, you’ll do well. But even if you write the greatest songs of all time, whether or not anyone hears them on a large scale is largely out of your hands, no matter how hard you work at it.

Am I proud of my songs? You bet. But do I care that they didn’t land on the top of the charts? I care only in the sense that I believe my songs would have been a good and true addition to the pop canon--something that would have made people happy. But like all things, to dust, too, they will return, just like all the hit singles and albums that did make the charts, and I’m fine with that.

I’m fine with a lot these days, it seems, no doubt fueled by this wonderful creative phase. Nothing makes me happier than to feel like painting is a way to goof off--a naughty thing I’m doing when I should be doing something more serious, like earning money, of which I have none, by the way. Never in my life have I been this broke, but never in my life have I felt this curiously content, pain and all.

Geez, I hope this isn’t hypomania. Every morning I say a prayer I learned from the teachings of Florence Scovel Shinn, a woman who wrote in the 1920s with such incredible wisdom. I pray, “I give thanks for my perfect health, my perfect wealth, my perfect love and my perfect self-expression, under grace, in divine ways.”

The first part is said in the present tense as a way to feel gratitude, even if those things haven’t manifested in my life yet, and the last part is said in a way that reminds me that I want those things only as the universe intends me to have them.

Either my prayers are finally working, or I’ve simply stumbled into a better time in my life, which is okay, too, as I’ve no problem with the notion of a little bit of luck. Maybe it’s time to play Power Ball.


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Artworks here are posted in my Etsy Shop for just $9.99 each.
Apologies if this isn't OS protocol, but as winning the lottery is highly unlikely, I can't resist plugging these little beauties. Remember, they're originals! :)

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Comments

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I am SO glad to see you again! I've thought about you so much. Never did anything about it, obviously, but my thoughts went out to you nonetheless.

It sounds as though you've turned a very important corner in your thought-life, Mary Ann. I do believe that most things that we can't change are better dealt with by accepting them as they are. Seems they lose power when they're simply acknowledged and accepted. The difference between giving up and giving in, I suppose.

I so love your art, too. I wish I could buy some--but I'm as broke as you are. Living on only Social Security makes for a whole new set of circumstances that have to be accepted. And that's OK. I have enough food to eat and iced tea to drink, a roof over my head in a safe building and neighborhood, and friends, books, knitting, etc to keep my mind occupied. Life is good.

Welcome back, Mary Ann. I'd like to hear more when you have time to write. I love your style. It's clear, concise and lyrical--just the kind of writing that keeps me coming back!

Rated. D
I collect baseball cards. I'm going to head over to your Etsy Shop.
Even though you don't post that often, I remain a fan of yours.
R
Chica, it is good to see you again! I admire the way you address life, and am so glad you're having some "good" time . . . here's hoping that you get increased mileage in your well-being.
Very inspirational. So glad to hear you have turned the corner. I hope this helps others with the same disorder
I am so glad that you are back and happy and painting. I can't tell you. You are very talented in many ways. It is strange that sometimes when we pursue the things that we think will make us happy, they don't. I guess we have to try to want for ourselves what God wants for us.
Yarn: What lovely thoughts. Ya know, you might want to check out Etsy yourself to sell some of your knitting. It's such a *wonderful* place, and such a community. And people really buy stuff! Be careful, though--make sure your credit card is FAR away while you're browsing. Like you, I'm on SS and so have to be so careful with my spending. However, you really might be able to sell some things! There's just nothing like the homemade item. I'd love to see your knitting, by the way!

Littlewillie--It's been so long since I checked your blog. I'm gonna go over there right now and read, as your writing is always such a delight.

Owl--Thanks for such kind thoughts. From your lips to God's ears!
I'll swing by your blog, too.

Jeff and Ellie--Thank you, too, for such kind words.

And Delia, you are wise indeed girl. It's the old "follow your bliss" thing, right? Not "follow what you think you should be doing." Why did it take me so long to learn something so simple?
Hi Maffy. Thank you for sharing your journey. I'm so glad you are discovering joy in the midst of your pain... your cat, the dollar store and the fun of sharing simple gifts, passionate interaction with your mom, your songs, and, of course, the creation of your delightful "glamor girlies". They're great... the composition, emotion, and color. I especially like "Eleanor Rigby" which I posted with your permission a year or so ago. Thanks, Maffy. Dave
Mary Ann,

I LOVE ETSY! So glad to hear u sell on that site. And glad to know about your different vibrations these days. Who can resist purple walls?? Lol. Thanx for the Shinn prayer. I'm usin' it! As far as the resurgence of your faith, or how ever u want to name it, have you ever had an altar in your home? I have found it quite meaningful. Powerful, and deepening of my faith and relationship with the Holy.
Bless you and all your gorgeousness in the world, and your willingness to learn, and SHARE. love you! annie