The Drawing Board

a journey in chronic pain

Mary Ann Farley

Mary Ann Farley
Location
Hoboken, New Jersey, USA
Birthday
January 18
Company
www.maryannfarley.com
Bio
In 1999, at the very same time I was diagnosed with a serious blood clotting disorder (Essential Thrombocythemia), I also felt my face explode in a type of pain that no one could explain. After 13 months, I finally learned that it was osteonecrosis of the jaw (also known as NICO), a complication of the blood/bone marrow illness. I've had untold numbers of surgeries during this time, having spent most of it in pain. In 2004, the blood condition caused an internal massive hemmorhage during which I lost 70% of my blood volume, which in turn made the jaw infection much worse. This blog will detail my journey with chronic pain and all of its accompanying complications and emotions. I'll try to be as honest as possible without shooting myself.

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MAY 28, 2011 4:44PM

I Seem to Have Misplaced My Life

Rate: 18 Flag

Lady Gaga is everywhere. When I scan the channels there she is--in yet another interview, another video, another performance, another commercial. And I admit, I can't get enough of it.

But while I'm enjoying the ride, there's a lingering malaise that's sitting in the pit of my stomach like an undigested dessert, and I'm getting a tummyache.

It's strange listening to Gaga, because her music has reignited a love of pop that I haven't felt in a long time, and I feel something like a teenager again, when music was the sustenance of my existence. But here's the rub: I'm not a teenager anymore--far from it, in fact--and all that went with my love of music in those days is long gone.

For example, when I listened to pop music as a young person, it stoked the dreams of me doing that myself one day, and so much of what I chose to do was put towards making those dreams a reality. As a kid, I dutifully took my music lessons, and as I got older, I joined bands, developed my songwriting and performing abilities, put my own band together, and hit the road. I recorded and released two CDs, was a critics' darling, and came close to publishing and record label deals, which always ended up falling through.

Undeterred, I kept at it, but as the years began to pass, an eerie feeling soon emerged, which was this: If my dreams don't come true, if I don't end up a truly professional singer/songwriter (who no longer needs the day job), then what will happen to me? Who will I be without my dreams, or worse, without those dreams fulfilled?

For years, even decades, I didn't allow those worries in, because like any good young person, I thought I would live forever. And I believed, perhaps naively, that provided my heart was in my work, as long as I didn’t sell out, then everything would turn out fine. There was nothing to be concerned about. I worked hard, my music was good, and I was committed. What could go wrong?

Well, what went wrong far exceeded anything that I could have imagined in my wildest dreams, as my health, which was never very good in the first place, took a dive in 2004 that brought me to a full stop. And just like that, it was all over.

While I’ve pursued other creative interests during this time, like writing and painting, and even dance for awhile, music will always be my first love as songwriting is what I do best. But when I became so ill and was racked with such unrelenting pain, there just wasn’t anything to write about anymore, and I knew I was done for a very very long time, maybe for good.

Whether it was creative exhaustion or the inability to put physical suffering into a song lyric (or a combination of both), I knew that my music days, for the most part, were behind me, but I was just too sick at the time to grieve over it, as most of the time, I was just trying to stay alive.

But in the last few months, I’ve noticed that my spirits have picked up, which has led me to picking up my guitar again, right around the same time Lady Gaga began promoting the release of her new disc. While her songs inspire me so, I painfully realize that I’m no longer the teenager who can fantasize that I’ll be like her one day. And frankly, I don’t know what to do with these feelings.

In short, I feel like crying all the time it seems, despite my rebounding spirits, because the days of dreaming about a music career are over. Let’s face it: No record company is looking to hire a 52-year-old pop star.

Some have suggested that I get back into the game as simply a songwriter, but even that takes money (to record demos), hence the realization of another grim reality: I’m flat broke. This illness has wiped me out so completely that I live in a Section 8 HUD apartment, am on Social Security disability, and am in chronic pain most of the time. This is NOT how I expected my life to turn out.

So when I see Lady Gaga in all her glory, talking about how she “stuck to it” to achieve her dreams, I think of the millions and millions of other aspiring performers who also gave it their all, sometimes for their entire lives, and have ended up with absolutely nothing, other than some wonderful songs that no one knows or cares about.

On a positive note, I’m so skilled as a songwriter that I no longer have to hone my craft for a lifetime in order to pen a tune. Instead of dreaming about it, I can pick up the guitar or sit at the piano and just do it, provided the inspiration is there, which is a BIG proviso, by the way. Without inspiration, I’m no better than a no-talent hack with nothing to say.

But the negative note seems to be ruling the day, it seems, for at least this day. I just heard a passing car blasting Gaga’s “The Edge of Glory,” which is an edge I sat on for a very long time. The scales just never tipped my way, and there’s a giant ache now where my dreams used to be.

Maybe it’s time to grieve for them, as I gave up everything to have them…marriage, children, and careers in other fields. I went for it 100 percent without a net, and now I’m splat on the ground after having fallen off the wire.

I don’t regret it—not a bit. But I feel just so so sad.

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About me:

A live performance, 2003: http://www.youtube.com/watch?v=CKJV2u9uh2M&feature=related

My Etsy Shop (what I'm doing now): http://www.maryannfarley.etsy.com

A recorded song, with photos of last October's Occupy demonstration: http://www.youtube.com/watch?v=KTKobZr19c8&feature=related 


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You inspire me. You inspire many others.
You must do the thing you think you cannot. Write. And then share. Search for other aspiring songsters, team up and create. Do this because it feeds your spirit. It is what you have to give. So give it.
I relate to this too too much. You wrote about what many of us here must have gone through or are going through. You wrote about it beautifully. We all should wonder why there isn't a need for a 52 year old singer songwriter. Susan Boyle sells millions.
It's absurd and sick that our dreams need to be fulfilled by 30 or we're finished, but it's our society's reality.
As another chronic pain victim who has had his career destroyed by disease I understand your loss. Some days just continuing is a all encompassing struggle.
"We endeavor to persevere."-Churchill
Mine is the opposite I never went for it and satisfy myself anymore with singing karaoke and posting them here sometimes. I would love to hear you sing and hope you soon realize you really did give it your best but you still have it and can still enjoy what you loved about it in the beginning. You can always sing right?
My life has been very different from yours but I soooo understand the feeling of possibly having to give up on your dreams. As others have mentioned, you could write your songs and find someone to partner with, who has the skill to sing and the money to make the demos, but needs your songs. It may not be exactly what you dreamed of when you were young, but it is better than giving up.

Now if I could just convince myself...
I had dreams.. I am 60 now so I write about them now.:)
I rated this before but my computer crashed so came back to comment.
rated with hugs
With your talent and passion, your age should not be a question. You are still young and as long as you can maintain your physical strength, pursue what you have devoted your life to. I hope you'll overcome the sadness, the important thing is that you have no regrets. That's a big blessing. ♥R
There's something about 52, with or without the complications of pain. You've been through the mill but you can still play ( and write ! )

I seem to be echoing Lunchlady all over the place lately but Yes ! Give us a song ! If Brassawe can do it ( check out Cleva over there ) you can !

ps. "Without inspiration, I’m no better than a no-talent hack with nothing to say."

Never a truer word, Mary Ann. Thanks for this post.
Sometimes we just can't get there. I wanted to be the next Doc Watson on guitar, until I met the real next Doc Watsons--Tony Rice, Riss Barenberg, Norman Blake, and so many others. Then I saw the futility in my quest, although the quest--never to come to pass--still had value. But it was Time to move on. So should you.
There will be other dreams, attainable dreams. Reach for them.
My goodness. I come back to see if there are any comments, and I see this. Thank you all for such loving support.

Fernsy--I think you've hit on something that everyone here would agree with. Yes, why ISN'T there a need or a place in this world for a 52-year-old singer/songwriter...someone unknown.

If I were a lawyer, I'd be at the top of my game at this age, and respected for all of my experience. Yet as a singer/songwriter, when I'm ALSO at the top of my game in terms of my craft, I'm somehow not valued. How insane is that?

Again, thank you all for such loving thoughts.
Yeah, too bad life didn't come with unlimited nets!! ~nodding~

:)

Rated. I'm wondering what I want to be when I grow up, so far, a race car driver, a forest ranger, or a famous movie star!! :D
Bob Dylan's 70. Paul McCartney's 68. Your age shouldn't be an issue, though I know that for some moronic reason certain folks consider it so.

Success is at least in part, a lottery. You had a lot of competition from folks who may have been better connected ("It's who you know, not what you know").

I guess one piece of advice I'd offer you are these four words: Forgive yourself, a lot.

Rated, with hugs.
i'm young. and mostly very lucky.




sometimes i forget that.
It is super hard. There definitely is a risk to try an artistic career. That is why parents often try to talk kids out of it.

I was just thinking much the same thoughts. Millions of people who try an artistic career end up in the same situation. It is hard.

I wanted to be a writer, but then I went through a catastrophic divorce and developed major depression and OCD. My brain chemistry changed, I just could not write as well. I could still write but not nearly as easily.
I am 60 and I have some of the same regrets, and wondering if I made a mistake to do this. I think it just goes with the territory. But if we had not tried, we probably would not have been happy. We would have been haunted with the feeling that we could have made it but were too chicken.
I have not faced the health tragedy you have. But I have some of the same regrets.
Just be gentle with yourself, and try to survive. I think you did the right thing. At least you had some success before this all happened.
do you have the means to post some of your music here on OS? I think it would be great to hear it....

Just a thought.
Very honest, very good.

Your reflections remind me of a teacher I used to share my feelings with. I told him, "But its too late for me to be in the Olympics or become a ballerina." And he said, "Yes but you can still play sports or dance."

Or I thought about artists who get better with age - like Neil Young or Bruce Springsteen. It's not all about a record company and becoming a pop star; it's about staying true to your art and advancing it - for yourself. Not that you're asking for advice - and sometimes I get annoyed when OS becomes too focused on the problem and less about the writing - but your art is your art and always will be.

You're quite the talented musician by the way. I still remember the videos you posted a while back. You should have stuck one at the bottom of this.
Beth--Thanks for such thoughtful feedback. Of course, it's always about the art and what it does for us, regardless of whether anyone is looking or listening. But I wrote something to a friend recently that I regretted not putting into this essay, and it's this: Very often, what sustains an artist is a relationship with his or her audience. As in a love affair, if too much is given by one side, it's doomed to failure.

It's really not all that different with art. An artist needs to be heard and understood, as it's the dialog between artist and audience that provides so much fuel to continue. Just look at how much appreciation Gaga constantly gives to her fans.

While I did have my share of appreciative fans, maybe a part of me was greedy--I wanted more. I prefer to think, though, that I was just the good mother to my songs, who wanted them to go out into the world and be all they could be, as I like to think they would have added something of value to the public song catalog.

Maybe that's what pains me most...that, more than me, they never got their chance. Not matter what your creation may be, it will always be painful should a piece of work not find its audience.

Whether or not one chooses to continue is an entirely different matter.

Thanks again for such helpful thoughts.
Make a new dream.One that you can make come true.You can do it .I can so relate to needing to alter my dreams because too much time has gone by and for whatever reason I am not going to achieve what I wanted to at one time .Maybe there is a bigger dream for you .Or maybe a smaller one .Just choose.xoxo
Mary Ann,
I was delighted to log onto open.salon this morning after a lengthy absence on my part to find that you have a new post. As I mentioned to you before, the first post I read on open.salon was one of yours that I found through a Google search for a certain subject and I found you, and since then I've read all your posts and look forward to new ones because you inspire me.

I'm sad to hear about your aspirations not quite being fulfilled and again find that my life is similarly parallel to yours in some respects. I too have spent all of my life thus far striving to become a professional singer but with lack of a supporting network of people around me, I've found it hopeless to continue on with my dream.

Again though, reading your post, I've found a spark of inspiration that's slowly growing. I may not become a famous singer and being a pessimist I am certain I won't but I'm still feeling I can accomplish something with my music. I've never toured, never had a full band, but perhaps there is a chance to share my music with some, to give life to my dreams, if only for a brief moment, for a small crowed.

I hope you keep with singing and songwriting. I'd love to hear you sing and read/hear songs you've written. You inspire me and I hope you continue to find inspiration for you and know that your fans here will always think of you as a star!
Let's go to Jackson.
Grula, is that you? :)
Wow that was really good because it refocuses me. I am with you ...Baby...can somebody still say that?