Some turmoil is nesting within the calmness of the Open Salon community. Do you sense it? Do you read it? Do you avoid it? What’s this disruptive commotion that I write of? It’s insensitivity, a virus that’s invading the decency of all who aspire, inspire, and write within broadband’s universe. Why does the ignorance of a small few cause such a disruption to what is good?
We bloggers are a unique breed; we expose our feelings through a veil of anonymity in the hopes that some one will read and connect to those thoughts—emotions framed within essays, short fiction, opinions and visual media: photographs and video. Agreement sometimes takes a backseat to discourse; civility, again for a small few of those who either blog or are just readers, sometimes surrenders to rudeness. But common decency should never concede to vulgarity, threats, or behavior that chases away a resident of the Open Salon community. How sad…
Life experience is a wise teacher. Memory is its textbook. So I will read from mine in hopes that I don’t pontificate—just educate.
Her name was Sandra. She was a genetic mixture of African-American, White, and Native American. She was a single mom who supported her two children by stripping, hooking, and selling drugs—when she wasn’t
herself using. But Sandra came into my life not as a mother, stripper, hooker or drug addict; she came as the first diagnosed HIV patient to be admitted to Cedarcrest Hospital—the psychiatric hospital where I worked. She was in her mid-twenties; the year was 1987.
Panic doesn’t describe the chaos that became Sandra. Before her committal, in-services were held, seminars attended, fears expressed to union reps and undeniable prejudice permeated planned treatment. In 1987, Sandra had AIDS, not HIV, and her ability to contaminate and spread death through casual contact was the paramount concern. Sandra belonged in a hospital that dealt with contagious diseases, not a
psychiatric facility still haunted by the specter of tuberculosis. We healthcare professionals were irrational in our fears. Shaking Sandra’s hand, touching her skin via restraint, breathing her words, having her sweat touch us, a needle prick us, that’s all it took to invoke the demon of contamination. The spread of her AIDS (still HIV) turned us into HAZMAT workers; pioneers in dealing with confusion. Blood, spit, open wounds and unprotected contact were things to fear.
Medical gloves became the norm—some workers resorted to wearing industrial gloves one would use if touching corrosive material. Gowning-up meant protecting your clothing with a paper costume that would keep AIDS from contaminating your loved ones once your shift ended and you went home. My God, we were stupid, for fear was our leader—ignorance our ethics.
One must be aware that three years before Sandra’s arrival, hepatitis B reared its ugly head in the healthcare community. Three painful inoculations were required to stave of being infected by those who would bite, spit or throw other body fluids at us. Sandra, though not combative, could eventually become so—all available literature suggested a quick decline, emotionally and cognitively. Sandra was a walking time bomb.
One evening, I was assigned to watch Sandra, not talk to her, not counsel her, but watch to make sure she didn’t mingle with the other patients. Our unit was co-ed; Sandra was attractive and flirtatious. Her AIDS diagnosis was confidential. Sex happens within the confines of a locked unit.
Sandra’s treatment plan consisted of one thing—preparing her for discharge. She wasn’t psychotic, she understood her preconceived death sentence and wanted closure for her children. That if anything caused her anxiety. If she was suffering from heroin and cocaine withdrawal, she didn’t show it, either through chaotic vital signs or sickness. She just sat across the room from me eating a Milk Way Bar, silent but observant to other patient activity. She smiled at me; I nodded and moved closer asking
if she needed anything. She smiled again, said “no,” and broke off a piece of her Milky Way Bar—her bite mark visible on the end of her offering. Without thinking, I took it, chewed and swallowed it. She laughed. Then I realized I broke with protocol; my sweet tooth ignored irrational fear and prejudice—for that’s what we healthcare providers were: phobic idiots intent on prejudging and inflicting our ignorance onto Sandra. We became the disease. We became intolerance.
I’d like to say Sandra’s story has a happy conclusion, but it doesn’t. Numerous admissions and discharges followed. Her children were taken from her and placed in foster care. She was raped and molested—sexually by a degenerate coworker, spiritually by a healthcare system that deemed
her sub-human. The last time I spoke with her was in 1999, three months before my retirement. Her HIV had transitioned to AIDS; her frailty was exasperated by onset dementia—she was dying. Her last words to me were, “thank you.” I don’t know if she was lucid, but I like to think she was thanking me for eating a piece of her candy bar. How I love to think that.
Sandra taught me much about myself. My coworkers who aided in her treatment also learned from her. During the 1990’s, many HIV patients were admitted to Cedarcrest; tolerance and understanding became part of their treatment. Two coworkers died from that hideous disease. Why…?
Yes, tolerance can be learned. Kindness can be applied. The virus I call “insensitivity” can be controlled, if not eliminated. Continue posting and reading the brilliant writing that Open Salon offers you. Learn from it—enjoy it. Let it become a piece of your life… perhaps a taste of a bitten Milky Way Bar. Sandra would approve.


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Comments
I loved your story as well Chuck. The world needs more tolerance and I need to practice what I preach as well. Some people can't be changed. I know it would be hard for someone to try and changed me, so I'm letting bygones be bygones. I will focus more on those I love on here and care about and putting out whatever drivel comes to my mind.
Rated for a man whom I respect a lot (you), and a man I miss a lot and respect (Monte). And for a wonderfully thoughtful piece.
May peace and forgiveness envelope us all.
STRONGLY rated in hopes to see monte soon, and to never again be so embroiled as I recently was.
Rated
The fragility of humanity, fear and hunger lead the herd.
Thank you for the read.
Thank you all.
I don't understand why so often those who confess to be the most religious are the most frightened to die.
I had not experienced the discord and ugliness he spoke of - perhaps I'm one of the "avoiders" you spoke of. I enjoyed his posts and always left comments telling him so. I also appreciated the supportive comments he left for others. I wondered if he felt a lack of balance in the kinds of stories and opinions that received attention? Sometimes - not always - the quiet, gracious, gentle posts get ignored for the salacious. Kind of like life.
I will miss Monte and hope he returns. As our theologian and man of God, he might never know the import of his words - even if the ratings don't reflect it. Every person who stands for grace and compassion makes the world a little lighter, and Monte is one of those gentle lights.
Your loving example of Sandra woven into a tale of reason and tolerance is well intentioned and appreciated. You are a good friend, and a larger than life presence full of gentle, beautiful words of wisdom.
Rated
--RATED-- multiple thumbs, if possible
And the reason for that is exactly what Mr. M names here directly--intolerance.
It is here. And it's rampant. The sense of "for us or agin us."; like a snake running through the sewer, is very real. And Mr M calls it out beautifully here. He did it so well that he even made me LIKE a "Three Dog Night" lyric---something I didn't think possible.
The challenge is that intolerance sells. It's big business. It's the fodder for what fuels most news. Few care about Patti Blago's normal sister. ALL OF US pay attention to people who eat tartantulas. Take that up a notch and the fact that their might be nuances of opinion to the writing on torture, religion, or what it means for men, women and countries to play nice with each other is often not tolerated on these pages. One learns to shut up or get slapped down hard.
And this has NOTHING to do with editors. Even when the tone of OS or salon gets as shrill as it sometimes does. Editors are there to run a business. To attract readers. I forget that sometimes. Like last week I wrote something called "Die Yuppie Scum" just so Mommy and Daddy Editor would pat me on the head and say "Good boy Roger. Here's your candy!" And it didn't work. So I looked at the piece the next day and changed the title, the picture and edited it myself. And it was one of the most thought provoking pieces I had ever written. Without a whiff of intolerance. Course I still wanted the candy.
But I wanted the good writing more. Even if it's only seen by a small, select few.
Nothing wrong with good, spirited debate. But when the intolerance creeps in, perhaps we can all follow Mr M's lead and call it out.
That's what kills it. Calling it out.
Watch Joan Walsh do it on TV. It is possible.
And maybe if we decided to make people feel welcome when they came by for a visit. . . .
Maybe it's possible to do that and run a business too?
Isn't it?
Thank you for always being a kind and considerate source of light. I'd share a candy bar with you any time.
Great post MM :)
And, dear Chuck, the story you have chosen, and the words used to tell it are a precious: "Yes, tolerance can be learned. Kindness can be applied. The virus I call “insensitivity” can be controlled, if not eliminated. " Fantastic, I believe the same.
Kisses,
Marcela
Here are the things I think about when dealing with angry or caustic people:
1. They have a right to an opinion and to express it here.
2. Rude and angry people often don't understand that it doesn't help them to rant and rave.
3. It is my choice to become upset over it, and I can choose otherwise at any time.
4. If people are trolling around spoiling for a fight, it is rewarding to give them one. If I want them to stop, I ignore them.
5. It may be possible to bring the argument back to the issues at hand by offering kindness and respect.
6. People who are mentally ill--and there are a lot of us--have less control over their responses than many others.
7. If I'm upset about something I read, I can leave the situation by navigating elsewhere.
Your compassion for people always shines through, and I value knowing you. rated.
Fear can be a very strong motivator. Ignorance can only be disposed of through education. We have learned much since the beginning. May we stay open to all the lessons on this journey.
denese
RATED
"Thank you, Chuck. I appreciate it more than I can describe. You have become a good friend in a short time and I always marvel at the goodness that is in this world that shows up when you wonder whether there is much of that left. Your post shows me, once again, that goodness and tolerance can prevail.
God gave us that capacity which is the only way we will ever begin to overcome evil: it must be absorbed into love and goodness -- for fighting it only creates evil for evil.
I will be back after this break, after I get myself to a better equilibrium and am able once again to not let all of the intolerance and stupidity get to me."
Now I'm craving a Milky Way Bar!
:)
Thanks for the lesson.
After some time in the school of cruelty that is the world, I finally learned to dismiss the cruelty of those that are of no importance to me personally - and to forgive the cruelty of those that were supposed to be close. The latter is of course the hardest.
Breaks are usually good. Sometimes it is best to shrug and walk away for a bit.
Love and kindness goes so much further than anything else, one will always remember them more in the days to come.
Thank you for a such and wonderful post. I would eat any piece of candy bar you offered. You are such a loveling, thoughtful and caring person. It speaks loud and clear in your posts and in your comments.
I hope Monte enjoys his time away, rest and gets lots of relaxation. Then comes back with a refreshed outlook and knocks our socks off with one of his wonderful and amazing posts.
Thank you
Those who do choose to write more personally deserve to be respected. Everyone deserves to be treated with respect.
I received Monte’s PM and was saddened to read it because I was only just getting to know him. Much of what he said about the fluffing and fighting resonated with me. OS was presented as a place for creative artists and it has become something of a nightmare of triviality and meaningless bile. There are many good people here, you among them, Mr Mustard, but there is one less if Monte has gone away.
As we are constantly being told, “’Open Salon’ means ‘open’.”
As Chicago Guy says: “The challenge is that intolerance sells. It's big business. It's the fodder for what fuels most news.”
As you say: “But common decency should never concede to vulgarity, threats, or behavior that chases away a resident of the Open Salon community. How sad…”
Sometimes the only recourse is to walk away.
Cherie (another of the very decent people around here) says: “ I finally learned to dismiss the cruelty of those that are of no importance to me personally.” However, it isn’t easy to avoid being drawn in. Despite my best intentions I have sometimes joined in pointless feuds.
I have in some of my posts tried to bring some perspective (that in itself has got me into fights I didn’t want!). For example, deleting comments on OS is not censorship as it appears in the real world such as Sri Lanka where fractious editors get shot in the head.
Your very moving anecdote also brings perspective by reminding us of the real world beyond the playground of OS.
I wish I could commend you more than merely rating you once!
Thank you :)
Damn.