Spokane, Washington, USA
September 04
Dipping my foot in the ocean. Taking a chance. "And the day came when the risk to remain tight in a bud was more painful than the risk it took to blossom." ~Anais Nin *Cast of Characters: Mindi, The Momcologist ~ Larry, The Dad ~ Curtis, OffSpring, Age 13 ~ AnnMarie, OffSpring, Age 10 ~ Gregory, OffSpring, Cancer Warrior, Age 7*


It's been a bizarre 24 hours.

Not long after dropping off The OffSpring at school yesterday, I get a phone call from the school nurse at Gregory and AnnMarie's school. She and I have a long history and I love receiving calls from her. Yesterday was different.

She was calling to give me… Read full post »

NOVEMBER 1, 2012 3:01AM

Blood Letting

NaBloPoMo November 2012 ~ Tell us your favorite quotation and why.

“There is nothing to writing. All you do is sit down at a typewriter and
bleed.”~Ernest Hemingway 

This is what writing has come to mean for me. Yes, I write for posterity. Yes, I write…

Read full post »

SEPTEMBER 22, 2012 10:58AM

How COULD I forget?

When Gregory was well enough after transplant for us to return HomeHome, we came back to the Spokane area and moved into our family's Water Retreat. Around eight months post transplant, I was having a conversation with a friend of mine. I hesitate to share these next words. They are so… Read full post »

SEPTEMBER 20, 2012 2:32AM

Magic and Miracles

The sun is hot in the mid-afternoon Indian Summer day. He steps out of his classroom, shakes his teacher's hand farewell and stops at the top of the stoop. Scanning the sea of parents faces. Searching for me. Searching for his touchstone. I stand there and wait. It kills me to… Read full post »

Today is Saturday, September 1, 2012. Today begins the fast and furious 30 days of National Childhood Cancer Awareness month in the United States.

We, the childhood cancer community, have been furiously preparing for these brief 30 days. During this 30 day period, we will be advocating our buns off t… Read full post »

AUGUST 22, 2012 2:41AM

Beginning to break my silence.

The pull to the keyboard is ferocious. I find myself sitting before this screen constantly. Then I loose focus. My thoughts clamor for attention. "Get me out! Turn me into black and white type!" I am desperately trying to commit to sitting here, frequently, until I can find some order in… Read full post »

AUGUST 7, 2012 10:00PM

Katie Saves Gregory

I've been hoarding these moments and memories. Knowing, with such a certainty, that I cannot do the evening justice. Knowing that these black and white words cannot even begin to convey what my heart felt that night. In the spirit of posterity, I will try my best. With the understanding that… Read full post »

Part I


Even just though just a few days have passed, I am having a hard time remembering the details. I should have been writing as I went, but there was just too much going on and I wanted to 'live in the moment' as much as humanly possible.

 … Read full post »

It's been so long since I've shared my words in this neck of the woods. This is too exciting not to share with you all...... love, love, love.

It's currently 11:15pm, the evening of Saturday, April 28. Daddy is sawing logs and The OffSpring are spending the night… Read full post »

SEPTEMBER 9, 2011 3:20AM

Life In Pictures

There is so much to share. I have been struggling with sitting before this screen. Needing to be present for so many different things, yet wanting to record every last bit.


This has been an amazing summer. Gregory has successfully (so far) discontinued his steroids and Rapamune. He is noRead full post »

AUGUST 11, 2011 1:29AM

46 Mommas National Press Release

 Via: http://46mommas.com/

46 Mommas to Shave Their Heads to Raise Awareness for Childhood Cancer

46 Mommas to Shave Their Heads to Raise Awareness for Childhood Cancer

Download this press release in PDF format.

Washington, DC: “Your child has cancer.” Every week day, 46 families in the United States hear these words. This Septembe/

Read full post »
JULY 8, 2011 11:53PM

Long Term Follow Up. Number 2!

“Writing is a socially acceptable form of schizophrenia.” —E.L. Doctorow
Boy am I feeling that, right now. So much has happened over the last several weeks. So much to process. This is what happens when I need to write, don't feel like writing, avoid writing....then it piles up behiRead full post »
JUNE 14, 2011 1:01AM

46 Mommas Need Airline Tickets

Hi there!


Have you heard about 46 Mommas Shave For The Brave? We are a group of 46 mothers,  from across the nation, who have all heard the words, "Your child has cancer.". Why 46? On average, every weekday, 46 families hear those words. We 46 Mommas represent the complete/

Read full post »
JUNE 13, 2011 1:44AM

Burzynski ~ Antineoplastons

I watched this, today. Curious to see what my Brain Tumor friends/community think about this. Especially those affected by DIPG. Burzynski: Cancer Is Serious Business from BurzynskiMovie on Vimeo.

JUNE 11, 2011 8:56PM


Sixth Grade Graduation.


Nine years ago, Curtis began is sojourn through education in a classroom of peers.



I couldn't find a picture from Fall of '02. This is Fall of '03. He's 4 years old.


To say that he has "....come a long way, baby!" would be… Read full post »

Here it is. My reading from Listen to Your Mother Spokane.

All of the videos can be found here


MAY 30, 2011 5:38PM

28 More Days of LIFE.

So. This is the point where I should be doing a post-clinic visit re-cap. Just have not been feeling it, lately. It seems like I spout the same information, use the same disclaimers (over and over and over) and continue to cross my fingers.

Except with this clinic… Read full post »

MAY 18, 2011 2:35AM


You cannot tell someone, in the pit of despair that it will get better. Well, you could. It wouldn't do you any good.


I've been in that pit of despair. I've dwelt there for entirely longer than I'd like to admit. So deep that I could not imagine… Read full post »

MAY 10, 2011 9:53PM

Sunflowers are stunning, too.

Words, words and more words. I've got words coming out of my ears. Words from Mothers, words from books, words from medical journal, words from new stories. I've got so many words of others in my head, that I cannot sort them out to…

Read full post »

APRIL 20, 2011 1:27AM

I need your help.

 I have officially kicked off my 46 Mommas fundraising campaign. Copy of my first email.

Hi there~

It's been ages since I have talked to many of you. My life was permanently derailed. As you are already aware, just over two years ago, our youngest OffSpring, Gregory,… Read full post »

APRIL 13, 2011 3:15PM

So, where does the money go?

What YOU need to know about Childhood Cancer Research Funding. From the fabulous People Against Childhood Cancer (PAC2)




2010 Summary

So, where does the money go: Childhood Cancer Research Funding (2010) - People Against Childhood Cancer


Prior to Fathers Day 2007, I h… Read full post »

APRIL 8, 2011 11:24AM

A Blood Letting

I've been sitting here, shaking hands, heart pounding in my chest, gut tied up in knots, trying to decide if I should really write what I'm about to write. Which, on a normal day, I would take as a sign NOT to write about…

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APRIL 6, 2011 2:18AM

Listen To Your Mother Spokane

I cannot put into words what I just experienced.

Twelve women, all mothers, mostly strangers. Except in this town, there is only degree of separation between all of us.

We are all writers. We are all reading for Spokane's production of Listen To Your Mother. We are all baring our souls… Read full post »

MARCH 7, 2011 1:42PM


If it's true that we only use 10% of our brains, I'd like to know how to gain access to the other 90%.

Gregory has continued to battle with this head cold he has. Coughing, sniffing, really bad sore throat. No fevers. His temp is slightly…

Read full post »