MindiTheMagnificent
- Location
- Spokane, Washington, USA
- Birthday
- September 04
- Bio
- Dipping my foot in the ocean. Taking a chance.
"And the day came when the risk to remain tight in a bud was more painful than the risk it took to blossom."
~Anais Nin *Cast of Characters: Mindi, The Mom ~ Larry, The Dad ~ Curtis, OffSpring, Age 10 ~ AnnMarie, OffSpring, Age 7 ~ Gregory, OffSpring, Cancer Warrior, Age 4*
MY RECENT COMMENTS
- “I hate, hate, hate, hate
statistics &
percentages!!!!!
Almost as
much as I h…”
November 24, 2009 02:54AM - “Are you related to my
husband? Brilliant!”
November 23, 2009 12:53AM - “I know this freedom of
which you speak. Nothing like
a
diagnosis of Childhood
Ca…”
November 23, 2009 12:50AM - “Thank you for
remembering and
honoring.”
November 22, 2009 03:08PM - “Darlin' you are totally
correct in suggesting a "free"
write.
Don't ev…”
November 22, 2009 07:23AM
MindiTheMagnificent's Links
Ya know, the easiest way to navigate this Childhood Cancer road would be to stick my head in the sand, plug my ears and sing *lalalalalalalalala*. It would. I'm not wired that way, though. Today is our offical nine month diagnosiversery. Gregory was admitted on February 23rd a… Read full post »
Time is on my side. Says who?
This week has been so HARD. So many things happening. Things of which, I have no control or say in. Sounds like life, doesn't it?
This is my little pity party. Please play along. Thank you. You would think that this part would be the easiest. It'… Read full post »
Expectations, Traditions & Holidays. Oh my!
Larry and I made a decision this week. Gregory and I will be
staying at our Water Retreat through the New Year. At least.
I've been thinking about how I am going to explain our decision. I
feel the need to document how and why we are making these choices.
I've… Read full post »
YOU can save a life.
You got the news that's fit to print, now it's time for the grit and grime.
Every once in a while, I start climbing the walls. While this isolation is far from debilitating, it's so very lonely and well........ isolating. We were in a really… Read full post »
Who, What, Where, When, Why & How's
It's been way too long between postings. When it's been this
long, it feel like such a CHORE to write. I'm going to slam this
out and hope that it makes sense. Then back to our regularly
schedule program. Hopefully.
Gregory finished his course of Vanco last week. Glad it's done.
His… Read full post »
I just finished The Business of Being Born and I need to write. I've avoided this movie. Like the plague. I've had numerous opportunities to see it. Due to my own birth experiences I could not watch this movie until I experienced something more painful. I could not watch The Business… Read full post »
Good grief. My Pollyanna is showing.
I've been thinking a lot about "tomorrow". It's one of my least favorite traits. "What can I do tomorrow that will make it better than today?" It doesn't stop with tomorrow, either. Next week, next year, ten years from now. Which detracts from living today, from time to time. Thankfully I… Read full post »
Childhood Cancer and Nightmares go hand in hand.
Procrastination gets you nowhere. I've been trying to come
up with the correct phrasing to succintly puts this weeks feelings
and events into words. Hasn't happened, yet, so here
I go.
Monday was Gregory's weekly blood draw for CBC, Blood Cultures, CMV
testing, Igg Levels, Tacro level… Read full post »
"I think God wanted you and Daddy to stay together....."
I have no clever opening for today's entry. I'm just going
to let it roll and follow where it goes.
Curtis showed up around 3:00, Saturday and spent the night with
Gregory and I. All-in-all it went fairly smooth. We
watched Elf, the new Transformers movie, ate ice cream, played
Wii,… Read full post »
I feel like a broken record. (Remember those? AKA: Vinyl?
Was today really Thursday? Has it been eleven days since we left Seattle? It’s been a week of settling in and redefining our day-to-day life. Since last we met, I believe Larry had just been out to see us, for a few hours. Thursday and Friday passed uneventfully, we anxiously awaited… Read full post »
What an amazing day! A day of lounging. A little bit or organizing, too. Larry made it out to our Water Retreat for a visit. There is nothing sweeter than watching Gregory bounce up and down, pointing at Daddy through the window and screaming: "Daddy's here! It's Daddy!"… Read full post »
I do believe in Spontaneous Combustion.
What a day! Ugh! What I thought was going to be a fairly "chill" day, turned out to be one big 'ol stress mess. I set my alarm (just one of a series of alarm times.) for 8:00 to give Gregory is Tacrolimus & Zofran. He must have the Tacro at… Read full post »
Freezing cold + limited internet access = TL;DR
300 miles behind us. The last few days have been both excedingly
long and thankfully brief. Our last SCCA visit was a mere four days
ago, but it already seems like much longer than that.
Cleaning/packing the apartment took longer than I had anticipated.
As I was doing this, I was… Read full post »
An image sheds 1.000 tears.
Last clinic appointment, tomorrow. (Well..... today.) I've started the process of disengaging myself from Seattle and reconnecting with Spokane. Appreciating every thing that is in Seattle, noticing every detail, hoping to imprint it on my brain. While the time we have spent h… Read full post »
Knowledge is king? Depends on the knowledge. Seriously.
I've sat down to compose this entry a half a dozen times. I received some news yesterday that is both exciting and terrifying. (Welcome to the world of Childhood Cancer.) Gregory's leukemia is characterized by a gene mutation. Specifically, PTPN11, on the long leg of chr… Read full post »
Big fat juicy ones, little slimy skinny ones.
I itch to write. Daily. All day long. Any moment of time that is not engaged in human interaction is filled with internal writing. Except I feel like there is an expectation that you are expecting me to inspire and amaze you with my words. We… Read full post »
PSA for Cancer Families
This is really cool. The Foundation for Stories of Cancer Heroes (AKA Cancer Heroes) has partnered with Heritage Makers. Heritage Makers is…
The light is brighter, for today.
While nothing has truly changed, my world looks a whole lot brighter and is beginning to shine, again. To answer the question on everyone's lips, yes. We have a return date. We have our first appointment in Spokane scheduled. Gregory and I will be returning to the… Read full post »
The Odyssey Thus Far
My first attempt at making a video with pictures and
music. Captions and title are my next adventure.
Mimi ~ Thanks for inspiring me to do this.
The Odyssey Thus Far from MindiTheMagnificent on Vimeo. Read full post »
Working it through. Pediatric Bone Marrow Transplant
I'm wrestling with the demons, again. Trying to wrap my head, my heart and our lives around this. Yet again. I knew that Gregory's Bone Marrow Transplant would not be text book. I actually don't think that there IS a text book transplant. In the beginning they give you p… Read full post »
Is that a light I see?
Gregory saw the oral medicine doc yesterday. He definitely has some changes in his mouth. The e…
212 Days. I'm tired..........
I could sit here and give you another accounting of our last few days. I don't want to. I don't want t…
I used to know what restful sleep was.
Survivor. Man. That's a big, heavy word.
An Invitation or an Exit
I don't usually/…
MindiTheMagnificent's Favorites
Updates
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So It Was Cancer, Part 18: In Which Frank Decides To Leave
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If global warming is a myth, I'm still not buying a Hummer
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My Worst and then the Rest of Our Thanksgivings
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The river of the souls
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Of Tea and Lawn Maintenance
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ROMANCE... for under $10
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Vintage Recipe Cards: Frankfurters In Crust
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My Worst Thanksgiving Ever
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