There is so much to share. I have been struggling with sitting before this screen. Needing to be present for so many different things, yet wanting to record every last bit.

 

This has been an amazing summer. Gregory has successfully (so far) discontinued his steroids and Rapamune. He is no… Read full post »

 Via: http://46mommas.com/

46 Mommas to Shave Their Heads to Raise Awareness for Childhood Cancer

“Writing is a socially acceptable form of schizophrenia.” —E.L. Doctorow

Boy am I feeling that, right now. So much has happened over the last several weeks. So much to process. This is what happens when I need to write, don't feel like writing, avoid writing....then it piles up behi… Read full post »

I watched this, today. Curious to see what my Brain Tumor friends/community think about this. Especially those affected by DIPG. Burzynski: Cancer Is Serious Business from BurzynskiMovie on Vimeo.

Sixth Grade Graduation.

 

Nine years ago, Curtis began is sojourn through education in a classroom of peers.

 

I couldn't find a picture from Fall of '02. This is Fall of '03. He's 4 years old.

 

To say that he has "....come a long way, baby!" would be… Read full post »

Here it is. My reading from Listen to Your Mother Spokane.

All of the videos can be found here

 

So. This is the point where I should be doing a post-clinic visit re-cap. Just have not been feeling it, lately. It seems like I spout the same information, use the same disclaimers (over and over and over) and continue to cross my fingers.

Except with this clinic… Read full post »

You cannot tell someone, in the pit of despair that it will get better. Well, you could. It wouldn't do you any good.

 

I've been in that pit of despair. I've dwelt there for entirely longer than I'd like to admit. So deep that I could not imagine… Read full post »

Words, words and more words. I've got words coming out of my ears. Words from Mothers, words from books, words from medical journal, words from new stories. I've got so many words of others in my head, that I cannot sort them out to…

Read full post »

 I have officially kicked off my 46 Mommas fundraising campaign. Copy of my first email.

Hi there~

It's been ages since I have talked to many of you. My life was permanently derailed. As you are already aware, just over two years ago, our youngest OffSpring, Gregory,… Read full post »

What YOU need to know about Childhood Cancer Research Funding. From the fabulous People Against Childhood Cancer (PAC2)

Mindi

~Momcologist

 

2010 Summary

So, where does the money go: Childhood Cancer Research Funding (2010) - People Against Childhood Cancer

 

Prior to Fathers Day 2007, I h… Read full post »

I've been sitting here, shaking hands, heart pounding in my chest, gut tied up in knots, trying to decide if I should really write what I'm about to write. Which, on a normal day, I would take as a sign NOT to write about…

Read full post »

I cannot put into words what I just experienced.

Twelve women, all mothers, mostly strangers. Except in this town, there is only degree of separation between all of us.

We are all writers. We are all reading for Spokane's production of Listen To Your Mother. We are all baring our souls… Read full post »

If it's true that we only use 10% of our brains, I'd like to know how to gain access to the other 90%.


Gregory has continued to battle with this head cold he has. Coughing, sniffing, really bad sore throat. No fevers. His temp is slightly…

Read full post »

Coming to you LIVE from Spokane, Washington........ It's Chez Sacred Heart!

I tell you, post Stem Cell Transplant (Bone Marrow Transplant) is such a delicate dance. Not the kind where you gently shuffle your feet, but the kind that has seriously complicated steps, with stretches of simple swaying,… Read full post »

Hi, out there.  Been having a hard time getting myself to sit in front of this keyboard.

There has been much to say, but my ability to share has been lacking. I've been stuck in this really nasty head space. Trying to live each day in our reality and survive being out… Read full post »

First things first......  Today we celebrate our First Born.  Twelve years ago, today, Curtis came bounding into our lives.  Forever changing who I am.  He is my oldest, my first born, my dream come true.  Happy Birthday, kid.  I love you more than you could ever imag… Read full post »

I have a few hours to myself today.  Decided to try and purge this head of mine.  Spreading the burden, if you will.

First things first:  Gregory is doing quite well.  We've had 3 or 4 ER visits with no admits.  About 10 days ago, he did come down with… Read full post »

Good gravy this is overdue. 

My writing head is still stuck in August, while my life whizzes into October.  We spent quite a bit of October at HomeHome.  We officially moved HomeHome in late August.  I was suffering Shell Shock, PTSD, emotional release........  For the 18… Read full post »

Tonight I was honored to speak at our Candlelighter's of the Inland Northwest's, Childhood Cancer Vigil.  Below is what I shared.  This was written as a speech, so it has a different rhythm.  Inflection and body language won't be present.  I hope you can still feel what I've… Read full post »

We are all part of this Great Green & Blue Planet.  We all have responsibilities to ourselves and each other.  Most of us have Causes that are near and dear to us.  I have several:  The environment, Education Reform, Community Building, Peace, Love, Joy, Music, Empowering Ours… Read full post »

Please go to www.46mommas.com to donate.  Read full post »

I would rather not dream, than have bad dreams.  It's been quite the roller coaster of emotions, the last several weeks. 

What is "normal", anymore?  There isn't one and there wasn't one.  Things evolve, circumstances change, life shifts.  We have been staying at HomeHome… Read full post »