MindiTheMagnificent

MindiTheMagnificent
Location
Spokane, Washington, USA
Birthday
September 04
Bio
Dipping my foot in the ocean. Taking a chance. "And the day came when the risk to remain tight in a bud was more painful than the risk it took to blossom." ~Anais Nin *Cast of Characters: Mindi, The Mom ~ Larry, The Dad ~ Curtis, OffSpring, Age 10 ~ AnnMarie, OffSpring, Age 7 ~ Gregory, OffSpring, Cancer Warrior, Age 4*

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Editor’s Pick
NOVEMBER 25, 2009 11:56AM

Another Day in the Life of Pediatric Bone Marrow Tranplant

Ya know, the easiest way to navigate this Childhood Cancer road would be to stick my head in the sand, plug my ears and sing *lalalalalalalalala*.  It would.  I'm not wired that way, though.  Today is our offical nine month diagnosiversery.  Gregory was admitted on February 23rd a… Read full post »

NOVEMBER 22, 2009 6:34AM

Time is on my side. Says who?

This week has been so HARD.  So many things happening.  Things of which, I have no control or say in.  Sounds like life, doesn't it? 

 

This is my little pity party.  Please play along.  Thank you.  You would think that this part would be the easiest.  It'… Read full post »

Larry and I made a decision this week. Gregory and I will be staying at our Water Retreat through the New Year. At least.

I've been thinking about how I am going to explain our decision. I feel the need to document how and why we are making these choices. I've… Read full post »

NOVEMBER 13, 2009 2:19AM

YOU can save a life.

You got the news that's fit to print, now it's time for the grit and grime.

Every once in a while, I start climbing the walls. While this isolation is far from debilitating, it's so very lonely and well........ isolating. We were in a really… Read full post »

NOVEMBER 12, 2009 4:49PM

Who, What, Where, When, Why & How's

It's been way too long between postings. When it's been this long, it feel like such a CHORE to write. I'm going to slam this out and hope that it makes sense. Then back to our regularly schedule program. Hopefully.

Gregory finished his course of Vanco last week. Glad it's done. His… Read full post »

Editor’s Pick
NOVEMBER 6, 2009 6:26AM

Labor & Delivery meets Childhood Cancer

I just finished The Business of Being Born and I need to write. I've avoided this movie. Like the plague. I've had numerous opportunities to see it. Due to my own birth experiences I could not watch this movie until I experienced something more painful. I could not watch The Business… Read full post »

NOVEMBER 2, 2009 6:23AM

Good grief. My Pollyanna is showing.

I've been thinking a lot about "tomorrow". It's one of my least favorite traits. "What can I do tomorrow that will make it better than today?" It doesn't stop with tomorrow, either. Next week, next year, ten years from now. Which detracts from living today, from time to time. Thankfully I… Read full post »

Procrastination gets you nowhere.  I've been trying to come up with the correct phrasing to succintly puts this weeks feelings and events into words.  Hasn't happened, yet, so here I go.

Monday was Gregory's weekly blood draw for CBC, Blood Cultures, CMV testing, Igg Levels, Tacro level… Read full post »

I have no clever opening for today's entry.  I'm just going to let it roll and follow where it goes.

Curtis showed up around 3:00, Saturday and spent the night with Gregory and I.  All-in-all it went fairly smooth.  We watched Elf, the new Transformers movie, ate ice cream, played Wii,… Read full post »

Was today really Thursday? Has it been eleven days since we left Seattle? It’s been a week of settling in and redefining our day-to-day life. Since last we met, I believe Larry had just been out to see us, for a few hours. Thursday and Friday passed uneventfully, we anxiously awaited… Read full post »

Editor’s Pick
OCTOBER 15, 2009 3:30AM

I am a partner. I am a mother of three.

What an amazing day!  A day of lounging.  A little bit or organizing, too.  Larry made it out to our Water Retreat for a visit.  There is nothing sweeter than watching Gregory bounce up and down, pointing at Daddy through the window and screaming: "Daddy's here!  It's Daddy!"… Read full post »

OCTOBER 14, 2009 4:34AM

I do believe in Spontaneous Combustion.

What a day!  Ugh!  What I thought was going to be a fairly "chill" day, turned out to be one big 'ol stress mess.  I set my alarm (just one of a series of alarm times.) for 8:00 to give Gregory is Tacrolimus & Zofran.  He must have the Tacro at… Read full post »

300 miles behind us. The last few days have been both excedingly long and thankfully brief. Our last SCCA visit was a mere four days ago, but it already seems like much longer than that.

Cleaning/packing the apartment took longer than I had anticipated. As I was doing this, I was… Read full post »

OCTOBER 8, 2009 4:16AM

An image sheds 1.000 tears.

Last clinic appointment, tomorrow.  (Well..... today.)  I've started the process of disengaging myself from Seattle and reconnecting with Spokane.  Appreciating every thing that is in Seattle, noticing every detail, hoping to imprint it on my brain.  While the time we have spent h… Read full post »

I've sat down to compose this entry a half a dozen times.  I received some news yesterday that is both exciting and terrifying.  (Welcome to the world of Childhood Cancer.)  Gregory's leukemia is characterized by a gene mutation.  Specifically, PTPN11, on  the long leg of chr… Read full post »

I itch to write. Daily. All day long. Any moment of time that is not engaged in human interaction is filled with internal writing. Except I feel like there is an expectation that you are expecting me to inspire and amaze you with my words. We… Read full post »

SEPTEMBER 30, 2009 5:42AM

PSA for Cancer Families

I've been meaning to throw this on one of my posts, but after I get to the end, I'm just out of energy to do it.

This is really cool. The Foundation for Stories of Cancer Heroes (AKA Cancer Heroes) has partnered with Heritage Makers. Heritage Makers is…

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SEPTEMBER 29, 2009 3:53AM

The light is brighter, for today.

While nothing has truly changed, my world looks a whole lot brighter and is beginning to shine, again. To answer the question on everyone's lips, yes. We have a return date. We have our first appointment in Spokane scheduled. Gregory and I will be returning to the… Read full post »

SEPTEMBER 26, 2009 8:50PM

The Odyssey Thus Far

My first attempt at making a video with pictures and music.  Captions and title are my next adventure. 

Mimi ~ Thanks for inspiring me to do this.  

The Odyssey Thus Far from MindiTheMagnificent on Vimeo. Read full post »

I'm wrestling with the demons, again.  Trying to wrap my head, my heart and our lives around this.  Yet again.  I knew that Gregory's Bone Marrow Transplant would not be text book.  I actually don't think that there IS a text book transplant.  In the beginning they give you p… Read full post »

SEPTEMBER 25, 2009 5:37PM

Is that a light I see?

Summary conference is still scheduled for Monday, the 28th.  Which means we could be HomeHome 7-10 days later....  Fingers crossed, but knowing that it can change at the drop of a hat.

Gregory saw the oral medicine doc yesterday.  He definitely has some changes in his mouth.  The e…

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SEPTEMBER 23, 2009 4:12AM

212 Days. I'm tired..........

Another day down.  135 days since we've been home.  135 days since we've seen Daddy.  135 days since we've slept under our own roof.  212 days since our world changed.

I could sit here and give you another accounting of our last few days.  I don't want to.  I don't want t…

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SEPTEMBER 19, 2009 4:39AM

I used to know what restful sleep was.

Once again, patiently waiting for a reasonable time to begin Gregory's IV.  Thankfully, I'm coherent tonight.  Last night I allowed myself to simply cuddle and slumber with him.  We didn't have anywhere that we needed to be today, so we could be a little relaxed about his IV start time…

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SEPTEMBER 19, 2009 2:31AM

Survivor. Man. That's a big, heavy word.

(Anonymous) (201.217.45.111) wrote:
Sep. 17th, 2009 02:25 pm (local)
I left the comment(I don't have an LJ account), I am a childhood leukemia survivor and relapsed when I was 16. My little brother died from JML when he was an infant, I was 10 at the time. So, yes I do know moreRead full post »
SEPTEMBER 17, 2009 1:13AM

An Invitation or an Exit

(Anonymous) (201.217.45.111) wrote:
Sep. 16th, 2009 08:00 pm (local)
Wait?
Isn't this the "bald is beautiful" part of YOUR "odyssey" you wanted to keep when you returned to "homehome"?

Response to this post.   They are called "Boundaries".

I don't usually/…

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