MindiTheMagnificent
- Location
- Spokane, Washington, USA
- Birthday
- September 04
- Title
- Momcologist
- Bio
- Dipping my foot in the ocean. Taking a chance.
"And the day came when the risk to remain tight in a bud was more painful than the risk it took to blossom."
~Anais Nin *Cast of Characters: Mindi, The Momcologist ~ Larry, The Dad ~ Curtis, OffSpring, Age 12 ~ AnnMarie, OffSpring, Age 9 ~ Gregory, OffSpring, Cancer Warrior, Age 5*
MY RECENT POSTS
- NYC, DKMS Gala & Gregory's
Bone Marrow Donor ~ Part II
April 29, 2012 04:48PM - NYC, DKMS Gala & Gregory's
Bone Marrow Donor ~ Part I
April 29, 2012 04:46PM - Life In Pictures
September 09, 2011 03:20AM - 46 Mommas National Press
Release
August 11, 2011 01:27AM - Long Term Follow Up. Number
2!
July 08, 2011 11:53PM
MY RECENT COMMENTS
- “Waking~
Awwww...
Thanks, my dear. I'm not built
to do it any other
way.
Love
recei…”
July 10, 2011 01:04AM - “RS~ Thank you, my dear.
There is something very acute
about
having experienced
so…”
May 30, 2011 06:07PM - “Missing~
I'm
with you. Despite the fact
that my son no longer has
his
leukemia, I…”
May 01, 2011 12:29AM - “I'm terribly sorry for
taking so long to come back
and thank
EACH and EVERY one
o…”
April 24, 2011 08:45PM - “Rei~ Thank you so very
much for this. Navigating that
social
expectation is so
c…”
April 08, 2011 03:01PM
JULY 4, 2009 12:37PM
Day +23
I started to write some lame excuse for not posting.
Something profound. When the reality is, I just didn't feel
like it. Things are progressing along.
Today's Stats: Platelets ~ 19, Hematocrit ~ 39, ANC ~ 140, Weight ~ 14.2K
His counts have been hovering right aroun…
Today's Stats: Platelets ~ 19, Hematocrit ~ 39, ANC ~ 140, Weight ~ 14.2K
His counts have been hovering right aroun…
JULY 2, 2009 3:20AM
Oops, I did it again. Grab a Kleenex.
Word of the Day? Emotions
Today was filled with them. They ran the spectrum, too. Gregory slept for 14 hours. He finally woke up around 1:30. Yes, your math is correct. He fell asleep last night at 11:30. Our circadian rhythms are so off. Thankfully I've…
Today was filled with them. They ran the spectrum, too. Gregory slept for 14 hours. He finally woke up around 1:30. Yes, your math is correct. He fell asleep last night at 11:30. Our circadian rhythms are so off. Thankfully I've…
JULY 1, 2009 11:25AM
Still afebrile!
We have yet to have rounds, I was up early so here's a quick run
down.
Gregory had a pretty great day, yesterday. NO FEVERS! It's pretty clear to me that they were GVH/Engraftment related. Which makes me a little nervous. I know I can't think ahead, but I'm a little concerned…
Gregory had a pretty great day, yesterday. NO FEVERS! It's pretty clear to me that they were GVH/Engraftment related. Which makes me a little nervous. I know I can't think ahead, but I'm a little concerned…
JUNE 30, 2009 7:18PM
Just another day at the BMT unit. Really, it is.
Good day, everyone. Another 24 hour whirlwind of
activity.
Counts: Platelets ~ 9, Hematocrit ~ 40, ANC ~ 109, Weight ~ 14.3
Gregory slept for a good portion of yesterday. We had a few hours, late in the afternoon where he was active and smiling, giggling. I haven't been ab…
Counts: Platelets ~ 9, Hematocrit ~ 40, ANC ~ 109, Weight ~ 14.3
Gregory slept for a good portion of yesterday. We had a few hours, late in the afternoon where he was active and smiling, giggling. I haven't been ab…
JUNE 29, 2009 1:56PM
Day 14 of Fevers
Let's see if I can get this out in a timely manner......
Yesterday, Sunday June 28, 2009
Counts: Platelets ~ 12, Hematocrit ~ 29, ANC ~ Zero, Weight ~ 13.9
We had another day of Platelets, a whole unit of red cells and frequent spikey fevers. For the second day he woke up to…
Yesterday, Sunday June 28, 2009
Counts: Platelets ~ 12, Hematocrit ~ 29, ANC ~ Zero, Weight ~ 13.9
We had another day of Platelets, a whole unit of red cells and frequent spikey fevers. For the second day he woke up to…
JUNE 28, 2009 3:36AM
Whoa. A little picture heavy!
Boy did we have a weird day. After sleeping for most of Friday,
Gregory woke up at 7:00, ready to be fully awake. Shortly after
waking up he spiked a rather high fever, super fast. 39+ C (102+
F). Everything was going ok.
Counts: Platelets…
Counts: Platelets…
JUNE 27, 2009 12:24PM
Friday. June 26, 2009. ANC & Other Stuff
Yes. The big news of the day is the arrival
of proof of new cell growth.
Gregory has decided to quit using the potty. Which is totally OK and somewhat expected. The benefit to this is that we both receive better sleep. While it is still interrupted, at least we aren't…
Gregory has decided to quit using the potty. Which is totally OK and somewhat expected. The benefit to this is that we both receive better sleep. While it is still interrupted, at least we aren't…
JUNE 27, 2009 10:12AM
Thursday, June 25, 2009
This is why I try and post daily. I'm having troubles
remember yesterday's events!
Thursday, June 25, 2009. No Counts. Platelets ~ 35, Hematocrit ~ 28, Weight 13.7
We woke up to no counts. No big deal, really. I was not expecting anything at day 14. His platel…
Thursday, June 25, 2009. No Counts. Platelets ~ 35, Hematocrit ~ 28, Weight 13.7
We woke up to no counts. No big deal, really. I was not expecting anything at day 14. His platel…
JUNE 26, 2009 4:31AM
Super short, not very sweet.
Too late to write much. My picture uploading was
behind. I did that instead. Will catch up later.
We do not have any counts, yet. Good night.
JUNE 25, 2009 2:33AM
This is me. Speaking to you.
OK. I think I am remembering to breath. Today has been, well,
amazing, weird, surreal, depressing, celebratory,
frustrating......
I'm sitting here trying to find my groove. 'Cause I want to write. Alot. My "Seattle Chillaxin'" playlist is going and I'm ready.
Have I ever mentioned that I…
I'm sitting here trying to find my groove. 'Cause I want to write. Alot. My "Seattle Chillaxin'" playlist is going and I'm ready.
Have I ever mentioned that I…
JUNE 24, 2009 1:00PM
Birthday!!!!
This picture was taken not long before diagnosis.
Gregory Miles Bibb joined our crazy family 4 years ago, today, at 10:34am. What a wild ride it has been. We love you, Munchkin. Now you have two Birthdays! How cool is THAT?
Gregory Miles Bibb joined our crazy family 4 years ago, today, at 10:34am. What a wild ride it has been. We love you, Munchkin. Now you have two Birthdays! How cool is THAT?
JUNE 24, 2009 2:26AM
A wee bit disjointed.
Frankly, I don't even know where to start, tonight. Gregory
has had a pattern for the last few days of fever in the middle of
the night, clear for several hours, fever in the day, clear for a
few hours. While the last few days have been lower fevers, he
is…
JUNE 23, 2009 4:45PM
Tired & Feeling Yucky
There is something about this picture. I didn't do anything special
with it. The lighting really gets me. It was taken about 11:30 on
the evening of Solstice. Just after the Nakey Tricycle ride. Man.
How can your heart/…
JUNE 23, 2009 9:29AM
Wow. That was different.
Just woke up. Can you say six hours straight of
sleep???? Ah. I knew you could. Update later.
JUNE 22, 2009 4:04AM
A bit of documentation for posterity.
Hello webosphere. The last few days have been rather soul
tiring. Gregory has been super cranky and irritable. At
this current time is does not have a fever and has not had one for
about four hours. He hit 40.1 C (104.1 F) earlier today with
heart rates in the 190…
JUNE 21, 2009 1:58PM
Real quick.
JUNE 20, 2009 4:04AM
Hipsterville
Ugh! Alright. I have been dragging my feet. The prospect of VOD is
kinda freaking me out. Gregory had a two hours of temperatures
below the "danger zone" (Thank you, Top Gun). Then it decided to
climb back up. A little bit ago, it was…
JUNE 19, 2009 8:31PM
Who knew he'd be so flippin' CUTE!!!
Gregory and I were tired of eating hair and being itchy. All that
was left was that downy hair "under" hair. We shaved it off today.
Bald IS beautiful.
More here.
More here.
JUNE 19, 2009 3:32AM
Still Feverish
Gregory is still feverish. (I feel like I'm watching
Zaboomafoo when I say that word. Like Zaboo is talking about
being Feverish)
Still unsure of the cause. They have pretty much ruled out VOD, at least for now. Which is a huge relief. I think we are in Day 3 of Feverish.…
Still unsure of the cause. They have pretty much ruled out VOD, at least for now. Which is a huge relief. I think we are in Day 3 of Feverish.…
JUNE 18, 2009 4:58AM
Just so you know.
Nothing Earth shattering to report. Busy day/night.
I'll catch you up tomorrow. Er. Later
today. Gotta snag some Z's.
JUNE 17, 2009 7:57PM
He is simply febrile. *crosses fingers*
Gregory has been feverish since 12:30 yesterday. Bouncing between
101.8 & 104.4.
This mornings counts: HCT ~ 25, Platelets ~ 12, ANC & White count still nonexistent. This mornings weight, 13.3 K.
Fever. There are four reasons he could be febrile.
This mornings counts: HCT ~ 25, Platelets ~ 12, ANC & White count still nonexistent. This mornings weight, 13.3 K.
Fever. There are four reasons he could be febrile.
- He is simply febrile. … Read full post »
JUNE 17, 2009 10:59AM
Febrile
I started this last night at 9:30.
Hello, big, wide world......
Day 5. We are 5% of the way to HomeHome. Today's biggest highlights? Hairloss and Fever.
Today's counts: HCT ~ 31, Platelets ~ 15, White Count and ANC ~ too low to report, nonexistent.
He received…
Hello, big, wide world......
Day 5. We are 5% of the way to HomeHome. Today's biggest highlights? Hairloss and Fever.
Today's counts: HCT ~ 31, Platelets ~ 15, White Count and ANC ~ too low to report, nonexistent.
He received…
JUNE 16, 2009 1:11AM
Today was the day.
Gregory's day was a little more challenging, today. When he
woke up, this morning, one of the first things he said was that his
mouth hurt. He opened his mouth, showed me where and asked,
"Mommy? Will you kiss it?" Of course, I did the best
that I could, to get…
JUNE 15, 2009 2:31PM
OMG ~ Thank you!!!
An anonymous drop off surprise!!!!!!!!!!!!!!! Thank you, thank you,
thank you!!!!
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