Mission

Mission
Location
Retirement land/Tampa Bay, Florida, world citizen
Birthday
December 05
Title
used wife
Company
open to anybody who can listen to me
Bio
'Better to light a small torch than curse the darkness!!" I am a nature lover, a friend of my mother the earth, and an avid outdoorswoman. I love the early morning, and all the time in between. Every new day brings opportunities, and every day I am still breathing and not being shot at is a good day. I write for fun, and if I have lifted your spirits or brightened your day I have did very well. Find peace this day and every day!

Mission's Links

New list
No links in this category.
MARCH 18, 2009 8:36PM

'Where is my Health Care?'

Rate: 22 Flag

In line with the debate on going over healthcare, I want to just ask one question, where is my healthcare???

 I have a combination of healthcare problems, all in the immune deficiency family known as lupus and fibromyalgia. They have much in common with AIDS. No immune system. Long term, chronic pain. Lack of energy, known as Chronic Fatigue Syndrome. I have had these diseases for years. I also have no healthcare. Nada.

I have filed for Social Security. I won. And, I also lost. I have been a stay at home mother. So, even though I was declared disabled by the good folks at the federal govt from Social Sercurity as disabled, I get nothing. No SSDI, since I have not worked enough to put in my years of work. No SSI, since that is basically a income support system, and my married income is just a few dollars over the limit. No Medicare, No Medicaid.

I do consider myself lucky, in a sense. I do get a small pension from the good govt of Canada, since I did work there for a time before both my kids were born while my husband went to grad school. So at least I can get a small sum of some $350.00 to live on monthly. I get this even though I only worked a brief period of time in Canada, since they see fit to give me some credit for staying at home with the kids while they were small. I got this when I got sick the first time, in 1996. I lived there for some eight years, and had the Canadian version of single payer, now a hot button issue.

I was in Canada during the Clinton years, and when Ms Clinton was trying to pass health care reform. I got calls from relatives, anxious to know how getting doctors and going to the hospital worked. Just fine, I replied. I never had to wait at all to see a doctor or get any form of needed care in Canada. I had a list of ten doctors given to me by a referral program when I asked, and was told to pick out my personal doctor, which I did. An excellent young woman, who gave me excellent healthcare by the way. I never waited on any needed care in my years there. I had surgery. I had very good care with sympathetic nurses, who took good care of me. No problem.

Now? Nothing. Since I do not qualify for Medicare nor Medicaid, I cannot get any doctor to take care of me. What doctor is going to see me and offer any help for my problems? No one. The last time I saw a doctor was in April of 2008, and he told me to see a pain management specialist. I called the two on the list in my phone book. One was not taking patients, the other said I could get on a waiting list and see him in August of 2010. And since I explained I had no healthcare when asked about insurance, I was told to bring $250. in cash for the first visit. And more in cash for any tests I might have. I just hung up when told the date. 2010?? What, I thought. That is a very long time. Yuck, I might need him before then. And I did not try to confirm the appointment. Why bother, I thought.

I am one face in many in desporate need of healthcare. Just one. I am doing relatively well right now. My illness is not aggressive for the time being. Yet I will still need care. And soon.

Single payer healthcare is the only option as for as I am concerned. If America can turn its education over to the govt, why not healthcare? If the teachers can work for the govt, why not doctors?? Do we not trust our own children to a state operated system? Yes, we do. Why not a state controlled healthcare system for us all.

I want to add a voice to this very important issue. I want single payer healthcare for us all.

 

Your tags:

TIP:

Enter the amount, and click "Tip" to submit!
Recipient's email address:
Personal message (optional):

Your email address:

Comments

Type your comment below:
Does anybody know where my healthcare is yet? I want to have single payer.
This has always been a sore spot for me. It's long over due. Obama said it is a right not a privilege to have health care and I agree. We spend twice what other country's pay and are way down the list in national health. It sucks. Glad to see you around again Mission. Where you been?
Hiding under a rock Michael. Reading blogs and catching up. Now i am back.
This is a very sore spot for me as well. Thanks for the read.
not to be cruel, and i am sorry for your pain, but wht not return to canada.
Why should I return to Canada, when i am an American citizen, MJ? Why should not my own country provide healthcare for me???
Putting the cost of being sick on sick people makes no sense.
Sigh. I'm sorry for your situation, Mission.
Thank you Kent. How am i supposed to pay anyway, with an income of $350. a month?
I don't know if this would work for you, but please consider it.

I used to work at a teaching hospital -- a hospital associated with a medical university.

It was difficult for patients without insurance to be seen there, but there was a "back door." If you presented at the emergency room with a problem, then you could get a referral to one of the clinics, and then you were considered to be a patient at the hospital.

In addition, for some years patients could get "teaching allowances" that allowed them to receive either free or heavily discounted care, if the patient was considered to be a worthy teaching case for the residents.

In addition, the hospital employed a staff of financial social workers who helped to get people into State and other assistance programs.

I have no idea if you live near such a facility, or what programs they might have to offer you. But if you haven't done so, I would strongly recommend that you go to public medical university, and see what they might be able to do for you. Most of these places have a position known as the "patient advocate," whose job it is to help patients with problems they might encounter. You might consider making an appointment, explaining your situation, and see if they might be able to do something. I don't know if they can, but talk is cheap and it doesn't hurt to ask.
I've pondered this for many years, since my children were little and I was employed but had no health insurance. Subsequently I had to choose some weeks between buying groceries and taking one of them to see the doctor. It's an ethical nightmare that so many members of our society be marginalized in this way. Hang in there, Mission. I'm hoping we find your healthcare soon.
As an American who has experienced both Canadian and American systems, you can speak with some authority. Indeed - we have schools run by the government, and the purpose was to make sure everyone got an education. We have fire and police, life-saving services, coast guard, all sorts of essential services. But health care isn't essential? Imagine if you had to have money in hand before you could get the fire department to come out when your house is on fire... Or it was up to you to pave the part of the street in front of your house...
mishama, I live some two plus hours away form Atlanta, Georgia. Thus trip is a nightmare in rush hour, and I drove it once with kidneys that were very inflamed. I will not attemp that one while I am sick. And never mind the wear and tear, and cost to drive back and forth on so little money.
You raise some good points, however.
Coyote, your points are well taken. Many folks have the choice to get sick and eat, or get sick and see a doctor.
Myriad, I do feel like I know something about this. I have years spent in both systems. I know how both work. Single payer works. Private pay for chronic illness?? A 'sick joke' that works for the folks that have money and then leaves them bankrupt.
Sheesh....Suzy, for someone who claims not to be able to write, you sure do a bang-up job of it!!

Look, I understand the principle behind you asking that your own American government get their ass in gear about health care. But you are in almost constant pain!!

Government is made up of politicians. Politicians are totally perplexed by principle. Get yer ass up here and get the friggin' treatment you need!

Once you get that taken care of, then we can have a chat about "principle".

People who die for principle make politians very happy.
Mission, Please forgive me my ignorance, if these questions offend you, that is not my intent. Do you have Medicare? How about Medicaid, which is the state picking up what Medicare doesn't cover?
I ask because I've no money and have chronic illnesses, but I don't have any expenses that I'm aware of.. Why does this not be the case for you? Do you know? I'm always sending good thought your way ;-} rated
"I had to choose some weeks between buying groceries and taking one of them to see the doctor."

That's has always sickened me(no pun intended). This should never have to be a choice thing. But it, sadly, is.

The system is flawed and needs to be fixed somehow. I'm one of the lucky few that has pretty good insurance at my place of employment but that could change at any moment in this economic crap fest we find ourselves in.

Mission you're in my prayers and good thoughts going out to you.

The system gets a kick in the nuts from a pissed off Tink.
Larry, I do not have the funds to return, and further more, why should I be forced to return for something my govt should be doing? I am not a Canadian citizen, but an American one. Why should i expect a country not my own to help me in a time of need?? I thought that was what govt was for. at least, in some aspect.
Junk1, no, I do not get any state of federal sponsered health care. Nada bit. Not in my state anyway.
Tink, I wrote this blog as an example of a broken system. I am just one person in need of healthcare, and I am aware that my case is not as extreme as some others. Yet healthcare needs to be addressed in this time of 'change'. For me and plenty of others, some much more severe than mine. At least I ain't dead yet.
Mission, health care reform HAS to be right there with the wars and the economic meltdown. This week, my son was taken to the Pediatrician on Monday and diagnosed with Type B influenza. We were all three promptly put on Tamiflu. To lessen his severity and length being sick and to try to keep my wife and I from getting it. Co-pay for office visit, and nearly $200.00 for the Tamiflu for the three of us WITH "good" insurance that we pay three figures for each month. My aunt has Lupus so I'm very aware of it's horrible consequences. You know my heart goes out to you and lots of love is sent to you. It's a horrible disease. The people who shot down Mrs. Clinton's health care reform in the 90's should be ashamed of themselves as the lack of reform has contributed greatly to my family's horrors since then (and me in particular) and has contributed heavily to the foreclosures and bankruptcies across this country. Those who don't think there is a relation to our out of control health care costs and the economy are smoking some drugs that can't be prescribed.

Be well my friend.
RATED
Blue, I am sorry for the health of your wallet. Hidden healthcare costs is somehing everybody is paying right now, whether they know it or not. If the new prez is bringing the promised change, healthcare for all of us sholud be at the top of the agenda.
Hope your son recovers fully from the flu.
I am off to attend the Georgia Organic's conference. I will check this later. Feel free to add any comments you want on your healthcare problems.
Ya, know we give ridiculous bailouts to failed corporations, horrible pork barrel projects that only benefit those that don't need it to begin with and supply billions of nation building dollars to people overseas that hate us for it.
We can't take care of our people when they need it?
Don't even get me started.

Love ya, Mission. Be well
Good to see you back, btw.

rated
i said to return to canada because you made it sound like a medical nirvana. maybe you needed a better lawyer at the social security hearing. or why didn't you or your lawyer raise any questions about future healthcare when your failing health lead you to the government to begin with. or is it because of a bad choice at that time you now have to wait until your 65 to get medicare. because you may have made bad choices or mistakes you want the federal government to take care of you... i don't get it. not that i want to be sick or ill or anything. but maybe the book bilking the system for dummies would have been a good investment.
John Walker, thanks for coming by. I agree with you.

MJ, I won my hearing. I have no ugre to 'bilk' anyone or thing. I won because the board declared me disabled. I lost because I get no benefits. Canada definately was not 'medical nirvana' to quote you, but I did get decent, basic healthcare in a reasonal amount of time. I don't understand your problems with follks getting healthcare. Why don't you explain more about your personal beefor why don't you write a blog about it. I have no clue as to why you keep the dissing up. Sorry, MJ. I just don't understand your problem at all.
When Obama campaigned for a form of universal health care coverage it sounded like he could just do it. He can't. He has to get any bill through Congress and right now I doubt he could get any modified bill through, let alone what he would really want. Too many other "more important" things come first. I don't think that they are actually more important but that will be the argument in Congress.

Sorry you are in the mess that you are trapped in, but relief will not likely come soon.

Glad that you are feeling well enough to read and comment and now write this important post.

Monte
How much reality speaks to you when you loose your job, healthcare, and in these times . . . your savings in the form of 401K. I fear many of us are going to have to travel your road far earlier than expected. Wonderfully written. (Rated for excellence)
Rated. Thanks for posting this. Also, please see my post "Free market versus socialized medicine = A false choice."

I hope you start feeling better.
hi mission,
i'm not sure why when you won the social security case your current and future medical needs weren't brought up. mabye if you had some other designation at the time you would have benefits and health benefits.i didn't mean to imply you were bilking anyone or anything. maybe you need another hearing to change the disability status and that way you could access healthcare that is alredy offered. i don't know. i'm just saying.
It's criminal that our own government allows people to go without health insurance. You've probably already done this, Mission, but if not, please send this to all of your elected officials. We've got make noise and become the squeaky wheels or they'll never hear us. Here's hugs and wishes for pain-free days.
In education, when it's done wrong, you wind up with school districts staffing with assistants who've had an "in-service" for two hours on matters for which licensed professionals earned a master's before they became too expensive. In medicine, that's a prescription for worse. Bless you for allowing us to see this from a personal perspective. The operative word seems to be "care."
I agree that we must do something about healthcare. I want to say that I am in no way suffering as much as you, but I haven't been for a check -up since '06. I ran up a hospital bill after my father died, because I'd quit my job (had a breakdown), and the job offered no COBRA (they had too few employees to be required to do so, though the owner was incorporated, and I suspect if you counted all his businesses, he would have had enough employees). Anyway, I know others who have run up bills bigger than mine. Sometimes they are excused, sometimes not. I have a friend with lupus, so I feel for you. I don't know what can be done.
This really sucks.. Yes I want to know where the healthcare is also. Dealing with the government isn't any fun at all. I am fighting some of these same battles.
Yeah, Mission, why don't all those sick people with pain and fatigue line up to contest and challenge a system that's stacked against them so they can see a doctor about inflamed kidneys... or neurological problems from drug side effects?

You'd think if healthcare was so important to you that you'd be willing to fight for it. Sheesh. What's that? You can hardly get out of bed some days? Is that an appeal to my sympathy, 'cuz it ain't working, ya' know.

Just because some of you under/uninsured got MRSA during your last ER visit for a minor problem because that's the only place uninsured can get care, what makes you think society is responsible for YOUR health care?

As a fine, upstanding, hard-working, tax-paying, god-loving American, I really resent the expectation that I pay for YOUR well-being. We all know that good people don't get sick. What are you hiding?

If you think single-payer is so great, just move on back over the border, 'cuz we've got the Greatest Health Care System in the World™, right here in the U S of A.

If only you and your ilk would stop being so damned selfish and pull your own weight.

With much love and no more judgment than you deserve,
A Kinder, Gentler American and Human Being

(I'm removing my tongue from cheek now)

-RIF
So sad... Too Bad ... Get Over it!

Health care is a privilege not a right.

Sounds like you pissed away your yoot… being cool and a free spirit.

You say you don’t have any option. Bullcrap, if Canada will take you back you have an option…. Use it!!

To say you don’t is just more of your whining. You want to have everything your way and you want it handed to you, with no effort on your part.

Gee…. Who would have thought!!

Your idol once said: “ask not what your country can do for you …. ask what you can do for your country.” OK, babe I am asking!!! What have you contributed???

btw: Government Education ... that is not a shining example …… our Education system sucks and it is because of Unions and Government interference.
Don't feed the Troll, folks. This snob dude has his own DSM-IV chapter.
You are soooooo smart there Snob.
Were you born with a silver spoon in your mouth?
Sounds like it from this 'kind' comment.
Take off those blinders and look around.
You might find a big world out there, and see someting besides your upper lip.
See

http://bgladd.blogspot.com/2009/05/us-health-care-policy-morass.html

for a detailed examination of the myriad issues.

AHRQ has reported that perhaps half of the population spends little to nothing on health care (I discuss these findings in my post). There's your major stumbling block right there. While it's not clear how they define "half," it suffices to observe that such a large proportion of an electorate is going to be an extremely tough sell when it come to arguing that everyone should pay something in order that all might be covered for the long-term clinical and economic good of everyone -- including those who now ostensibly pay little to nothing. The for-profit corporate "health care" entities (e.g., big insurance and big Rx) skillfully manipulate this demographic to make certain no substantive changes detrimental to their bottom lines happen.
Thanks for the link Bobby G.
I read everything I can on Health care. And the endless profits from them, as well as how they work to DENY care to make money.
Health care should be a top priority right of every tax paying citizen and his/her family.

Absolutely.
Topping education. Topping everything.

A right.