
I am hopeless when it comes to remembering things like birthdays, anniversaries, and grocery lists. So it comes as no surprise to me that my first anniversary of being a member of Open Salon passed last Wednesday, October 21st, without me remembering it.
Perhaps being here a year should invoke nothing in particular but in my case I have to remember where I was psychologically when I first got here and compare it to how I am today. I am much stronger and have far better coping skills than I did then.
I owe so much to OS. I thank God that this platform was available to me when I needed it, even though at the time I did not know that I did. And I owe much of my getting back on my emotional feet to my friends in this internet community. I am not going to name names because the list is long and I would feel enormous guilt if I left someone out. But I was in a dark and depressing place last October when I joined this group.
In March, 2008 I developed vasculitis over my entire body. I looked like someone had poked me with a million needles that made me bleed underneath the skin. That was followed in a couple of months by the vasculitis concentrating in my feet, which developed large, deep blue blood blisters. In turn the bilateral neuropathy I had for about three years got much worse and I had enormous pain on the surface of my feet while the rest of the feet were mostly numb.
Shortly thereafter I started experiencing massive redness and swelling in my feet with accompanying unbelievable burning, shooting, stinging, shocking pain that is hard to describe. The only relief for this is to elevate the feet and keep them cool. Soon there was no "normal." Either they were red hot, swollen and painful, or they were ice cold. Meanwhile I had to give up being a pastor because I could not stand or even keep my feet down for a short while without causing a excruciating flare up which lasts for hours.
My doctors did not know the cause and it just got worse. I finally did enough research on the internet to diagnose myself as having erythromelalgia, in addition to vasculitis and bilateral neuropathy. With that my internist sent me to the Cleveland Clinic in July, 2008.
The Cleveland Clinic Rheumatology Department was one of the few places in the USA that knew anything about this rare disease for which there is no cure and for which remissions are rare. So mostly they started trying various combinations of drugs for the pain, steroids for the vasculitis, and doing incessant blood work and other tests because erythromelalgia can be a precursor to life threatening myeloproliferative diseases. So far nothing like that is manifest.
By October I had thousands of dollars worth of often painful tests and been off and on many drug combinations. I was emotionally strung out, to say the least. I was pretty much confined to the house, by the air conditioner, in a Lazy Boy with another chair to keep my feet elevated and a fan blowing on my bare feet. Some, but not much, of that has changed. That still describes an average day.
I was desperately trying to keep my spirits up by reading Scripture and praying, and my brain occupied by reading four or five novels a week, reading newspapers on the internet, and getting acquainted with online magazines, including Salon. Plus I had become an election junkie and had been one of Obama's early supporters, remembering him from his speech at the 2004 convention. A laptop computer I bought made much of that possible.
I was very miffed with Salon.com when it started running an ad that you had to click through to get to the Salon home page. For about a week I would click through this ad for "Open Salon," irritated beyond rationality. Finally I decided to click on the damned thing and see what this aggravating interruption was all about.
I have not been able to stay away from Open Salon since.
My first post, "It Only Takes One: Inviting Violence" was on October 21, 2008. It garnered a whopping five ratings and four comments. After a month I had about 6 mutual "Friends." Today we officially do not have "Friends" anymore. We have "Favorites." Not me. I still have friends. Mutual friends. About 200 now. Sure, they are my favorites too. But for me having mutual friendships means much more than having favorites.
So it should come as no surprise to anyone that I believe that the most important thing about OS is that it is a community. There has always been a talk of a split in OS over which to emphasize: "community" or "writers,/artists colony." I have always thought that the split was, and is, artificial.
Some of my best friends are some of the best writers on OS. There are, of course, some very good writers who are not my friends. But that is not for lack of trying to ferret them out. OS is just too big now to read everybody let alone get to know them well enough, and vice versa, to become mutual friends. But I manage to add a few each month, which is a privilege.
What I remember most about my early days here is how closed I was about telling anybody who I really am. I was all pinched in on myself and my pain, and I was worn out emotionally. It didn't help that I was much older than most of the people here. On top of that I come from a generation in which men were not supposed to tell much about who they were, and absolutely nothing about how they feel. But I guess you can't hide the hurt very well from people here on OS. They quickly read between the lines and they opened me up, little by little.
I started by writing political, motorcycling and memoir posts. Writing the "WWII Romance" memoir series of how my Mom met and married my step Dad opened me even further and I felt emotions I had long buried and no longer remembered I had. The strong positive response to that series encouraged me to continue exploring who I am and what I was doing on OS.
After about six weeks I started writing some posts on faith. A month or two after that, mostly in response to my posts on faith and the fact that I have been a counselor for many years, a number of people began to send me PMs to explore with me this or that problem they had; and, little by little, I gained the honor and privilege of being there for them during some of the rough stretches in their lives. That honor has grown in the ensuing months. I do not think that would be possible outside of a community of caring people.
So, dear friends, OS gave me you. And, if you ask Sue, the one who had to live with my depression before I found OS, she will tell you that OS helped give me myself back as well.
It is a joy to be part of this wonderful place, a place where we can write and share our experiences, our joys, our pains, our art, our talent, our craft, our hopes, our dreams and our fears. We all come here for our own reasons. No two are exactly alike in either talent or dreams.
But if we are open to it we can find friendship, caring, love and support here. And more importantly, we can offer those same things to one another. My faith is the essence of who I am. But I am keenly aware that we too easily forget that God most often comes to us in unspectacular ways. And mostly God works through people. People just like you good folk here on Open Salon.
If we miss sharing with others that love that we each have within us then we miss the most important thing that God asks of each of us, which is to love one another. It has been my privilege to be the recipient of that gentle love from you.
Here is a song that expresses how I feel about you.
For that second chance
For a break that would make it OK
There's always one reason
To feel not good enough
And it's hard at the end of the day
I need some distraction ooh beautiful release
Memory seeps from my veins
Let me be empty and weightless and maybe
I'll find some peace tonight
Chorus
In the arms of an angel
Fly away from here
From this dark cold hotel room
And the endlessness that you feel
You are pulled from the wreckage
Of your silent reverie
You're in the arms of the angel
May you find some comfort here
So tired of the straight line
And everywhere you turn
There are vultures and thieves at your back
And the storm keeps on twisting
You keep on building the lie
That you make up for all that you lack
It wont make no difference
Escaping one last time
It's easier to believe in this sweet madness oh
This glorious sadness that brings me to my knees
Chorus
You're in the arms of an angel
May you find some comfort here
Some comfort here
God bless you all.
Monte

Salon.com
Comments
I knew you suffered physically but had no idea the extent of your pain! You were one of my first "friends" here and I have great admiration and respect for you as a man, a writer, and as a true spiritual counselor. You offer solace and understanding framed within the workings of a truly brilliant mind.
May you have relief from what must be truly agonizing pain.
Happy Anniversary!
May your pain subside and your love endure.
Open Salon has been blessed by your writings, wisdom and compassion. I'm proud to call you, "friend." Happy anniversary!
Indeed.
Happy Anniversary Monte!
It has been most uplifting for me to discover your blog.
Glad you're here.
Fondly,
Your post on theodicy was one of the first I read on OS back in January. I knew you were sick but not the extent, and realize how much your faith must come into play with such a devastating illness.
Often it's a huge comfort just to know people are alive and writing. The first woman I PM'd with back in January had a cancer screening one week, the next week she deleted all her posts and hasn' t been back since, and I still think about her.
Here's to many more years!
And I love the new avatar. Where'd you find a picture of a guy who looks just like a cyclin' dove?
It's my honor sir to say I know you.
Best regards always.
It's my honor sir to say I know you.
Best regards always.
En tout cas, if I remember correctly, I added a comment to one of your motorcycling pieces (which everyone on here should read for the pure pleasure of them) and we got into a discussion about our favourite marque. It sort of steamrolled from there.
I hang around here still for the likes of you and a few other illegitimate rodents who keep me hooked.
Happy anniversary.
http://open.salon.com/files/ceilinglightmoravianstarmc10672849a1256926735.jpg
I dearly love all of you and I hope that you will understand that this old motorcycling preacher is simply overwhelmed by your comments and your affection.
I have read each comment many times, turning up memories of each of you. I find myself smiling at the remembrance of some post you have written, feeling your pain in some PMs we exchanged with the hope of making things better, marveling at some comment I remember that you made on another member's post that showed your talent and your intellect, or becoming teary remembering your sensitivity to others when they reached out to us in OS in pain and despair.
And I will be back every now and then to tell you once again how much I appreciate you for being who you are, not just for what you do. I am honored to call you friends. Truly honored.
Shalom.
Monte
I love what you say here about the community. True it is.
I'm coming up on a year myself and it's the maybe the best thing that's happened to me. Who would have thought huh?
Om shanti, shanti, shanti.
Your views and knowledge of politics is another thing to be admired. You are a fine example of how we all might conduct ourselves in our daily lives. You are the voice of reason here and I'm so glad you can carry out your counseling from your Lazy-Boy. I'm sure that seemed an impossible task a year ago.
So, for all that you've done for us here Monte, I would like to give you a huge man hug and wish you a Happy Open Salon Blogaversary!
Your Friend,
Mike
Let me ask you: do you consider OS a grace?
I think of my experience on OS, and it has been topsy turvy to say the least. I have but a few friends left that i communicate with.I could reach out, but my situation is such that i am retreated so far within myself that only
occasionally i appear. To write fluff.
A grace is a thing unasked for, undeserved, but always available. How many graces do we miss?
Glad you noticed this one..
CONGRATS ON YOUR ANNIVERSARY! Don't ever leave. You are one of the rocks, one of the suns here.
Whoever thinks we are not a community has not spent any real time trying to discover it. Your warmth, love, care and affection for one another; your willingness to be available when someone posts a cry for help or just in despair; your willingness to laugh, to have fun, and to participate in other people's success without jealousy or envy: all these and more are what has kept me coming back, coming back to my internet home away from home.
God bless each of you for that.
Monte
Such a good summary of what I find here! Thank you for being part of OS.
I will tell you that my new congregation has the rather charming, if exceedingly odd, habit of singing "Happy Anniversary" to the tune of the William Tell Overture, whenever someone celebrates an anniversary. (I think they may have learned that from the Flintstones!) I will spare you the actual experience, but I bet you can hear it in your mind!
Many blessings, much grace and abiding peace to you, Monte.
Time sure does fly when you are having fun and the OS is that and more.
Monte, getting to know you through your writing has been such an honor and pleasure. I know you have endured more pain this past year than most people ever experience. I pray for you and hope so much that you will find answers and relief for your pain.
Your writing is rich with wisdom, faith and generosity. You touch so many here and are deeply appreciated.
Happy Anniversary, Monte and may there be many, many more!
xoxoxoxo Cathy
You sound just the type of person that OS needs more of. That the world needs more of.
Can you stand one more follower?
-R-
thank YOU, Monte.
PS: Any chance that diet I sent you helped a smidge?
Rated and I'm glad you found your way here!
You are one of the greatest contributors here, in quality of both posts and comments, and I can't think of anyone who is more respected. My anniversary wish for you is many more meaningful and satisfying years here -- and maybe a few more motorcycle posts.
You are the ROCK of OS, and it is the best community one could ever be in. Happy Anniversary and hope for many more good years on OS for you. I am glad you found your way to OS and that it has helped you in so many way, as you talked about. I have said it myself many times that OS has been a blessing to me..
Many HUGs to you my friend..
A year - has it really been a year already? We should have many more years of your company, Monte. Roger said you were a "real Christian", and he's right as rain. You are always an example to others of what Christians should aspire to. I'm pleased and proud to know you, and incredibly happy to "see" you. :-D
שלום־עליכם Shalom Aleichem. Peace be upon you.
Blessings on you and yours.
PS Love the song - one of my all time favorites.
Rated.
But the bottom line for me is that this anniversary thank you post is really about you and the wonderful way you have chosen to treat me and each other.
I have seen some pretty nasty things said and slanders screamed out on the pages of OS. But I also have watched and seen the best come out in us when someone we have come to care about is victimized by trolls and the firebrands.
When it comes down to treating others with respect and dignity, recognizing them as the precious gift of grace that God intends each of us to be to one another I have watched you rise to the occasion and witness to the truth of fellowship within this community.
From where I sit you are what makes OS special. And I am proud and honored to be among you.
Monte
Travelling alongside for a bit.
I am glad you wrote this post as I knew nothing of your physical pain. I am sorry to learn of it as chronic pain and disease are such a terrible cross to bear. You carry it with grace, however.
We have seen that you were there for others when they needed help. Perhaps that was the mission behind your illness -- God helps guide us to our intersection with those that need us most.
I thnk many of us can attest that OS has helped us through a rough patch in our life and that you have been there to help us. I am happy to know you!
Have a great weekend all of you. You will be on my mind and in my heart. "How can we keep from singing?"
Shalom,
Monte
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