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O'Really?

O'Really?
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NOVEMBER 2, 2009 9:44AM

There it Is

Rate: 68 Flag

My name was called and I passed through the portal of hell between not having sex cancer or finding out if I did. I was pretty sure by the way my doctor spoke to me at her office and subsequently (numerous times) on the phone, followed by the urgency of the oncologist’s call late in the evening to see me as soon as possible, that the news would not be good.  I felt it.

And I had made peace with it to a certain degree.  I had already had nine days to walk around in a catatonic state cry a lot and make Plan B in my head.  I had met with my old lovers lawyer and I phoned a friend; a dear one at that, who was still fighting her way through a rare and aggressive form of breast cancer herself. I knew that she could give me honest answers that all of the doctors in the world would not.  She had been through it all.  She was still going through her recovery.  I wanted to talk to someone who had “been there” instead of someone who had not.  I didn’t want to burden her, but I knew she would be frank and sincere. 

She couldn't have been more compassionate or honest.  She offered to come down and take me in for my biopsy (she lives almost three hours away from me).  She told me what to expect in terms of pain and offered for me to come and stay with her if I needed treatment.  She lives in a city with one of the best records for breast cancer treatment.  With all that she had going on in her life, she took me on as a cause to champion.  I will forever be grateful to her for her kindess and compassion.  Thank you DR for that.

I was placed in a small room and told to put on the requisite paper moon gown.  And then I was told that I might be waiting for quite awhile because I had been squeezed into his appointment schedule.  No man doctor is that anxious to meet me by daylight without having spent a couple of nights with me.  The panic officially set in.

The oncologist’s nurse came in and showed me the mammogram and what they were most concerned about.  There was kind of a “duh” moment in my head; I knew the little thing was causing me big problems.  I could feel it and had felt it for what was now the 11th day. I really didn’t need further confirmation that an uninvited guest without a penis attached to it  was living inside of me.  I wanted that thing taken out of me and gone.  I was taken by surprise to learn that there were secondary issues of another kind on the other breast that they wanted to look into further.  But not right away.  WTF?  How’s your Monday?

It took about an hour before the oncologist finally came in apologizing to me for my having to wait so long.  Polite and good looking? He had kind eyes and a fun, playful demeanor, which meant he had dating potential the world to me.  I felt at ease immediately. We shook hands (and yes, his are VERY large as I had been “warned”) and he got right down to business. He rubbed his very large hands together and closed his eyes (“wow!” I thought, “men should try this trick in real life”) and methodically began examining my neck, armpits and breasts.  He began with my left, which was not the one with the lump, almost as if he was trying to determine “normal” for me. Don’t even go there.  I’m a lot of things, but “normal” isn’t one of them.  

He informed me that my breasts were quite dense and the only thing I could blurt out was, “better my breasts than my head.”  He laughed and moved on to the one with the Wasabi pea and searched almost everywhere in a way that resembled foreplay.  “You’re so close, just go THERE, god dammit!” I was thinking in my mind.  I almost wanted to push it right in front of him, but eventually, he found it on his own and spent a good minute pressing, manipulating and circling it.  What he could teach a man or two and apply it downstairs, if ya know what I mean.

“There it is,” he said matter of factly.  We looked at each other and it seemed like my eyes were saying, “I told you so,” and his were responding, “you’ve come to the right place”.

“Let’s go across the hall and do an ultrasound,” he announced.  Those rooms are cold to begin with and I had brought along a cashmere shawl to keep warm.  I could feel my heart racing.  Not in a good way. An assistant was setting up everything when we walked in and he had me lay on my back.  He ripped open the paper gown (in almost a movie scene, sexy kind of way) and began applying gobs of cold gel.  He made me put my right arm above my head, where it remained for the next half hour.  It fell asleep in the process.  If only I could have, too.

The wand probed deeply around and over the growth.  It was uncomfortable and as I had indicated originally to my own doctor, radiated pain throughout my chest wall.  This was confounding to my doctor and the oncologist.  He turned the screen towards me and said again, “There it is,” and explained that he was going to perform a biopsy right then and there.

He put a ton of anesthetic on my breast and informed me it would take about ten minutes for it to set in.  He told me that the density of my breasts and the location of the lump would make it uncomfortable for me to lie in the position that he needed to do his work and that if I needed to rest or move, I should inform him.  I could not believe his thoughtful bedside manner and wondered if he was this good in a real bed.

He took out an enormous 13-inch needle and told me I would feel a little pinch.  I asked him how soon after the anesthetic wore off I would be screaming, “son of a bitch”.  He told me (honestly), “about eight hours”. He knew that I was asking the right questions and I demanded honest answers.  I think we were both relieved at the doctor patient dynamic.  No bullshit, peppered with some fun.

Then, he began to insert that needle.  Deeply.  The radiating pain began immediately.  For the next forty-five minutes, I watched this poor doctor struggle, squeeze and sweat as I listened to what I can only say sounded like a glue gun punching and squeezing tissue samples that sometime spurted out of my breast onto whatever they put them on to send to pathology.

When the procedure was over, the upper right quadrant of my body was completely numb from the anesthesia and the position I had been placed.  He gently wiped off the gel and said, “I’m so sorry for the discomfort I caused you and that you are going to feel for the next several days.  If every woman’s breasts were as dense as yours, I never would have taken up this field of medicine.”  I suddenly felt a combination of guilt, sadness and gratitude.

“What happens next?” I asked.  He told me to go home and put ice packs on my chest and rest as much a possible.  He told me that I would come back on Thursday for my results and we would discuss the whole thing further then.  But I wanted to discuss it NOW.

“Look, you’ve been at this thing for like 25 or 30 years, right?” I asked.  He nodded his head.

“I am not asking you to make a diagnosis without the pathology, but you have done enough of these procedures and seen enough of these things to have a sense of what’s coming next.  All I want to know is this.  Is Thursday the day that I have to come in with a big box of Kleenex?” I asked.

“We buy Kleenex in bulk,” he responded and gave me a genuine, warm hug.

I was closer to becoming a member of the club.  So I had three more days to wait.  And wear ice packs.  And watch my breast swell and turn completely black and blue.  I could not lift my arm or carry my bag.  I could barely reach into the mailbox, let alone hold the phone to my ear.  Sleep was uncomfortable, if not impossible.  And I was still waiting.  I had told none of my in town friends what I was going through.

Wednesday night at about 9:45, my phone rang and I saw on the caller id it was my surgeon.  I picked up and he said, “I have good news and bad news and I didn’t want you to wait one more night.  You deserve to know the results since I already have them.”

My heart was pounding wildly.  “Give it to me straight, Jim,” I said.  It went rather rapidly, like this:

“The pathology has come back negative.” (Big sigh of relief on my end)

“But I don’t trust it.” (Excuse me?)

“I cannot with good conscience give you a clean bill of health and let you go off in the world thinking there is nothing wrong.   I’m afraid I didn’t get deep enough or to the right tissue and I need to be sure.  I think that both you and your doctor were prepared for completely different results and quite frankly, so was I.  I’m so sorry.  When you come in tomorrow afternoon, we’ll discuss our options.”

Another waiting game was about to begin.

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As usual, this is so beautifully written. I almost feel guilty laughing so much when I think of what's going on. I am thinking of you and hope it all turns out okay.
That sucks O'Really.
I am very sorry this is going to keep playing out.
:-(
Wow. The good news was so good I hate that they have this uncertainty. It must be driving you crazy. The fact that you can have sexual fantasies during a breast exam is a good thing! This must be driving you crazy. I've been there and almost six years later I'm still here. Hang in there funny lady!
Ohhh, I love your humor being intact even as you are scared witless. Bravo, woman.
I'm glad you can look back at this with humor. It is a terrible thing, as I found out with Terri, to have to wait. The waiting is the worst. I did everything I could think of to keep her mind off of it, but thats not going to happen when you're thinking about life, and death!
R~
I'm glad you've got such a conscientious and compassionate doctor but, damn, I'm so sorry you still have to wait.
Thank you for sharing a very painful experience as you're going through it and you sense of humor is still in tact! I pray that the Doctor is confident that he hits the mark this time, and it is still NOT cancer!
Hmmm, Chinese water torture--slow and slow.

Still amazed and impressed by your spirits--and also pleased that you have supportive friends and a doctor you get along with so well (let alone one who has big and skillful hands). Hoping that you also feel whatever cyber-support we can supply over the internets: certainly trying to send you good vibes. You're a classy, sassy lady O'Really?, and I wish you good, good wishes.
All the freaking waiting is unbearable. Thank God he's so conscientious, though. Hoping for more good news for you.
Excellently written. Rated.
I'm hoping that your ability to tell this story so skillfully and with your trademark sense of humor means you are beyond the uncertainty, and have recieved reassuring news. If you're writing this while in the throes of the pain and worry, my hat's off to you. (and that's a big deal today - it's damn cold in Chicago!)
Tough. Tough. Tough. Don't know quite what to say. The waiting game is crazy making. It's one of the things that reveals how tenuous and frail modern medicine is--even really good modern medicine.
Jesus. The combo platter of your world class writing talent, off the charts sense of humor, buckets of humanity and unique, clear voice all wrapped up in the story you're telling is like nothing I've ever read. And that is the highest compliment I know.
I wish this were fiction.
Brilliant writing.
Maybe it is.
Oh, shit. This is hard to read, mostly because of the waiting and uncertainty and discomfort that you had to endure. R.
So why are my hands sweaty? Because you continue to tell me "Don't ignore those little "things" (well... most women ignore THAT little thing, but I'm talking about THOSE little things) that would be so easy to ignore until... too late.

Awesome writing. As always.
The waiting must be the worse. I don't mind fighting the devil, I just hate having to wait on the battle. I love the way you use your humor in a dramatic setting...I will be following this for sure.
Son of a Bitch! That's all................Still waiting with you to know and so sorry for the pain and the wait...
I don't like where this might be going. I would rather be reading about your analysis of men and their foibles
As always, so well told, so full of humor and humanity. Still wishing it were fiction, still hoping it comes out as a "PHEW!" But reading nonetheless. R.
"Lumpectomy. It's a good thing" ~ Martha Stewart
Wow!

just, wow!

I'm still hoping for the best possible outcome
I go absolutely insane when it comes to waiting. I'm hoping thi ends well. ~R~
Oh God, O'Really? I've been through this with other parts of my anatomy (duh.) To me, the worst part is not the pain, it's the anxiety of waiting for the damn test results.
Excellent piece (although I wish it was about something else in you life.) You got the terror across perfectly.
R
Wishing you the best
Hope deferred makes the heart sick. I’m hoping this has the opposite sort of outcome.
Rated and appreciated.
Yikes! False postives and false negatives are apparently very common. My husband had a negative lumbar puncture but his neurologist also said he doesn't trust it - all the LP's that go this certain lab come back negative. False negatives. I hope yours wasn't false!
I've been sitting here for 10 minutes trying to sort through everything I would like to say and make some sort of coherent statement. I feel your story.
Beautifully written.
You are able to show us the fear of the unknown re cancer, which is different from the fear you feel when you are told you have it.
May you not feel that second one.
The waiting truly is a nightmare in these situations, but thank goodness the surgeon is so caring and thorough.

I went through a similar ordeal a few years ago and have nothing but praise for our breast screening process in England.

Compulsive reading and the lovely touches of humour something we all need to try to hang onto.
I don't know what else to say that hasn't already been said, so I'll just add my best wishes and hope y0ur next visit with Dr. Big Hands brings better news.
holy freakin' crap. there better only be one more of these ... with a better answer at the end.
At the risk of sounding like a pathetic Hallmark card, my thoughts are with you.
This is painful to read, but not because of the writing. And if you don't mind, I'm not going to rate it simply because I don't like the idea of giving you a thumb's up for possibly having breast cancer. Hugs to you.
Yikes... Doctors really know how to make you wait and how to make the waiting torture don't they?. "I'm going to give you good news and then immediately negate it the night before your appointment!"

However, he sounds like the kind of doctor every woman going through this worrisome time needs and deserves. Especially the no BS part.

Big hugs to you, and big hugs to DR, your recuperating friend.

I'm holding out hope that the worst news will be averted.
Argh, when that other shoe dropped, my heart fell for you. Let's hope for good news all the way around, including a date with the big-handed doctor.
Wooosh... the sound of air being sucked out of me.

I am still holding your hand and hoping that your doctor is wrong. If he's not, I'm hoping his big hands and great bedside manner reflect one marvelous healer.
Ain't that a bitch. Yet, "negative so far" is a very good sign, at least prognosis wise. I am just waiting for this to be over so you can devote one of your next posts to the "large hands."

Get well, O'Really.
Rated.
This post is so strong because of the humor you are able to bring to a sad subject. Good for you!
Rated

Admired.

You're amazing.
Oh my God - like jimmymac you have excellently reported and walked us through your experience. I am sorry for your pain and your continued unknowing. You will be in my prayers also.
One of the worst things for me to experiance is waiting.
I'd be climbing the walls.

My wife has been through this with two lumpectomies.
The whole thing is hell.

It's good they are looking deeper
It's better they are not simply cutting
It's great that it is negative so far.

Fuck waiting......
Oh, god...I hate waiting. Especially for bad news.
Keeping your humor is a good thing, though I know this all has to be weighing heavily on you. Dense is apparently a very good thing until you need a biopsy. Fingers crossed for a positive outcome on this end, but I'm afraid you are in for several more days of wondering. I am SO glad you've got a great doctor and a great friend to help you through all of this. You have many here that care about you, too!
You are telling a story that needs to be told, O, and you are telling it beautifully, albeit heartrending. I am sure it is difficult, but in the end, hearing how it affected you, and how you handled it all will be invaluable to others. As always, you are a moving force and valued voice. Our hearts are with you.
I could just *feel* that cold, hard table. Been on so many. My heart squeezed in sympathy. No matter how hard you try to relax, cooperate, be funny, ask questions--nothing takes away the feeling of powerlessness and galling dependence on other people's skill and kindness. You do appreciate the kindness, though, which comes from the ones who see you as you, a unique person. It sounds like this doc does. On the hopeful side, I'm wondering if the density of your tissue simply makes you more likely to have benign cysts or tumors. I hope to god the negative is for real.
I am on pins and needles, holding my breath...
I don't know about you, but I needed a cigarette after that exam.

Thank God he didn't call and call you Jim, it could have been Dr. McCoy on the other end.


I have a waiting room strategy. I give the oldest guy I can find in it five bucks to trade places with me.

Doctor: How are you today... Err... Rabbi... Uhh... Finkelstein?

Me: Pretty fly doc. How about you?

Doctor: I'm... What? Um, I'm good. So you're here today to discus your... Angina?

Me: Oh sure.

Doctor: This can't be right. You don't look 85.

Me: My wife's motzo ball soup; make you party like a rock star.

Nurse: Excuse me, doctor; the man that came in for the Hacky Sack injury...

Doctor: Yes?

Nurse: He just went into cardiac arrest.
wishing you the best of results.

thanks for writing this. i just went for my first mammogram thursday and i have no idea what to expect. You have maintained a sense of humor through this difficult time, and that's a good thing no matter what.

BTW that doctor? He sounds perfect....I'll give you odds he's gay.
please feel the white light of a higher power around you. thinking of you.
I want you to have good news as well. I too have this dense breast tissue business. It's annoying. I wish you much luck and support.
oh, i have nothing, except i hope he is wrong. he might be one of those over-cautious doctors. which is rare and wonderful. but leaves us all waiting with you.

i have heard caffeine makes breasts denser.
Sis, may I just say: ARRRRGGGGGGHHHHHH!!!

Thanks. I feel not at all better. Except that this may well have been the best thing you've written.
Highly rated, and here's hoping for the breast, um, best.
damn it, Damn It, DAMN IT!!! That's just me frustrated at having to wait to find out what happens next. I can only imagine what it was/is like for you . . .
God, he sounded like the perfect date - before the needle and the unfortunate excuse he came up with to see you again.
Your writing truly conveys the dread you feel and the dread we share for you. I can't add anything but what others have all said. Your writing continues to be a great gift you share with us.
So are you going to go out with him?
I read this this morning. It seems to shallow to say what an excellent writer you are...but truly you are. I was right there with you every step of the way. I could imagine all those feelings as you are lying there and the biopsy was being performed. Those fear feelings overwhelming you, and the living in the "unknowing". For me, the living in the unknowing is always the most challenging. Yet, in the midst of all this, there you are flirting with this doctor who sounds like he has some awesome bedside manners. I think for many this is the greatest fear...that we will be treated like a number and not a human being. My heart is with you on this!
Thank you for sweeping me into your life and letting me sit with you during what must be an agonizing wait. While I will leave your blog at the end of the comment, please know my best wishes for you will stay. Rated with hope.
you didn't really think he was gonna let you get away with just two visits, didja?
When they start posting OS pieces on the main Salon site, yours are the ones they should start with. Man, you're good.
My plan is always to be prepared for the worst, but anticipate the best.
Wow, I had no idea. Good luck!
I'm right there with you. Everything you wrote brought back my experience earlier this year far too clearly. It's a tough time with many questions and not enough answers. Keep us posted.
What can I say that others haven't already said? I just add my prayers and good intention toward your situation. I hope, as Julian of Norwich said, "All shall be well, and all shall be well, and all manner of things shall be well."

http://www.worldprayers.org/frameit.cgi?/archive/prayers/celebrations/all_shall_be_well_and_all.html
Good luck to you. This is awful news but I'm glad you're blogging it. Your writing is a pleasure to read, even though the content is so very scary.
I like your description of the doctor's behavior. We need more like him. A good bedside manner goes a long way -- especially when the patient is anxious, frightened, and vulnerable. The suspense continues...