Oryoki's House

Queen Bee of a Small Hive

Oryoki Bowl

Oryoki Bowl
Birthday
February 03
Bio
Quaker buddhist, kinda quirky, loves cooking and knitting and movies. Dr Who fan, Scandinavian-aquarian and cat lover. Would love to be paid to travel around the world and write about local healing cultures. While eating and drinking and dancing. One day I will have a health cruise in the fjords.

FEBRUARY 9, 2012 11:27PM

Hope over Science

Rate: 7 Flag

The art of medicine includes balancing knowledge with wisdom, facts with compassion, and blending the scientific with the subjective.  I have yet to give anyone really bad news, but I have had to face a few times when there was a chance of really bad news.  Questionable bloodwork, a suspicious mole, an ovarian cyst that shouldn't be there.  Bumps, lumps and rashes are usually pretty obvious, pretty easy.  Once we get into the mysterious and immeasurable, the something's just not right, it gets a little dicier.  Good patient communication, trust with the doctor, an open mind on two sides, and persistence.... hopefully unlock the door and reveal something not too bad. 

The sister in law of my friend is dying.  Today I got the call that chemo is killing her faster than the cancer, which is about as bad as it gets.  The good doctors of Mayo have suggested she stop and move into hospice.  The cancer isn't responding at all, if anything, growing stronger with each round.  Her body is breaking down with infections and heart failure, the tumors grow.  She is a young mother, and married to the brother of my friend.  I have known this family long before she was in their lives.  And now, I will know them a long time after she leaves it.   I haven't seen her in some time, since before the diagnosis last year, she has kept to herself and we aren't close.  In the past, a little moreso, when life overlapped us more often.   I have been keeping up, from the fringes, careful not to impose on the delicate privacy of a family falling apart from within.  

I am close enough to her inlaws that I can call their cell phones and get an update, detailed, on everyone.  We are now in the fourth generation of family with each other, as I have been watching their grandchildren grow up.  I have watched as her beautiful boys have gone from toddlers to young teens.  Now, these two young men are having to accept, finally, their mother won't be surviving after all.

I may be a scientist, a physician, the person who can explain the minutiae of labs and tests and physiology, break it down into small bites, arrange into meaning, and take out the scary part.  My friend called today, in tears, asking me how the doctors could have missed it for so long?  Years of something's just not right met with a raised eyebrow, and it's all in your head, you probably have mono.  Years of misdiagnosis that led to a very late, and very too late, discovery of a very rare lymphoma.  And now, no chance to survive.  I don't want to be the one to soften this blow, to say there is nothing more they can do, there is nothing they could have done.  Maybe they should have found it.  Maybe is too late.  For my friend, I must say, this was a one in a million chance.  And, it probably was.  

I want to give them hope, that there is a chance, any chance, things can turn around.  Taking out the poison and let her body fight back, and survive, and somehow kill this thing that has lurked in her genes for years, a Loch Ness of disease.  Little sightings along the way that have been spooks, shadows, there and gone.  I want to not be chiming in with their father, a physician, as he dryly recounts the details and distances himself from the pain.  His son is losing his wife, his grandsons, their mother.  I don't have anything to offer but I am so sorry, I am so sorry, I am so sorry.  I have run out of science, and have only hope to turn to now.  

I know miracles have been known to happen.  I don't care for anecdotal evidence, I care for stories of mad chance meeting the edge of life.  I don't know how to harness these, and lasso them into the care plan for patients.  I can only give the best of all possible outlooks, and a plan B for when it is not so good.  Today, tomorrow, this week, I will be showing up as a friend, not a doctor.  A friend who sat at her desk today, between patients, crying because the call has actually come.   I am so sorry, Jeannie.  I am so sorry. 

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Oh I am sorry too that it wasn't found sooner, that there has to be pain and suffering and death. I know the medical field is so very intense and it is more of an Art than a Science. I have two friends who are losing loved ones to cancer as we speak. It is so hard. I wish I could do more but I can't. It isn't my turn. When it is my turn I hope I can face death and sickness with dignity and love. I did the training and was a Hospice volunteer for a year. I learned so much from that incredible organization. Much Love.
Giving people hope is the BEST!
.........(¯`v´¯) (¯`v´¯)
☼•*¨`*•.¸.(ˆ◡ˆ).¸.•*
............... *•.¸.•* ♥⋆★•❥ Peace and ♥ L☼√Ξ ☼ ♥
⋆───★•❥Have a Lovely Day ☼ .¸¸.•*`*•.♥ (ツ)
This post fills my body with chills as the tears want to spill. I can feel the sadness and angst in your writing. As another human being, a Mother, a daughter, a sister, a wife, and as a friend I can truly feel sad for this young woman and her family. I'm so sorry for her and the rest of her loved ones......so sorry.
The opening sentences of the last paragraph are as beautiful prose as I have read in a very long time. r.
I don’t know why people fear death so much. When you look at the slow and painful death cancer provides you should realize that the creed of the warrior is the only one that makes sense. Death in battle is the only way to die.
There are no words that can truly soothe this kind of pain. It is a familiar pain, one that some know too well. I am sorry that they are so soon on this journey that we all take, when our loved ones can no longer be a part of our physical world. It is heartbreaking. I do not like to go through it, but I know someday I will be the one who leaves never to physically return. I think that you are more than some people see and I believe that you can help give peace, I send strength.
I do not go to doctors as I no longer want to know. I watched every single family member suffer for days, months and years. I always had hope. I feel so badly for these people. No one is going to watch me suffer if I can help it. I do not want them to have hope and then have it dashed.
HUGGGGGGGGGGG
Thanks for all the supportive comments. This morning a little teary as I notify the outer ring of friends and family. It's always a bit strange to go on alert, even after all my work with hospice, it isn't that part that is as hard as watching the family grieve. That will take a long time.