o'stephanie

o'stephanie
Location
Oregon, USA
Birthday
December 01
Bio
Happy to be here among friends.

MY RECENT POSTS

DECEMBER 3, 2009 9:17PM

Still Living Still Life

Rate: 21 Flag

 Still Living

Now the Republicans are waging war on the Democrats over women’s breasts, claiming that the recent recommendations concerning screening mammograms by the United States Preventative Task Force are part of Obama’s socialist plan for health care rationing.

Rubbish.

If anything, the new recommendations will well serve the insurance companies which have purchased Senators on both sides of the aisle but most lavishly on the Republican side. All those who oppose the slightest hint of a public option, which the people overwhelmingly want, are steadfastly loyal to the concept that health is not a public good but a venue for profit. When I looked up the US Preventative Task Force, I discovered that one of their partners is America’s Health Insurance Plans which represents 1300 insurance companies.  Just one example of the lobbyists sprinkled throughout the political system of federal advisory panels which Obama has targeted for removal. 

Gina Kolata of the New York Times writes an excellent article which lays out the history of screening guidelines. The experts have never agreed and never will. They fight over populations and cost benefit while individual women and their doctors must decide for themselves. We are told that they wish to save us the anxiety of yearly mammograms. Where are my smelling salts, ere I swoon?

One of Ms. Kolata’s observations went to my heart.

“…the test is finding cancers that grow so slowly that if they were left alone they would never be noticed or cause any problem in a woman’s lifetime. Since the harmless cancers (my italics) look the same as deadly cancers, they are treated as if they are potentially lethal, with surgery, chemotherapy and radiation.”

I was diagnosed with one of these “harmless cancers”—Ductal Carcinoma In Situ (DCIS). This is a cancer which arises in the milk ducts and is non- invasive right up until it turns into an invasive cancer at which point it is called something else. DCIS is controversial in the ivory towers of academia where they argue whether to even label it as a cancer. Twenty percent of all breast cancers picked up by mammography are DCIS. In some women, it lies dormant--in other women, it rises up to kill her. Unless they can predict which woman will live and which will die, they must treat you for this.

I sought care at my state medical school where a woman can expect the best and most up-to-date treatment. My doctors gave me the choice of a lumpectomy followed by radiation and chemotherapy (91% cure rate) or a simple mastectomy (99% cure rate). They did not tell me that my DCIS was harmless. They did not say that I should do nothing. I chose the best odds.

As far as the screening goes, I believe that women will follow the course which gives them the most comfort. My mammogram showed the telltale linear calcifications but not the 4 cm mass. The ultrasound showed nothing. The MRI was sensitive enough to pick up the DCIS, and I will be followed with MRI as well as mammograms. I believe that, rather than discouraging annual mammograms and breast self examinations, the illustrious panel should have recommended adding MRI screening which does not entail a radiation dose. 

For my friends here on OS, I have really missed you and have stopped by to read here and there. I've been juggling graduate school through all of this. Will take three incompletes, but I plan on graduating on time. I have had a lot of support. 

balloons at my bye bye boobies party

My best friend hosted a Bye Bye Boobie party for me complete with a cake.

my cake 

And balloons.

balloons 

 

 

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Stephanie,
Thank you for this post. The challenges you’ve been living with as well as the choices you made have not dimmed your bright hopeful spirit nor your desire to educate and encourage others.

Wanting to bring hope and help to others while facing or having faced our own mighty hurdles is a mark of a good heart. I’ve never doubted you had that and you appear once again to affirm you possess it in no short supply.

Rated and appreciated and happy to see you back.
So glad to read of your deep and fun-loving supportive friends. Oh, people can be so wonderful.

All the best to you.
Hello....I've missed you! Oh my girl, you have never been so beautiful as you are right now....xox
Dennis,
You are a very appreciated and articulate friend. This post was actually a bit of a hurdle. I guess a "coming out" of sorts.
Am glad to be back!

Wakingupslowly,
Everyone should wake up so! Yes, my friends were just great. I had never heard of such a party before but had picked up on it on a great website: breastcancer.org. 55,000 + women, all sharing info and strength.
Robin,
I take that as a great compliment!
All my bird ads have taken flgiht and been replaced with breast cancer ads. Still spooks me how they do that.
It's good to see you Steph, and even better to see this not keeping you down.

"the new recommendations will well serve the insurance companies which have purchased Senators on both sides of the aisle but most lavishly on the Republican side"

That's my take on it as well. Hypocrisy and lies; that's the currency in DC, that and the money floating around from corporate lobbyists.
Sorry about your diagnosis, glad it was found so early, and agree with you that MRIs should become a larger part of the screening process. I'm glad you went for the mastectomy, not only higher odds but think of all the nasty collateral damage from radiation and chemo!

Congratulations on your upcoming graduation too. Well done!
Steph, it's wonderful to see you posting. I agree with your point about the MRI - we need to be more aggressive in screening, not less.

Thinking of you and sending healing thoughts. Congrats on the upcoming graduation.
Great to see you again, Nana!
Yeah, the insurance companies ae shameless, but our senators should be ashamed even more that they allow themselves to be purchased.
I wondered who the hell these guys on the panel are and who asked them? So I looked them up, looking for the corporate partners...
If you click on the link about Obama targeting lobbyists , you will see a quiet story about Obama kicking these industry folks out of over a thousand of these advisory boards.
My thoughts, prayers, and lot of {{HUGS}} coming your way. You take care of YOU.. I am here if you need me.. Love and hugs
Thanks, Ablonde. Yeah, I went for the numbers. Radiation also makes it harder to have reconstruction if you need it down the road. Too many women with two lumpectomys or more.

Natalie,
You are so right. Women seem to be getting the short end of the stick, what with new guidelines about PAP smears too. You have to be your own doctor anymore. My doc did not suggest the MRI, I did and it made my choice much easier. A woman really has to educate herself because there are so many decisions to be made and tests and resources you know nothing about.

Fireeyes! Sweetie! Glad to see you again. Thanks for the virtual hugs!
I am happy to see a post from you O'steph, and yet it is bittersweet to see this one.
You are one of those folks that I think of as overcoming any of life's cuve balls thrown at you.
I have been thinking about you and checking for some news.
Hugs and am proud for your hard fought education.
Pet the Kitty.
Mission,
Thank you for your kind thoughts. It is nice to be remembered.
The hard fought part is right--really for my entire cohort. I just could not think of waiting another year and graduating with strangers. We have gotten pretty tight.
Thank you. I will pet the kitty--at least, a real kitty who sleeps with me sometimes in the recliner.
Thanks, friend.
I've missed you, Stephanie. This is a great and important post to all that can't see through the folly of our present health care system and much of the reform effort. To tell anyone not to go to a doctor for regular check-ups (whether mammogram or any other) is about as crazy as an advice can get, but to get that advice from a government agency is total batshit crazy.
I am so very sorry to hear that you've been going through this, but I'm glad you didn't do it alone. At the same time, I am so very glad to see you back here again! Not sure how to deal with those contradictory emotions.

Steph, sending you love and hugs and lots of good thoughts and prayers. Congrats on the impending graduation.
This is such an important message: thank you for delivering it! Glad you have such wonderful friends--your cyberbuds are with you too!
Such a bittersweet reunion, friend. So glad to see your name in the feed and so sad to hear of what you've been up to. I know that your inner strength can carry you through anything and I will be wishing the health & happiness for you always.
Michael R,
"Total batshit crazy". I love you and thank you for missing me.

Bill S,
Sorry, my friend, for the conflicting emotions. You feel deeply--you wouldn't be our Bill if you did not. I look forward to a duet story between you and I when the dust setttles. Remember the fun we had before?

athome pilgrim,
Thanks. I feel a connection here with so many folks. OS changes but it stays the same in so many ways.
1_irritated_mother,
Glad to see you again, my friend. Aye, bitterweet. Life is often about loss. Cry and move on. There is always good just up ahead.
This post correctly points out the dilemma that all cancers are not created equal. "Watchful waiting" is a common "treatment" for older men with prostate cancer, but that would be a foolish course of inaction for a younger man.

The truth is that for all its sophistication and expensive diagnostic equipment, the medical profession really doesn't understand cancer, and sadly is probably a long way from it. Until that changes, it is probably best to err on the side of caution,
Fine post. I do so hope that you treatment progresses with speed, curative and no pain.
R.
Speaking of prostates, Tom, I think that they came out claiming that the PSA levels men have been urged to check yearly are useless. You really have to be your own doctor.

Thank you, Rutilus. Things are going well. The cancer is gone. It's a six month process to get back to normal, but I will persist.
Man, Steph! I was wondering where you ran off to. I'm glad you're back. It appears that your spirits are in good shape. It's always best to go with the odds when dealing with that shit.

Health care reform my ass. The corporations are winning out AGAIN. I say we all move to Australia. Lots of room there :-)
Hey, Stellaa, thanks for the love and best wishes. Means a lot to me.

Hey, Boomer Bob. Thanks for missing me! Good be missed! It's a long process but I try to keep my spirits up. Got some good friends, the best one is the one I can cry with.
Powerful stuff, Steph.
Be seeing you soon, dear sister. Love!
I love the idea of a bye-bye boobie party!! Stay strong and keep on surviving! If I can do it (6 years) you can:)
Thanks, O'K! See you soon!

Roger,
Glad you are a longtime survivor! I have very good prospects and intend to have many of these anniversaries. I want to meet my grandkids.
I've been following the screening issue but from a distance--I appreciate your post and your personal perspective.
Johny,
Thanks for leaving a note as you came by. You know, I believe that the women will have the final word on this. I have already told my daughter to ignore this dictate as well as the two-year wait between pap smears. In my training years ago, I saw a woman dying of cervical cancer--it looked like agony. Covered my insurance or not.
Hi, O'Steph. My opinion on this matter is complex. First, I think it's an inevitable thing that there already is and always will be rationing under nearly every conceivable system. So the scare tactics about rationing are just that—scare tactics.

I think it's a complex issue deciding what society can and cannot afford. There are treatments for some things and not for others. Some treatments are for rare things, but are trivial in cost. Some are for common things and very expensive. And a range of things in between. Figuring out how to prioritize will be a complicated task, but we do not make it better by saying “let's leave it to the free market because then there will be no bias.” The free market may work well for a few rich folks, but most of us are not rich.

But I think it's fair to say that we should be setting at least some goals in the health care system and one of them should be to be able to afford a decent amount of screening, in the hopes that it will stave off worse later. Cancer, in particular, is frightening because of its speed and because once you get a diagnosis, there is very little time for contemplation. That's one reason early screening is so critical. And it might even be a reasonable reason for biasing toward paying for screenings even if they are a little expensive, because we could easily lose whole people, people with families, people who generate income streams (I mention this for the sake of people who think that money is all this health care debate is about). For as much as I fuss about abortion, one reason is that I think once we allow a birth, we should be committed to trying to make the best of having that person in our society. The opposite view seems to prevail with some, that we should work as hard as we can to get people born and then treat them as expendible after.

And finally there's the issue of false positives. That is such a dilemma for many people that it deserves an entire separate discussion and it's quite lamentable that this issue came up in the context of this health care discussion because it distracts from the many issues that need to be decided now. Yes, this will be an issue. And, not covered in any coverage I've seen, when you pay for expensive tests or procedures that don't pan out, that's money that could have gone to other treatment. So it's not that women may die if they don't get these tests, but others (men and women) may die if they do get the tests ... But that's true of all things in the health system. People may die if I get a flu shot because a critical dollar or two was spent on that instead of something else. We have to learn to grow up and discuss these things like adults and not play the scare games that have been circulating in the political arena of late.

I'm glad you sound like you're doing ok. I appreciate you sharing your story. Sorry for running on, but you know me...
Kent, you live in your head. Have a balloon.
Hmmm. Don't we all? I hope that's a positive thing...
It's a positive, Kent. I do know you. ;>)
But my point is that the argument breaks down when it gets to the individual woman. All well and good to discuss costs and benefits--the Oregon Health Plan had to make these kinds of decisions and opted for immunizations over some geriatric care. It is the greater good; however, I'm not sure that we need to ration it so that some live and some die. And this is what this means to women. Much worse than having an unplanned pregnancy is dying from breast cancer. Having the procedure covered will be an important way to guard your own personal health.
Hey Steph, what a powerful post b/c I "know" you and hadn't expected this. What a terribly hard decision that must have been. We get so attatched to our breasts w/o even thinking about it until something like this. You are very wise to listen to your survival instincts over vanity.

I also learned a lot, I had no idea about those statistics. I hope that you keep us updated. good luck and so glad to hear that you have a great support group.
Oh my. I did not know you were going through this. I am glad you chose the 99% option but understand somewhat having to make that choice is difficult. Thumbs up on the MRI suggestion.
Y Heron,
So glad to hear from you! And see that babe in your arms.
Yes, the decision was difficult in how much I had to learn in order to make the one right for me. Women's satisfaction with their decision is directly linked to how confident they are in what they know. I had heard of too many women who had multiple lumpectomies only to have a total mastectomy down the line.
My being a nudist put a different perspective on it as well. I will write about that later. Also want to write a what-you-need-to-know if you get a diagnosis.

Dorinda,
Great to hear from you. Even though I knew that my OS friends would be supportive and I had thought of blogging the process, I just did not. One part was not having a clear sense of how I felt about it while it was happening. The main part, however, was the same reason that I did not tell my home nudist club: it was comforting somehow to have people out there who cared about me and were holding the image of me in their minds as whole and sound.
Oh Steph, I'm so glad they found it! My Grandma found a lump last year and immediately went the route you are. I swear, two days later it was if she hadn't had a surgery at all. plus, she was stoked because insurance will buy her two new bras a year!

Good luck, honey - I'll be thinking of you. Great piece!
Hi Julie!
Thanks for the kind wishes. Yeah, the telltale calcifications were not there the year before, and they were caused by the cancer being in the 4th stage of necrosis. I figure I had it about four years. Yearly mamms was a good stategy for me.
O'steph - I missed this until just now. Thanks for sharing a personal side of you, and your passion for health care reform. OS is different without your energy. Wishing you well.
Grif,
So glad to see you, my friend. Happy to be missed. I am doing very well. Having to get back on my feet to save my gterm in grad school actually helped me out, altho I would not have thought it at the time...
Have blogged more on the recommendations. The poor are our canaries in the mine.
Do intend to be a presence more often.
Almost there....this surgery tomorrow will be much easier. Then a wait and one more surgery.
Grad school....long to leave that behind me as well.
later...
Thank you for this post. I am grateful you survived.