Today I got a phone call from the assisted living place where my mother stays. It was the nutritionist. It seems that a doctor has asked her to look at my mother’s case. My mother has lost fourteen pounds since November.
“And . . ?” I ask her.
“Well, she doesn’t drink milk,” the nutritionist says, “and doesn’t seem to be interested in drinking Ensure. We do have some ice cream that has protein and other nutrients in it.”
“She’s 92 years old,” I tell the woman. “Don’t push anything on her.”
The nutritionist says she won’t.
“Your mother mentioned being sad sometimes.” Did I know that, the nutritionist wonders. Yes, I knew. She’s been sad for years -- ever since the botched operation on her back took away her mobility. I’m sad, too. Sad that her once-brilliant mind is now a series of misfires. A couple of weeks ago she told me she couldn’t remember her last name. She sat in the dining room of the AL facility waiting for dinner and asked if this was something special, something they did once a year. I didn’t ask what she meant, only said, no, I didn’t think so.
I repeat to the woman: “She’s 92 years old. She’s not having a good time. I’ve talked to the doctor about anti-depressants but he doesn’t recommend it at her age. I visit as often as I can, daily except when I’m not in town.”
The nutritionist understands.
“I don’t want to do anything unless she’s in pain,” I say even though the truth is that she is in chronic pain. She is too fragile for any of the usual remedies. Her mind breaks apart completely under the influence of narcotics. So she suffers. And we watch. I will not press food upon her. I will not let anyone else.
A couple of days ago one of the people who work at my mother’s AL facility told me that she never wants to live in a place like this. We shake our heads. Never. Or worse, much worse, one of the nursing homes.
“Every time I go to one of them, it takes me days to recover,” she says.
I know that there are people who live happy, fulfilling lives well into their 90s. But my mother is not one of them. It isn’t a terrible life. She’s in a good place. She plays the piano every day. She plays a daily Scrabble game (very, very badly). But she’s lonely and isolated. Losing your mind does that. She can’t interact with people, only dredge up a repetitious cycle of half-memories. Her Scrabble partners wait patiently while she tries to remember what she’s doing with these letters in front of her.
Yesterday my mother told me she has been talking a lot to her younger sister who died a couple years ago. They did not have a whole lot in common; nevertheless their sisterly bond held fast over their long lives. I’m hoping that Hazel is talking to her, keeping her company along this journey, this journey that is not for the likes of us, the living.
I’ve thought seriously about quitting my job, getting a house with accessible bathrooms and just making do with her social security and my freelance work. Would that make her happy? But this is probably a ridiculous pipe dream. Her constant needs, now taken care of by a staff of people, would quickly erode me if I tried to do it by myself. Besides, it’s no easy matter to dump the house where I now live.
So my mother is losing weight. In an hour or so, I’ll shut down my computer and go over to sit with her. I may take away her television before the next rent cycle. She doesn’t watch it any more and I am paying for cable that she doesn’t use. But when I tried to take it yesterday she became upset -- even though she’d just told me she hardly ever watched it. So I left it -- a reminder of a person who once watched the television.
Outside my window right now black crows are screeching and charging through the branches of the trees. A hawk has sent them in a flurry of outraged conferences.
And I’m thinking of my mother -- diminishing feather by feather.


Salon.com
Comments
You are doing the right thing. In your grief, reserve your energies to be with you mother when you can. Take care. Rated.
P.S. I wrote a post about my father recently titled "For Dad: I Know What Poetry Can Do." I'd be happy if you sent me a PM with your thoughts, or if you just need to say more about your mom.
This situation is all too common, yet it seems we all face it alone; I've faced it long distance when my MIL was getting dementia. Thankfully a SIL took her into her home, but she confessed to me that it was much, much harder than she thought it would be. Even more thankfully, Mom didn't last much beyond a year after that.
I have a grandma still living who is 83 and lives in her own home, but this past year has been fraught with one health crisis after another. I wonder if the doctors really know what they're doing. If any of us do. Somehow we've gotten away, in our quest for more and more life, from the natural processes of aging and dying. I know grandma would have been gone long ago with heart attack number one, except for modern medicine. She is lucky and has had good years. But does it give her a sense that she needs more? I don't know. I know she, too, is unhappy and lonely, but I cannot leave my young family and take care of her. So we talk on the phone and I confer with relatives for "the inevitable." It sucks, and I can't help feeling it doesn't have to.
and what can you say when the aids say "she seems sad"--well, yeah...
Love your tender post and wish you strength for the journey. Somehow we all manage to get through this process. My own was 14 years ago and I still regret what I could not do for her but know I did my best. That's all we can do ... our very best.
Love the feathers ... and Bonnie's prayer.
I was taking care of an 87 yr old Diva that keeps a pistol under her pillow, eats in her bed even though she could sit at the table. Demands instead of asks me for things. Has pain pills and pain patches which she hoards. I left for a few weeks because of her ranting temper tantrums. She has dementia but is still fairly sharp. I did go back in hopes she would see how well she had it. It lasted a few days. I'm gone for good this time. You know you are doing everything you can to see that your Mom is comfortable. I commend you for being such a good daughter to such a sweet Mother.
I liked your story Pat. I'm going into another field though. I believe I've given back all I can. Blessings to you and your Mother.
We are not used to "just watching" people decline and die without trying to intervene, but it is the normal way. And it's hard to watch. There is nothing you can do to make your mother not be sad, and there is nothing you can do to get her to eat more, and there is nothing you can do to make her healthy and young again, which is what she really wants. Peace be with you on this tough journey.
Appreciation of music seems to be among the last things to go, so I hope your mom's residence has good music programs--both performance and participation. It's great that she still plays piano.
She's in a good place. Life is no longer like "The Waltons" for most of us--in fact it never was. You're a good daughter.
Regards
Bill
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If you have a sudden inspiration on something wonderful that will make it all better, please let everyone know.
In the meantime, I'm sorry that you (too) have to deal with what you're forced to deal with in your mother's life. Maybe knowing that other people empathize will make it a little better.