Pat MacEnulty

Pat MacEnulty
Location
Charlotte, North Carolina, USA
Birthday
December 31
Bio
Writer and teacher. My most recent book, Wait Until Tomorrow: A Daughter's Memoir, is about taking care of my elderly mom. Published by The Feminist Press in 2011. I also give writing workshops on transformative writing.

MY RECENT POSTS

Pat MacEnulty's Links

New list
Editor’s Pick
JULY 23, 2010 4:13PM

Feather by Feather

Rate: 29 Flag

Today I got a phone call from the assisted living place where my mother stays. It was the nutritionist. It seems that a doctor has asked her to look at my mother’s case. My mother has lost fourteen pounds since November. 

 

“And . . ?” I ask her. 

 

“Well, she doesn’t drink milk,” the nutritionist says, “and doesn’t seem to be interested in drinking Ensure. We do have some ice cream that has protein and other nutrients in it.”

 

“She’s 92 years old,” I tell the woman. “Don’t push anything on her.” 

 

The nutritionist says she won’t. 

 

“Your mother mentioned being sad sometimes.” Did I know that, the nutritionist wonders. Yes, I knew. She’s been sad for years -- ever since the botched operation on her back took away her mobility. I’m sad, too. Sad that her once-brilliant mind is now a series of misfires. A couple of weeks ago she told me she couldn’t remember her last name. She sat in the dining room of the AL facility waiting for dinner and asked if this was something special, something they did once a year. I didn’t ask what she meant, only said, no, I didn’t think so. 

 

I repeat to the woman: “She’s 92 years old. She’s not having a good time. I’ve talked to the doctor about anti-depressants but he doesn’t recommend it at her age. I visit as often as I can, daily except when I’m not in town.” 

 

The nutritionist understands. 

 

“I don’t want to do anything unless she’s in pain,” I say even though the truth is that she is in chronic pain. She is too fragile for any of the usual remedies. Her mind breaks apart completely under the influence of narcotics. So she suffers. And we watch. I will not press food upon her. I will not let anyone else. 

 

A couple of days ago one of the people who work at my mother’s AL facility told me that she never wants to live in a place like this. We shake our heads. Never. Or worse, much worse, one of the nursing homes. 

 

“Every time I go to one of them, it takes me days to recover,” she says. 

 

I know that there are people who live happy, fulfilling lives well into their 90s. But my mother is not one of them. It isn’t a terrible life. She’s in a good place. She plays the piano every day. She plays a daily Scrabble game (very, very badly). But she’s lonely and isolated. Losing your mind does that. She can’t interact with people, only dredge up a repetitious cycle of half-memories. Her Scrabble partners wait patiently while she tries to remember what she’s doing with these letters in front of her.  

 

Yesterday my mother told me she has been talking a lot to her younger sister who died a couple years ago. They did not have a whole lot in common; nevertheless their sisterly bond held fast over their long lives. I’m hoping that Hazel is talking to her, keeping her company along this journey, this journey that is not for the likes of us, the living. 

 

I’ve thought seriously about quitting my job, getting a house with accessible bathrooms and just making do with her social security and my freelance work. Would that make her happy? But this is probably a ridiculous pipe dream. Her constant needs, now taken care of by a staff of people, would quickly erode me if I tried to do it by myself. Besides, it’s no easy matter to dump the house where I now live. 

 

So my mother is losing weight. In an hour or so, I’ll shut down my computer and go over to sit with her. I may take away her television before the next rent cycle. She doesn’t watch it any more and I am paying for cable that she doesn’t use. But when I tried to take it yesterday she became upset -- even though she’d just told me she hardly ever watched it. So I left it -- a reminder of a person who once watched the television. 

 

Outside my window right now black crows are screeching and charging through the branches of the trees. A hawk has sent them in a flurry of outraged conferences. 

 

And I’m thinking of my mother -- diminishing feather by feather.

Author tags:

real families

Your tags:

TIP:

Enter the amount, and click "Tip" to submit!
Recipient's email address:
Personal message (optional):

Your email address:

Comments

Type your comment below:
Your mother is doing what comes naturally to her at her age and in her situation. Unfortunately, our culture is conditioned to want to correct and "treat" everything, when diminishing appetite is natural under those circumstances. As tempting as it is to turn your home into a nursing home, as a full-time caregiver of a spouse I can tell you it's tough work. No one wants to be in a nursing home or even really in assisted living if they can have adequate support in a home environment, but it's tough to accomplish. I wish you, and her, all the best.
You told this with heartbreaking precision. I don't know why, but it makes me feel better that you kept the TV. I wish you both well._r
Oh, Pat. You have enormous sympathy and understanding on my part. After several years of trying to make things work at home for my father, he is now in a group home, declining seriously with end-stage Parkinson's. My brother, who is still living in their house with my mother (who is also disabled and in chronic pain, though much younger than your mother) remains racked with guilt but he knows my Dad needed to be in a place where he can get 24/7 care. That is tremendously expensive to provide in someone's home and devastating regardless for family members who are caregivers.

You are doing the right thing. In your grief, reserve your energies to be with you mother when you can. Take care. Rated.

P.S. I wrote a post about my father recently titled "For Dad: I Know What Poetry Can Do." I'd be happy if you sent me a PM with your thoughts, or if you just need to say more about your mom.
This is a very touching piece. Having an elderly mother who has lost her will to do much as well as losing her memory slowly, I identify with your sentiments. I wish you well. ~R
::HUGS:: I have a father doing the same thing. : (
Beautifully written and deeply affecting.

This situation is all too common, yet it seems we all face it alone; I've faced it long distance when my MIL was getting dementia. Thankfully a SIL took her into her home, but she confessed to me that it was much, much harder than she thought it would be. Even more thankfully, Mom didn't last much beyond a year after that.

I have a grandma still living who is 83 and lives in her own home, but this past year has been fraught with one health crisis after another. I wonder if the doctors really know what they're doing. If any of us do. Somehow we've gotten away, in our quest for more and more life, from the natural processes of aging and dying. I know grandma would have been gone long ago with heart attack number one, except for modern medicine. She is lucky and has had good years. But does it give her a sense that she needs more? I don't know. I know she, too, is unhappy and lonely, but I cannot leave my young family and take care of her. So we talk on the phone and I confer with relatives for "the inevitable." It sucks, and I can't help feeling it doesn't have to.
PS - Thank you for sharing.
My mom is 82...still in fairly good physical shape...but bit by bit eroding. And worse, she can sense it. "Diminishing feather by feather". Oh how incredibly appropriate. Thank you.
well-rendered about something we've all experienced or will at some point. My mother went through this at 84...

and what can you say when the aids say "she seems sad"--well, yeah...
I think you're doing everything you really can do. You visit a lot. It's awful to watch and incredibly sad. But she did a wonderful job raising you.
Thanks, all, for your thoughts. I shouldn't be but I am amazed at how many of us are in this situation. As some of you point out, our medicalized culture tries to keep people's bodies alive sometimes long after they're ready to get off the trail.
This is so, so sad. Excellent writing. Seems like you visit often and that it helps her. When people are in pain and tired of living, they just want to die. Why not try antidepressants? Anything to make the last years or so better.
Dad lived the last year of his life with me as he faded day by day. He just passed away in June. Even having been through the same thing, I struggle to find words, because most of it comes down to instinct and what feels right. I kept the tv and the cable. And discovered that he loved Ensure pudding, so I let him have pudding anytime he wanted. He said I spoiled him. Today, I alternate between rambling and having no words, but I wanted to send well wishes for you and your Mom from someone that just walked the same road.
Your mother is lucky she has you. As a former hospice volunteer it was heartbreaking to be with people who had no one to help them with the most basic needs of life let alone death. Social workers are maxed out with the needy and those who have a little bit of money/income are even less fortunate as they don't qualify for many of the services that the totally indigent do. Discharge planners at hospitals sometimes work miracles but many are discharged to the streets. It's a shame how our elders are put out with the garbage. Sigh ...

Love your tender post and wish you strength for the journey. Somehow we all manage to get through this process. My own was 14 years ago and I still regret what I could not do for her but know I did my best. That's all we can do ... our very best.

Love the feathers ... and Bonnie's prayer.
I know this and am watching this unfold before my very own eyes. It is painful to witness and emotionally, physically and financially draining. It seems we worry so much planning for life and retirement when maybe we should be putting more of our attention and resources on the (often too) long process of death. It's obvious, that somewhere in our collective psyche we either refuse to accept or somehow believe we are going escape this horrible journey. Until we witness it or have to take it ourselves. I think you are handling it very well. Feather by feather, indeed.
Don't know if you remember but I've been caregiving a few yrs. I desperately wanted to have my Grandmother come and live with me and husband and took a Guardianship class just in case. Everyone talked me out of it...for good reasons so I know how you felt.
I was taking care of an 87 yr old Diva that keeps a pistol under her pillow, eats in her bed even though she could sit at the table. Demands instead of asks me for things. Has pain pills and pain patches which she hoards. I left for a few weeks because of her ranting temper tantrums. She has dementia but is still fairly sharp. I did go back in hopes she would see how well she had it. It lasted a few days. I'm gone for good this time. You know you are doing everything you can to see that your Mom is comfortable. I commend you for being such a good daughter to such a sweet Mother.
I liked your story Pat. I'm going into another field though. I believe I've given back all I can. Blessings to you and your Mother.
Those happy, spunky, active 92-year olds you read about in the local newspaper - the ones who seem to still really be enjoying life and take Tai Chi and go square dancing every Thursday - are the exception, not the rule.

We are not used to "just watching" people decline and die without trying to intervene, but it is the normal way. And it's hard to watch. There is nothing you can do to make your mother not be sad, and there is nothing you can do to get her to eat more, and there is nothing you can do to make her healthy and young again, which is what she really wants. Peace be with you on this tough journey.
Nothing in our lives prepares us for this chapter -- except, perhaps, to have the story told to you in advance. I appreciate how direct and precise you are here, all while maintaining a level of poetry that speaks to that part that can't be explained, bargained with or willed away. I wish you continued wisdom and strength as you carry on.
Boy, can I relate. Right down to Scrabble (except that no one except me tries to play Scrabble with Mom, yours is lucky in that regard). My mom's 94 (funny how everyone wants to tell you their story now...I guess we all have aging moms, if we're lucky).

Appreciation of music seems to be among the last things to go, so I hope your mom's residence has good music programs--both performance and participation. It's great that she still plays piano.

She's in a good place. Life is no longer like "The Waltons" for most of us--in fact it never was. You're a good daughter.

Regards
Bill
Pat, thank you so much for writing this. My own father, 10 000 miles away, is approaching the end of his life at the mercy of dementia and failed kidneys. For the last few months I have struggled with myself over how much I can do for him and at what cost, and even though I arrived at decisions there are nagging doubts. I'll be returning to Asia for an indefinite period in a few weeks - reading your post has made me feel less alone for myself and for my father. I extend my daily prayer for my dad to your mum and you - may your mum not suffer, may her spirit and mind have peace in the time she has left here and when it is time for her to leave us. May you be guided to help her in the manner that is most useful to her, when she needs it most, and be a presence of supportive love.
welcome to our website:
========== http://www.fashionshoppong.us/=======
50%off ca,ed hardy t-shirt$15 jeans,coach handbag$33,air max90,dunk,polo t-shirt$13,,lacoste t-shirt $13 air jordan for sale,l nba jersy for sale sale,$35,nfl nba jersy for sale
and so on..
if you like to order anything you like.
More details,
please just browse our website Quality is our Dignity;
Service is our Lift.
enjoy yourself.
thank you!!
Pat, there is a poetic beauty to your writing. I won't know the hours of which you speak as I've lost both parents far too young. My mother's last days were there in Charlotte. But, I remember as a teen we cared for many years for my aging grandmother. Kathy's right in her comment related to it being "tough work," but I also think for us, it was necessary as a family to tend in this manner. I wish you peace in these hours of care, regardless the homing.
I might have written the same story. My mother is 92 and doesn't seem to want to eat. She's living in an assisted living center that is very good but they can't work miracles. The toughest part is wondering whether what I'm seeing is where I'll be in another 10 or 20 years. It's tough to see her being like that. It's even tougher thinking that I may wind up being like that.

If you have a sudden inspiration on something wonderful that will make it all better, please let everyone know.

In the meantime, I'm sorry that you (too) have to deal with what you're forced to deal with in your mother's life. Maybe knowing that other people empathize will make it a little better.
Great writing. Common story...all too common.
As have so many others here, I've been there with my Mom and Dad, who died within six weeks of one another. It sounds to me like you are a wonderfully caring daughter, and that is all that a mother can ask for in her dying -- or any other -- days. Bless you all.