My Thoughts...

(not to be taken too seriously, unless I'm serious)
Editor’s Pick
JULY 2, 2009 2:38AM

Death Is Near, But It's Not Keeping Me Away From Alex

Rate: 26 Flag

P7010402 I'm discovering for myself that " facing my fear" really is a powerful tool for overcoming that fear.


I'm referring to Alex, the young 22 year old friend/neighbor who is dying of esophagus cancer and will be dead any day now. (For those of you who are new to my blog, I've written two other posts concerning Alex.)

 
Of course I still cry for her occasionally when she enters my mind. If I'm not actually crying, I'm  thinking about her and wondering.... Just about every night I go to sleep wondering if she is going to make it through the night...and then I wake up in the morning wondering if she will make it through the day. It's amazing how this young person's last days are truly affecting me. She isn't even my kid....she's just a neighbor of mine and a friend of my own kids'. Death is never easy, but when it's striking a young person, a child, it's scary.
 
About a week ago, I started out not wanting to see her in her dying condition. I only wanted memories of her  alive, laughing, and being a young girl with her sparkling black eyes and wavy thick honey colored hair that occasionally was tinted a different color. I didn't want my last image of her to be the present Alex who is fighting cancer...fighting to stay alive another day. I was afraid to witness the  signs of a looming death hovering around her as a vulture hovers in the air waiting for its next meal.
 
So far, I've seen Alex three times in the last week. The first time is when I brought by a letter I had written to her so she would know of my feelings for her. Although no spoken word was shared, I did take a peek as she soundly slept on her hospital bed in her home. Her appearance wasn't as alarming or intimidating as I had imagined. Instead, she looked peaceful and completely relaxed as she quietly slept. Her thin frail body, bald head and yellow tinted skin didn't prevent me from seeing the beautiful Alex that I've always known. I could still recognize her.  Beautiful Alex  was still there even though cancer made its home within her young body. I went home feeling more peaceful and glad that I did see her....even though she was asleep. It ended up paving the way for my next visit to her two days later....on her 22 birthday.
 
This time when I showed up at her door she was  awake....barely, but she was awake enough to know who I was and to thank me for the letter I wrote to her. Can you imagine?! Here she is dying, her body filled with disease and she "thanked" me for the letter. I've been hearing through the grapevine that she is always forgetting herself and her condition and instead, inquires about others, thanks people and shows concern about what's going on in the lives of her visitors. Because of her weakened health and energy, I didn't stay long....just enough to wish her a happy birthday, give her a gentle kiss  and to remind her that I love her. Once again, I was grateful that I got to see her...this time awake. I later heard that her wish as she blew out her birthday candles earlier that day, was to live another day. Each day was truly a gift to Alex and to her loved ones.
 
Today was my third short visit with Alex. Last time, my husband was with me. Today, my nine year old son (who's on OpenSalon by the way...Tom K) wanted to present her a picture he painted for her on a poster board. Rather than describe it, I enclosed a photo of it. P7010404  With this third visit, I was actually feeling more bold and brave as I prepared to see  her once again. With her appearance no longer concerning me, I am able to "be with" her... slightly more tuned into "her" compared to being tuned into my "fear" of her and her condition. Although just as sad, I'm not as afraid as I was with the first visit. This time, she was actually sitting up although very groggy. I believe the grogginess is coming from being heavily medicated with pain relief drugs through her IV.  She seemed to remember my son, although my son didn't recognize her. (The last time he saw her was last summer as he flirted with her at the pool.) Not only did she thank him for the picture, she asked him for a hug....
 
Although I am shedding some more tears as I finish this post... I am no longer afraid of being with Alex. Her impending death is no longer keeping me away from her. Every visit is a gift....a gift of life shared with young Alex and her  surrounding loved ones. Yes, death is nearby, but it's no longer keeping me away from Alex. It's almost an irony how both Alex's life and her awaiting death is bringing her loved ones to her.  Of course,  it is her life that will continue on in our minds and hearts....long after her body is buried underthe ground.  P7010408
 
 

Your tags:

TIP:

Enter the amount, and click "Tip" to submit!
Recipient's email address:
Personal message (optional):

Your email address:

Comments

Type your comment below:
I really wanted to post my son's picture he made for Alex, but I wasn't able to resize it and so it was too large to share with you. The picture in itself was totally amazing....and very touching.
Our capacity to truly appreciate the wonder and beauty of all that life has to offer begins to emerge at the moment we stop fearing death and place it in proper perspective....Only when we accept death as part of the natural order do we fully understand what it means to be alive....

Rated
Wonderful post, and I'm very sorry to hear about your friend.
I have read your other posts too and am struck by how much Alex is teaching others about the gift of life. She sounds like a truly cool young lady. She is about my daughter's age and I just cannot even imagine...

Thanks
Well done Patricia. Thank you for sharing your journey in this.

Namaste.
Very beautiful. I have to applaud you for understanding the process of going through death with a loved one and facing your own fear. Alex has taught you a lot. Death is the natural order of things, occurs every day, but when it comes to one so young it has a heartbreaking quality to it--we feel as if all the potential and future of this budding person will be taken away. But another perspective is to enjoy the glorious budding flower of the life of Alex and to see her as not having a 'short life' but a slightly shortened one. It is obvious that her wisdom is from her soul and she is ready to move on. Thanks for this.
About three years ago when my elderly great-uncle was dying, I chose not to visit him after hospice was brought in instead relying on my last visit with him at a family get together when he was drowsy but still not appearing too sickly.

I was totally unprepared for how devastated I would feel at his funeral and how much I would regret not making a final attempt to visit on his deathbed.

Since then I have had four additional opportunities to visit dying relatives on their deathbed, all suffering from cancer. With my grandmother, I was essentially there in the hours leading up to her death ensuring that her favorite music was playing on the CD player. She left us only when we stepped out to get a breath of air.

Being there and witnessing someone in their suffering final moments of life is equally devastating, but eases the mourning process because you don't have feelings of regret that you may have abandoned the person too soon.
I'm so glad you able able to visit and be with her, it is important that you all go through this together. The gift she has give you is a great one, as yours is to her.
Patricia: This is the strength that I hoped that God would give you. In this modern world where every attempt is made to deny the reality of death and to keep us from experiencing it you are learning something very precious. Alex's welcome of you is the teacher. She appreciates your presence. As a pastor I went into literally hundreds of homes where people were dying and one of the hardest thing to teach was to teach relatives and loved ones that this was not the time to think of themselves but to be there for the dying person, to be a "ministry of presence" to them. Sometimes it worked, often it did not. I am proud of you that you have made this wonderful next step and have spent time with her. As a neighbor and not a relative you only need stay a very few minutes so as not to intrude on family time, but she is grateful for your thoughtfulness, even when she is doped up with pain killers.

God bless you,

Monte
Pat, as I've read of Alex's impending death, on you amazing post, I can see a difference in you, I think. More accepting, and a happier demeanor, if it's possible considering the circunstances. I love the fact that Alec prays, just for another day.Everyone should take a lesson from this lovely little girl, and think about tomorrow, instead of bitching about today.Thanks for a great post.
i admire your courage. you don't mention where her own family is in all this.
Beautiful and touching post. I suggest you read The Kübler-Ross grief cycle. rAted!
Thanks for the further posts, Patricia, it's so moving to read and share this process with you and Alex. Too often, we believe love is about what we can DO for each other and forget that love is also simply being present and allowing the other person to be in our presence. As Tennessee Williams wrote, 'This is a covenant offered with desperate calm'. Rated.
no longer afraid of being with her, you've accepted a teaching from her, a gift that's more than another day's visit

blessed be both of you
What a wonderful and kind gesture from your son.
I'm so glad you made the effort to visit Alex,it will add to your
peace of mind.
Sending you a Big Hug :)
I have avoided the last days and weeks before, and at other times I have stubbornly gone despite my desolation and fear. I will never avoid it again. There is no comparison.

There's this little game I play with myself. If I really dig my heels in on something very emotional, if I want avoid facing it, that's the time I must go. It's called opposite action, and I believe it's from Dialectical Behavior Therapy. Each time I get a little bit stronger and put up less of a fight.

Great, great series of posts. Thank you so much for sharing this. There are so many fine people in this world, and you are one.
Life is a most precious gift, that gets taken away much too soon in some cases!!!
This is a touching post about your friend. It's going to be very sad when she passes but it sounds like she's ready. (Rated)
You're really a good friend. Facing death, or any fear will usually make it disappear. Death is the one face we never completely lose our fear over. All the rest it pretty much holds true.
Beautiful person and beautiful piece.
Rated
Patricia if you PM me, I'll send you my email address. If you give me the picture I'll resize it for you so you can include it in the post.
I echo what RonPo1 and Monte said. This is a profound growth experience for you, and you write about it beautifully.
Ron: I agree. Accepting death helps us to accept life more fully.

Mad_typist, JK Brady, Poet of Logan Square, Buffy W, Scanner, Mr.Mustard, Psychomama, and Roy....Thank you. I appreciate your support and love.

Aphrobehn: I know what you mean about being "shunned." I would feel terribly sad if people stayed away from me because I was dying. That's when our loved ones need us the most.

Jennifer C: Yes, you're correct about not having the regrets. I have regrests about not spending more time with my loved ones while they were alive and were dying.

Peter: I could use a big hug! :)

Tinker: How true. When will we learn?

Roger: I do believe she is ready....at least spiritually.
Coming from you Emma, that's quite a compliment! Thank you.
I think it is very cool that you have been able to spend time with her. I have seen your growth this week with moving from this being about you to it being about her.
So glad you worked past your fear. You both deserve that. And really, she's alive until she isn't, even if she's dying. She's alive. It's all a part of life.

You are a good, good friend.
xo
Thank you for sharing this through your writing.
Glad to see you're hanging in there with Alex, Patricia. Our society tend to ignore the dying unless they're celebs.
What a transformation from your first post to this one. You have grown in your ability to be present for your young friend, and have also given your son an outstanding example of love made visible. I am thinking of a priest that I knew years ago who was dying of cancer. He had been in the hospital in and out of consciousness for some time, but had recovered enough to return home to his parish for several more months. I remember him saying how when he was in the hospital and was to weak to speak, he was tremendously comforted by the presence of visitors - particularly those who would touch him and hold his hand. I remember him saying that we should never underestimate the power of our presence.
I finally was able to resize the pictures and post them here. It's too bad they're late, because most won't go back to view them...even though they add a lot to the post.