Pensive Person Recognizing Beauty:

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Pensive Person

Pensive Person
Birthday
December 05
Bio
A quiet guy up here in the Midwest, waiting to be seen. Most of the time my days are filled with sarcasm, anger, and general malaise--so, this is my inexpensive form of therapy. I also have a website if you'd like to visit: waitingtobeseen.weebly.com

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APRIL 8, 2012 8:29PM

Not on my watch

Rate: 18 Flag

 hospital

Every three weeks, without fail, I take a little trip to the hospital. A very close friend of mine is off to his blood treatment, and I either take him or stop by for an extended visit. He is in his early 60s; he has no friends or family besides me. I am his emergency contact and have all the legal rights of making those serious decisions at the end of one's life.

He has a rare blood disorder, Hypogammaglobulinemia, and to add insult to injury he is allergic to the medicine that is infused into his body every three weeks. As a result, he is blasted with large doses of Benadryl and other drug cocktails so the medicine can get into his body--because without it, he would die. No ifs, ands, or buts about it--he would die.

This can create some fun hospital visits. One time, for example, he woke up and stared passed me toward the door of his room.

"This hospital is really going downhill," he said shaking his head.

"Oh?"

"Yeah, I think we should go somewhere else from now on," he replied with conviction.

"Why's that?"

"I don't know who keeps letting these chickens just wander in and out of the room. Chickens are dirty," he said as if the general hygeine of chickens was new and awe-inspiring information, "One was just sitting on top of the table not too long ago just looking at me...and they can be mean bastards, too!"

Hallucinations often are the result of the blend of drugs they give him, which is why the nurses breathe a sigh of relief when I am visiting for the evening because I will be able to keep a stern eye on him.

Another time he was eating his fruit cup and had gotten to the bottom. I heard the click-click-click sound of a fork hitting clear plastic.

"What are you doing?" I asked looking up from the work I had brought with me.

"I can't get that last piece of grapefruit," he said quite irritated with his fork's inability to pierce that last bit of fruit.

I walked over, the clicking sounding continued, and I saw that he was trying to stab through the plastic bottom and  into his own finger that was holding the bottom of the clear fruit cup.

"Oh," I exclaimed. "That looks like a good piece of grapefruit. Mind if I have that last piece?"  He nodded and handed over the plastic cup and fork. I've learned not to argue with him when he is in this state of mind, so I manipulate how I need to in these types of situations.

Then there is work. My work. A few years back he was in very poor shape. I called him at lunch and then phoned his doctor--it would be wise to get him to the hospital his doctor told me on the phone. If an ambulance had been called, he would have been transported to the nearest hospital--a rural, sad excuse of a hospital that has never heard of nor dealt with his blood condition.  His hospital is 30 miles from our town; 50 miles from my work.

"Well, this doesn't classify as a family emergency," is what my boss told me when I said I needed to go. Needed to go....now.

I was incensed. Not too long before this incident I had dealt with the same line of discussion at the emergency room--this was before I was the legal contact and all that nonsense was dealt away with. The teenage looking boy kept a stern eye on me repeating some blasted policy about family.

"He has none. I am it. No one else. If you need to contact someone, guess whose phone number you are going dial? Mine. That's who!"--and then I made a scene that made Shirley McLaine's in Terms of Endearment look tame. I'm almost certain I saw some tears in that boy's eyes when I was finished with him. And I know it wasn't the kind or compassionate or adult way to act toward him, he was just doing his job..and I apologized to him when I left. It was just overwhelming to me knowing that 15 feet and through a set of wooden doors my friend sat all alone, scared and alone with only the beep of a machine to provide him any comfort.

Needless to say, I got into the emergency room. I'm fairly convinced that there is a file on me somewhere in that hospital, because ever since, whenever I show up I get the quasi-red carpet treatment. I've never been called "sir" so many times in my life....

My boss, on the other hand, who had known me for several years, was not used to such outbursts; so, when I told him I would be leaving and he would need to find coverage for me because I was walking out of the doors within the next 30 seconds--he didn't argue. He just let me go--like he could have stopped me if he wanted to.

All around us we hear these little dictums about how one's friends are their family, and John Donne comes to mind saying "No man is an island"--yet when a person truly only has a friend or two to rely on in times of crises, there are all these impediments to allow the "family" to act. Perhaps I get defensive so quickly and lose my patience almost immediately because 30 years from now, when I am in my 60s, I probably will be in the same place as he is: alone. 

Tomorrow is our April treatment date. Nurses will come in and go out. They will smile at me; we are on a first name basis now. I think I can name 15 different ones that I have seen over the past 10 years. They will call me "sir" and ask me if I need anything. I always say "no, thank you" and we will make chit-chat about the weather and television.

While I am there, I take care of the little things: help him to the bathroom, make sure he orders food and eats it, ensure his cords don't get wrapped up around him, turn the television volume down when he falls asleep, and deal with the renegade chickens or other animals that may appear unannounced.  The nurses will stop in less frequently while I am there; they know I have things under control--because I am family and it goes with the territory.

Author tags:

alone, friends, family, hospital, illness

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Gosh ~ I wish you were my friend.

When death and critical illness hit my world - I spent many hours sitting in hospitals, knowing in my heart that I had to be there for my loved ones. I have often wondered who would be there for me.

When I spent 6 long years with cancer in the midst of my family life I discovered who my friends were.....and was shocked to discover who had no ability to be my friend when I needed them the most. Some people heard the word cancer and I never heard from them again. (An entire family dropped me like a hot potato - one of whom was a United Church Minister too. Guess he wasn't able to provide me any spiritual sustenance in my hour of need)

Your writing is wonderful. You are so considerate of others too. The world needs more people like you. You are a good person and it's always a pleasure to read what you write!
:) the best kind of family
Family is who is there in the fire.
You're a stand up guy.
I love how you write and live. I was the only person for my boyfriend who passed away last May. Just before they put the ventilator on him they asked who he wanted to represent him and he said me. That seemed to be enough for the emergency room people. For the next ten days I made sure they didn't use extraordinary measures to keep him alive. Hospitals try, they really do, but you need someone in your corner. Even if what they can do best is help you die.
A true friend is one who will help you live when it is best that you live and help you die when that is best. My own best friend has firm instructions that if in doubt, help me die.

.
Hula, it just breaks my heart to hear stories like yours where people bolt in those times of need...happens way too often, I'm afraid...

Thanks all for such comments .... A nice way to end the evening as I head off to bed. Have a good night, all...
Sorry, I'm late. You are a good human being and an excellent friend. I hope you have a very smooth day at the hospital tomorrow. Sleep well!
The best kind of friend.....one that is a friend no matter what
Let me add my "sir" of respect to one who takes care of others instead of insisting that it is someone else's responsibility, including that of the government. Perhaps you realize the great satisfaction in your measure of personal assistance that no taxpayer realizes, no matter how much they help fund Medicare or Medicaid.
You certainly do redefine friendship in a more than friendly way.
........(¯`v´¯) (¯`v´¯)
☼•*¨`*•.¸.(ˆ◡ˆ).¸.•*
............... *•.¸.•* ♥⋆★•❥ Thanx (ツ) & ♥ L☼√Ξ ☼ ♥
⋆───★•❥ ☼ .¸¸.•*`*•.♥ (ˆ◡ˆ) ♥⋯ ❤ ⋯ ★(ˆ◡ˆ) ♥⋯ ❤ ⋯ ★
You're doing a great job. This will sound cold, but just take care not to let your own life slip away in the process.
Your friend is blessed to have you and I'm sure he knows it and is ever thankful. But I'd like to say 'thank you' too. For in my eyes, a true friend is indeed one who sticks by your side in a time of true hardship and for however long it takes; a true friend protects you and stands up for you when you aren't able to do it yourself; a true friend can be relied upon; a true friend is respectful of who you are and your needs; a true friend guides you and keeps you from harm's way as best they can ... you do all of that ... so, yes, .... thank you.
I lost a job over a similar situation which I will not go into now. When we know we must go....we do it. We deal with the consequences later.mYour friend depends on you, and that is an honor as well as a burden. In essence, you are a care giver. It is an obligation that we accept out of love or necessity. In your case, it seems that both apply. Excellent post. You are an excellent human being.
Oh, jeez, I'm feeling the love today :)
I'm really not as much of a saint as it sounds...just have a strong sense of "duty" when it comes to things like this.

Thanks everyone... at the hospital now and all is going well :)
May you have a friend like you, when you need one.
Your writing blows me away.
R♥
Thinking just now of you and your friend. More grateful than you can know for the words you've shared here.
Exactly. More than half the people I know do not have "family" living with them, largely because most people in my city come from somewhere else and many are gay, so not married in the legal sense. The city passed a domestic partnership law to address one part of this problem years ago, long before the state did, so that partners could have medical access. I'm a rarity, having been born here. Everyone else depends on friends for support. It's not exactly being alone, though. It's just another definition of family.
still at the hospital, anna1liese, but all is going well...no fears today, textbook visit :)

Getting a lot of my blog reading/writing done as he sleeps...thanks for all the nice thoughts