
Pain has been on my mind a lot lately. Mostly physical pain but some emotional pain too. I'm having complex, delicate surgery on the palm and fingers of my right hand. A lot of nerves are involved. And I am really nervous about the pain.
I know this pain and it knows me. I had the same surgery on my left hand in 2008. The post-op pain is brutal. Unrelenting. Impervious to all but the strongest pain killers. It can last for weeks, even months.
Well, hey, it's just a hand, right? Oh no. Pain from any source can literally take over your body. Force you to use all your inner resources to fight it. Especially when nerves are involved and you lose the use of an arm or hand. It's exhausting.
After my 2008 surgery I vowed out loud, Never again in this lifetime! Yeah. Fat chance. So here I am again, facing an indeterminate future of serious pain. I am better prepared this time -- got the surgeon and my primary doctor on board with the reality that I will need some serious help.
It wasn't hard. This surgery is known to be so painful it can bring big, tough, grown men to their knees, crying like sissy-mary babies. I say that with compassion, believe me. Especially when there's a 65-85 percent chance of losing some function.
Medical attitudes about pain have changed a lot. Still, physical pain is the most difficult medical symptom to accurately measure, quantify and treat. Pain signals travel to and from our brains through similar pathways, but we're all different, each brain unique in perceiving and responding to pain.
Levels of Pain
Doctors ask us, "On a scale of 1 to 10, how bad is your pain?" That's a start, but your 3 might be my 7. Your 8 might be his 4. It's inexact and frustrating for doctor and patient. Who need to communicate and trust each other.
We can all agree on some universally shared pain. A wrenched back. Migraines. The I-swallowed-razor-blades sore throat. A sharply banged knee. Childbirth's ginormous pain nature helps us forget, else no woman would even contemplate more than one child.
They say serious burns cause the worst pain. So unbearable that burn victims are often heavily sedated. You only have to burn your finger on a hot pan, feel it throbbing, hurting, engulfing all your attention to begin to imagine that kind of pain spread out over your body.
Imagine. That's the key. We can only guess at how another feels pain. Even if we've had the same surgery, injury, disease, each of our responses to that pain will be different.
Worse, it's hard for anyone hale and hearty, even a doctor, to imagine we're in as much pain as we claim. To be fair, some of us aren't. But most of us are. And conventional medicine is finally beginning to catch on to that reality.
Managing Pain
Over-treatment of pain during World War II is largely responsible for gross under-treatment until very recently. Back then, morphine was given freely in large quantities to injured soldiers, inadvertently turning many into full blown addicts.
Doctors began worrying so much about pain-killer addiction they lost sight of the genuine need for adequate pain management. It's different now. Pain Management is a medical speciality. Thank god.
When my niece Karen was battling cancer, our mantra became, "stay ahead of the pain." Take aggressive control, don't let it reach a level that requires even more pain meds to relieve it. Most of the time, that worked. Thank god.
It's been my mantra through rotator cuff repair on both shoulders, knee and back surgeries, killer migraines, even sinus infections. I'm not a pill head (okay, I am a little), but I learned the hard way that toughing it out, manning up, ignoring serious pain only makes it worse. And is bad for our overall health.
Pain raises your pulse rate, respiration, blood pressure ... all bad for the circulatory system. Pain can cause major stress, depression, anger, lowered immune system, loss of appetite. While that last one might sound appealing, I do NOT recommend the Pain Diet.
The body needs healthy fuel to heal. It also needs a calm, relaxed nervous system to support a positive, can-do recovery. I'm aiming for all of that and more.
The first step is drugs to manage the pain. That photo up top includes my pain meds for a then recent rotator cuff surgery.
Next step, physical therapy and regaining the ability to sign my name, brush my hair, cut my own meat, apply mascara, open a bottle of water, dress myself ... all those everyday things we take for granted. Until we can't do any of them without help.
Me at PT, recovering from rotator cuff surgery. Some of you are on my chest.

Me, directly after 2008 surgery on my left hand. Oh, and I'm allergic to lots of meds, as you can see, including most pain meds.
Recovery
I'm a master of rehab, love the ability to push myself, go for Personal Best, use all the strength machines to sneak some workouts in with the physical therapy.
My hand surgery starts with that monster wrap above, then I get two alternating splints, one to straighten the hand, one to bend it, then pressure cuffs on each finger, worn inside a full pressure glove. Each one is 24/7, hand elevated as high as possible.
Me (skin and bones) in Israel holding a new baby, still wearing the glove 3 months after surgery. But at least allowed to get on a plane.

My recovery this time will take many months. There will be setbacks, successes, frustrations, achievements, lots and lots and lots of hard work. And even after the worst is over, a fair amount of pain.
Oh, and one more thing. Vanity. I've always had nice hands, slim, long fingers, smooth skin, dainty nails. My mother's hands, in fact.
Not any more.
~~~~~~~WARNING: UGLY HAND PICTURES AHEAD!~~~~~~~
This is what they're going to fix, just in time to stop my hand from becoming an unusable claw.

It's okay. My left hand looks and feels fine now. Most important, it works. And it doesn't hurt. Because I really, really can't stand the pain.
I'm determined to achieve the same results with my right hand. I need to be able to applaud my friends and family, cook my Chanukah brisket and tweeze!
How's your pain? I hope it isn't too bad. If it is, seek help managing it.
Oh, and not surprisingly, Judy's in the house. I'm blessed to have a big sister who's also a nurse and my Person. I feel better already.
NEW WARNING!! NON-MEDICAL PROS OR NON-HORROR MOVIE FANS SHOULD NOT VIEW THESE PHOTOS! (unless you ate too much and want to lose your cookies).
My sister Betsy's in the house now. Like Judy, she's fascinated by the gore of about 50+ stiches in my hand. If you chose to look, you might be too.
READY? OKAY, YOU ASKED FOR IT...
Not too bad. But wait.
Good hand, bad hand, swollen much?
Close up, knuckles, not so bad:
Serious grossness ahead...
One more, close up:

Yep, Hubby's right, looks like it got caught in a garbage disposal. Improving every day. I'm betting all good thoughts and wishes are helping a lot. Thanks!

Salon.com
Comments
I hope and pray this surgery goes well for you so you can cook that brisket, hold that baby and do everything else you want to do.
Yes I've read about pain so brutal people wish for death as a release. And there are some cases where doctors can't even pinpoint the source of it let alone give the patient anything to numb it. I know pain management is a growing area of medicine; hopefully there will be breakthroughs in the near future.
I'm hoping the surgery goes as well as the left hand one did, that you have a an excellent result, as many drugs as you need, a great doc and an amazingly fast recovery, surprising every medical person on your case. If you want Candy's World Famous ______ food care packages overnighted to Philly, just say so.
The sick problem is that with permanent and chronic pain, the doctors are getting people hooked on nonsense like Oxycontin, then telling them that they have to quit. WTH?
There is just not enough money put into understanding pain or developing strategies for pain management.
It all goes to the next drug that will make money for the legal drug cartels: big pharma.
I had the post surgical pain and was determined to get off of the hard stuff right away. Now I have whole body arthritis and actually use movement more than I use drugs. The heaviest thing that I take is Tylenol, but I have Vicodan and other goodies. Darth Doctor has had it with me.
I'm terrible and grind my teeth a lot. Darth Dentist gave me a tooth guard and I bit through the gel in one night...that sucker had holes in it!
Candy, the big tendon is just the most obvious. One snapped and is lodged in my pinky. Another is what's pulling my middle finger sideways. And more are in the top of two other fingers. A mess, but nothing like what you're going through. Please keep me posted. Care packages always welcome!
(I think the picture of you with the baby is beautiful.)
xoxo
I do envy your T-shirt.
Tell us about your pain. Really. Let's share war stories and support. What're friends for if not to commiserate and cheer each other up.
I have full body chronic pain from my curse of lupus and fibromyalgia. I use meditation, gentle stretches and lots of warm water soaks.
I sure hope the surgery goes well and you recover fast and easy...
That picture of you holding the baby is wonderful this morning..
Best to ya..
Lezlie
So you have an idea of what lies ahead and how to deal, so it will be better. A big part of the stress is not knowing how you'll wake up each day. Best wishes for the best results!
Was your surgery related to carpal tunnel? If so, I can relate. After years of pounding on keyboards in newsrooms, I'm am susceptible to paralyzing pain in both wrists. When I was working for the AP, I used to have to pop three or four Aleve just to make it through the work day. And, you're right. Nerve pain is the worst. Nothing seems to help alleviate it. Hope you are feeling better soon. ... And Malusinka is right. I remember the 2009 study about redheads and pain because some of the study's authors are from Colorado. Here's a link to the NYT story: http://tinyurl.com/kjefoh
Unfortunately I also don't feel tooth pain until it backs up into my sinuses where it brings me to my knees. It's not courage, I just don't feel much pain. Others tell me I'm lucky but I just had two badly infected teeth removed. Pain can be a gift, without it, we don't know the body is in trouble.
Good luck, I hope this surgery goes perfectly and there's less pain than the last.
I'll be thinking about you and hope you will keep us updated here and/or on Facebook, even if someone else has to type for you.
Sorry you've had to feel and see so much pain, Sally. Sending out vibes for a speedy and less painful recovery.
I hope your pain becomes more manageable, Sally.
I wish you all the luck possible, the speediest healing, least pain and anything else you can think of to want even drugs.
If I had not had 1 1/2 years of pain in my right hand (finally diagnosed as rheumatoid arthritis) I could do nothing with it at the end. That pain is now gone (cortisone helped) but I am left with the knowledge it can come back and then there is the whole other specter of the tendon issue coming down my road. Sigh. Best of luck with your pain management.
I wish you success in the surgery Sally, like most chronic pain sufferers, we often just grit our teeth and do what we need to despite the pain but hey, you already know that. Have a wonderful Hanukkah and for what it is worth my own sincere wish for you to have a positive result and that it is all worth it.
http://open.salon.com/blog/kh3333/2011/12/09/pain_chart_for_sally_swift
My family prides itself on stoicsm. I never answer the "rate the pain" question honestly because I don't want to a whimp. I think I need to get over that.
When I was undergoing PT for a dislocated elbow a couple of years ago, I saw many people who were doing PT after hand injuries or surgeries. It made me realize how delicate our hands are, and how difficult it can be to regain function. The assortment of tools used in therapy was amazing. It made me really appreciate the work that physical therapists do.
Also, my mother has major problems with her hands. Trigger fingers all the time. Cortisone shots and surgeries. And still so much pain.
I hope you'll keep us updated on your progress.
helium works wonders
All the very best,
R♥
Heal, Sally, heal...
The pain's as bad as I remembered, in fact worse because the surgery was way more expansive. Plus, so much nerve work was involved that as the nerves regenerate they let me know loud and clear they're baaack.
Bottom line, pain is exhausting, frustrating, depressing and a giant challenge. I'm focusing on facing and conquering it -- but not without pain meds. Hey, every challenge requires some backup.