MS Renegade

A Highly Opinionated Perspective on Life with Multiple Sclerosis

ShoreBookworm

ShoreBookworm
Location
New Jersey,
Birthday
September 21
Bio
I am a 50-something writer and I spend much of my time pretending I don’t have MS. I have limited success at that. The rest of the time I write, I read, I knit, I obsessively watch documentaries about the British Royal Family. Ok, just kidding about that last one. Sort of. It’s NOT obsessive. I am an inveterate Anglophile. I am grateful for my children, for my grandchildren and for my many, many wonderful friends. I think vodka is underrated as a coping mechanism. I adore my little dog. I wish I could marry Dick Cavett, Conan O’Brien and Bruce Springsteen. But not at the same time. And I realize two of them are out because they are already married. I said ‘wish’. Sheesh. But that still leaves Dick.

MY RECENT POSTS

AUGUST 8, 2012 3:14PM

Finally, the Conference Itself

When I was a young mother I was a La Leche League Leader. I facilitated group meetings for women who were nursing their babies. I also was a District Manager, coordinating other LLL Leaders in a certain geographic area, making sure they had all the resources and support they…

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AUGUST 6, 2012 1:33AM

Conference: The People & The Place

The People: The Good, the Bad, the Dumber than Dirt 

My sister and I frequently lament the downsliding of civility in our society and we usually end each confirming anecdote with a sigh and a firm “I hate peopleâ€. When I hear someone say they are a “people person†I am…

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AUGUST 5, 2012 9:31AM

Third Day

Day Three in the city (Saturday) and I definitely was hitting a wall. Showering in the morning just seemed like an impossible chore. Getting dressed left me teary with the effort, especially dealing with the dreaded compression stockings. Paired with Birkenstocks that I poked extra holes in to…

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AUGUST 4, 2012 5:14AM

Conference Day Two

My handicapped accessible room has a walk in shower. Bliss. No struggle to drag my legs over the side of the tub. I could take ten showers a day like this.

The buffet breakfast is great, somehow this hotel gets the best fruit, I still remember that…

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AUGUST 3, 2012 1:23AM

Conferencing With BlogHer

I belong to a web site for women bloggers called BlogHer (see the badge at the top of the column to the right). Started by a group of women in California as a blogging conference in 2005, BlogHer has become a huge online community, with over 20,000 registered blogs and…

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JULY 10, 2012 5:32PM

MS and the Single Girl

I have been single for 18 years, since my husband passed away suddenly Christmas week in 1993. We had been married for 17 years.  Aside from the horrible shock of his death at such a young age, there was the loss of camaraderie and shared humor and stimulating discussion (he was… Read full post »

I know many good, kind and generous people.  People who love and honor their spouses.  People who have been proud and loving parents.  People who have a deep devotion to their church and to their God.  People who are generous to charities, committed to protecting the environment a

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JULY 2, 2012 8:10AM

Wishing the Best to Jack Osbourne

I was incredibly sad to hear the news last week that Jack Osbourne is a member of this club no one wants to belong to.

My girls and I loved watching The Osbournes and Jack, who appeared hapless and sweet natured, was a favorite.  I was happy to read recently/… Read full post »
Editor’s Pick
JUNE 29, 2012 5:05AM

A Supreme Decision

My whole life I have been fiercely independent. My husband died when I was 39 years old. Our children were 16, 15, 8 and 6. I could have gone on welfare, but I went to work. I worked one full time job and two part time jobs…

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MARCH 6, 2012 10:10PM

A Lack of Concern

Mitt Romney, February 1, 2012






Dear Mr. Romney,

This Super Tuesday has not been very super for me.

 Let me tell you about myself.

I grew up in an upwardly mobile middle class family. While we did not approach your level of wealth, I wanted for nothing and took many perks for granted, vacations,…

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JANUARY 12, 2012 10:13AM

The Soundtrack of Loss

World War I did not have a number at the time it was fought.  We did not realize another hellish nightmare would engulf our little planet within the next twenty or so years.  At the time it was called the Great War, although the only thing ‘great’ about it was the… Read full post »

JANUARY 9, 2012 9:30PM

Seven days into the lymphedema therapy (I wrote about it in my other blog, you can click on the link), I am losing it big time, absolutely dissolving when I get home out of frustration and discomfort and recognition that I will never be better, this disability is forever. This…

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DECEMBER 6, 2011 8:14PM

MRI Success

Had the final two in the MRI series today and yesterday, no problems at all! Yay! My wonderful friends Jill and Robin drove me and picked me up today, Mother Susan, our Assistant Rector, drove me yesterday. I used my wheelchair and it was a whole different story from…

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DECEMBER 3, 2011 8:37PM

The MRI and I

It got off to a bad start and, because this is me, I should have known it would be downhill from there. The woman who answered the phone was a jerk and I was a jerk in response and it turned out we were both completely wrong. And not…

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NOVEMBER 21, 2011 11:08PM

MS and the Single Girl

I have been single for 18 years, since my husband passed away suddenly Christmas week of 1993. We had been married for 17 years. We were both decent people and devoted to the four children we had together, but generally speaking we were not a good match. We…

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SEPTEMBER 22, 2011 5:27PM

Invisible Illness

Apparently last week, September 12 to 18, was Invisible Illness Week. Because I have had my head up my backside with self-absorbtion, I missed it. But I still completed the associated meme, because having a serious, yet not obvious, illness is one of the most frustrating things one can…

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SEPTEMBER 7, 2011 6:08PM

A Motherless Child

My mother passed away yesterday afternoon, far from where I live, in her sister’s home in Delaware.  Two of her sisters were with her, but none of her children.  Nor her husband.  The reasons are a long story, as complicated and sad as my mother herself.

To say we had a

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AUGUST 26, 2011 11:56AM

A Message to My Children

Our family is going through a lot of changes these days. Especially with me being sick and with life being so unpredictable, I was inspired to write a list of lessons I have learned over the years that I would like to impart to them.

 

Dear Kids,… Read full post »

AUGUST 21, 2011 11:12PM

Another Perspective on "The Help"

The Help by Kathryn Stockett has been a publishing, and now a movie, phenom. On the immediate surface, it is a nicely written story of triumph over racism by oppressed black maids. But scratch that surface just a tiny bit, heck just blow some of the dust off… Read full post »

I am blessed to have so many wonderful friends in my life, people who sustain me with laughter and encouragement and love.  But, I guess because I am human, it is one who is missing that often occupies my thoughts and my wishes for things to be… Read full post »

JULY 23, 2011 4:53AM

A Humbling Decision

After much hand wringing and angst and worry about the propriety, I have added a PayPal widget to my blog.

Of course, I do nothing without a considerable amount of…um…consideration.  I think of things from a myriad of different angles and scenarios, most of which would never occur… Read full post »
JULY 6, 2011 9:34PM

Me & My Wheelchair

I have my new power wheelchair!! It is all powered up and ready to go.  Now I just need the $1900 lift installed in my van so I can actually go places with it (the chair weighs about 200 pounds). I have asked the MS Society for… Read full post »

Well, the biggest mistakes I made were all pretty big and pretty dramatic. The best things I have done pale in comparison, mostly rather small and practical, but things that have helped all the same.

Best Thing #1: Writing my Blogs

Hands down, the best thing I have ever done for… Read full post »

I am a relatively smart person, but I have made some pretty dumb mistakes in my life. A lot of the dumbest of the mistakes came after finding out I had MS. I thought if I listed the top five, it might save someone from repeating my blunders.

MISTAKE #Read full post »

MAY 1, 2011 10:41AM

Time Fled

Yikes! Time sure does fly when you’re in a funk. Not to mention I couldn’t think of too much to say that hadn’t already been said, far more artfully, by my friend The Wheelchair Kamikaze. So he pretty much hushed my mouth.

I haven’t been getting out much, which/…

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