Shivaun Nestor

Shivaun Nestor
Location
San Francisco, California, USA
Birthday
June 10
Company
Shivaun Nestor Design
Bio
Lady of loud laughter, lover of politics, poetry, sex, the moving image, metaphor, and most things queer. Web/graphic designer, health/sexuality educator, veteran San Francisco hill walker, frequent gourmet cook, and occasional party grrl.

JUNE 24, 2009 1:46PM

The Ache of Memory (OS Father's Day Contest)

Rate: 28 Flag

Once upon a time, he strode into a room, shoulders broad, chest out and spine straight, gaze outward. He carried himself with purpose. Although it was a struggle for him to maintain his weight, he always looked trim in his perfectly tailored suits. Upon first glance he seemed at least 5 inches taller than his 5 feet, 6 inches. When engaged in conversation, he was so focused that he could make others feel as though they were the only people in the world who mattered.

Now I am thirteen and he is different. His shoulders are stooped and shrunken rather than broad, his chest curves inward. When someone outside of the family speaks to him, his brow wrinkles, his mouth turns down, and his pupils dart from side to side as if trying to locate something. Occasionally, his face lights up. He haltingly says a name or makes a reference, looking at his fellow conversationalist with bright, childlike expectancy. “Did I get it right,” his eyes seem to ask?

Once a day, he takes a tour of the neighborhood, the same round trip encompassing the same four long blocks each time. Before he goes out, he gingerly sets a little porkpie army hat on his head. He doesn’t so much walk as shuffle, going slowly and keeping his feet close to the ground. His hands stay in one of two positions, either crossed tightly against his chest or held stiffly and barely moving at his sides. The younger kids in the neighborhood follow him. Sometimes, when they think that no adults are watching, they pelt him with gravel. When my little sister is close by, they add taunts, “No brain father! No brain father!” My sister cries, but my father pays no visible notice.

Once flat, my father’s stomach now falls over his belt and pulls his worn burgundy cardigan out to absurd proportions. This is because, forgetting that he has eaten, he makes fifteen to twenty trips to the refrigerator everyday. As he grips the icebox handle, his eyes shift slyly from left to right and back again. If someone else is in the vicinity, he grabs the water jug. When he thinks that no one is looking, he grabs whatever is closest – a piece of fruit, a slice of lunchmeat, the rare pastry. If someone happens upon him during one of these raids, he quickly closes the door and stuffs into a pants pocket whatever he hasn’t yet stuffed into his mouth.

After I turn sixteen, he supplants his refrigerator hunts with surreptitious forays to my car, where he steals cigarette butts from the ashtray. He smokes them despite the fact that he must fight for his every breath. Always labored, his breathing has its own odd rhythm: rattle, rasp, cough, rattle, and rasp.

When not walking around the block, sneaking out to my car, or foraging for food, he sits in his favorite chair. It is low, with mission style wood arms and deep leather cushions. He makes grunting noises as he struggles to bend his legs and back into it. There, he falls asleep to the ever-present sounds of the TV, double chin resting against his chest, head slightly bobbing, lips flapping with wheezy snores.

Or he reads the newspaper. He folds it carefully, and lays it in his lap. His eyes squint, following the movement of his right forefinger as it traces lines of text. Listen carefully and one hears him whisper the words that he is reading Listen very carefully and one realizes that he has become trapped in a single paragraph, reading it over 20 times in a day. As he reads, the fingers of his left hand work over his scalp, picking at small scabs. Upon releasing one from the skin, he flicks it onto the carpet. This habit has created a quilt pattern on top of his head, one of small red and brown patches surrounded by unruly hair gone prematurely grey.
___________________________________

One of my earliest and most persistent memories was that of my mother pounding my father’s back in order to loosen the phlegm in his lungs. Why? My father had early onset emphysema or “Chronic Obstructive Pulmonary Disease” (COPD). My father’s doctor postulated that the disease’s early onset was due to my father’s WWII service as a high flyer bomber, for the cabins were not properly pressurized.

When I was thirteen, both of my father’s lungs collapsed and he went into a coma. While skilled doctors and a strong heart kept him alive, he woke up with permanent brain damage. The part of his mind that was destroyed was responsible for recording new memories. Afterwards, he could recall what he’d been – a writer for CBS Playhouse, a member of the team that established the Dallas Theatre Center, a copyrighter and owner of an advertising firm. However, he could not remember reading the newspaper only two minutes before. For a man who made his living with his mind, could there have been a crueler form of dementia?

Because it made breathing such a tortured experience, my father’s emphysema brought with it personality changes - nervousness and frustration that deepened to depression and sudden anger as the disease progressed. Father’s Days, indeed all holidays, were fraught with anxiety because we never knew if he would “blow." Yet despite his ill temper, my father was my world. If my sister was my mother’s daughter, I was Daddy’s Little Girl. I knew with certainty that he loved me unconditionally. Family taboos made his illness impossible to talk about, but I silently mourned his early mental and emotional departure from my life. I often wondered what he would have become, what he would have produced had he not suffered from this illness.



After “getting sick," my father occasionally stops at his old typewriter during the course of his daily rounds. My mother has moved it from his home office to the dining room table in hopes that writing will bring him back to himself.

As he steps to the machine, he touches it tentatively and then draws back. He repeats these actions several times. Finally, he sits, his eyes darting back and forth over the keys in the same way that they do when he mets an old acquaintance. Hands shaking, he slowly puts in a piece of paper, working carefully so that the sheet goes in straight. He raises his fingers to the keys and strikes. Without hesitancy, his fingertips begin to play.

Long after my father passes, my mother gives me a copy of his last typings. The first entry begins, “This is going to be called, ‘Anatomy of Memory.’ It will be a series of essays about my experiences in meeting people and how they react when I say, ‘I’m sorry, but an illness has damaged my brain, and I have trouble remembering. Do I know you?’ You’ve got to admit, it’s a rather individual way of looking at the world.”

One of the entries on the last page reads:
“today i have done nothing of any great importance
“and tomorrow i’ll do more of the same”

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Comments

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Thank you, everyone who read and voted during the contest.
Thank you for sharing this haunting story. Those last typed lines reflect the intelligence of the man who was your father and the cruelty of the disease that robbed him and you. I see where you get your talent though. It shines in all your writing. I heart you.
But finally we get to comment! Shivaun, this is beautiful and heartbreaking - I felt the love even as you described him. The ending is haunting, yet . . . it's just right for this piece.
I loved this when I first read it. Thanks!
it is a rather individual way of looking at the world...

beautifully written & remembered shivaun....
I loved this story. Your father's last entry [one of them] shows true genius does last lifetimes. Thank you for writing this.
Beautiful, touching story, Shivaun. What a wonderful gift to his memory and legacy. I especially love the last entry. Rated.
Such a loving tribute. You painted a vivid picture of your dad and the cruelty of dementia. Including some of his writing was the final glorious touch.
HOW TRAGIC, AND WRITTEN WITH SUCH LOVE!
A TRIUMPH!!
I came back to be overwhelmed by all of the love. Thank all of you for reading.

Cartouche - Thank you for being the first person to post. I know that you know. The "heart" is so mutual.

Owl - I am so glad that you could feel the love. Thank you for reading twice!

Dolly - thank you.

Dolores - yes, up until the end, he really was one of a kind!

Mr. Mustard, love back. (And can you tell that I am blushing?)

Colin - thank you!

Emma, it's his writing that was glorious, wasn't it? I am working towards that, I hope.

"Hello"shelied - thank you for the bump!

Kathy, overwhelmed. Thank you!
a sad tale, told with heart and grace
I didn't know that there was a contest....Yours would have gotten my vote......

Rated
Sorry I missed this one!!! What a beautiful and bittersweet memoir of your father. Beautifully written.
This is so profoundly sad yet hauntingly touching story. Thank you for sharing it. I am also my father's daughter - a 38 year old daughter to a man who turns 96 in a few days. What you describe becomes a larger part of my world each day and it breaks my heart. At least I was an adult when my father's dementia started. I can't imagine what it must have been like for a child seeing her dear father change in such a way.

Thank you for writing this. I missed the contest but this would have received my vote.
This is wonderful, Shivaun. And yet, how hard to watch a man you loved and looked up to be reduced from the capable man he was by his illness. That was indeed a very cruel form of dementia for him.

My own father is still with us at 81 and aside from some memory problems and deafness, he is still very sharp. Yet he and I have never had a mutually comfortable relationship like you had with yours. Hence, I found I had nothing to say for the father's day challenge.

Rated.
Poor man. How rough this must have been for your family. It's hard to imagine the things we didn't talk about in those days, even when they were staring us in the face. That's one thing that's better now than in the old days. At least if someone is sick, you can talk about it.
This piece touched me deeply when I read it. You described your father's situation with great clarity and deep, compassionate love.
I'm very sorry. For him, for your mum, and for you kids.
Beautifully written and told story of your father. Oh so hauntingly sad and touching. He sounds like he was a wonderful and very amazing father. Thank you for sharing this story with us.
@Roy and Ron, thank you!

@Ron, the contest wasn't officially run by the editors, but by fingerlakeswanderer through the OS Book Club.

@tregibbs, what was FLW thinking! :(

@ Just Cathy, thank you!

@RenaissanceLady, simply, my heart is 110% with you.

@Shiral, simply, thank you. (And should you ever write about your father, good or bad, I would read it.)

@Sirenita, yes, the silence in the old days. Something that I know you will appreciate - I think that the whole experience is in part what took me to doing so much work with youth, and gave me the compassion to do it reasonably well.

@athomepilgrim, thank you. I was so angry at him as a teen, I of course forgave as an adult, and am glad that the love came through in this piece.

@wakingupslowly, thank you. Its funny - when I was younger, and for years, I spoke about this so dispassionately when it came up. It took years to be able to mourn him openly.

@Stella, yes very hard I think to be trapped like that.
Shivaun - this hits me at so many levels. The love - yours to him, and his to you - outstrechted arm of love, to you, never touching, but leaving that note at the end...

peece,
dj
I was very moved by this when I read it during the contest. It's beautiful. Some of your descriptions are deceptively simple and the end is stunningly perfect.
I just got to this. It's heartbreaking. I too watched my parents age and die and it's hard to convey how tough it is to people who haven't been through it yet. No matter how you feel about your parents, it's like watching Superman die. We grow up feeling they're indestructible, and their fragility as they decline is devastating.
"Lady of loud laughter"

A woman after my own heart. Leter rip, lady
Shivaun,

“today i have done nothing of any great importance
“and tomorrow i’ll do more of the same”


I don’t know what more to add to what your father said. Consciousness is such a complex matter. Thank you for sharing this.

One last quick thought; I don’t mean to belittle the enjoyment of the contest for those who participated, but I find myself experiencing just a little discomfort over a piece such as this, which encompasses many levels of beauty, being judged in a “contest” against the shared emotions of others. But that’s just me.

Highly RATED
Rick, thank you! And no, I don't feel that you were belittling the contest by your comment. I actually agree with you at a certain level - it was difficult to make those decisions about which pieces to rate, and so much of my decisions came down to the personal. Still, I enjoyed the "community" of the event, if that makes sense?
Of course the "community" of the event makes sense; that seems to me to be the value of it in the first place. I guess, for me, I would prefer something a little less personal for presentation in a "contest". I am not real big on contests of that sort, anyway, but somehow, something as deeply personal and emotive as your piece here, for instance, seems like it should not be judge in that particular manner. As I said, though, that's just me.
;~)