Sparking My Own Evolution

One word at a time...

Sparking

Sparking
Location
OURS!
Birthday
October 31
Title
Traffic Negotiator
Company
Planet Earth
Bio
The only people for me are the mad ones, the ones who are mad to live, mad to talk, mad to be saved, desirous of everything at the same time, the ones who never yawn or say a commonplace thing, but burn, burn, burn, like fabulous yellow roman candles exploding like spiders across the stars... *************************************** -Jack Kerouac ***************************************

MY RECENT POSTS

MARCH 19, 2010 11:52AM

Are You Going to Die Mama?

Rate: 62 Flag

As I rock my way down the hallway toward the bathroom, my husband steadies me by walking backwards, both hands extended, so I can lean my forward-bent body on his arms to help bear some of my weight.

"Mama, do you need me to help?"

"No honey, papa has got it and I want you to go play and have some fun right now."

With this last comment, she inches closer as not to lose sight of me.  All morning, she is just inside my periphery keeping tabs on my every move.

After my husband helps me wipe after using the restroom, he teeters me out to the couch and begins the process of getting my breakfast.  Sunshine slinks over on the ground acting like a snake.

"Hiss...Hiss"

"Oh, are you a snake this morning?"

"Yes.  Just like the criminals."

"What honey?  Why do you think you are just like the criminals?" I ask.

"Because you are going to die and it's all my fault."

*****

In a family of three, when both the females (and sometimes the dog) have full-blown Post-Traumatic Stress Disorder, any new wrench in our daily activities makes managing the symptoms that much more problematic.

When Sunshine feels any "threat" to her overall security, she internalizes it by playing a tape that compares any new anxiety inducing situation against what occurred during her trauma.  Yesterday, the "threat" was seeing her mama in a suppressed physical state.  To her, at that moment, the two situations feel like they are both happening at the same time and she mingles the facts together.  An outside observer cannot see the maze my child is trying to get out of.

*****

"Bug, come on up and snug on your mama."  I encourage her further by lifting up a fold of the blanket for her to slip into.

"No!  I don't want to hurt you,” she says with trepidation.

"Baby, you can't hurt me...mama's just having waggies."  This is our name for my MS-like symptoms complete with seizures on the side.

She finally relents and crawls on all fours while purring like a kitten to climb in next to me like a baby who needs her mother's milk.  My body warms her up and she settles in quickly.  She rubs her head over and over again on my outstretched arm.  

I send her all the love I can muster and sit quietly, waiting for her to summon up the courage to ask me what's really on her mind.

*****

Often, people quote trauma as the "gift that keeps on giving."  This moment is no exception. While it has been five years since my daughter suffered abuse at the hands of criminals, she is still paying the consequences.  

This current threat to her security "triggered" this confusion between two stressful periods of her life.  She uses story to attempt to make sense of the separate circumstances.

It is a way to "re-enact" the trauma, allowing her mind room to uncurl the truth of what happened.  Add to that a seven-year old brain complete with magical thinking, and a sense of over-responsibility ensues.  It is my job to get to the roots of how she has connected the dots.  Then, I must recreate a story, which is the truth, and recite it to her so she can lay a new track in her mind that is soothing.  

In times like this, she needs a new perspective to save her from drowning under the weight of the pain and worry.

*****

"Are you going to die, mama?" 

"No Sunshine, I am not going to die."

"Is it my fault?"

"No, it is not your fault."

"Then why do you have the waggies again?" Her eyes well up and she tries to hide under the blanket.

"Baby, I need to see those eyes so I can speak to your soul."  I wait patiently for her to peek her head back out.

"Mama has waggies because my body needs to release a little more of the trauma.  Right now, what is happening may look bad, but it is actually good.  This is how I heal."

Her eyebrows squinch while her mouth turns upward at the center.  I read this as confusion.  I try again...

"You know how you used to think the ambulance sirens were a bad thing?"

"Yes," she says, looking more hopeful.

"Then we helped you realize that the loud siren was actually a noise which indicates someone is getting help?"

"Yeah!" She shouts excitedly showing her recognition of this fact.

"Well, that's how I want you to see the waggies.  Every time something funny happens with my body, I want you to think of it like I'm actually helping myself."

"You are right, you do look funny,” she says with a giggle.

"I know...it's pretty silly looking sometimes, huh?"  I start giggling too.

"Yeah - but I won't laugh if you don't want me to."

"Don't worry about me honey, sometimes laughter is the best medicine."

*****

The number one thing my daughter knows is that in our family we believe we were victims of crime at one time, but that is not an excuse to have a victim mentality.  

In the chaos of recovery, with waggies and all, we always find a reason to have joy.

 

 

You can read Part I here.

Other background can be found here, here and here.  Oh, and here.

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Beautiful post.
You are a wonderful understanding caring mother.
I wish you all the best.
r.
You make me hiss, giggle, snorkel, huff, pucker, hick cup, waggles, belch,
waddle,
and yodel the childrens song`Mess! Mess! Mess Mess Mess! I guess it true. Mess!
All families are a mess.
We are all messed up too.
All folk are dysfunctional.
We `screwed-up-together.
I love the story of the hypochondriac who smiles as she wobbles and giggles at any New diagnosis.
I always seek a 13th- opinion.
You laugh and cry at one time.
They say that pain is weakness leaving the body.

I'm not entirely sure I'm convinced of that, but, hell, short of any better answers, I'll take that as an explanation, because as weakness leaves the body it gives us more strength (hopefully)
You are some beautiful, wise people over there, Sparking. Thanks so much for sharing these moments with us. Blessings on you all in this journey . . . and again, thank you.
Sparking, this is potent medicine. I love the way you talk with your daughter. "I need to see those eyes so I can speak to your soul." So much wisdom, so much kindness in that sentence.

Mr. Sparking is good and strong, too. Yours is a powerful family. (r)
not fair to make me laugh and cry at once causing weird sounds and making co-workers check to see if I'm okay.
A dialog between you and your daughter that says a million things more than just the words here--beautifully done.
I wish you had been my mother (guess I should say someone like you...I'm probably old enough to be your mother)
Steve - Ahhh...thank you. I will slurp that up today and take it with me.

ART! - I make you do all that? :) "We screwed-up-together" says a lot in how much you understand our interconnectedness. Yes, we are all screwed up together, and every ounce of healing helps everyone.

Studman - I love how you said that so succinctly - weakness leaving the body gives us more strength. That is quite the visual.

Cindy - or, you can just move forward with me...although I appreciate any reading you do of my writing. I try to make each piece stand alone in case someone is new to my blog. Thank you for coming by - I really appreciate it.

Owl - thank you for always reading and commenting. I feel like I have a friendship through words alone and that is quite a feat! I love reading your work and love when I hear from you after reading mine.

ClarkK- I realize this was mostly about my daughter and I, but you are right, Mr. Sparking is strong and loving. I really need to write about his role in our lives...sometimes I am afraid I can't do that love justice.

Mimetalker - Sorry about that! ;)

SophieH - Awww...so kind of you to notice. There is a lot of love in my home, I am very, very grateful. The ability to know love was hard won for me; I don't take that lightly.

I am off for some appointments but look forward to catching up on everyone when I get back! I hope to read some of your posts today if my eyes will cooperate fully.
Very real. Anyone who thinks PTSD is just for veterans, think again. I wish you health and healing and light and love.
Well, thank you for putting the dear in endearing.
Lovely writing, Sparking, simply beautiful.
Rated.
So much love! So very much love!
R
A very poignant and endearing reflection of the relationship between your pain and the way you handle it with your daughter.
Thoughts are with you, and thanks for sharing your wisdom and this slice of your life. Rated.
sad, beautiful, delicate, poignant, riveting. this ongoing struggle of yours is being written so perfectly, I do hope you will consider taking it to a publisher. I hope your body comes back to you soon. in the meantime your writing stuns. *
Enjoy the sunshine today my friend and they say Spring is arriving tomorrow. Please let me know if I can be of help to you or Sunshine or Mr. Sparking. I'll be there.
I tell people I am a creative writer, and maybe I am and maybe I'm not. But there are times, such as now after I've read this post, that I want to find words to impart to you that will convey how wonderfully, painfully written this post was and how it made me feel. But the words just aren't there, or I simply cannot find them.

What I can say is that I am awed by your strength, your incredible spirit, and your obvious endless love.
I don't come around much anymore, but damn! We share many things, including malfunctioning neuro, and health issues... Yours are so unfair, it's painful to digest any of it! With the beginning of a new season, I find renewed hope, this shared conversation has such a glow... We battle on for these very reasons... Better days for you my friend Sparking...RRR
The way you communicate with your family and the way they help you... is awe-inspiring. There are some families with zero mental or physical problems that can't manage the simplest of communiques.

Bravo, mama... I have come to love you, him and that little hissing bug of sunshine...

"come on up and snug on your mama"... say that line enough, spark and THAT is what will stick in your little ones mind.
dear, dear sparking...i want to sit on your couch with you, gently tickle your wee one, hold you a bit...talk about your boy and my girl. laugh and cry together. xxoo
rated for perfection
This is heartbreaking and inspiring. Now I understand a little better why you know what I know. I want you also to know this: you are the kind of loving, determined, caring mother every PTSD child needs. She will be okay. In time. In large part because of you. I hope you will too, maybe partly from helping her.
Sparkling, this really breaks my heart. I just cannot fathom how these "things" did this. There is a special place in hell..., I hope you get to feeling better. I'm sending great thoughts your way.
You send out good karma with this post Spark.
I am sending it back right now. The purple white kind that heals us all.
I hope you can feel it soaking in today.
You are right. We have much in common.
"Baby, I need to see those eyes so I can speak to your soul."
...and so she will see yours too. keep healing
xox
Hey there, Spark.
You are such a wonderful mom--and woman. Sunshine is blessed to be growing up surrounded by so much love and wisdom. You are a perfect family of 3 and that is all you need.

Enjoy the sun today. Much love to you.
still thinkin' 'bout you
You don't awe me
I don't love you
In some kind of
Dispassionate way

We don't have time for bullshit

I love everyone who loves the truth
In exactly the measure with which
They love the thing we love
And, while your truth and mine
Might sometimes differ,
The strength of our loves
Remains the same forever.

Sorry. I didn't mean to do an Art James, but I have been sitting here all day playing hookey from what I should be doing...and feeling guilty about it.

You just reminded me that guilt is for the guilty....and we're not.
Sitting here smiling but in tears. What a wonderful mother, to have such trust and explain so well those things that frighten your child. I really hope things change for you soon, this has to be so horribly hard to deal with. If you ever need to talk I am here and I listen really well. Good thoughts going your way!
I read the other posts (thanks for including links), and taken together with this one . . . I'm breathless. Nearly speechless. My God, woman. What strength and courage you have.

And I love this: "The number one thing my daughter knows is that in our family we believe we were victims of crime at one time, but that is not an excuse to have a victim mentality." That attitude will serve her well.
I love you and the heart you write with.
Sometimes a smile and a hug can ease more pain than a doctor can. When my oldest daughter was young instead of asking me when I was coming home from a trip overseas, she would say, "Mommy's crying, your not coming back are you?" Not only was it hard for her to understand, she could always sense the answer you gave her was suspect. I would always laugh and tell her I'm always coming back, and that Mommy was just sad that I had to go back to work so soon. Take good care of yourself and your family, as long as your strong, she will gain more strength and understanding. As always my best to you and the family, Michelle sends a hug also. o/e
Thank you all for stopping by my post today. I have been able to read all your comments and I am very, very grateful. I am running out of steam so I will try to reply later today.

Love, love, love to all of you!!!
When I read about how you hug and communicate with your daughter, for some reason I feel the hugs too. I send them back into the universe, hoping they will find you.

R
Thank you for sharing your life. You are inspiring. Rated.
You are sooooo awesome. I mean calling this "the waggies" is enough of a reason for that evaluation, but then you do, think, feel, write so much more. You're special, sparking, really, really special.
Stupid Waggies!!! **snarl** Hope that helps!! :)

**hug**
I love the image of you and your Sunshine curled up in conversation. I know this must be a very hard time for you, Sparking. But you are a rich, rich woman. Love to you_ r
You are one of the most resilient people I have ever known - and your beautiful daughter is going to grow into an amazingly compassionate woman in your care. Sending you hope and strength as you work your way through to the other side of this.
I hope you are writing a book. You have such insight, humanity, generosity, humor, and hard won wisdom. You are a spirit unbreakable and, because of it, your daughter does too. My god I admire you. xoxxo
Thinking of you and sending my best.
I am so glad your daughter has you, as glad as I am that you have her.
Hoping that every day brings further healing. And laughter and happiness.

May you and your family be blessed.
This is one of the best things I have ever read: "The number one thing my daughter knows is that in our family we believe we were victims of crime at one time, but that is not an excuse to have a victim mentality.

In the chaos of recovery, with waggies and all, we always find a reason to have joy."

Such a powerful, positive affirmation. I'm so sorry for your pain and suffering, but awe-struck by the strength of your love, and the depth of your caring, for one another. You and your family are inspirational.

And, then you write about all of it with a simple eloquence that is really quite amazing. (R)
a really beautifully written story, told by an amazing woman to a very lucky child.

and bill s. said it all before i got here.
I hate waggies too. I hope they move on soon, and that Sunshine reigns. Love love love love love to you and your family.
You are a brilliant and amazing woman. Your daughter is so fortunate to have you.
For some reason, I must have missed your first post concerning this health issue of yours. I'll go take a peek. I love the way you are with your daughter!
Sparking,
Much love to you and your family...sounds like you're taking good care of yourself and your daughter.
Enjoy those waggies with your daughter. Any time spent with our kids is precious, no matter how old they are.
If there can be any beauty found in the trauma that your family has gone through, you have certainly touched on it here in the gentle, compassionate, loving way you help your daughter make sense of things. Your strength amazes me and your daughter is so lucky to have a mother whose love will carry her through her pain. My thoughts are with you all.
What a place of warmth and love and humor and wisdom and joy you have created here. Within that you allow a place of safety to be who you are as you are every minute of every day as you work to help your daughter find her way through the maze. I am stunned by your wisdom and by your grace.
So gut-wrenching and full of imagery . . . I feel somewhat embarrassed to be peeking into such an intimate story . . . Thanks for sharing.
I have to read your other posts, but this one made me just want to reach in and hug you and your baby. Hope you are better today. Thanks so much for sharing this with me.
I am here trying to read a little bit today - Sunshine and her papa are off on an appointment.

I don't have the energy to respond to everything individually, so I will clearly let you all know, how very, very, very...did I say 'very'...much these words of praise and encouragement mean to me. I am so thankful to be a part of such a strong community.

I have also received many PMs which are full of wisdom, grace, acceptance and love. I am trying to get through all of those to get back to you.

Oh, and anyone concerned about my health, please know I am in the best of care available - truly.
Thank you for writing so clearly. It helps me understand so much.
Wow, Sparking. Wow. Your daughter is so blessed to have you for a mother.
I can't imagine what it must be like for you to be going through this. Strength to you, Sparking. You are in my thoughts.
So sorry I'm late to this beautiful, heart breaking while heart warming post. You have the most incredible attitude and are teaching your precious daughter such vital life lessons. I pray for your continued healing and lots more giggles than waggles! xoxo
Sparking..you are an amazing Mom, you should be so proud..how lucky Sunshine is to have you.