Reflections on the events of winter 2007.
December is a good month to attend on the wards. Patients arrive with their respiratory ailments, and students discover unfamiliar lung sounds. In thirteen years of teaching at the University of Oklahoma, I never complained about a December assignment, but this December was testing my resolve.
Winter was raging throughout the Great Plains, and Oklahoma was reeling from the icy assault. Roads were empty, trees were broken, and neighbor-hoods, severed from power, were dark. At OU Medical Center, however, lights were aglow, bringing the sick to refuge from the seemingly Siberian cold. The city hibernated, but life in our medical fortress prevailed.
The weather had little effect on my mood because the month was going well: The students were sharp, the residents were hard-working, and the nurses were accommodating. When time allowed, we reveled in "ice stories," never realizing that the most provocative story would be eclipsed by an intimate tale.
It began one morning during a break in the storm. I was scrubbing my head in the shower when I noticed my right arm faltering. I felt no pain or weakness and finished bathing without incident. That day at the hospital, I felt fine and later swam and lifted weights without difficulty. But the next morning, I found myself inexplicably using both hands to shave and brush my teeth.
I arranged to see my doctor but quickly postponed the appointment when the storm resurged. Several large trees had collapsed in the yard. I spent the weekend cutting, lifting, and removing debris. My arm held up well.
The following week, however, a colleague, seeing me walk, remarked that my arm was not swinging normally. Soon, I began having trouble writing prescriptions. And then, the coup the grace: While demonstrating a simple exercise to a patient -- the "itsy, bitsy spider" climbing the wall-- I struggled to move my fingers.
I visited my doctor that afternoon. He listened patiently and through careful examination tried to solve the mystery. He asked me to tap my fingers: My right hand was slow and awkward. He checked alternating hand movements: The result was the same. Then, a final test: foot-tapping. I expected this to be normal because I had no trouble running. Astonishingly, my right foot faltered.
He looked at me sympathetically and said, "Your strength is fine." Then cautiously, as if trying to avoid notice, he said, "Your findings are extrapyramidal. They are consistent ... with ... Parkinson's."
There was silence. I gazed at my feet. After a few moments, I tried tapping again. There was no change. One thought consumed me: I am only 45 years old.
Could Dr. Parkinson have foreseen the anguish his genial name would evoke? I canceled my clinic, drove home, and spent the evening staring at a wall. Every sound was magnified—the howling wind, the ticking clock. Breathless and bewildered, I imagined a bleak future. The struggle had begun; I was locked in health care's ravenous embrace. How would it end? Did I have disability insurance? Long-term care insurance? I was desolate. A happy life had ended without eulogy. For two days, I ate and slept little.
Then came the day of my appointment with Dr. Bharucha, a neurologist who specialized in movement disorders. I arrived early and sat in the waiting room, reflecting on the stealth of my disease. When had it arrived? Was it a year ago, when my agility at the piano first declined? Or a month later, when "decon-ditioning" led me to the gym?
A nurse called my name and led me to the examination room. She checked my vitals, scribbled a note, and left. I closed my eyes and rested my head against the wall.
Within minutes, Dr. Bharucha entered the room, presumably on a cat's paw. He walked so softly that I barely noticed his arrival. He clung to his papers in one hand and to an old, black doctor's bag in the other. Placing them on a table, he turned slowly and, seeing me, smiled and gently nodded.
He was maybe in his early 50s and of medium build. His face was genteel; his eyes, though dark, were subdued. He squinted often, though the light was dim. A crescent of short, black hair marked the perimeter of his pate. He seemed comfortable in his gray wool jacket and monochrome tie. I tried to picture him in a starched, white coat, but could not: The angularity was off-putting.
He sat on a stool and rested his hands in his lap. Then he began to speak—slowly, sparingly. I could not place his accent, but it enriched the lush cadence of his voice. He asked for my story, which I gave in detail. He was motionless throughout the telling. When I finished, he stood and approached me. His movements were slow and deliberate.
During the physical, my attention veered toward his remarkably placid manner. He was so quiet. Afterward, he spoke in almost a whisper. His voice was soothing, almost hypnotic. His words, impeccably molded, seemed spaced to poetic meter. Occasionally, he would clear his throat, but with a discretion that left the lilt of his voice undisturbed.
He spoke of diet, exercise, rest, and medicine, but mainly he spoke encouragingly. Parkinson's disease was treatable. Medicine had greatly improved lives. The outlook was continually getting better. His words were anodyne; his manner, even more so. There was an irresistible timelessness about him. He was decidedly unmodern. And as he spoke -- and paused -- the gloom slowly lifted. Only serenity remained.
I left his office relieved—but why? Surely doctors are immune to the consolations of their own physicians. We do, after all, know the tricks of the trade. Are we so easily charmed by word and manner?
Driving home, I looked at the city. The storm had ended and the clean-up had begun. Mountains of debris were being removed, and power lines were being repaired. I turned on the radio and listened to the politicians trading banalities. As usual, "hope" was being dispensed as a balm for the nation's ills. I was accustomed to ignoring such talk. But not today. Hope -- even in the abstract—was tangible, measurable, sustaining.
Arriving home, I rushed to the kitchen, opened the cupboard, and like Lazarus reborn, devoured everything. Replenished, I entered the library and pulled a book of poems from the shelf. Therein I discovered Tennyson's In Memoriam A.H.H., an elegy to a lost friend. I spent the evening lost in Tennyson's grand nostalgic vision. As my eyes tired, I turned to music. An old symphonic recording not heard in years occupied the same shelf. I put it on. The pathos was wrenching, despair ending in triumph. Finally, I turned to the window and opened the blinds. The clouds had receded and the room erupted in a glorious display of iridescent light. The moment transcended time and circumstance. What had begun in hopeful silence had ended in epiphany—in the blissful and startling realization that a phrase was no less stirring, a melody no less radiant, a sunset no less sublime because of my affliction.
I opened the book of poems again and immersed myself in the inspired oration of Tennyson's Ulysses:
Tho' much is taken, much abides; and tho'We are not now that strength which in old days
Moved earth and heaven; that which we are, we are,—
One equal temper of heroic hearts,
Made weak by time and fate, but strong in will
To strive, to seek, to find, and not to yield.
Night had arrived. I crept into bed. The room glimmered with the sparkle of icicles beneath the eaves. Yesterday had brought despair; tomorrow might bring the same. But today, we were what we were: serene and content to have savored the joys of a bounteous world, and now to slip dreamily into God's wistful embrace.


Salon.com
Comments
I was bracing for a stroke in your telling of the tale, well told, doctor becomes patient, and in the process, becomes patient. Having worked in neurology I appreciated it all the more. You have a gift with words.
I love Dr. Bharucha.
xo
Parkinson's is no match for you.
"What had begun in hopeful silence had ended in epiphany—in the blissful and startling realization that a phrase was no less stirring, a melody no less radiant, a sunset no less sublime because of my affliction."
{{{R}}}
strong writing.
Can you explain to me why I'm crying?
......I honor your courage and your spirit, and believe me, for the things I've lived in my life, I do not say those words with the most sincere care.
I admire you, truly.
Lovely. Thanks for this glimpse into your world. My father-in-law has Parkinson's (not diagnosed until his 50s). He is now 87. With the best care and wonderful new meds in the picture he copes well for someone his age. Through the ups and downs over the years his kind heart and optimism have served him well. I expect the same for you.
highly rated with a hug
You have a beautiful soul.
xo ~
Some lines from one of my favourite poems, for you:
No coward soul is mine,
No trembler in the world's storm-troubled sphere:
I see Heaven's glories shine,
And faith shines equal, arming me from fear.
O God within my breast,
Almighty, ever-present Deity!
Life - that in me has rest,
As I - undying Life - have Power in Thee!"
I've always loved your posts, feel very privileged when you comment on mine and now I feel as though you have given me this remarkable gift of a very intimate and personal revelation of you. thank you.
Your description of the doctor and his examination was perfect. But it got even better after that.
Have room for another tiara?
Thank you for your beautifully written and deeply moving post. Sharing as you have is akin to the voice of Dr. Bharucha. Your words have, and will, grant resolve to many people facing challenges of the same or a similar type.
I believe one of the finest virtues of humanity is when individuals allow the hurdles they face to become a source of inspiration for others. You’ve done an absolutely lovely job of that here.
Rated and appreciated very much.
Love & hugs,
Thanks man.
R~~
R
Rated
This magnificent post resonates with courage and hope. We all learn from you. ~R~
No more tiara but a crown for you, my man, for the peace you brought to my life today. Thank you, Steve.
This is such an inspiring story, so heartfelt and so well-written. I admire that in a doctor.
I feel a kindred spirit, though. Bad news drives me to poetry, because it's there that I find my solace. Maybe sometime we can trade some favorites. Be well.
Beautiful and poignant...reminds me of one of my favorite quotes by another man of wisdom:
“Each one has to find his peace from within. And peace to be real must be unaffected by outside circumstances.” -- Mahatma Gandhi
RATED
By the way, just curious about the dedication...did I miss a connection somewhere?
This doctor knows the art, not simply the science, of healing.
As an old physical therapist I have wrestled with your siblings in suffering many times. You have a challenging road ahead of you and my thoughts of encouragement and best wishes are with you.
Rated.
The future for you will be different! I never thought I'd thank Nancy Reagan for anything, but the whole stem-cell thing will be helping with the cure, I'm sure.
I wish you well on your journey. I HATE it when doctors get sick with ANYthing. It just isn't fair. I pray that doctors are all spared from illness - they do so much to help others. Rated.
Beautiful and honestly told in a way which so many appreciate, including me.
R
"a phrase was no less stirring, a melody no less radiant, a sunset no less sublime because of my affliction".
Peace to you doctor!
Late as usual. Thanks for sharing this part of your story. Previous commenters have said it all - well most of it anyway.
"He clung to his papers in one hand and to an old, black doctor's bag in the other. Placing them on a table, he turned slowly and, seeing me, smiled and gently nodded. "
I loved this part. I saved my father's black doctor's bag. It only has his stethosocope and blood pressure cuff now - but it says everything about how he cared for others. You strike me as that kind of person too. A prayer for you.
You are a miracle worker--doin all that stuff and you even show up and comment on my little old posts. Me, I can't even take proper care of a piano despite your gentle admonishment (sorry).
Now, where did anyone get the idea that Michael J Fox died? Like the vast majority of those who are afflicted with this disease at an early age, Michael Fox is very much alive, as is Paul McCartney (despite his death in 1966). Medical science can be pretty darn good at that kind of thing when bad things happen to the otherwise young and vital.
You are a doctor, so that will make you a great patient.
It was a great post obviously, just, on a personal level in a kind of impersonal environment, just know that you are an OS rockstar for sure, so take care to beat Parkinsons ass, for sure.
I simply had no idea how boundless was your talent, how deep your intellect, how wide open your heart. I wasn't paying attention.
and thank you for opening a window into what it's like to get a diagnosis like this.
~fatRocco and feralRusty
(also comforters in their own way) (and best wishes to mamoore and her mother, too)
I had to look up anodyne -- perfect description.
"13 years of embargo where thousands of us died like animals, where our graveyards overflowed with babies not even allowed to see the light of day, where our cancer patients were given expired aspirin for their agony, where we sat by candle light for nights on end, where we sold our furniture, clothes, books, to survive, to survive your silence, indifference, apathy and cruelty....and here am addressing you the American shits calling yourself a people.
But that was not enough...for the subhumans that you are...that was not enough...
Just like Hiroshima and Nagasaki were not enough for you, blood thirsty depraved people...just like Vietnam was not enough for you, monsters of this world."
Steve, you have always seemed to me, for as long as I've had the honor of knowing you, the pinnacle of strength, generosity, humor and grace. And now you've made me feel, in my marrow, what you felt when you were given your diagnosis. I could not have imagined how my regard for you as a writer and as a person could grow, but it has.
and a lesson in courage for all of us.
thank you
You are a brave ,wonderful person, a writer whom I deeply admire, and a friend. Stay well, dear Steve; you are loved by many over here.
Kisses,
Marcela
Love,
BR