Nothing brings me more joy than seeing Jerry Bryant in the clinic. Jerry has advanced Parkinson’s disease, but he never complains. He is fifty-eight years old and inseparable from his wife, Betty. They are irrepressibly cheerful; when one laughs, the other cheers. As teenagers, they fell in love, and in love they remain. They are masters of resilience – emotionally, that is. Physically, Jerry has struggled, but he is better now, thanks to Betty, and ready for their 40th "honeymoon." Soon they will be sunbathing in the Caribbean.
I am delighted to see Jerry and Betty at the end of a long day. Jerry is sitting on the exam table, quiet and motionless. He has lost a few pounds, but he is still plump. His thin, straw hair is neatly cut. His brown eyes are magnified by thick lenses. He looks awkward in an undersized gown. Staring ahead, he seems transfixed by the empty wall in front of him. Betty stands by him, her arm draped casually around his shoulder.
"Good afternoon," I say.
"Hi, Dr. Blevins," they reply.
I smile at Betty and turn to Jerry.
"So, Jerry, where are you taking your lovely bride?"
He grins and glances at his wife. "Anguilla," he mumbles.
"Really?" I ask. "Why Anguilla?"
His face brightens; his eyes sparkle. He begins to rhapsodize on the charms of Anguilla, or so I suppose, for I cannot understand a word he is saying. Still, his enthusiasm is unmistakable.
Betty understands every word. She translates: "Anguilla has sun-drenched beaches, pristine waters, and midnight barbecue." Then realizing that she sounds like a brochure, she laughs and adds, "Jerry’s dreaming of the barbecue. I’m dreaming of the beach."
Jerry is amused, which brings joy to his wife.
"Are you healthy enough to go, Jerry?" I ask teasingly.
"You bet!" he mumbles.
I look at Betty, as if needing confirmation: "Is he telling the truth?"
"He certainly is," she replies. "He’s having some trouble with balance, but he walks every day."
Jerry’s tremors began when he was thirty years old. Two years later, he was diagnosed with Parkinson’s disease. His condition has slowly progressed. Last year, he received a brain stimulator, which has helped. His tremors are gone now, but his voice remains muffled and his limbs are stiff. He cannot write, but he can walk alone, although he prefers to hold Betty’s hand.
Removing my stethoscope, I check his blood pressure and examine him. As always, I regale him with stories of my weekend adventures. He enjoys my stories, even the silly ones.
"Well, everything checks out," I conclude. "You’re perfectly fine to travel. Have a great trip – and don’t eat too much."
I leave the room smiling. Jerry and Betty have a magical effect on me. Their joy is contagious.
Returning to my office, I sit at my desk and dictate a few notes. After completing my work, I reach into a drawer, pull out a bottle, and remove an orange pill. With a swig of water, I swallow the day’s last dose of levodopa.
Leaning back in my chair, I reflect on the events of two years ago: the evening my hand fumbled as I was combing my hair, the morning I used two hands to brush my teeth, the afternoon I struggled to write. I was forty-five years old then. When my doctor told me I had Parkinson's disease, I journeyed into the surreal: I heard children giggling in a distant exam room and smelled alcohol in a nearby sink. I noticed crickets in the overhead light and saw patches of light and dark on the wall.
For several days I was too distracted to work. I barely listened to my patients. I wrote incorrect dates on prescriptions and impatiently waited for the weekend with its promise of isolation. When Friday finally arrived, I was too pre-occupied to notice Jerry’s arrival.
Dazed, I entered the room and looked at him. He was perched comfortably on the exam table. Betty was standing quietly beside him. Perhaps we conversed. One memory remains: As I approached him with my stethoscope, we looked at each other – he with his Parkinsonian stare; I with the gaze of abject fear. I imagined his decades-long struggle: the frozen movements, the shaking, the distorted voice, the stimulator. He was a crystal ball through which I saw my own bleak future. I wondered when my movements would congeal, when my voice would fade, when....
Jerry’s smile interrupted my reverie. I began to examine him. I checked his blood pressure and listened to his heart, but I could only think of his silent immobility.
As I listened to his lungs, he began to snicker. Jerry behaved oddly at times. I usually delighted in his eccentricity, but not that day. From the corner of my eye I could see Betty’s nervous expression. Raising her finger to her mouth, she encouraged her husband to shush. But Jerry kept smiling.
"What is it, Jerry?" I asked.
He turned to Betty and mumbled something. Betty was perturbed. She tried to ignore his childish behavior, but Jerry waited for the translation, knowing she would eventually give in. Soon her expression softened, and with rolling eyes, she said, “Dr. Blevins, Jerry wants you to know you have shaving cream in your ear." Embarrassed, I wiped my ear and completed the examination.
That evening I sat on my bed and looked out the window. The park was lovely with its vernal backdrop of blue skies and green fields. An old man was riding a bicycle. A mother was pushing a baby carriage. Children were racing on their skateboards.
I thought about Jerry. His happiness defied nature; it was perennial. For ten years I had reveled in his good humor, though now it seemed eerie and discordant. My despair, of course, seemed justified – but why? My limitations were few and mild. Jerry, by contrast, was almost mute, but he seemed oblivious to his condition. Was he unrealistic? Was I?
Spring drifted into summer, and Jerry returned to the clinic with his usual cheer. During that visit, I glanced at him repeatedly, hoping to glimpse the future. His condition had not changed: His eyes were unblinking; his pose, statuesque. But the crystal ball, which penetrated deeper, revealed a future less foreboding. His suffering, although still extant, was subsumed by a graceful serenity. Perhaps I had misread the future. Perhaps time had sharpened my foresight.
I thought about Jerry throughout the summer.
Then one day Betty called to say Jerry wanted to go to the Caribbean. He had never been, and with the 40th anniversary approaching, he was determined to go. He needed a "preflight clearance" and had scheduled an appointment to see me.
And so he arrived, fit to travel. His blood pressure was normal. His neurological condition, although advanced, was safely quarantined from his happy life. He had heard the Caribbean’s call and would pursue its promise of sunny beaches and midnight barbecue.
Daylight passes along with my daydream. The clinic is empty. I put on my coat and turn out the light. For a moment I imagine Jerry in a swimsuit, covered head-to-toe in sunscreen, mumbling and fumbling on the beach. Maybe it's time to stop thinking about the future. After all, there is no crystal ball, just a mirror reflecting the obvious: Jerry is happy.
And I am happy, thinking of Jerry, dreaming of Anguilla.
***
*This essay is dedicated to Christine Bollerud. **Mr. Bryant gave me permission to use his real name. ***The seasons and vacation destination were changed for literary effect.


Salon.com
Comments
As Dr. Manhatten says on Mars, we are each an improbable miracle of creation and mystery. Your body will have its own story.
Jimmy Cagney once said acting is planting your feet, looking them straight in the eye and telling the truth, so you are Cagney too, but not at all pugnacious and I doubt you can tap dance.
Hmm.
The thing is, there is real; there's also Real and REAL, and all good writers want one of the three, at least sometimes, to prove that they are "that good" when it all works.
Then there are some who just breathe, and deliver the best thin, heart-strong whole-fiber 12-grain cerebral mac and cheese, home-style -- and then you want to sit with them, talk about anything at all, later, on the porch, while the kids chase each other in the fade before the streetlight comes on. Not mushy, just friend, fine mind, good heart friend, and funny. You don't do what most of us do: bring in fuel and matches and pile up rocks for a temporary hearth; Steve, you ARE the fuel, the hearth, the struck match, the friction and the unpredictable flare.
THIS: "I heard children giggling in a distant exam room and smelled alcohol in a nearby sink. I noticed crickets in the overhead light and saw patches of light and dark on the wall. "
Only an artist with real sand knows to to say that, instead of all the cliched or beautiful or moving or obvious or sly things, at that exact moment in this work of art. The whole piece has such magic: plain observation that gives us the deep abyss, just under our swinging fingertips, on the walk home from our station.
And Elvis, your aim is true. The arc of this is even better than the parts. We know how all of this ends for you and Jerry and everyone, but for 5 minutes? I wanted that beach for someone other than poor pitiful me. Man, tell the truth and shame the devil: THAT is a miracle of exceptional writing.
You write like bees buzz.
Keep living in the moment and enjoy life to the fullest.
You and Jerry are an inspiration.
Such love coming at you, Dr. Steve...
Fabulous, and thanks!
There are a gazillion things I want to say; however, what will have to suffice is a genuine “thanks” for taking the time to share your own feelings and thoughts about your situation. For that I am grateful.
You are obviously very connected to your patients’ lives, and they to yours in so many ways. It is the greatest gift and blessing one could have.
Excellent post, sorry to hear you got the diagnosis you did.
Damn crickets.
There were other's though who I suspected weren't all that happy. They smiled and laughed and told me they wre doing great even when I could clearly see they we going downhill. For a long time I was perplexed by this behavior. Then it hit me. They were trying to be my doctor. They had been my patients for years and they knew I would feel sad if they were truthful about their deterioration.
One man, Roman, finally explained it to me. "It's all I can do for you, and I wanted to do something"
He warmed my heart.
Rated.
So, I go there every day, and every day I have to see my own possible future, as age and debilitation rob me of my strength....and this is the case for all of us as our elders show us what might be in store for us when we reach their ages.
Parkinson's is one of those disease that turns life into a protracted struggle for survival, but it's just one of those things in store for us. We each face one hurdle or another as we go on.
Unshakable writing.
~fatRocco and stillferalRusty
(that's me right now)
this writing is truly a gift
thank you
We had 20 years with my mom and Parkinson's . She was so stoic. There is much to be learned even as one fears the possibility of the disease being theirs. As my Dad died of a brain tumor she said "I know how to be alone."
Put your trust in God. A Catholic priest told me, "God chooses some to suffer Purgatory during this life....." I guess God has decided that Parkinson sufferers should skip right along to the good stuff.
You gave us the latter a couple weeks ago and the first two today. I can't possibly thank you enough. The world is so much a better place with you in it. Courage, Friend.
What can I say? I am very moved. This made me cry--bittersweetly. On my work computer I will put a bright yellow sun shiny post-it that says, "AT THIS MOMENT" --to keep me here now. Because in all honesty that's all any of us have isn't it?
-R-
(R)ated for same.
What everyone is saying is sublime. You inspire us, Senor Blevins.
You inspire all of us.
Thank you.
After receiving a cancer diagnosis, I used to want to shake people who complained about lingering colds, chronic aches and pains, their weight or wrinkles. I yearned to exchange bodies with them, yearned to enjoy a little bursitis or flabby tummy, instead of rogue cancer cells noodling through my lymphatic system. Not so much anymore. Envy gets in the way of sucking the juice out of right this minute, when I am as healthy and as young as I will ever be.
One time, under particular duress, I asked my oncologist if she had ever had cancer. She had not. You offer your patients something that is of inestimable value, an understanding of the frailty, vulnerability and just plain circus that is a body. I wish you were my doctor. I am glad to have your words though. Thank you.
I have a mild brain injury that prevents me from doing many ordinary things--like, um, writing! But still, I write. And read. I feel blessed. Blessed because there are doctors like you out there!
THank you.
Lee Harrington
best-selling author of REX AND THE CITY: A MEMOIR OF A WOMAN, A MAN, AND A DYSFUNCTIONAL DOG
"But the crystal ball, which penetrated deeper, revealed a future less foreboding. His suffering, although still extant, was subsumed by a graceful serenity. Perhaps I had misread the future. Perhaps time had sharpened my foresight."
How true, how true. Life is so effin' relative. Our point of view can change on a dime, if we let it, and then, so in turn, so does life. In short, don't we all misread the future to some extent? So much projection and worry. Our living in the moment is so difficult to find anymore...yet its the only place that really matters.
What are those Tom Petty lines?
"Yeah, every time it seems like there aint nothin left no more,
I find myself havin to reach out and grab hold of somethin
Yeah, I just catch myself wonderin, waitin, worryin
About some silly little things that dont add up to nothin"
Here comes my girl...listening now and rocking out in your honor. And Jerry and Betty's.
http://www.youtube.com/watch?v=n4nPa35CZPI
rated.
Maybe your Parkinson's eye is connected to your writer's ear. This essay is perfect. It was a privilege to read it.
I missed this when it was posted as I was on my own vacation. I think of you often, and I imagine that they'll find the solution for Parkinson's long before you need additional help. Sending you good thoughts, and envious, as usual, of how well you write. I bow down in your presence.
Miss you Steve, hope you are well!!!