“The biopsy’s here.”
I am in the reception area of the radiology department at the local hospital. It is December 23, and I am the biopsy.
This morning, I was here for a mammogram, which was a follow up to my original mammogram from a week ago, which showed a mass in my left breast. Mammogram #2 was followed by an ultrasound, which revealed a “thickening” in the tissue. When the radiologist mentioned the difficulty of scheduling a biopsy over the holidays, I said, “Can we do it now?”
“Now” wasn’t possible, but four hours later was, so here I sit, the biopsy-in-waiting, mulling over the depersonalizing quality of being referred to as a procedure rather than a person. I decide that given the way patients and procedures can get mixed up at a hospital, perhaps it’s just as well to be known as “the biopsy.”
The radiologist’s nurse, Cynthia, retrieves me from the waiting room. The procedure itself is thoroughly explained, first by Cynthia and again by the radiologist, Dr. Johnson, and I sign the permission form.
Dr. Johnson performs a second ultrasound to pinpoint the mass, which measures one centimeter. I watch on the black-and-white screen.
“There it is,” he says.
“What’s that next to it?” I ask.
“I was just wondering the same thing.”
It is a second mass, half a centimeter.
“We’ll get tissue from both of them,” he says.
My breast is numbed with lidocaine. He’s good with a needle, Dr. Johnson. I don’t even feel the lidocaine injection, although on the screen, I watch the tiny needle enter my body. The doctor makes a small incision, which I don’t feel, to allow the insertion of the biopsy needle, which is considerably larger than the lidocaine needle.
A needle biopsy sounds like a delicate procedure. It isn’t. The smaller mass is biopsied first. The needle is inserted into the mass, and Dr. Johnson counts to three, and there is a sound like that of an ear-piercing gun as the needle grabs a tissue sample.
Two samples are taken from the smaller mass. Three samples are taken from the larger mass. Twice during the procedure, which takes about an hour, I feel not just pressure but actual pain, and Dr. Johnson gives me two more injections of lidocaine. The larger mass is tough to penetrate.
“The tissue is like gristle,” Cynthia tells me.
I have gristly breasts. Just what every woman wants to hear. Mind you, they don’t look gristly. They look rather nice.
“It probably is cancer,” Dr. Johnson says. “I would be more surprised if it isn’t than if it is.”
I appreciate his directness, and I tell him so.
“Call me tomorrow afternoon,” he says. “If the pathology results are in, I’ll tell you.”
Cynthia puts a Band-Aid on the tiny incision and prepares an ice pack while I put my sweater back on in the adjoining bathroom. She instructs me to take Tylenol, use the ice pack, and change the Band-Aid in the morning after my shower (I am to discover the hard way that Band-Aid Tough Strips are not optimal for applying to the breast—or more accurately, for removing from the breast). Cynthia says I have a great attitude. I wonder if this is the first time I’ll be told that, or the only time.
Christmas Eve. I call Dr. Johnson, who tells me I have “interesting results.” The pathologist at the hospital is “unwilling to say it’s cancer” because the cells don’t have “typical pathology for cancer.” The slides are being sent to a larger hospital, 90 miles to the south, for additional staining. Leave it to me to have results that are “interesting.”
December 30. I see my primary care physician. She tells me the results aren’t in yet. I am to call her Friday, January 2.
Two major holidays, one weekend, and several weekdays since the biopsy, I find out I have breast cancer.
One mass is carcinoma in situ, or Stage 0, nothing to worry about so long as it’s excised. The second mass is “infiltrating ductile carcinoma with tubular features.” Tubular? Totally. My composite grade is 1. On a scale of 1-3, 1 is good. I’ll take it.
I am calmer than I would have thought I’d be, although since it’s a Friday, I agree with the doctor that a precautionary prescription for Klonopin is probably a good idea. What if I have a meltdown over the weekend? I’m not prone to meltdowns, but then, I’ve never been diagnosed with cancer before. What if I completely freak out?
I don’t. I have a good weekend. I email friends on Friday afternoon, and when I check my email on Saturday, there’s a flood of good wishes in my inbox. I told everyone in my group email that I’m not ready to talk about it voice-to-voice. A couple of people call, anyway. The boyfriend fields the calls.
I feel feisty and pro-active, but I am not panicking. An MRI has been scheduled for later this month. An appointment with a surgeon is two days after that. I’m checking out a second surgeon. It’s good to have options. Both surgeons are breasts specialists, female, and highly recommended.
Over the years, I’ve given a lot of thought to what I’d do if I ever were diagnosed with breast cancer. I have fibrous cysts in both breasts (remember, the girls look good, but they’re gristly), which makes the development of breast cancer more likely, and for that reason, I’ve had an annual mammogram since I was in my early 30s. For me, the answer has always been clear: a double mastectomy, not only to treat the cancer that exists, but also to prevent any recurrence.
One friend suggested that it’s too radical a choice, unless it’s absolutely necessary. “Too radical” and “absolutely necessary,” I believe, are in the eye of the person who has breast cancer. I have yet to consult either surgeon, but unless she can convince me that it’s unnecessary—and I will take a lot of convincing—that’s my treatment of choice.
Nearly a week after my diagnosis, I’m out of the shell-shocked phase and in the research phase. I believe in being prepared, although a friend who has just gone through two years of treatment for breast cancer has cautioned me that too much information can be frightening. So, I will try to be aware of my limits as I surf the Mayo Clinic and American Cancer Society websites, browse through books, and list questions for the doctors.
You know what scares me right now? It isn’t the thought of dying, because it appears this has been caught early, and I’m hopeful that the MRI will show that the cancer has not metastasized. It isn’t the thought of losing my breasts, since reconstructive surgery can usually be done at the same time as the mastectomy. It isn’t even the thought of losing my hair, should I have to undergo chemo.
It’s the idea that I might have to wear a bad wig.
I am determined to stay positive—and, if chemo is in the cards, to find a good wig.


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Comments
Love & hugs & deep, deep positive energy ... you're gonna do great ... I know it.
Yes, you do lack "flouncer" in your behavioral vocabulary. What you do have in that vocabulary is impressive: strength ("feisty and pro-active"), ability to take action (“Can we do it now?” ), intelligence (info-searching with cautions), humor ("I am the biopsy") and a balanced view. By all means, a very good wig.
You are in my thoughts, and in the thoughts of many of your other friends. As you have said, OS is a supportive community, and you are well worth supporting. Take care.
"For me, the answer has always been clear: a double mastectomy, not only to treat the cancer that exists, but also to prevent any recurrence. "
I thought through all those things as a young girl, when I was just learning to do the monthly swirlie-feelie, and I'm glad to know there's at least one other person on earth who decided early on that cutting off a nonessential part of my body (one that's trying to kill me) is not only an acceptable strategy, but a highly preferable one to letting it stick around.
I just started my annual screening mammos. Thank you for sharing your experience. It's going to help somebody else out there. Probably hundreds of somebodys. You're generous with your experience and I'm grateful.
Also? I can tell you're in this to win it, and you will.
NN2R
It is funny the things that bother us most. I was lucky that my questionable results turned out to be nothing. I am so sorry that this was not the case for you.
BTW - I just scanned your tags, and I have to say that I got a chuckle out of the inclusion of "grisly tits." Your post made laugh when I wanted to be sad for you.
Hang in there. I will keep checking your blog and hoping that you get some better news soon.
And then when I went to nurse my son, they didn't work. With lactation consultants and all of the theatrics and hatricks, they just would not do what they were designed to do.
And so I have vowed that if they ever cause the least bit of emotional distress again, such as yours have been causing you, they would be outahere!, wholesale, no question about it. ANd I am not even interested in the reconstruction, if you would call the tiny b cups I would choose if I had to replace them. I would seriously consider just going flat. As transvestites know, there is always cleavage on the shelf.
I support your decision to go ahead and get rid of them. Also your decision to wake up with the same bra size as you went in with, it will save on warddrobe replacements!
Now is the time for you to do exactl what is right for you and you have Politeness Police dispensation from me, personally, to shut anyone down without compassion if they start in on you. It isn't their body.
Good luck with it all. And focus on the solution, rather than the problem and thank god you found it early!
I say all this as reality check. Might not be you. Plus, chemo doesn't always affect the hair. But if so, with wigs you can briefly become a variety of new and interesting women.
There are survivors all over OS who will contact you, I'm sure.
Your attitude has a lot to do with your attitude, if you see what I mean. And with your health. Humor, self-advocacy and a good support system also key. Seems you have all that. Hang on, it might be a bumpy ride, but you seem like a fighter. And in case you haven't noticed, lots of fighters around here. We're all pulling for you. God bless, keep us posted.
a good point. most people seem to deal with others' illnesses from their own perspective, fear, and such, instead of allowing the person who has the illness to decided what is the proper way of dealing with it.
also? fears of a bad wig? that would probably be the thing i would most dread.
rated.
hats are cool...
I must have gone through at least four identifiable stages of hair loss grief. The babushka look (felt too young for that, thought everybody "knew" immediately), the hat (Jackie K. was thirty years earlier, felt outré, not chic), the bad wig, the better wig (arm-wrestled insurance co. into paying). There are no good wigs.
That was over fifteen years ago. It hasn't been exactly clear sailing since. But now I'm no longer even a statistic! And with aforementioned hub still beside me and a wonderful twenty-two year old daughter who's just entered grad school, I'm still here (but with less hair!).
All the best. Om Shanti. Shanti. Shanti.
No one wants pity in this world. So I don't offer any. I do offer empathy and positive vibes and prayers. You have a wonderful attitude and you have been sorely missed.
I hope things work out well. The "C" words is a scary proposition. "You are not alone" my doctors told me when diagnosed with Marfan Syndrome. There is comfort and some guilt in being glad to hear that. You are not alone dear.
We will ALL be thinking of you and hope you can post.
Keep in touch.
Love and Hugs
Greg
My score was 8 and the surgeon (who wanted to operate before seeing me) first asked "if my family came with me". What he didn't say was that there was over a 50% chance of recurrence after surgery with this kind of aggressive cancer associated with Agent Orange exposure.
Radiation pellets seem to have the least side effects but VA Hospital Bean Counters consider them too expensive for use with veterans.
Depending on your age, it's may be unlikely that you will lose your hair, or have chemo at all. Grade 1, ER/PR+ breast cancer doesn't respond very much to chemo, and many doctors don't recommend it any more.
This was my diagnosis, at this time last year, and I thought that I would be getting chemo, but, for my Grade 1 tumor, which was larger than yours, chemo was more likely to cause problems than the cancer was.
Over the next few weeks they will do more tests on your lumps, and determine the genetic makeup and cell properties of what is in there, and take a really detailed medical history. If your largest lump is under 1.5 centimeters, nothing has spread to a node, and you are post-menopausal, and the cell biology is favorable (and most women diagnosed with breast cancer today meet all these criteria), then you could get a simple surgery, no baldness or toxic chemicals, an accelerated course of radiation (1-3 weeks), and then a pill a day for several years.
Can I suggest breastcancer.org My oncologist, and many others, recommend its remarkably information and special programs on different issues relating to breast cancer.
Good luck - I found the emotional strain of waiting harder than the treatments.
Sue Wallace
What an ordeal. You are holding up with remarkably good humor. I can't tell you how many women I know who've been through breast cancer. (Marin County, CA, where I live, is #1 in the country) ALL, however, are doing fine, so hang in there. And do consider the bald look -- much cooler* than a bad wig. You're a pretty gal and I bet you could carry it off with aplomb. *unfortunately also literally true. I spend half my time knitting hats. Now if I could only figure out how to knit and blog at the same time...
Thumb up and fingers crossed!
rated
One of my friends is a five year survivor. Her's was a stage one also. She has since re-married and is kicking butt all over the world celebrating life.
Peace and love and happiness to you Susan.
I was diagnosed three years ago with breast cancer and was thrilled to be a candidate for a lumpectomy. Unfortunately, the pathology report after the lumpectomy showed that the cancer was more extensive than originally thought. (I have an unusual form of breast cancer--"lobular.") That meant I would have to have a mastectomy.
A mastectomy is something you can deal with, but it is devastating in many ways. And reconstruction does not necessarily result in realistic looking breasts. They are OK, and if you have no choice, it can be nice to have something there, but it is clearly not the read deal.
Please feel free to send me a message if you want to ask questions or get more information. I'd be happy to help you in any way I can. But please take a deep breath and don't let fear drive you to do something you don't need to do. At least wait until you know more before you make your decision.
Wigs ... hmmm ... I agree with everyone else. Find one that is comfortable on your head, but I think a scarf would be very attractive, too.
Illness and test results and diagnosis around the holidays can be very hard and can diminish so much joy. I know that part of it well. Yuck.
My thoughts and best wishes to you.
It gets in her eyes, which drives me crazy, but that's her hairstyle, her hair and her eyes.
All the best, I will be thinking of you.
I was diagnosed the week before Thankgsgiving, and I'm ten days past my bilateral. I too "only" had cancer in one breast, but it was also invasive and in several nodes. I'm still waiting on my final pathology, but I know for sure my next steps are chemo and radiation. And at least Two Good Wigs.
You'll get thru this, and come out the other end a stronger, healthier you. Everyone will call you brave & the outpouring of love and care packages with spa socks will make your cup runneth over.
And if I can recommend a website: breastcancer.org. I learned alot from the wonderful, kind and caring ladies at that forum. Plus, their info is straightfoward, honest and very unscary.
Sending you many coping vibes ....
Two days ago I had my final reconstruction surgery...which follows a lumpectomy (November '07), mastectomy (December '07), chemo (Jan-May '08), and radiation (July '08). Am I ever glad to be in 2009! I have blogged the whole process at www.caringbridge.org, if you're interested. I avoided the whole wig thing by wearing only hats, mostly baseball caps. I am a pastor, and a few of my parishioners REALLY wanted to see me in wigs. (They would tell me that other people were uncomfortable with my choice--not they themselves, of course.) I say it's entirely up to you--you have to do what's right for you.
And now I have to leave for my first post-op appointment. Thank God my daughter is home from college this week--no driving for a while, and my husband is traveling.
All the best to you.
I am a little shocked at some of the comments here, while most are supportive, there are very few urging you to take pause and do more research. Especially in the alternative treatment arena where successful treatments of breast cancer far surpass conventional methods. For example, the clinic 'Oasis of Hope' has a stellar record with breast cancer.
Did you know that you can dose up on vitamin D3 and have a big impact on the cancer growth?
Did you know that you can make big adjustments in your diet and literally starve the cancer cells?
Did you know that these tumors can be reversed and completely disappear? It happens all the time.
I can see from your post that you're not afraid of making the big decisions. But a double mastectomy at your stage is pretty radical... and heavily fear based. Take a deep breath and dig deeper into the treasure trove of knowledge that is out there.
As Susan commented
"Please, please do NOT close your mind to the possibility of a lumpectomy. Believe me when I tell you that breast cancer is all about "the odds." And your odds could not be better at this point."
Best wishes to you, whatever you decide and may you live in great health and well being.
I have a story which may seem unrelated:
On Thursday morning, my sweet and quiet next door neighbor Jason was taking down the remains of a very large tree with two of his friends. I was not concerned about anything going wrong because he is a landscaper, with probable tree-felling experience.
There was much chain sawing and roping and wedging. I was walking on the treadmill on the screen porch in the back yard when I heard the very expected ::CRACK!:: and heard the tree start to go over.
Out of curiousity, I turned my head just in time to see the tree coming straight at me. A few of the top branches hit the porch (no damage) but the bulk of the tree took out my kids' crappy swingset, the front of my rotting shed and flattened the fence between the houses.
Jason was appalled. He was scared to death. He hopped the sad remains of "our" fence and asked if I was okay. After we realized there had been miraculously no damage to either house - since a deviation of a few feet would have taken out someone's kitchen - he said these sage and wise words:
"If it was gonna go wrong, that was the best way for it to go."
May your fences be mended quickly and your losses be acceptable.
(thumbified for bravery and Grisly Ta-Ta's)