I don’t make any secret of the fact that I had breast cancer last year. Ask me anything about it. No question is off limits, although I may not answer it, which is my prerogative. I write about the experience occasionally, and every time I do, I think I’ve said all I have to say about it, and then something else comes up and I feel the need to write about it again. It’s very annoying.
A while back I was invited to “like” a breast cancer awareness site on Facebook. Under the circumstances, not liking it felt rude and selfish. Why, I asked myself, should I not give a Facebook thumbs-up to a site that does much to raise awareness about early detection and treatment options? If I liked the site of that kid whose mom would buy him bagpipes when 1000 people liked his site, why shouldn’t I lend my virtual thumb to a cause that actually makes a difference? Unable to come up with a good answer, I reluctantly clicked the “like” button.
A couple of weeks ago, a woman I met through a mutual acquaintance said, “Jeff tells me you’re a survivor, too.” She told me about her own breast cancer experience and then gave me a Relay for Life T-shirt. I didn’t want it, but again, I felt it would have been rude not to accept it, so I did, and as soon as I could, I stashed it in a trash bag with other articles of clothing for donation.
Yesterday I received a card from a friend who was diagnosed with breast cancer a couple of years before I was. “Relay for Life is August 7,” she wrote. “Come join us for the survivor lap at 11:30.” I don’t want to walk in the Relay for Life, not even in the survivor lap. While I am happy and grateful to have survived cancer, I don’t want to be identified first and foremost as someone who had it in the first place. My life isn’t about having had cancer.
I am incredibly fortunate, and because of that good fortune, people expect me to wave the pink-ribbon flag and proselytize for the cause. And perhaps I should, but I know myself. I know I won’t do anything beyond quietly donating to the American Cancer Society and taking magazines to the radiology waiting room at the local hospital, because no one who is waiting for a biopsy should have to read a ten-year-old magazine.
I don’t know how to explain to people that I don’t want to wear a goddamned pink ribbon or a Relay for Life T-shirt. I’m no one’s poster child. I didn’t want to have cancer. I don’t want to be reminded of it. I want it to be over, behind me, done, and I wish to hell I could quit writing about it. The experience was a lesson in mortality, among other things. No one likes to be reminded of death—potentially one’s own—and I am no exception.
But because I don’t know how to explain this—nor do I necessarily wish to explain myself—it’s easier to click “like,” to pretend I feel sisterhood with a stranger, to accept the T-shirt, to lie about being out of town on August 7. Easier, but less honest, completely inauthentic, and no more me than the color pink. I wish people wouldn’t expect so much. I gave my tits for the cause. Isn’t that enough?


Salon.com
Comments
Have you thought of another word to replace "survivor"?
I'm glad you're still with us, though, Susan!
Joan, thank you.
Shiral, thanks, and I'm happy to be here, too, believe me. I'm happy to speak about the experience; I'm just not comfortable with waving the pink ribbon.
Sally, I'm totally on board. We can even abbreviate it--we're OFBs!
I have not had cancer of any type, but supporting Susan G. Komen for the Cure became an important part of my life after losing my dearest friend to breast cancer 5 1/2 years ago. I never wore pink before that -- really didn't like it.
But I'm sitting here typing this wear a t-shirt with "I WEAR PINK FOR THE CURE" boldly printed across my tits. It is a conversation starter. I get to share with people how important things like monthly self-examination and mammograms are. I proudly wear pink now, so that people (both men and women get breast cancer) will have better treatment when they are diagnosed. The odds suck. One in eight women in the US will get breast cancer.
Take care of your tits, ladies.
Dorinda, thank you.
i don't like 'survivor' either. just getting through the day, sometimes, makes me one of those -- ;-D -- and that hardly counts.
Steve, thank you--and you make an excellent point. If you keep a magazine in your waiting room long enough, it develops historic interest!
Fusun, thank you.
I've been a little taken aback by the ferocity exhibited by some Relayers--several of whom I've had to handle in my capacity as newspaper editor ("You're not giving us enough front-page coverage! Your company cares about finding a cure, right? We'd really need you to donate more free advertising than you did last year and come to our meetings.") I call this "onecausemanship..." or "I care more about (x) than YOU, and I'm now going to make you feel tremendous guilt." I know that kind of peer pressure is encouraged by event organizers because it helps the dollars roll in, but I still find it distasteful.
I agree with the other posters here....you've earned the right to feel what you want, give your magazines and your money to whomever you please. I like Sally's observation about sincerity--she's absolutely right.
Queen of the Hill, I just read your post, and I hope everyone else reading this will read it, too. You hit the nail on the head: These events "provide family members of cancer patients with a way to feel like they can make a difference, and a way to memorialize those who have died and to tell the ones who haven't that they love them." But your first paragraph summarized so beautifully exactly how I feel: "Yes, I got sucked into being a poster girl for the Relay, marching around the track to applause and teary-eyed faces, attending the dinner where we received party favors and the special T-shirts marking us as 'SURVIVORs.' I don't think I can ever do it again. Besides, where can you really wear that shirt?" I just don't think I could take that experience.
Caroline, thank you.
R