suzie's patchouli

suzie

suzie
Location
California, USA
Birthday
April 24
Bio
Aging hippie biker chick, neurotic Earth mother, good at rocking babies to sleep, baking bread, and procrastinating. Live in the sticks with kindly patient husband, many cats, and a needy dog. Have four excellent daughters (two birth, two step) and five bright and incredibly photogenic grandchildren. Writing makes me happy and crazy and sane all at the same time.

Editor’s Pick
JANUARY 9, 2009 4:58AM

Dinnertime at the Dementia Dining Room

Rate: 33 Flag

It's 5:30 and Mom's in the hall outside the nurses' station, strapped into her wheelchair along with all the other oldsters. I run the Wheelchair Gauntlet, slip past the "Help Me!" lady, nod at the newbie who holds a worn baby doll and repeatedly asks, "Where AM I, what's happened to me?"  Greet nervously-smiling Gwen.  "I want to go home," she says.

 They all want to go home, but for most of them home is now a nursing facility where for $6,000 per month they get 24-hour nursing care, a twin bed with plastic mattress, a small dresser, a narrow closet, a worn bedside table, a bulletin board for photos, and, if they're lucky, a window with a view of blooming roses and yellow finches feeding from nylon socks filled with millet.

At dinnertime we enter one of the dining rooms.  There is a dining room towards the front of the building where the not-so-demented patients eat.  My mom (who broke her hip rescuing her toy cats from an imagined enemy) is in the full Demented Dining Room.  (When I asked my mom, in the ER, how she broke her hip, she said, "I was running REALLY fast!) 

As you'd expect, dinnertime is pretty crazy in the DDR.  Residents are wheeled in and meals are placed on the table, but half of the diners can't remember how to use their fork.  Or they have arthritis, or their hands shake, or they can't see the plate.  I sit with Mom.  All of her food is pureed, as she forgets to chew and there's some concern that she might choke to death. Tonight's meal is hamburger, mashed potatoes, cole slaw and Jell-o.  Hamburgers look really disgusting pureed, but she doesn't seem to notice.  She dutifully opens her mouth so that I can feed her.  I try not to make the bites too big.

There is one particular patient at the nursing home who cries "AAAHHH" all the freaking time!  It makes me crazy, but nobody else seems to notice.  Still, I'll take "AAAHHH" over the hacking of Emphysema Lady, who always sounds as if she's coughing up a lung.  To my right sits Eleanor, who maintains excellent posture and endlessly repeats, "I want to go to bed. Take me to my bed."  Her eyes are wide and she never blinks.

Isabel sits to the right of Mom and has tipped over the cole slaw.  She picks it up with gnarled fingers, trying to get it to her mouth.  Her blouse is already adorned with cherry Jell-o.  The aide comes over to help her eat, but there are too many residents for too few aides.

Meanwhile, Mom reaches out to pet her imaginary cat while rambling incoherently about sand dunes and her mother.  She smiles.  "That dossy is stealing his liver," she says.  I have no idea what she's talking about, but I nod and say, "Yeah," because that keeps her calm.  When she gets agitated she says, "I'm going to slap the shit out of you!"  As far as I know, my mother has never slapped the shit out of anyone, not even people who deserved it, like my father. 

One night after I'd fed her dinner she shook her head as if annoyed, sighed, and said, "I've never liked you." Another time she said, "I'd like to see my PRESENTABLE daughter."  My sisters and I are still trying to figure out which of us she meant.

The deal is, Mom always told me that if she ever got to the point where she needed to be in a nursing home, that I was to shoot her.  But shooting your mother is not all that easy.  Granted, it wouldn't be all that hard to smuggle in a gun, but there are way too many witnesses and the escape route is clear down the hall.  I'd have to jump from the window and make a run for the Impala.  My mother, who has always been aggressively antisocial, only has one visitor on weekdays and that is me.  My only possible out would be to commit the shooting on a Saturday and frame my sister.

I feel enormously guilty for putting my mother into a nursing home, not that I actually put her into the home, she sort of ended up there by default.  Until a year ago, she lived by herself.  I lived ten miles away.  I drove over nearly every day, I took care of her finances, her groceries, her cats, her doctor appointments (which averaged 75 a year) and her medications.

But then shit happened.  Macular degeneration took most of her vision.  She contracted viral meningitis, had seizures, fell and hit her head, had more seizures, got diabetes, got cancer, and then, worst of all, lost her mind.  An expert at denial, I managed to pretend that everything was okay, it was just the drugs.  So we took her off the drugs but all that did was make her crazy with pain.

And then she got infections.  Kidney infections, skin infections, urinary tract infections, foot infections.  More hospitalization, a wound vac, a hospital-affiliated nursing home because the insurance only pays for so many days and then it's time to be shipped to somewhere covered for more than five days by Medicare.  The wound took months to heal, her mind got worse.

My mother has always been brighter and more alive than everyone else.  Charming and funny and active and a complete workaholic.  Gorgeous blue eyes, radiant smile.  Even now she charms the nurses.  She's never liked sitting still, she likes to garden and fly kites and travel the country and take perfectly composed photographs.  She likes to hang out with the grandkids and eat ice cream.  The only time sitting holds any appeal is if she's watching movies -- The King And I or The Ghost And Mrs. Muir.  (My sister likes to think that Mom is like Mrs. Muir, channeling the Captain in her imaginary conversations.)

Now she picks up the remote and tries to call us.  She punches the buttons on the phone believing they'll change the channel on the t.v.  I used to make frequent drives to her house to fix the t.v.  Once I drove over and found her watching a basketball game in Spanish.  She'd hit the SAP button on the remote and couldn't figure out how to change the channel.  I expect it was much easier to have elderly parents back when there were three channels, a horizontal and vertical, and a volume.

Everything's become worse since she broke the hip.  She sees visions now, and people moving about in her room.  It's as if she's watching a screen instead of seeing what's really in front of her.  She has nightmares about babies left out in the cold and becomes panicked and inconsolable.  Nobody can convince her the baby isn't crying in the snow.  She rambles nonsense words and puts imaginary food into her mouth and strokes the imaginary cats.

The people who work at the nursing home are extraordinarily sympathetic and kind.  I've heard horror stories about nursing homes, but at Mom's home the only real horror is the deterioration of the body and mind, and after awhile, even that simply seems like part of a pattern, that whole circle of life bullshit.  We love the idea of dying-with-dignity, but I think that's kind of bullshit, too.  Maybe we're supposed to die all demented and grasping and hacking and AAAHHHing until the last breath.  Some of us are born breach or with the cord wrapped around our neck, and others slide into the world like they own it from Day One.  Maybe it's the same with death. 

My favorite Bizarro cartoon features a man answering the door, and at the door stands Death, but instead of the usual Death, there's a cat in cowl with sickle, faintly smiling.  The man looks at the cat and says, "This isn't going to be a quick death, is it."

Sometimes I see the Nursing Home as like a Daycare, maybe an orphanage.  The residents are helpless and dependent and need to be fed and changed and cared for and spoken to kindly.  They go "aaahhh" and like to be patted and gently held.  Of course, they're not cute like babies, they don't have the sweet smell of baby's skin, and they look scary sometimes.  When a baby projectile vomits we go, "oh, ick," but a 90-year-old man projectile vomiting is more like, "Oh, shit!"

And while babies are new and have all of life before them 90-year-olds are nearly over, and we don't like to think about life being over.  We don't like to think about our nice pleasure-giving strong bodies becoming weak and wrinkled and helpless.  We don't like to think about the shitty twist of fate that might put us back into diapers or eating baby food in the Demented Dining Room.

For my own last days, I like to imagine catching a ride up the hill, up to the Sierras, where I'll find a big flat boulder with a view.  I'll settle onto the rock -- it will be sunwarmed, but not too hot.  I'll drink a bottle of really good wine, bring a little weed, some chocolate -- marijuana brownies, that would be nice -- and a pocketful of morphine.  I'll lay on that rock in the sun and peacefully die.  (Okay...I know...I'd probably choke on my own vomit and that's not so peaceful, but it's MY death fantasy so...)  Maybe the coyotes or a mountain lion will come along and feed on my carcass (and probably get a little high from all the drugs).  Thus, even in death I'll provide nourishment to my fellow living creatures.

But if I chicken out, or get too feeble to find a ride up the hill, then I want (at my nursing home) cups of tea on demand, vegetarian food, a glass of wine in the early evenings, and an occasional beer as I sit in the courtyard petting my imaginary cats, watching birds crowd the feeder, yellow roses bloom, and the sky turn colors. 

 And if my daughters don't make sure that I get exactly what I want, I will slap the shit out of them.

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You're doing a great job. I'm glad your mum has you.
I've worked in several of these nursing homes and your humor is your greatest self-protection. The older I get, the I find this is a fear of mine. I love your "own last day" remedy ,only I'd prefer a blanket on a lone beach some where. Good post
Oh my god ... great post!

You write clearly, vividly and unsentimentally of the hell which is later life in a nursing home. It reminds me of "The Savages," that recent film with Phillip Seymour Hoffman and Laura Linney which explores the experience of putting a demented Dad into a nursing home. No saccharine here!

If this were to become a book (and I think it should) there's a piece it should be boxed with; "My Mother, Your Mother," by Dennis McCullough that explores the role of the adult child and their aging parent.

Bra-fucking-vo!

More from you, young lady.
My 91-year-old aunt also eats in the Demented Dining Room, in fact it almost sounds like the SAME Demented Dining Room. My daughter in law is a nurse's aide at a similar facility and I really admire them. There are never enough aides but they are all working hard, most of them incredibly cheerful. Talk about a job that deserves more pay!
Your mom is a "hoot" to the highest power. And you're an angel.
I can so relate....nursing homes have been my life for the last few years. First my in-laws, now my parents.

I totally agree on your preferred mode of exit....I've seen how I don't want to die.
Great post~rated
My sons might be as kind patient (and funny) as you, but I still hope they put me out on an ice floe...
Absolutely brilliant piece of writing.

My mother, who is now only 55, routinely makes me promise to take her out by any means necessary before diapers become an issue. I dutifully pledge to do whatever she wants, knowing full well that if it ever comes down to it, I will never have the nerve. Or the escape plan. Or the sister to frame...
What Brian B. said. I hope euthanasia is legal by the time I get to be this age, since telling my daughters that I will slap the shit out of them when they come to help me eat a pureed dinner whilst petting an imaginary cat to the background noise of "AAAHH. AAAAHHHH." is the exact opposite of how I want to go.

You write beautifully, and it's encouraging to see that your sense of humor is still intact. But how very, very sad for you and your mother that she has to go out this way, that these are her last experiences before she's gone.
Welcome. You're an extremely good writer.

I know about the "Help me!" lady, and the sweet and charming and seemingly lucid woman who tells you "I've got to get home for my children's piano lessons and I seem to have lost my bus fare."

Getting closer to that blotted out phase - I don't want to live past my sanity but I don't see an alternative.
If you hadn’t specified that your mom was in a nursing home, I would think that you are related to me. (My dad was the full time care-giver for his mom, Nana, until he died. Now my cousin is caring for her.)

The women in our family joke that we are going to utilize a “smothering” pillow – when the time comes, our preordained family member will smother us in our sleep. My cousin will smother her mom when the time comes, I get to “accidentally” knock that same cousin off the cliff when it’s time for her to go, my younger cousin will tag me, and so forth. We keep it in the family, and are now creating a (warped) heirloom.

I’m sorry you have to watch your mom go through this. I understand.
Oh, I've been through this, too (with grandparents but not yet my own parents) - still am. It's hard to see someone we love like this or imagine ourselves that way. I sometimes look at my youngest in his crib and think about the fact that (God/fate willing) he will be an old man some day.
I'd think you were my sister, except that my dementia-suffering mom is still at home.

We need a whole section on OS for children caring for aging parents. The section needs to have an attendant passing out recreational drugs.
Beautiful. Just beautiful.
You totally freaking rock!!!!! Rock is a verb, there not a noun. I was feeling oh, so blue and shitty. Then I read your post and your sense of humor in the face of such .... disaster... grace... I don't know what to call it but your point of view is certainly healthy and your core is one hundred percent sane. Rock on.
Suzy, I wish we could rate more than once because I'd just sit here and click over and over. FABULOUS writing, both funny and poignant, about a subject I am all too familiar with. Black humor is what's kept me sane, and yours is priceless! Framing your sister, the vultures getting high on your carcass...too bad our moms aren't in the same home, we could share a plate of lasagna puree and compare notes. You sound like my kind of gal! (I'm in the sticks of California, too, only on the coast. Mom's back in Michigan. I spend a week every other month.)
God! the writing on this site! I am constantly blown away. I'm referring to yours now, but you can spin from gut-busting comedy to gut-wrenching tragedy in an instant just from tabbing from one piece to another within inches of each other on the OS cover. This ripped me up. I'm so glad you're there with your mom. We're all gonna die, and your way out sounds like the best route to me. I just tell my friends: "please, when they put me away, whatever else, will someone just make sure my eyebrows are plucked!"
This is an amazing post. I volunteered in a nursing home when I was in high school, and I knew all these residents.

It's incredibly hard to watch a parent age and die.

I like your death fantasy, right down to the mountain lions getting high! Yep--that's the way to go.
Is it too terribly trite to second damn near all of the comments that are already here? Perhaps most especially the one from Umbrellakinesis. Rated for raw truthfulness.
What they said. Thank you, thank you, thank you.
This is beautiful writing, and absolutely true. Loved:
"We love the idea of dying-with-dignity, but I think that's kind of bullshit, too. Maybe we're supposed to die all demented and grasping and hacking and AAAHHHing until the last breath. Some of us are born breach or with the cord wrapped around our neck, and others slide into the world like they own it from Day One. Maybe it's the same with death. "

Go gently into that night, indeed!
wonderful. amazing. everything written above to highest power.
You have an amazing will. Excellent writing.
What a lucky mother you have. Great writing and welcome.

I'm nearing 60 myself so these kids of posts are getting uncomfortable to read...

I hope my kids are like you when the time comes!
Oh...I was in the second paragraph of a comment and the page disappeared on me! This happens to me a lot! ANYWAY -- thank you all so much for all the generous positive feedback!! I love hearing about your experiences with older family members, nursing homes, and your positive death fantasies -- the beach, the smothering pillows, the ice floe, the cliff. I, too, look at my little grandsons and envision them as old men, and look at old men and envision them as young men...(studly young men, even).

I loved The Savages, I cried...ach. Umbrellakinesis, I would love to be a 30 year old wunderkind, but alas, I'm 27 years past that possibility. I used to dream of being published, but mostly because I wanted to have a really cool glam/hippie photo on the book jacket and be an Esquire Woman We Love, but Scavullo himself couldn't glam me up now. That boat's sailed. (Or is it sank?)

Anyway, can't write much now because the grandsons are upstairs in a tent yelling for me to join them, as we're playing Marine Boot Camp and I am the medic. I was an officer for awhile, but sucked at it so they demoted me. I will come back tomorrow and check out all your profiles! Again, thank you SO MUCH for your responses! This is a great place to be, writing and reading other writers! (although it's kind of addictive, I've found myself lying to my husband. "Are you blogging?" he asks (accusingly). "Uh..no!" I lie, "I'm...uh...I'm working on my novel!"
this was great. you are great. i loved this.

i, too, have a secret end of life plan. 2 of them actually, depending on what climate i live in.

i will say no more.
Suzie,

This was funny, painful, hurt in the deep gut thinking about how our loved ones will die, or ourselves, poignant beyond what I am comfortable with. So it's really truthful.
I can only add my voice to the many. I once tried writing a description of my mother's nursing home but I stopped after about 200 words. It was just too sad. I am glad you were able to continue so brilliantly.
My mother lost her mind as well, when she got sick and died with cancer. I was too young at the time to know that could happen. You know how it is, my only reference were the movies, and they make it seem like you just get a little pale and then one day you close your eyes and go to sleep peacefully. Reality is decidedly less glamorous. To this day I don't know if it was a blessing or not that she became demented. Maybe it was good that an intelligent woman such as her wasn't self-aware of her decline, but it was hard to witness. It's great that you can rely on your sense of humour, it brings perspective doesn't it? Thanks for the post!
Oh Suzie, you really are an angel. Reading this nearly three years later (with my poor mother three years further along in her dementia -- the Grim Reaper Cat assigned to her appears to be one mean s.o.b.), it resonates even more. I'm going to show it to my dad -- I think it will give him comfort, as it did me. Much more than rosy words from some well-meaning but clueless chaplain. Maintaining a sense of humor in the face of nature's blind cruelty is dignity of the highest order as far as I'm concerned, and you set an example for all of us. I'm not sure there's a God up there, but at times like this it's good to at least have each other.