
If you saw a man with no legs in a wheelchair, you wouldn't push him out of the wheelchair and tell him to just freaking walk, would you? Of course not. Clearly, you see that he can not. Seeing is believing, as they say. And thus, the real problem with mental illness is that you can't see it.
He tells me that we need to get a new bottle of glaucoma eyedrops because the people that are trying to get him sneak into the house at night and inject poison with a very fine needle. He is clearly afraid. I tell him we have a security system and if anyone tries it, don't you worry, we'll get them. No one can get you here. He sighs, relieved. Hugs me.
Delusions and paranoid thoughts occur in approximately 25% of dementia patients. Anxiety is common. Other behavior problems include agitation, irritability, wandering, restlessness, sleep disturbances and aggression.
"No kisses for you. Get away!" he shrieks, holding up a hand to my face like garlic to a vampire. He is angry over an appointment card that came in the mail. The date is all wrong. It's not when he wanted to go. My fault. My fault. Later, he says he is sorry and asks me to please hug him. I do and he cries on my shoulder. Asks me what he would do without me. Silent tears that he can't see roll down my face as I pat his back and wipe his tears away.
He is almost always paranoid. Sometimes angry. Often afraid. Occasionally lucid. Seldom logical. He has lost his vision and he is slowly losing his mind but he was and is always - my father.
They're trying to get me, you know, he whispers. They paid that place to poison my food. That's why I had to stop eating. I didn't want to die. The food was poisoned. I couldn't eat it. They gave it to me and stood to see if I would eat it. But I wouldn't. I could smell the poison. But now that you came to take care of me, I can eat all I want. You don't want me to die, like they did.
Sometimes, I hear other people tell him he's talking nonsense. Contradict him until his hands shake with frustration. I listen to people argue with him because "he is so clearly wrong" and they feel compelled to make him understand exactly how wrong he is.
Do they not understand the concept of mental illness? Though they can not see his illness like missing legs, can they not see his distress?
Is the need to be right so strong that it beats compassion until it is left bloody and cowering in the corner?
And, I have to wonder; if you argue with someone that is clearly mentally ill, who is the crazy one?


Salon.com
Comments
I asked myself this more than once when I started caring for my demented mother. Then I began to understand that it is always better to distract than to argue, because arguing is upsetting for both of us and accomplishes nothing. But I had to learn this. Really -- what does it matter if my mother thinks it's June when it's really August? Or that she still lives at home? I've learned that being right is usually wrong.
I think it was hardest on my mum. She really needed him to be aware, to be there with her in the moment. Nothing depressed her more than when Dad was having a 'bad day'.
Emma is so right, as are you. Just going with their reality is better, more peaceful, and really, so much more respectful.
You are doing such a good thing. The right thing.
Please take care.
I have been writing a lot about mental illness (specifically my-wife's bi-polar/epilepsy). Our understanding about the brain is so basic and limited. She was misdiagnosed and suicidal for years because even the experts couldn't figure out what she had or how to treat it. If they failed how do mere mortals know what to do to take care of their loved ones.
The really hard part for me is figuring out what they are really capable of doing at any specific time. It varies, and avoiding a co-dependent situation is really hard thing to do. Helping them with things like daily chores when they need help is a beautiful caring act. Helping them with the same chores when they are capable of doing them themselves is enabling them to stay ill and not improve their own lives. It also wears out the well-meaning care-giver.
I failed to find that balance :( The biggest failure of my life. The problem for me has always been somethings just plain need to be done (walking the dog, taking out the trash, fixing dinner, paying bills). They can't fail to be done without placing more strain on the caregiver, but if the caregiver does everything they wear out. Example with the dog... it is fine to say "you walk the dog" but when they don't and the dog poops on the rug because they didn't get let out for a couple of days then it is the caretaker cleaning up AND walking the dog. A doubling of effort. That can work for a while...
Good post. I will be reading the rest of your stuff after work.
The lack of acceptance, the sorrow; the changes in mood, the pain and agitation of the patient... it´s so sad and so hard...
Thanks for writing about this.
Marcela
I don't know. Maybe in a sense, they are feeding him poison until you're there. For that moment. For that time. Bottom line, this author points out that it's NOT good to contradict them. You're contradicting his reality! That's never affirming or calming.
A sharply written, concise and poignant piece.
waking up slowly... thank you. I'm hanging in by my fingernails. Some days are easier than others.
Ben... it is brutal. Thanks for stopping by and for the kind words.
Crabby... You've been here, too? It's hard, but not being here would have been harder.
Charles... you are so right. It's hard to know when to take charge and when to stand back. And, for me, there's emotional manipulation, too. The doctors warned me about that, but it's hard to know when he's playing me and when he's not. There's so much to learn.
Without a paddle.... let me tell you, I could use one. lol.
David... it is. I had no idea. Truly no idea what I was diving into. Good thing I learn fast.
Marcela... thank you. It is hard. The hardest is when he sits and begs me to please find someone to give him his vision back, and I know I can't. That is probably the hardest of all, to lose sight in his 80s when he is not mentally able to understand why they can't just "fix" his eyes.
Beth... if you think of that author, please come back and tell me - or mssg me. Keep up the kick butt writing, too.
Patrick... thank you so much. I, too, hope my daughter never has to see me that way. Now that we are where we are, taking care of him was never the question. How is and was the question. Every day. My brain can't see the "right direction" any better than his eyes can.
"Is the need to be right so strong that it beats compassion until it is left bloody and cowering in the corner?"
Wow. Simply wow. The question goes so much deeper than dealing with those who suffer from mental illness. The Tao Te Ching speaks of the dangers of accumulation, and some interpreters theorize that this includes the accumulation of information and talking points in preparation for being right the next time the need arises.
You've opened a new world of thought for me with this single question. Thanks you.
It's not easy.....
Dicea... you are very welcome. Thank you, too.
MiddleAgedWomanBlogging... Oh, do I hear you on the "stealing his money" thing. Do I ever. I also see how much was covered up, and you're right - it's not easy. Somehow, it's good to know it's not just here, if that makes sense. Thank you for that!
this was profound and moving. I have experiences in my life that are similar and it's truly a heartbreaking experience.
I needed to read this, to know that others feel the same way.
rated
My father is a paranoid schizophernic. He locks everything with padlocks, even dishes and toothpicks. I know that he does not have emotions that are "normal" and he tries to mimic others. He can do it for a time without anyone noticing. Then suddenly, someone will tell a story or have a short monologue trying to be sarcastic or ironic. My father does not pick up on the difference and he will laugh loudly as if it's the funniest thing he heard and suddenly, the crowd shifts about two paces away.
I have even had doctors do this. It's frustrating to have to explain a mental illness to medical professionals.
Thank you.
TheBarkingLot4... You're right - it's not easy. Whenever I get thinking I have it rough, I imagine what it must be like to live in his head and I figure I have been dealt the easier side of this.
micalpeace... thank you, thank you. You're right. Sometimes it just helps to know we're not the only one.
Peacox... It's frustrating to have to explain a mental illness to medical professionals -- OMG, nothing could be truer. Nothing.
S.P... you're welcome. And thank you, too.
Emma is right that it's better to distract than to argue. Very good post.
@Kathy... Thank you. So right on the fingers and toes.
@Roger... distracting is way less stress than arguing, that's for darn sure.