
This is a stupid story, but maybe not.
It's about nothing, but maybe it's about everything.
Maybe it's the beginning of the end. That's what I worry about.

My brother rotted to death with schizophrenia and died at 31. My uncle with dementia was so bad he was reduced to bellowing in a hospital bed, tied down with a belt.
Am I next? Whatever this thing is that I have, and they've called it a dozen different things over the years (each of which I was expected to "accept" as the unassailable wisdom of professionals), it may be rotting my brain. Or maybe it's the drugs I take to function with it.
I am having "holes". Holes of time, in which nothing happens, except that it must, because on the other side of the hole I realize that a lot of things must have happened.
My brain doesn't work at the best of times, it's pretty much fucked. So this little story may not strike you as much.
Before her 6th birthday on Hallowe'en, my sweet little granddaughter looked up at me with her big brown eyes and said, "Grandma, can I have a locket?" She had long admired mine, with tiny heart-shaped cutouts of the grandkids. She wanted a locket of her own, and by God I was going to get it for her.
It took the usual amount of energy traipsing around the mall, eliminating the $200 models. Finally I found a child's locket that would hold photos. I presented it to her on her birthday and she was pleased, but couldn't get it off because the chain was too short. I told her, "I'll find you one that's long enough to go over your head."
And I looked, and looked, and looked, in my usual bloodhound manner. And in the cheapo dollar store, I finally found something called an anklet for a dollar.
I sat in the mall furiously working on this with my fingers, taking it all apart into four separate little chains and working to fuse them together, in the process removing four little loops with charms on them. A very obese woman sat beside me and asked me what I was doing. We had a short conversation, in which she presided over the transformation of the chain. Then she left, and the moment came when I looked at my masterpiece. It was beautiful: gleaming, sparkly, and whole, and just the right size. For a dollar.
As I left the mall, I ran into the woman again, and she said, "Did you get it?" I held it up proudly, and she exclaimed over it. "She'll love it," she said.
And yes, probably she would have loved it, except that the FUCKING THING IS GONE NOW AND I DON'T KNOW WHERE IT IS.
I had it on the kitchen counter. It was sitting there. And then it was gone. Big crater of emptiness, like an alcoholic blackout, except that I've been sober 20 years. I suddenly realized at a certain point, "It isn't there any more." The more protective part of my mind, which is down to shreds by now, kept saying, "It's there, it's there, it's there."
It wasn't, and it isn't.
I turned the house upside-down with increasing panic. I felt sick. Yes, it was only a dollar chain (sparkly, twinkly, just right). But that wasn't it.
If it was there, then it wasn't there, I must have put it somewhere. Oh yes. Probably, somewhere where I would be sure to see it next time I saw my granddaughter.
Every day now, not just once but several times, I forget a word. I used to forget the names of actresses and things like that, but now it's - . I just can't remember a word. Sometimes it comes back to me, and sometimes I have to search for a synonym like a stutterer.
These aren't difficult words at all. I'd tell you, but I've forgotten what any of them are.
My husband, much older than me, reassures me he's been having this for years. It doesn't bother him. Nothing bothers him. But deterioration bothers me. It bothers me a lot.
I didn't find the chain. It is permanently gone. So how much of my brain is gone? Why is it that later that day, when trying to spiff up an old pair of white shoes, the cap of the shoe white bottle popped off like a champagne cork, puking white crap all over my best jeans. I hustled them into the wash, but they were bleached as with a bucket of white paint, and ruined.
Are there any women of a certain size out there who know how many pairs of jeans you have to try on to get even close to a fit? (Fifteen?)"Bad" was hovering over me, and for the millionth time I wondered what I had done to deserve it.
I cope by using humour, so much so that most people assume I'm basically OK even in the most horrible circumstances. This has been true through suicidal depression and even psychosis. But this really isn't too goddamn funny. This is a road that only goes one way. It's a slow trudge to the kind of deterioration that has devoured a number of my friends and relatives.
I'd rather die than go through this. I'd do it, I really would, but I know it would traumatize my family. It's stupid, I know, and if anyone is reading this they're probably thinking it's small potatoes.
But that's just it. I've lived through the sudden deaths of friends, not to mention long-drawn-out deaths from cancer. Close relatives have been suddenly taken from me. I've suffered numerous reversals in most areas of life and have gone so crazy I had to be hospitalized. All this I could take. Actually, I'm very good in a crisis, the "strong one", which amazes everyone. But this. But this.
I can't live in a mind that won't work any more. I can't gibber and wander and make nonsensical statements. I can't leave the dinner burning on the stove and start a fire. I can, actually, but even the fact that I might horrifies me. I will become a burden. I will freak everyone out. Worst of all, I will lose my writing, the one constant through all the bizarre craziness of my life.
Maybe I won't, but after the massive meltdown of 2005 (an emotional threshhold, like 1990 when I crashed and burned and finally got sober), I can't pray any more. I'm not sure anything is there. This isn't like the parable of the lost coin. The chain won't turn up. I know it won't. I'm going to go back to the cheapie store today and try to find another anklet and disassemble it, but I don't think I can pull off that feat twice. I'll fumble and shake and drop essential pieces.
Old age only goes one way. It's a trudge towards oblivion. You can give me your "live in the moment", your "golden years". But how many brain cells do I lose in a single day?
Should I "accept" this? I've never accepted anything in my life. And I'm not about to start now.


Salon.com
Comments
And words. Don't get me started on words. I lose them far more often than I care to admit. I write the sentence and there it is, that word I need, but the word simply won't come to me. Doesn't have to be a difficult word, either. Three or four letter word sometimes.
As far as stuff goes, I've lost so much stuff over the years it's not funny. Sometimes they show up in a day or two. Sometimes they are gone for eternity. I have two or three of some items because I can't find the first two that I bought. So join the crowd.
I don't want to sound like I'm dismissive of your concern about it.Especially with your family background, I just choose not to let it bother me. I hope you can find a way to do the same. I just think that we are bombarded with information and our brains are full. Just like a computer gets over loaded and slows down retrieving information, so do we. At least I hope that's what it is. Othersise we may both be screwed.
I thought I had early onset Altzeimer's or demetia and that I would be in the nursing home before 65. I wa scared shitless. That tormenting fear made my memory worse, by the way.
My neurologist confirmed it is not dementia, It is the meds. He told me to figure different ways to remember things and gave some concrete (thank God) suggestions. I had a choice. I could deal with the inconvenience of writing my self notes and looking at my calendar every fifteen minutes so I won't forget where I am supposed to be or end up with the same thing only in worse condition. when I walk off without paying for something, there is always someone to remind me. when I walk off without my purchase after having paid, there is another person to remind me. It is really hard when you have been the independent, rock in the family and among friends. I had to figure out my new place with a brain that no longer functioned as the quick accurate pace it once had. I decided to stay on the meds and have adjusted. The people around me have had to adjust, too. they seem okay with it most of the time. Forgetting to defrost the meat for dinner is the biggest problem. I forget there is a note for that. Now we laugh and my ego doesn't get so bruised anymore. Having adopted the interdependence I used to preach but rarely practiced for myself, I discovered I like it.
His mother had dementia, only then they called it hysteria.
I know that I have trouble remembering things, and I often spend a lot of time looking for my glasses or my keys.
You are strong. This slip into the night will not be good, no one can bullshit you that it will be. I know damn well what is waiting for both of us one day.
I don't know you well enough to say what you will do, but I can tell you what I plan to do myself.
I will stay as functional as I can for as long as I can. I will write, and hunt and do the things I love until I can't do them any longer. After that I will pray very, very fucking hard that I can slip off quietly to a place where they won't find me for quite some time.
And there, I'll lay down in the autumn leaves or the winter snow or the spring flowers or the summer grass.
With the worms waiting beneath me, I'm going to take my old six-gun and blow out the lights.
If I don't have the courage though, or if I wait too long and am too far gone..I know how the end will come. And I know that either path ends in the same location.
What matters is what we do before those final days come. What you're doing here, is good work. It makes us think, it makes us reflect, and it makes us appreciate what we have while we have it.
Sometimes your work makes me smile, other times it makes me wish I could still cry.
You're damn good. Don't give up just yet.