Theodora L'Engle Knight

Theodora L'Engle Knight
Location
Portland, Oregon, USA
Birthday
July 02
Title
Pack Leader, Her Royal Highness
Company
Prozac On Paws: The Tale of Three Spayed Females
Bio
raised in Boston and never meant to leave. went to hahvahd and barely survived the experience, but i did have some lovely brushes with greatness there that i will never forget. i got 2/3 of an mba and mistakenly got into finance. now i'm a recovering accountant. you never really recover. thankfully fell into screenwriting by collaborating on a tv movie and selling it to nbc. wrote scripts for a while. also did some playwriting and was blessed to have my stuff workshopped with some pretty good actors. then i became agoraphobic after a hysterectomy to remove The Fibroid Tumor that Ate Santa Barbara. I adopted a 9-year-old yellow lab, Good Willa Hunting, and trained her to be my service dog. the second time around i married a wonderful and talented landscape architect/jazz flute and sax player. we moved up to portland, oregon 2 weeks after 9/11. lost thelma the love kitty on the way. lost my husband to pancreatic cancer and part of my brain to george brad pittuitary boomer tumor willis. now i live in senior low income housing with my current service dogs/canine crew: Ella Fitzgerald and Cocoa Chanel. tumor george is gone gone gone, i'm writing again and even thinking about going back to the standup comedy open mikes. anything and everything is possible. i just have to leave the house one day at a time. As Steven Wright says, "You can't have everything. Where would you put it?"

OCTOBER 22, 2009 11:23PM

i'm sick with CFS, it turns out/how many of you have it too?

Rate: 39 Flag

i want to apologize in advance for not reading many posts, if any. i have this battle going with this stupid freaking Chronic Fatigue Syndrome and another immune thang that i can't remember the name of. i know, dangling participle. kiss my freaking ass.  so when i say that i'm sick, this is what i'm talking about. IF YOU'RE BATTLING WITH CFS OR KNOW SOMEONE WHO IS, PLEASE COME AND COMMENT HERE. LET'S SUPPORT EACH OTHER WITH THIS CARP/CRAP.

i never even believed in this illness. well, that's not true. i believed it, of course, because i met people who had it and they were clearly suffering and looked pretty carpy and i'm so glad now that i was understanding and kind to them. but, of course, i'd never walked in their Nikes.

well, the radiation therapy that helped shrink and then eradicate my late pituitary tumor George Brad Pit-tuitary Boomer Tumor Willies, which was a good thing, also wiped out my freaking immune system. long ass story that no one needs to hear. it means that i also contract various viruses that come along. in this case, thank godiverse that i don't leave the house much. and everything gets infected. eyelids, tear ducts, sinuses, gums, you name it. my poor poor wonderpups...

so i'm running 101 degree fevers several times a week and i'm exhausted and carpy and feel like i have the flu almost all the time. i've come up with a new term for this: FLUTIGUE. so far, no one finds this as amusing as i do, but whatever. it will catch on. i have hope.

the worst thing is that i get seriously depressed when i'm running fevers and nothing makes these babies go down to normal, which, for me, is 97.1, despite my taking a shitload of thyroid meds. As Someone Who Is Bipolar 2, i don't need no freaking help in the depression department, man. i do fine at it all by myself.

so please forgive me for not reading posts for a few days. and PLEASE PLEASE PLEASE , IF ANYONE KNOWS A LOT ABOUT THIS THANG, PLEASE COMMENT HERE AND/OR PM ME. i want others to be educated too. i had no idea, folks. really.

 

Somehow this part is unclear because people just stopped RATING me for no reason, at 19. happens every time now. other people get 76 ratings and such. why do mine just stop? it sucks, so PLEASE RATE THIS POST BECAUSE WHEN I FEEL LIKE CARP, I REALLY REALLY REALLY LOVE GETTING MY GOLD STARS. shit, people, i'm fucking sick.

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Teddy
I'm sorry to read that you are hurting. I wish you well and send you much love. ~R~
feel better Teddy. been thinking about you wondering how you were doing. I don't know if this will help, but sometimes a low gluten (almost gluten free) and lower carb diet can help with the muscle aches and fatigue. I don't know it would be helpful to you, but thought I would suggest it. Meantime, kisses from Lulu and Phoebe and hugs from me.
Sweetie, that just sucks. I've known of folks who have or have had it . . . at least they have a name for it now, although I like your name for it better - flutigue - I will help circulate it whenever I can. I rated, of course, and send lots of hugs - or at least a cool cloth when you need it.
Dear Teddy,

Hope you feel better soon. Love love love

...
crystal, love. that's fine ,go away. i was probably MANIC BECAUSE IM' BIPOLAR2, WHICH ANYONE WHO DOES READ MY POSTS REGULARLY KNOWS. i love that you had to say this publicly instad of in a PM. what a sweetheart, you are. yes, i know that you have problems far worse than mine. god, 75 percent of the world does. i share mine in hopes of helping others and of getting help for myself. i would wager that there are people on here who have CFS or live with someone who does. that is who i am addressing. i thiknk that is pretty freaking clear. i wish you all the best, sweetheart. I BELIEVE THAT I APOLOGIZED A LONG TIME AGO FOR YELLING AT YOU. YOU KEPT APOLOGIZING TO ME AND I KEPT TRYING TO LET YOU OFF THE HOOK. get some help, love. i say this with all sincerity and love. really.
yes, Melissa, you aer right. i did not like your approach to OS. you asked some of us to tell you how to come on here. you wanted to post a bunch of posts and I GAVE YOU VERY SAGE ADVICE ABOUT ONLY POSTING ONE POST AT A TIME SO AS NOT TO DOMINIATE THE FEED AND PISS PEOPLE OFF AND TO READ AND COMMENT ON OTHERS' POSTS IN ORDER TO CREATE A FAVORITES LIST. I NEVER HEARD BACK FROM YOU, NO THANK YOU OR ANYTHING. I WAS GIVEN THE SAME ADVICE AND SUCH FROM MONTE CANFIELD IN THE BEGINNING AND I THANKED HIM OVER AND VOER AND OVER AND OVER AGAIN. I EXPRESSED HUGE GRATITDUE. HE DIDN'T HAVE TO HELP ME TO THAT EXTENT, BUT HE DID. HE'S A WONDERFUL MAN. so that i what i was responding to. and you said taht you had written a book about bipolar and your intention seemd to be to market your book on here. which is fine, but there are a lot of bipolar people on here who also write and i suggested that perhaps this was not the place to market your book, to other writers. and i will bet that i was either manic or feverish. so please feel free to hate me. i'm not nice all the time but when i love people, as i do so many on here, or like people, there is NOTHING THAT I WONT' DO FOR THE PEOPEL I LOVE. NOTHING. take good care. and your'e welcome for the information i shared with you when i was feverish and depressed.
oh god, im' so relieved that this isn't just a tell me i suck fest here.

Chuck, thank you, love. i didn't have a name for this Flutigue until recently and it's just a guess on my doctor's part. but it's a huge relife just having a name. i adore you, as you know. lvoe love love!

LuluAnd!!! i've been thinking about you too, sweetheart, and seeing you on the Cover page all the time when i have to go there unwillingly to check on Recent Posts, which i wish i could do on my own page. anyone? bueller?

my next Scanned Photos post is going to be All Pets, All the Time and i will let you know when i put it up. i hope that you and the girls are flourishing! and thank you for the gluten-free idea!!!! sadly, i live on gluten, i think. but i can start makign small changes. love love love!

oh, Owl girl!!!! please do pass on Flutigue for me. i know, i have heard so much about this carp but i never really got it until now. and i truly hope that people get that i don't think that i have the worst problems in the world. shit, close friends of mine have carp in their lives that surpasses mine by miles, but they understand and i do the same with those who are lesser troubled than i am, well, you get it. i'm going to PM you because i'm watching L Word and Jenny hasn't died yet. i can only watch now because i know that she's going to get "auf'd". love love love!!
As I said somewhere else, I'm so sorry you're ill, Teddy. I don't know much about CFS, just what I've read about it. But I know you're suffering and I'm sorry for that. I hope you can find some relief soon so you can get on with your life. My best to the Wonderpups! Rated, of course. D
You may be sick but you write well. My sister-in-law has this, as do others I've know...it's debilitating. I hope you get some relief soon. I'm so sorry you have to go through this Teddy.
I'm so sorry you're feeling so crappy. Feel better soon Teddy.

Rated
I'm sorry you're not feeling well. I just read this post about CFS today: mud puddle Hope you'll feel better sooner than later.
YO, Buffy and Brie, you are angels to come by for my whining post! thank you so much, loves. that's what is so annoying. this is so freaking debilitating. i never realized before. i'm so sad for my poor wodnerpups. i couldn't get them out yesterday and i don't have the money to hire a dog walker, sadly. and none of my neighbors... i won't even go there. there are so sweet and patient but they must be thinking, shit, man, couldn't i have found a better gig? love love love and grattidue
Teddy, I'm so sorry you're feeling so bad. Running a fever takes so much out of a person, regardless of the cause, so I can only imagine how exhausted you must be. I wish I had something to suggest to help.
oh wow, C&V, you are such a doll!!!!! i will read this and i couldn't be more grateful. it is angels like you who make life bearable on depression days! love love love and HUGE gratitude.
hey, suznmaree, just you coming by and commiserating means everything. fevers just suck. Owl described it as feeling like your nerve endings are overly sensitive and she's so right. normal carp feels like a mountain instead of a molehill. lvoe love love and gratitude!!! i was so scared that this was going to be a Kick Her when she's down thang.
Want a tip? Mix robitussin with fanta in a blender...I swear it works.
"they must be thinking, shit, man, couldn't i have found a better gig?" It's nice to see that your writing flair is surviving your fever. :)
wow, kolika, you are such a love. i will definitely try that out. i prefer stuff that makes you high/stoned but i will check out almost anything at this point. love love love!!!

oh my Brie, thank you for the props. i almost never lose my sense of humor, thank god. that's why i don't consider myself a whiner, as so many love to pin on me, because i make fun of myself and my situation. enough from me. i'm so grateful to yuou for getting this, girl. i'm going to tell my canine-americans that you said that. they get tired of my attempts at humor. it's like, PackL, shut it and get us OUT. love love lvoe
Strength, hope, peace.

From one who suffers to another. I will add you to my Roasary prayers.

May your suffering cease. Rated.
I really hope the recent lead on a viral cause for CFS pans out. My bio-stepmom (OK, she's not much older than me, but still) has struggled with this for nearly twenty years now. It's brutal.

So sorry, Teddy.
Rutilus!!! thank you so much for adding me to your rosary! i am blessed to have you in my corner. i'm so sorry that you live with this too. lveo love love

Verbal, sorry about your stepmom. i hadn't read about the virus connection. that's why i posted, in hopes of getting and sharing information. love lvoe lvoe

and huge gratitude for both of you coming by.
"FLUTIGUE"

Here's to this word catching on like a wild fire!! I LIKE IT!!!

:)
Tinkerbelle, you're so full of it but i still love you. i ran Flutigue by you in a PM and you didn't respond. but, yes, here's to it catching on because there are way too many people out there and on here who know what i'm talking abotu!!! love love love and stupendous gratitude for you, tinkertot!
Take care of yourself Teddy and get better!
Feel better soon Teddy!! I don't have CFS, but the depression can sure make me feel like it some days. Hope you get some good sleep tonight and tomorrow you feel some lift and then the next day even more.
oh, i love you, cymraeg!!! thank you for the good wishes. i'm finding out that that many on here know someone with CFS and there are at least two others on here, so im' feeling much less alone. i feel like im' going to get some good information and that then i can share that data and maybe help others. you are such a sweetheart. if i don't get to your psots right away, you know what's going on. love love love and gratitude and now RATE this thang. :)
oh, julie!!! thank you for coming by. i'm very popular when i feel like carp, apparently. :) i'm so grateful for the caring. you're right about depression, of course. but depression is a physical illness, as is bipolar, so of course we feel altered physically as well. the fevers and the depression? not fun. but i have better days so this too shall pass for a while. love love lvoe and gratitude and i'm watching L Word's latest season. when does jenny die??? i can't wait for her to be gone. love lvoe lvoe andgratitutde
Gawd, I hope something ends up helping. It's scary as hell not to have a well-functioning immune system. "Flutigue" is brilliant, and it makes me wince because I have some idea of what it's like, although I didn't have the fevers. Try acupuncture. It makes a difference who you get, like with surgeons. Plus it may work on some things and not others. I had it for carpal tunnel and it didn't so a thing, but for fatigue it was a miracle cure--same guy. I didn't have any faith in it, since it hadn't worked before, I just did it because he was my friend, so I know it's not placebo effect.

I'm sure there's herbs that boost your immune system, although I'm not a good source of herbal lore. I know if you've got liver problems, you take milk thistle, or even if you take a bunch of meds and want to protect your liver. I swear by milk thistle. I know CFS people have a lot of pain., so you might try taking vicodin. I've had it prescribed for fatigue, but that's because I find it speedy. If it didn't make you tired, it might help. I'm sorry you're having such a hard time. I know how it can wear you out.
oh, Siren Girl!!!! thank you so much for sharing what helped you with the Fatigue. i am going to try Acupuncture again. there's a place that, blessedly, sliding scale. i have been thinking about asking for Vicodin or something like it since i don't get addicted to this kind of thing. because of the body pain, my back and my gums hurting me so much. i need to be able to function better than this.

i took the pups to the parking lot at Burger King finally because i couldn't stand the guilt and needed a walk myself. it was so cool. they went runny runny run and got a million smells, which tires them out more than anytthing. i was going to just get a soda but they had double cheeseburgers for $1! i've decided that Godiverse likes me portly. but i'm not accepting that. as soon as i can find a bathing costume that fits, i'm back in the warm therapy pool. well, when i'm over the hump with this CFS flare-up!!!

love love love and huge gratitude for being such a good friend, love!
Get better soon! You can beat this! x
Being sick is no good. Take extreme good care and get well.
Sorry the CFS has you down, Teddy. At least you know what it is and have support. Get better soon.
Kirsty and Traveller, thank you so much for coming by. this is a chronic illness that i need to learn how to manage. it's not a matter of jsut getting some rest tonight. i slept 13 hours last night. i am resting and wahtever. it's just going to be a one day at a time thing. sadly, what does make me feel better is eating, particularly fatty good, which is not the best thing for me. onward and upward and love love love
My sister has it, my aunt has it. I know it is real and awful. I am sorry this is your diagnosis. They live with it but it takes its toll.
BTW, I love how you keep telling us you feel like "carp." It is such a funny typo and it makes me think of fish every time I read it although I really am sorry you have CFS. From what I understand, it is a bitch. Didn't that woman who wrote that book about the racehorse have it? I think she wrote her book from bed.
thanks, kathy. finally knowing what it is makes a huge difference.
hey, Lisa, it's great to see you here! wow. the carp thing? i write that on purpose. every time i wrote crap, it came out as Carp. so now i just say carp instead. makes me happy. i'm glad you enjoyed it too! wow, so many people have this thing. give my love to your sister and your aunt. and yes, it was the woman who wrote Seabiscuit who had CFS very badly. she had to lie down all the time because of dizziness. i remember reading about that and thinking that that would be the worse thing ever. who knew? lvoe love love and gratitude
T. - I don't know you, but I'm very sorry for your troubles. I have no first hand knowledge of what you are going through, but I can certainly empathize. God bless.
Rated.
Kyle! how sweet of you. and you even rated! my troubles are nothing compared to many. please know that i know that. this is just a recent development. well, not recent. i had the symptoms but didn't know what it was. so now im' just trying to put some information together so i can manage this. thank you so much for coming by. i LOVE making new friends. love love love and gratitude
Look Teddy, 21 stars. That is a little progress. I've been home from work 2 days now with "FLUTIGUE"--to think you feel like this so much of this time is really a bad thought. I wish you happy moments.
Keep the funny coming. Few writers convey humor as well as you.
Hi Teddy,

I have a S-I-L who suffers with CFS and I know how debilitating it can be. It's great that you can and do maintain a sense of humor at all times, as evidenced in your post. That must help. Feel better soon XO
oh thank you, Scupper love for coming here when you also feel like Carp. shit, i wouldn't wish Flutigue on anyone, never mind someone i adore.

and Kellylark, i'm so grateful for you coming by. it seems that a lot of people's relatives have this CFS thing. it's interesting and kind of scary. and, yes, i try to see the humor in every situation. it helps enormously.

love love love and gratitude for both of you.

now im' off to bed again. so grateful for everyone who came by and offfered much needed support!!
Theo, I'm sorry you have CFS. It is without a doubt a most insidious illness that just sucks all the fun out of life and the life out of fun. You have my sympathies-- and good thoughts your way, if you want 'em. I sincerely wish a spate of good news upon you and hope it manifests itself soon.
I worked with a woman who had CFS, and it was among the more debilitating afflictions. It was made worse by the high-pressure job we were doing. Hope you pull out soon, kiddo.
After reading this post, I'll forever be ashamed to whine about my puny aches, pains, and age exhaustion. I hope you're feeling better soon.
Wish I had answers, all I can do is send love and hope!
I think Flutigue is perfectly descriptive! All though it most definitely sucks that you feel sooooo horrible. Give the pups an extra hug from me. Triket (the youngest) just had his "twins" removed and is feeling ever so achy himself...
CFS has been recently asked about here too Teddy. If that's what this is it sucks hard. You know how to find me if you need me.
My wife's aunt suffers from CFS. I myself got mono in college, and that effed up my immune system for a couple of years so I was endlessly sick, a one-man (boy) strep throat epidemic. It's a good part of the reason I have to work for whiny demanding professors in a great University instead of being a whiny demanding professor myself. The other reason? Probably that I'm just not as smart as most of them, though I am significantly more likable.
I see "28" here and soon I'll add my gold star. I hope you are feeling even a little bit better by now.
Theo sweety I am sorry you feel so bad. I could not access your blog from work today. It kept censoring it so I'm home now and sending good vibes for you to feel better. Oh yeah and a star
Hi Theo,

I'm sorry you feel like carp/crap. I don't have what you have but I know people who have it and it sucks big time. I would send energy your way but I was almost hospitalized myself this week from the freaking stomach flu (with leg cramps that had me screaming) that I couldn't get rid of for 7 hours (even with my good travel meds). Now I'm exhausted.

So, I'm sympathetic to low energy and depression at the moment.

I'll rate this and hope you feel better.

Denese
"Flutigue" sounds about right! I know some people who have this (CFS) and it really just plain sucks. I'm sorry you have it, sorry for all of your troubles really. I am glad you write about it, too. Don't feel bad about not being able to keep up with everyone's posts. I myself don't always get to everyone's. Life gets in the way. We've had some fun with the flu (the boring, traditional, old fashioned kind) and I haven't been on OS much lately. Take care of yourself, Teddy! And remember what I told you before about that little cartoon. "Don't let the turkeys get you down." It applies to almost every human interaction that doesn't go your way. Makes me laugh every time, too. Gobble, gobble, Teddy. Gobble, gobble.
THEO_I know next to nothing about this CFS except that people who have suffered for years from this mystery debilitating illness are finally getting a diagnosis, and that in itself is a little comforting. To know there's a name for the suffering.

Take care of yourself, keep writing!!!
Rated
thank you, mr. e, for the good wishes.

oh, Boanerges!! thank you for the shout out. if you know this woman, you know that i'm not going to pull out anytime soon. but iu am accumulating info and will do what any expert advises. im' sorry you have to work with someone who has this. it's like working with half a person. love love love!

Jeff Brawer!!! it's so lovely to see you here. a fellow Bostonian and wonderful writer. hey, man, whine away. aches and pains are a drag. any level of them. i whine and complain all the time to people who are much sicker than i am. but they know, i hope, that i totally get that they are much much much sicker and taht i care. lvoe lvoe lvoe

Mamoore -- girl, love and hope are the best gifts! thank you for caring and coming by. love lvoe love!
Blue!!! wow, give Triket my love and many many treats!!! losing those "twins" is not a fun thing. i love that you like Flutigue. and thanks for giving the pups their props. they suffer the most from this carp. i'm getting them out tonight come hell or high water. love love love!!

Bobbot!!! i adore you. yes, this sucks hard, for sure. and i love knowing that you are there when i need a boost. love love love

GeeBee!!! thank you for coming by. i'm sorry about your wife's aunt and sorry about your years of being chronically sick. that bites, totally. i empathize. my undiagnosed mental illness kept me from becominog all that i could become. still does. but being likeable??? pretty cool. seriously. having fun??? the best. love love love

MP!! shit, girl, hearing from all these lovely people helped a whole lot, as did hearing about so many others who have this thang and who are finding it a hard road. validation is priceless. and i LOVE my gold stars. that beauty piece is fascinating. people keep telling me taht i was beautiful and still am. i can't see that. i can see cute. it's a strange subject. i'm so happy for you that you made such peace with yoruself. love love love!!

LL2! thank you for the star. god, i wish i got ratings so rapidly for my regular posts. i guess i have to whine more often. love love love!

and gratitude, so much, for all of you. i will get to the rest of you later on. i'm determined to get my wonderpups out and about with my carpy self.
OKAY I WANT TO SAY THIS: Telling your story is not whining. It is simply telling your story. I am glad you are telling your story, it makes me feel I am not alone. I've had episodes of severe fatigue ever since I had a bad throat infection in college, and sometimes it just sucks. I feel I could offer the world more good if I just could not feel so crappy. People tell me: you look tired. That really helps to be told you look like crap.

Teddy you keep telling your story you are NOT NOT NOT whining. People suck who always go around comparing their problems to other people's. OF course theirs is always worse.

Love to you and hugs and warm fuzzies and get you a good old teddy bear to hug it works.
Oh, yeah, by the way anyone who knows bipolar 2 knows that people with it get snippy sometimes. To be expected. So if you want to yell at me go ahead and I'll just send hugs back. HUGS!!!!
CFS is enigmatic. Some believe it is viral in origin. Nobody knows. It may be that viruses yet undiscovered are at the root of many rheumatological diseases. I remember when it was discovered that bacteria cause ulcers. It was a stunning revelation -- one that lead to the Nobel Prize in Medicine. Sadly, I have no answers. We must be patient and let science to its thang.
i've skipped some thank yous. i apologize. still running a high freaking fever.

BG, thank you for empathizing so strongly. i'm sorry about your high level of fatigue. it's hard for people to understand. fevers make me look flushed which people read as vibrant and radiant, plus i love to make people laugh and entertain them so i dont' get the you look tired thing. what i get is no one believing me that i'm sick. which has it's own challenges.

and i feel blessed taht you also "get" the bipolar thang. wow. love love love

Steve, thank you for the medical view of this thang. and, i know, that ulcer discovery was huge!!! that new about CFS maybe being a retrovirus is kind of scary. one day at a time. love love love

and huge grattiude for both of you! and everyone else who comments. i feel so blessed.
I don't have CFS, but I hope you feel better.
I usually read comments on a post to get a feel for it, but the first one--whoa! I don't even wanna know.
Take it easy and feel better, yeah?
God bless.
:-)
spotted, thanks for coming by!! everryone has been very gracious and graceful and not mentioning that first comment. i think i'll just go and delete it now. it is very ugly. it's just smeone who is not well piling on when someone is down. i wish you hadn't mentioned it, sweetheart. the rest of my comments are fabulously loving and caring and always are. take good care.
okay, i deleted those very mean comments. i was trying to be tolerant and just leave them on here, but i'm sick and ugly carp is bad for me and someone felt the need to remind me of them so they are gone. and only my lovely lovely lovely and supportive and caring comments remain. love love lvoe and gratitude for all of you.
Well, love love love and gratitude to you, as well!
In the tough times, I take solace in my old decrepit cat, Nigel Kennedy. Pets are wonderful!
:-)
okay, yes. pets are wonderful. my wonderpups are my support system. yes.