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Walk Away

Walk Away
Location
Atlanta, Georgia,
Birthday
October 05
Bio
The things I write may not change the world, but they might change me. *********************************** Writing is the only thing that, when I do it, I don't feel I should be doing something else. - Gloria Stienem ************************************

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OCTOBER 16, 2009 9:39AM

What does Crazy look like? This little girl.

Rate: 37 Flag

Sitting in the lobby were families from many different backgrounds: black, white, rich, poor and in between.  Families in crisis of one sort or another.  I could see in them what they must have seen if they noticed me - utter exhaustion. To reach this point, to find a seat in this lobby, exhaustion was something you'd've become well acquainted with. 

As was frustration. And a whole of tears.


Sometimes all we have to do is remind her to make her bed, or tell her it's dinner time, or that she needs a shower. Or maybe she can't have something she wants. Sometimes it takes absolutely nothing at all and we’ve lost her to a raging storm of feral anger.  She simply disappears into black clouds of screaming, crying, stomping, and thunder that tosses her onto the floor, the bed, the walls.  There is no predicting this storm, no gauging its duration.  It simply rages. It can go on for minutes, or it can go on for hours; either way, it's too long.

Then - as if a switch has been flipped - the storm passes.  

Clouds part, the sun shines once again, birds sing, and a happy little girl emerges, skipping along as if nothing ever happened.  This little girl is giddy, playful, full of silliness and carefree. This little girl bears no resemblance to the girl in the storm. 

Her name is Raevyn. She’s a fragile, wounded bird lost in the confusing storm of mental illness.

R1
Raevyn (6) - shortly after she came to us

This is what crazy looks like at our house:  A tiny little girl whose entire life has been turned upside down by something she can not control and doesn’t understand – hell, not even the adults in her life can control it or understand it. 


She came to us at nearly seven years old.  She is the child of a young, single, uneducated member of my family (who I didn’t have a relationship with) who abandoned and neglected her and then was sent to prison for selling and using meth. Drugs had been only one of many in a long list of unfortunate life choices she had made.  Raevyn was the oldest of her three children, and she was entering prison pregnant with yet another. 

We knew nothing about Raevyn prior to meeting her, we only knew the circumstances were dire and she needed a home. When she arrived at the airport she had only a small backpack with a few clothes and a couple toys. She wasn’t shy; in fact it took no time at all for her to warm to everyone and start talking and giggling, but we all realized immediately that her vocabulary was very limited for her age, and she used too much ‘baby talk.’  Then we discovered she couldn’t recognize or write letters.  In fact, she didn’t know her ABCs at all – she couldn’t even sing the ABC song. How does a six year not know the ABC song?  She couldn’t count to 10 in sequential order.  She didn’t know her full name much less how to spell it.  

How could this have happened?  We didn’t know what to do. We were unprepared for it but we jumped in and we figured out what to do.  We found new issues to tackle along the way: she hadn’t been to the dentist, had a mouth full of cavities, and even needed a mini-root canal; she needed immunizations caught up; and on and on the list seemed to grow. 

And then we started to see it.

The things we knew that were more than just a little “not right”.  Temper tantrums that were out of control and out of proportion to the circumstances.  A total “shut down” at times – refusal to communicate or move or do anything but breathe and stare – when confronted with a difficult or frustrating situation.  An inability, or outright refusal,  to process simple instructions and directions that were routine and repetitive on a daily or hourly basis (zipping her pants, combing her hair, making her bed) without becoming frustrated and dissolving into screams or tears.  But she'd turn off the tears, the tantrums, or recover from an episode of being completely shut down abruptly and be a giddy, overly happy, uneffected child in an eerily frightening way. 

She'd lie. She'd look you in the eye and lie. About nothing. About everything. When she didn't have to, when the truth was easier, when the truth was simple.  Even if she did something right in front of you and she watched you watch her do it, she'd look at you with a smile and tell you she didn't do it.  We'd give her every opportunity to tell the truth. We'd beg her to tell the truth, She wouldn't do it.  It didn't matter what the punishment was going to be for lying or what the reward would be for  coming clean.  It was like she'd truly convinced herself she was telling the truth. 

She'd steal things. Nothing of consequence - not money or jewlery or anything like that. Just little things - a small toy or a pencil or food, something like that.  Once discovered, of course, she would lie. She'd say she found it. She didn't know where she got it or where it came from, how it came to be in her backpack or pocket.   

Her moods were just "off". Unexplainable.  Without rhyme or reason.  We never knew what to expect from one minute to the next, ever.

All of this was exhausting.  We didn't know what to do. We just didn't know.  We had other children - three boys - and nothing had prepared us for this.  Of course we'd been through plenty of trials with them as teenagers but this didn't compare at all.  We felt inadequate. As a mother, I felt like a failure every day.  As a father, my husband felt the same but had the added bonus of watching his wife slowly lose her mind as well.

At times we questioned our expectations and wondered if we were being too hard on her. How much of this was her age? How much of this was really problematic behavior?  How do we separate the two? But when we looked at everything - academics, socially, emotionally - it just didn't make sense.

Academically she was making great strides.  We were fortunate that she attended a school with an amazing group of educators who poured themselves in Raevyn's progress.  They invested themselves completely in her from her first day at the school.  Whatever she needed, no matter how much time or effort it required, they were there.  They encouraged her and supported her; she was their little rock star.  We couldn't be happier with where she was academically.

But socially she was in a wasteland. She had no friends. None. She was completely unable to connect with any child her age. At 9 years old she should have been giggling and laughing and playing with other little girls, passing notes, going to sleepovers and birthday parties.  She couldn't name any of the children in her class. She's unable to recount the day's events at school and tell who did what only that "a boy" did this and "a girl" did that. 

Her therapist told us she was just “high maintenance”.  We simply needed to be more understanding. She'd been through a lot more than we could imagine. She was going to need a lot of guidence and love.  We had to be patient. Her psychiatrist said she was ADD.  They were wrong. We knew they were wrong. We felt like we were banging our heads against the wall and only getting a headache.  Something was wrong with this child. 

Something.Was.Wrong.


And so there we were. In the lobby of a psychiatric hospital waiting for Visiting Hours to begin on the Childrens' ward. 

This wasn't anyplace I'd ever imagined myself being.  It isn't where I want to be. I wanted to walk out the door, get in my car and drive. I didn't care where. Just drive. And when I couldn't drive anymore get out and walk until my feet bleed, because there couldn't possibly be a place far enough away.  I just didn't want to be there. 

It was heartbreaking to know what had brought us to that point.  To see Raevyn - a beautiful 9-year-old child - so young and yet so broken inside, so downhearted and spiraling within, wanting so badly to break free of the pain and confusion she felt but couldn't name.  How could we not fix this for her? It was mind-numbing and so defeating. We felt as though we'd failed her and allowed this to get out of control somehow, yet even as we said it outloud we knew it wasn't true - that feeling of defeat was just screaming so loudly inside of both of us we were finding it difficult to allow Reason a voice. 

We had taken her to the hospital for an evaluation ourselves. We had been told they had an outstanding program for children:  a day program that would help us put her on the road to the correct diagnosis through interactive evaluation with therapists and doctors.  The initial evaluation turned into more than we anticipated; instead of the day program we had hoped for, she was admitted as an inpatient.  She was too seriously symptomatic for the day program.

Finally.  Someone was listening to us.  Finally.  We weren't being told she was just "high maintenance", or ADD and needed simple medications to concentrate.  Finally.  We felt there was reason to hope.  Finally. 

I cried all the way home.

After a month of inpatient and outpatient observation, evaluation, therapy, and treatment her diagnosis is Bi-polar (with raging) and Reactive Attachment Disorder.  That's just the beginning of her journey.  

Finally.  It's a place to start. 

R3
First day of Third Grade
 

 

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I apologize for the length of the post.
Earlier this week, The Subversive Therapist posted this http://open.salon.com/blog/the_subversive_child_therapist/2009/10/13/what_does_a_crazy_look_like_an_ex-psych_orderly_weighs_in . I didn't see any humor in it.
There is no humor in making those who are mentally ill, whose lives are shattered and minds are tortured by something they didn't ask for and can't control into a joke simply to make yourself feel better about what you do or how you do it. Laugh at yourself all you want. That's your right. But laughing at them is just a sickness all its own.
Am I judging? Damn right.
Wow! What an amazing post. Taking in this poor little girl was something a lot of people wouldn't do. You and your husband should be proud. If there were more people like you, this world would be a much more beautiful place. Great writing, too!
Well done, and well said, Walk Away. Outstanding essay, full of heart, and full of love for Raevyn. She is lucky to have you as an advocate - and thank you for sharing her, and your, stories. I know there's no happy ending, per se . . . but there is a great deal of hope here. Blessings, Lady, on you and yours.
I am so touched at the love and total unselfishness that you have shown for a child that was not yours. This kid has had many bad breaks. But she is PROFOUNDLY LUCKY to have had you. There will be an answer.
A heartbreaking story with what seems to be the beginning of a happy ending. That Raevyn has you and your husband giving her love and all the attention and care she deserves makes her one very lucky little girl. Her first day of third grade photo proves that your hard work and determination will pay off. My heart goes out to you all. This post is EP worthy if you ask me. xoxo
What an amazing post. How lucky you found each other - your words reveal such a way with broken wings.

Thank you for putting a face - this lovely face - on this hellish nightmare. People often forget the heartbreak that goes with mindbreak - my best to you and your family.
xo
Look at her lovely smile!

I want to read this more closely tonight when I am home and have some privacy.

Much love to you.
Kudos to you - for this post, and for the first comment you posted. I am so glad she found you. Bless both your hearts, and your family as well.

As The Desiderata says... With all its sham, drudgery, and broken dreams, it is still a beautiful world... and may I add that it's in part because of people like you ...
Like a lot of other people here, I'm with you. This is a terrible fierce journey, for you and for her. I hope her hospital is a compassionate place because that's what that kid needs.

I do not for the life of me understand why the courts do not intervene on behalf of children and remove them from parents who are incapable of raising them. children, of all of us, children are not only our future, but should be the prime benefactors of our care and protection. and yet this child, among so many others was permitted to be raised in conditions that obviously damaged, corrupted and poisoned her.

children want and need one thing - to survive. and they are hardwired to do anything to live.....they will twist and turn and distort their minds to fit into whatever situation they are placed in, in order to live.

that poor child. and my heart goes out to you and your husband. what wonderful people you are to care for this child, who it is easy to see is not easy to embrace.
I read this with my heart in my throat. This is such a heart-breaking illness and it can be devastating to all around the one with it. I'm glad you have found some help, a diagnosis to start with, and people who know how to intervene. That will ease some of this, but we know it won't necessarily make it easier day-to-day. My son shows much of the same behavior after his brain injury--rage then *switch* and he's back to happy. It can be exhausting. I am with you on this journey.
I am awed by the strength of your commitment. I am also both heartbroken and hopeful for all of you reading this. To simply wish you tood luck seems trite and insufficient for the journey you face.

Namaste.
Bless you for taking in the lovely and troubled little girl and sticking by her! I hope you all find the help she needs to get well.
Wow. I am humbled by people that are willing to do what you and your husband did. I hear about children in this situation and it breaks my heart. Mental illness is so widely misunderstood and misdiagnosed. I am happy that things seem to be getting better for you and her. BTW no one minds reading long posts if they have something worthwhile to say:)
What a beautiful, proud 3rd grader she is. And so lucky to have found her way to you. I'm happy you've found the help she needs.
I thank you all for your kindness and kind words. We aren't special; we truly believe we did what family does - you jump in where you're needed. We just didn't realize how deep the ocean would be :)
This really is about Raevyn, not us at all. We saw so many other children like her while we were at the hospital. It was so sad to wonder how they came to be there and where their life journey would take them. It's an overwhelming thought, especially when it's overwhelming simply to wonder about the future of the one child we have to concentrate on.
Good for you! I've recently been reading about the term "confabulation" :
confabulation [kənfab′yəlā′shən] Etymology: L, con + fabulari, to speak
the fabrication of experiences or situations, often recounted in a detailed and plausible way to fill in and cover up cognitive impairment or memory loss, which may be caused by alcoholism, especially in people with Korsakoff's psychosis; head injuries; dementia; or lead poisoning. Also called fabrication.
Mosby's Medical Dictionary, 8th edition. © 2009, Elsevier.

It's actually something that everyone does to a degree, to make sense of decisions we make when we don't have a clear explanation for them (and not all our decisions do)
It's an interesting concept to juxtapose with the more judgemental one of "lying"
I am speechless. Speechless that the love and caring you showed for this poor lost little girl was all worth every second of pain you endured to get there. I don't know what else to say except good for you!
I was here and I rated this because I think that it is important.
I'm trying to get through life with a soul housing both humor and kindness. Some say that's impossible. I say I'm going to keep chasing it.

It is so very easy to make people laugh by smacking some random dude in the crotch with a whiffle ball bat, isn't it? It's hilarious until you're the one getting your crotch batted.

(thumbified for your compassion)
Owl, and cartouche said it all.

Knowing you, nothing in the story is surprising; you are a pure and transparent soul.

Rated.
Excellent. Clearly told with much affection and sincerity. What a wonderful result. God bless you and your husband for taking care of this beautiful little girl.
You should be infinitely proud of yourselves for saving this beautiful little girl.

I wish you the best on this difficult road.
I would focus on the incredible job you've done so far with this little girl and not worry about what a random stranger on the Internet thinks. It doesn't matter in the big picture.
Some kids lie because they don't want the truth to be true. They know they shouldn't have done whatever they did, they wish they hadn't, so they say they didn't.

I remember catching my son on the kitchen counter, with his hand on the open door to the cabinet where the cereal was kept and a box of cereal on the floor, corn flakes everywhere.

He looked at me, he looked at the mess. He said, "Sister should have been here." I asked why. "Because then it would have been her fault."
WA, thanks so much for taking the time to post this. How lucky Raevyn is to have been found by you. I liked the distinction Noah Tall made about confabulation vs lying. Lying has more of a moral overtone than confabulation.
When I finally stopped using the word lying what I began to understand with my own daughter is that she (in her bipolar disorder) experiences everything to the 10th power...music, food, reading books etc. So given that I began to appreciate that, then I could seen how confabulation was a better descriptor of what was going on...she was filling the spaces. It's taken some time to get to a place where she is invested enough in maintaining a level of trust in our relationship to try and put the breaks on the confabulation. She is 45 so I don't know if the following would be useful to you but when I am in doubt about that is going on I ask: Am I speaking with you or with your disease? She's very good about putting the breaks on and going, Oh okay let me rephrase that.
I wish you and yours all the best with the precious child.
What a beautiful child. The difference in her countenance in the two pictures is amazing and very telling. That child needed a hero - she got two - you and your husband. You said this story isn't about you and your husband, it's about Raevyn. But there's no separating the three of you. Her story is your story.
No doubt she has a rough road ahead of her, as do you and your husband. There is no "undoing" what she experienced before she came to you. Raevyn's cycle of pain stopped when she came to you, it will always be a part of her, but now you've given her what every child should have - security and love.
Clearly you aren't the kind of people who give up. Raevyn has someone who will fight for her now. You gave her a chance at life - something she didn't have before. You're wrong about one thing, though - you ARE special. Not everyone is willing to do what you and your husband did. Even family. Thank God there are people like you in the world.
You (all of you) are in my prayers.
To see a child have to struggle with anything is heartbreaking. I can't imagine what y'all have been through. She's lucky to have you and hopefully she's on the path to a better life since being diagnosed. It must have been so hard to leave her there, but some kids don't have the kind of parents you are and mental illness stays with them as adults. I'm so glad she has been diagnosed properly. Good for you for not settling for the standard ADD - you've saved her life yet again.
Oh, I just want to hug you and bring you presents. Raevyn is SO lucky to have you!!!!!!
I just don't know what to say...you're all so generous and supportive; I can't thank you enough for your kindness.
But really, this isn't about anything my husband and I have done.
This is Raevyn's story.
You, your husband and Raevyn....you are all an inspiration. Loved the post - thanks for sharing.
Thank you for sacrificing for this child! What a heart felt story. The world is a better place because of people like you. Who knows what this child can do? And you are a part of her road to health and success. Bless you all!
Very honest and heart wrenching...my thoughts are with you and your beautiful family. (Rated)
I came here from that awful post @ subversive "therapist". I am desperately trying to get a BP diagnosis for my 16 year old. Like you I knew right away, within the first days after her birth that Something. Is. Very. Wrong.
Thanks for this post.
Big love my friend. I admire your outpouring of love and your determined approach in spite of all the previous professional adivce ... I think you've defined "mother" here ~ she's beautiful and thanks to you she hs the chance at a beautiful life ... and isn't that the greatest gift of all.
This poor little girl. Bless you for everything you're doing for Raevyn, and I hope things get better.
What an adorable child, and what a touching story! I have been in similar places, trying to figure out what was wrong so we could begin to figure out what to do about it. The rages, the lying, the disengagement in situations the child feels she can't control — it's all familiar. It does get better, but the damage of those early years never goes away. Blessings to you and your family as you continue on the journey.
As tough as it is to hang in there when things get hard, you're doing remarkable work. You should hold your head high. I have an adopted sister, and an adopted niece. Sometimes the process is nearly effortless. Sometimes it's brutally difficult and emotionally draining.

You're giving a little girl a chance at a much better life than she would have had otherwise. If there were more people like you...
AN UPDATE -
Raevyn has good days and bad days. Better days and well....you know. The important thing is that she is growing and learning.
We just received a psychological profile that was completed by a doctor who did great work with her while she was an inpatient recently. It was the best (we truly believe) snapshot of her personality and emotional age anyone has given us, and a very real picture of what we can expect in her growth for the future - no sugar-coated, head-patting, patronizing at all which is exactly what we asked for and what we needed. It wasn't a promising picture but it gave us goals and told us what we needed to concentrate on for her best result. We needed that. She needed that.
Now on to the future. Whatever that is.