Dr. Jack Kevorkian was released a couple of years back after serving eight years in prison for helping a terminally ill man end his life. At the same time, the RCMP finally stopped considering charges against a Canadian man who took his dying wife to a suicide clinic in Switzerland. Definitions, degrees, legalities and semantics are all part of ongoing struggles many countries engage in regarding this issue.
Could you help someone you love to die?
I was 12 when I learned what euthanasia was. Until then, I'd only heard the word, never read it, and thought "youth in Asia" was about, well, just that. It was many more years before I thought about it with more than a passing interest. Nobody I knew was dying; nobody I knew was sick.
And then, like most things having to do with middle age, considerations and circumstances thrust me into the gaping maw of uncertainty long before I was ready. All of a sudden you must deal with towering pain that isn't your own, and you realize the path behind you has crumbled away as you've been laying the one ahead.
Both of my parents suffered from terminal illnesses; the illnesses were as different as my parents' approach to them, and experiencing one did little to help with the other. My father sucked the last few years of his life through an oxygen hose, angry and bitter as his strength ebbed away in coughs and gasps. He would no sooner have given up, or given in, than he would have understood anyone who did.
My mother was quiet and patient, her calm a mirror of her husband's rage. And it was she who made me promise to help her go when she decided the time was right. When I was a child and asking impossible questions of her, she would pat my hand, smile and tell me everything was going to be all right. When she asked me to help her die, all I could do was pat her hand and tell her everything would be fine. There was no smile behind my lie – the impact of her words was shattering.
There were many late-night conversations with my wonderful friend Leah. She's a doctor, and this subject stalks the edges of the medical profession like a fox around a herd of sheep. It was this friendship that made my mother so certain I could assist her; I could just ask Leah for help.
Only I didn't want to get Leah in trouble. I didn't want to be confronted with breaking the law, but I didn't want to abandon my mother. She had made all these other rational decisions in her final months, yet legally, she couldn't make this one. My father had the option to fight; my mother should have had the option not to. And I should have had the option to fully support them both, regardless of their decision.
For everyone who dies, more live, and sometimes it's a fine line between alleviating a dying person's burden and creating another one.
In the end, my mother was still gently patting my hand and telling me everything would be all right. She died without me there, so I'll never know if she was disappointed by my inability to do the most important thing she'd ever asked of me. Ultimately, cancer made the call.
Would I have helped someone I loved to die? Nine years on, I still wrestle with this issue. And I'm sorry for so many of us that will be confronted with this very thing, and that the struggle remains unchanged.
But yes. I would have helped her.


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My mother's accident, bleeding brain, pain. Up the morphene? Remove the tubes? Answer--yes. Please. yes.
A struggle before. Answer, yes. A struggle now, after these years. Was it the right thing? Answer, a wavering yes.
My son when he was only 1 year and I had that morphine the hospital sent home with me for his pain. But he was terminal, nothing else they could do, and in pain and I will never know for sure but sometimes it keeps me up at night..still
All in all not a perfect thing, but better than we had it before. It's a difficult and slippery slope for both the sick and those who wish to allow them their final wishes.
Great post. R
This is so well-written and thoughtful. Thank you. Rated. D
I believe that terminal patients, knowing they are going to die, should have the right to refuse treatment other than pain management. I believe that people should not have to suffer at the end of their lives.
That's about as far as I can go at this time.
my dog has cushings I found out yesterday. my beautiful friend will be dying of any of the complications associated with this disease within a year or two, if we're lucky she lives that long. and hopefully, I will be alive to help her when her body no longer is a place she wishes to remain in. a dog will tell you in a very specific and personal way when it is time to go. each one has it's own way of speaking to you to tell you "please help me go". as a pack, they will send out one of their own into the harsh to fasciliate their end. because it is time.
why are animals allowed this luxury? why do we not afford it to ourselves. why do we force ourselves to believe that every waking minute that can be squeezed out of a lifetime, should be. I don't know. I only know that I wish we were kinder to ourselves.
You’ve put a conflict into words that so many of us have wrestled with. Both of my parents died from devastatingly painful forms of cancer. I remember my dad, on the day he died, asking me to pray that he could pass on before nightfall.
Those who discuss the morality of whether a person - suffering inestimable pain - has the right to make a choice regarding their own life seems absurd when you have witnessed a loved one suffering the torments of a ravaging relentless disease.
The issue becomes very tangled, however, if we are asked to assist that loved one in hastening their passing. Like yourself, I believe love should win the day.
Thank you for such a deeply moving and lovingly personal treatment of a subject that demands much more attention than it received.
Rated and appreciated very much.
Would I have helped them if I could have? Well, it's probably much easier to agree to withholding care than to take any active steps (as calling Dr. Jack).
For now, I'm looking forward to not facing these questions again for a while. And I hope that when it's my time, I don't force the choice on others but have the will to give up my will.
Lunchlady in particular brought a tear to my eye and a sledge hammer to my heart. I cannot possibly understand what you must have felt and continue to feel.
Like so many important issues, considering them abstractly is one thing; up close and immediate is another.
Medical 'miracles' will mean more of us facing these decisions, more often. I have never in my life had my heart squeeze like it did when my mother asked this of me. Your parent; your spouse; your child; yourself. Having to break a law to not break a sacred trust is brutal.
Thanks for weighing in. Your experiences and voices are needed in this talk.
R
In cases like this, my take is that euthanasia has to do with dignity and mercy. My answer is yes. Rated.
Marcela
I know that my mother doesn't want to live hooked up to machines and suffering needlessly. At some point, it's better to let people go in peace.
The problem with this question is that there can never be a blanket answer that fits all situations. It is as individual and unique as each one of us. Not all cancers are the same, not all people are the same, not all families are the same. For me, it is the same as the abortion question. I'd like to think I know what I would do, but until I am actually faced with it, I will not be sure. I only have the faith that I will know and have the courage to do the right thing at the time...and that I will be able to live with my decision.
Good discussion Lorraine.
Yes.
This explains my position.
"She had made all these other rational decisions in her final months, yet legally, she couldn't make this one." (Poignant!)
Legally. To think man can legislate death is the ultimate act of arrogance, another line of bumbles of absurdity to govern people's free will - to dictate their morality, and in this case, mortality.
The sad part is people don't forget death is a part of the journey - they usually avoid it. The government would like you to, too.
Maybe it isn't as scary as some have made it out to be? Maybe we're just afraid of the feelings which come as a result?
John's point illustrates the absurdity of the governmental intervention...
Thank you for a beautiful post.
For a person whose death from an illness not of their choice is clear and inescapable, but with maybe weeks or months of awful pain between them and their final exit, yes. I believe I would at least try. I say "I believe" because I know nothing about how to help another person die, and I've never been confronted with that situation. I just can't see the point of forcing a person I love to live in terrible pain.
I went to MD Anderson Cancer Center to visit some friends of my mother's. The wife recently had a bone marrow transplant to treat her leukemia. I'd never met her before, but I've met her husband. I just wanted to show some moral support. PLEASE do kudos -- it wasn't a big deal.
My attitude about death and dying is that this life is meant to be cherished and celebrated -- most of the time, our misery is by choice. I'm not saying all the time -- just usually.
Now when I entered that room last night and turned my gaze to my mother's friend laying in that bed, I instinctively plastered a big smile on my face. If I hadn't, I would have gone insane and fled the room. I won't go into details, but suffice it to say -- it ain't like all those death scenes in the movies (Terms of Endearment or Beaches). It's ugly. It's monstrous. It's disgusting.
I'm only today getting the stench of death out of my nostrils. I had to consciously smile the entire time I was there, smile while walking down the hall, smile with the woman on the elevator who's mother is in for the same thing, smile walking across the skybridge to the parking garage. I was still smiling when a beautiful Ethiopian woman took my parking card. Her name was Betalehm. She said it was biblical. (Like Oprah? which should have been Orpha?)
I stopped to eat dinner at a restaurant. I stared at a family with several kids. I was afraid to take my eyes off the young, healthy children bouncing around. I was terrified of getting that picture in my head and not being able to finish eating. I still had the smell of death in my nostrils.
When I got home I began to cry. Crying was such a good thing -- it filled my nostrils up with snot and I blew my nose over and over -- getting rid of that smell.
And I'd been thinking all evening about this couple I'd visited. He says they love each other SOOOO much. I wonder. I don't know who has the harder time of it. She's laying there helpless and disfigured. He's standing there watching her decay. But they love each other.
I swear to all the gods and goddesses -- if I ever am faced with cancer I'm dragging my ass down to Tijuana -- getting the alternative treatment and if that doesn't work, I'm going to go to every doctor who'll prescribe pain killers until i have enough to do it myself. I just can't imagine allowing my loved ones to witness the horror.
Am I just being chicken shit? I don't think so. I think it takes a lot of courage to make that decision. It takes even more love to help someone do this.
So weird that you brought up this topic.
i have blood-sister pacts with two people; the three of us have sworn to be each other's accomplices, if and when it's necessary. we hope it won't be but will be prepared.
Please,
Love your family enough to have this discussion with them now before it's necessary for them to make the decision for you later.
Depends, how much are they paying me?
Rated.
My husband recently did battle in the hospital and I made the choice to bring him home if he had to die, he would die where he wanted, not in a hospital. Luckily he didn't. Profound topic, touching story.
I was just never prepared for the suddenness of having to understand, and deal with, this. Modern medicine is wonderful; it is also creating some absurd realities.
Thanks, everyone, for your kind comments. We have much to teach each other, even if it's only the value of listening.
http://open.salon.com/blog/lunchlady_2/2009/10/23/childhood_cancer
I can't add anything but tears.
Good post!
The stories of so many, like this story, are the reason I participate in Relay For Life every year.
Bless all of you.
http://open.salon.com/blog/kldykmanaolcom/2009/10/05/a_poem_for_janice_cancer_survivor
and i hope, when the time comes, someone will do the same for me, if necessary.
we did, however, have an easy call - my mother's organs were turning off, and we knew there was no turning back.
i am sure at this point your mom forgives and understands that you couldn't do that at that time.
Thanks for weighing in, everyone. I've made peace with how things uncoiled. It also crystalized future situations for me, and my family. Though my sisters do seem just a little eager to kick the cord, come to think of it.
As a 50 year old gay man, I'm very grateful to the courageous, decent nurses and physicians I've known. In a culture where religious superstition routinely trumps both common sense and compassion, I regard knowing how to insert a needle, program an IV pump, and acquire and administer a morphine overdose the same as I do having received CPR certification.
Ack, that's so god-awful pompous...
What I mean is that while grief and illness have devoured half my life, I've never even been tempted to regret what I did for love. The only thing that keeps me awake nights is the slim odds of there being anyone left to return the favor.
Unsolicited practical advice for all and sundry... A hospital is a machine designed to keep bodies alive at any cost, and consequently often the least appropriate place for dying people.
I'm dealing with this now. When I tried to stop feeding my mom, who always made me promise I would never let her reach the horrific state she's currently in, the administrator of the nursing facility told me that I could be arrested for "elder abuse" if an aide decided this was cruel & reported me. It happened to someone in a similar situation a couple of years ago.
I've found that I have no say in my mother's fate, they continue to feed her pureed food even when I'm there which is most of the time. If SHE tells them no, fine. If I tell them her wishes, tough shit. And she can't tell them "no" because she has dementia & eats whatever's put into her mouth, then suffers horribly from the consequences later.
But it's apparently the law. Fortunately, I have hospice coming in next week, hopefully they can help. Meanwhile, I've totally failed to keep my promise to my mother. It sucks.
So while I always thought, YES, the reality isn't quite as simple. It's crazy...
A heart wrenching but fine essay, thanks for shining a light into this dark corner in all our hearts.
I lived in Detroit from 1985 - 1994, during the height of the Kevorkian media glut. I'm not sure about that guy. One reason he became so notorious is that a number of people he helped were not terminally ill. One, if I remember correctly, suffered from mental illness primarily. Kevorkian pushed the boundaries of what could be tolerated as justifiable; I found him disturbingly ghoulish.
I'm a little confused by your ending. You say you were unable to do the most important thing she'd ever asked of you. You also say that yes, you would have helped her. Those two thoughts seem incompatible to me.
I, too, had one parent die of cancer and one of COPD, which sounds like what your dad had. My sympathies to you. Neither way of dying is easy.
My husband died from cancer in 1991 after 4 years of chemo and radiation treatments. He told us he was ready, we made certain he was sure, and we helped him go with some dignity and peace.
I have a liver disease. I also have living will and an advanced directive with a non-family member who "gets" it. If and when the time comes that I'm not able to live a quality life (and I know that all my animals will be taken care of), I think it's my right to put the period at the end of the sentence of a well-lived life. I'm not afraid of death; I just don't believe in unnecessary suffering.
Good, thought-provoking post. Sorry I got here so late. And I didn't mean to scare you with the title of my silly post about "The Cat".
She died on a Sunday morning two weeks later, her last stay at the hospital. I'd seen her on Saturday night, she was calm, and hadn't asked yet. She just wanted to know she could make the choice if she wanted to. I'd told her I'd do it. And then shook in my shoes at the magnitude of what I'd promised.
I got the easy way out, if you can call it that. But I realized then I needed the spine to know how I would handle this if it ever reared its ugly head again.
I have the spine.
Yes, yes, yes. I believe that journey should be orchestrated if that's the best decision for everyone involved. Or, really, the person who is dying.
Everyone I work with is terminal. (We're all terminal but, shhhh, don't tell anyone.) I have the strange experience of working with a 78 year old man, healthy as a horse, completely lost in the blur of Alzheimer's. Although, thankfully, he smiles a lot, and seems pretty content. Then I go upstairs, to a different unit, and provide companionship to a 94 year old woman who is lifted out of bed once a day to move her bowels. Sharp as a tack. I think she's about ready to move along. That's the impression I get. That's she's done, and now it's just a waiting game.
(As a huge Red Sox fan, their inept attempts at baseball this season certainly didn't help her joie de vivre. That's a morbid joke, one she and I have made.)
I guess, seeing it every day, working with it, makes me a little bit hardened.
My mom has pre-leukemia, and I know what her wishes are. She'll fight to the bitter end, and I applaud that.
My friends know what my wishes are, as does my brother. I have a living will explicitly stating my unwillingness to suffer or be a burden.
It seems like a no brainer to me, but the comments and dialogue here give me so much perspective on how complicated it is.
Thank you so much for creating this discussion.
I'm going, now, to visit with Lunchlady...virtually...
Interestingly enough, my current doctor, when he took over my previous doctor's practice, gave out an information paper about what he, as a Christian, would and wouldn't do, and one of the items was don't ask him for euthanasia. I thought that was odd - does that mean one might ask other doctors and get a favorable response???
Let's hope we all choose wisely. And let's hope others can honor the decisions we make for ourselves, and with the help of our loved ones.
Rated!