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Wren Dancer

Wren Dancer
Location
Atlasburg, Pennsylvania, usa
Birthday
October 20
Title
Genius
Company
Answers Tarot
Bio
I am a tarot card reader, a writer, a healer, and a fitness teacher.

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JANUARY 26, 2012 9:45PM

When I Was Dying

Rate: 38 Flag

bros and sisters (155x225)One morning I woke up and I couldn't move any of my muscles.  When I tried, I experienced shattering pain.

My doctor said it was all in my head.

 I was in high school - a senior.  Every morning, I woke up, and slid out of bed to the floor, then slid down the stairs - because I couldn't stand up.  I also could not brush my teeth or my hair.  In the morning my muscles were locked tight, and any movement made me weak with pain.  As time went on throughout the day, my muscles "thawed" somewhat, and, by evening, I could walk and brush my teeth.  In the morning, my muscles hit the reset button and it started all over again.  I must have missed the school bus a hundred times.

Finally, my mom got mad, and told the doctor she KNEW the pain wasn't in my head, and demanded that he do something about it.  My mom is very shy, especially around doctors, so, this was very unusual.  She was really worried.  The doctor - present at my birth and those of my brothers and sister - wasn't up to it, and referred us to his new, young assistant doctor.

He listened to my heart - his eyes widening with alarm and disbelief.  He shot geezer doc a sort of a ticked off look.  

"Have you ever had rheumatic fever?" he asked me.  "No, never!" my mom replied.  (I don't think she knew what rheumatic fever was.  I certainly didn't.)

 "You have a very serious heart murmur, " he said to me.  

"What does that have to do with all this pain I've been having?" I asked him.  I wasn't following him.

"Well, I believe that you did have rheumatic fever about eleven years ago, and it has caused this pain - that's rheumatoid arthritis."  I couldn't believe it - I already had an old lady disease at the age of 17.  Oh, holy crap!

"It has also damaged your heart," he explained.  My mother's mouth fell open and she quickly covered it with her hand.  "When you get strep throat and it isn't treated," the young doctor continued, "it seems to go away, but it doesn't.  It goes inside your body and destroys tissue - about eleven years later." 

My mom was freaking - I could tell.  Even though she didn't make a sound.  

"You hardly ever see it any more," he continued, "because strep is easily treated with pennecillian."

He instructed my mom to give me aspirin for the pain, and to wrap my musles in heating pads.  He also told her I had to be taken to the hospital for testing right away, and then to a cardiologist.

The test at the hospital (my first fluroscope!) confirmed that I had inflammatory arthritis in all the large muscles.  

The cardiologist didn't earn any points with me.  He sent a letter to the old geezer doc beginning with, "(She) is an overweight, muscular female." 

If you were around in those days, you will remember that the look at that time was emaciated with no visible muscles and no hair anywhere on the body except the head.  And the hair on that head had to be straight, long, and blonde.  I had dark, curly, brown hair, thick eyebrows, and glasses.   I thought I was truly hideous.  

I hated the cardiologist. 

He told me to come and see him in twelve months.  He wrote a letter to my college to be, saying that I could take gymn.  "How bad could it be," I thought, "if I can't even get out of gymn!"  He also put me on prophylactic penecillian, "every day, for the rest of your life."  

"Oh, and, one of these days," he tossed over his shoulder, "you're going to have to have that valve replaced."

 That night was opening night for our senior play.  I was Bloody Mary in South Pacific.  We were all pretty nervous, but our production was really good.  After each of my solos, "Happy Talk" and "Bali Hai," I got an ovation.  It was intense!

Afterwards, many of the cast and crew gathered around me.  They made a circle around me, singing, "Bloody Mary is the girl we love, and ain't that too damn bad!"  It was one of the high points of my young life.

 Afterwards, one of the tiny, pre-growth spurt boys playing a soldier came up to me, and said, "Um, they asked me to ask you."  

"Ask me what?" I said, clueless.  

"To ask you," he said, "if you are dying."

 

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WOW! My youngest son, a physician, was recently diagnosed with rheumatoid arthritis.
I was gonna hop in the bed.
Doc said no fall from bed.
Ya dead if Ya bump head.

Wren. We 'bumped' on OSer feed.
Coming close to dead is big Trauma.
It's often 'stuffed' off to ponder later.
`
I love these post than give human insight.
You share your most intimate life events.
Please don't share what happens in bed.
`
Blaming
a gorgeous buxom blogger
for the reason he crashed
BMW
Harrowing! Glad your mom finally did the momma bear thing. Yikes.
ps us dark curly haired muscular chicks rock!
My God!
Bless you for your strength! r.
well Wren ya caught the attention of our Father,
art james, our paternal guide through the
absurdity of life. And what absurdity!


"I love these post than give human insight.
You share your most intimate life events.
Please don't share what happens in bed."

hmmmmmmmmmmm.

gorgeous buxom blogger! you!

the difficulty diagnosing your physical problem
is alot like the mixups that happened to me
regarding my mental ...quirks....

i am bipolar, always have been, but no one told me
til i was 33.

after i had ruined my life.

the emaciated look doesn't do it for me.
it used to, but not anymore.
in the real world, the world i believe in, this happens:
they say
""Bloody Mary is the girl we love, and ain't that too damn bad!"

this is your best piece yet. among quite a growing collection!
well Wren ya caught the attention of our Father,
art james, our paternal guide through the
absurdity of life. And what absurdity!


"I love these post than give human insight.
You share your most intimate life events.
Please don't share what happens in bed."

hmmmmmmmmmmm.

gorgeous buxom blogger! you!

the difficulty diagnosing your physical problem
is alot like the mixups that happened to me
regarding my mental ...quirks....

i am bipolar, always have been, but no one told me
til i was 33.

after i had ruined my life.

the emaciated look doesn't do it for me.
it used to, but not anymore.
in the real world, the world i believe in, this happens:
they say
""Bloody Mary is the girl we love, and ain't that too damn bad!"

this is your best piece yet. among quite a growing collection!
Thank you. Thank you all so very much.

Art, I will try to keep my bed outta you head. Sorry you bumped.

James, you are a phoenix, rising from the ashes of your ruin. A phoenix can't become without the flames.

I love you all.
Well, glad you got the right doctor and a diagnosis! Strep is very dangerous. R
Glad you lived to "play", Mary...and to write again! rated
Wow What a story. Darn Doctors. So insensitive and pompous. Thanks for telling.
Wren, thanks for your note. Appreciate it. I had an aunt that had had this fever; take heart, she lived a long life --but I think that you will be stronger having gone through this medical challenge. I feel that you will do well.
Please keep in touch with me. Love being part of this. I really think that there are so many people with much to say and teach us.
I like your tutorial for us today. Needs being said. You raise such great points that should be out there: sometimes, I feel that we are not as sophisticated and aware as we'd like to think ourselves, guys particularly. Live and learn and be your best.
Thanks for reaching me.
wow what a story wren.. I cannot believe but yes I can.. Doctors..
So glad they found out.
HUGGGGGGGG
Yeah, wow.

Did you have the valve replaced? (Sounds so casual, like with a car...)
Do you still have muscle pain? I remember when I was a kid that there were a number of my contemporaries who had rheumatic fever and had to stay in bed for years... And people died of blood poisoning. Good God, I must predate penicillin.

Disturbing when doctors proclaim "It's all in your head." Many in-your-head situations have, with progress, been found to be 'real'.

Well, if you're a fitness teacher, you must have overcome this whole thing to a good degree.
The most important part is the correct diagnosis, the rest we can live with, especially with today's advanced medicine. The men/boys in this story were either rude or couldn't put two words together to save their life. I hope, since then, you've met some men that put the gender in a brighter light. Fine piece, Wren. R
With friends like those...what, were they placing bets on how long you had left?

So glad you can write about this awful experience with humor and I know Myriad asked but I will too - did you have the valve replaced?
Well, I am glad you are not dying! How sad and scary to grow up with that in your head. I think a lot of the old guard of the profession are dying off, and good riddance. All that knowledge, so very little wisdom.
Speechless. My mouth is hanging open, too, and I'm not trying to cover it as your mom did. I trust you knew then you weren't dying?
That "all in your head" diagnosis given to teen women is reprehensible. The minute any medical person utters those words to me, I run for the nearest exit and a second opinion.
What an ordeal, Wren! I, like others, want to know the rest of your story. How is your health today? Judging from your bio of "fitness teacher," I hope that you are now healthy and well. I hope you'll write more about it.
Those lifelong conditions diagnosed in childhood can really throw you for a loop, can't they? When I was ten I found out that I'd been born with a hole in my heart. I had to drop out of all sports except baseball (less exertion) and was told I'd need patch-it-up surgery in my teens. Fortunately it didn't deteriorate like the condition typically does so I've avoided the operation and led a fairly normal life. And when I was 20 I was told I could resume sports. Too late by then.

You're lucky Wren that your mother overcame her deference to doctors and got you shunted of to the young assistant.
I've had a few of those pompous docs, too. They always figure they are so much smarter than everyone else. ... Love those cat eyes!
I look at your picture and think Huh? You were considered fat? Seriously? What were they thinking. I was one of those skinny little blondes and you know what? I was sick all the time! They gave me so much penicillin it quit working! I am so glad your mother realized something was seriously wrong. I look at your photo now with that glorious smile and I am so happy you overcame the stupidity of the doctors from back then...
What a story. I applaud your strength in the face of it all.
Spent about a year in bed with rhuematic fever too. No murmur though.
To keep me calm and rested I was told to lay in bed and try not to think of a large white elephant. That was the doctor's idea of meditating I guess. It was the 1950's.
It was more like some sort of Zen torture.
Bloody Mary would be a straight up awesome blogging name.. may I steal it?

That said, shocking story- mainly the "all in your head" analysis. Yeah, I slide down the steps for fun and attention... wow.

Not much more to add, but glad I found you here at OS. You have very muscular blog fingers (and mind).
My goodness, what a shock that must have been! I didn't know you were a performer. Great musical. Rated for courage.
Talking talking talking happy talk, talk about things you like to do. I cannot imagine your acting this out after going through this. I take it this is a continuous piece. Thankyou for sending a PM, I would enver have found it.

D
I know this has been said but wow and damn! Scary yet true.
My niece has congenital heart disease and more than once boys have asked her if she was going to die. She used to ask them how they were planning to get out alive.
Interesting post, enjoyed. Amazing how insensitive people are to young people. (doctor, mom)
The question was actually asked with concern. It's hard to convey that.
I did not take any offense, it just shocked me. Because, I thought, "Am I?"
On with the show!!!! Glad you did so excellently and that your not dying.

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what was your response, anyway,

when they asked u if you were dying?

good gosh! those glasses!
Oh, lovely Survivor Girl - just loooook what you overcame! My heartfelt thanks for this share; I know you better, and the strength we are all seeing comes clearer. Write on, lil' sister! R.
your bio shows you did mor than simply survive this. Looking forward to Part 2. This was so well written. You made me see and feel it...
"If you were around in those days, you will remember that the look at that time was emaciated with no visible muscles and no hair anywhere on the body except the head. And the hair on that head had to be straight, long, and blonde."

Has it changed?

Seriously, Wren, I couldn't believe it. Hope all's well and that's behind now.
Rated♥
A fascinating story. I"m so glad you seem to have triumphed over this affliction. The way you ended this piece was absolutely briliant - it said so much, so simply.

Bravo to you for beating the odds.
"All in your head" was and often still is doctor co-out code for "I don't know WTF you have but can't admit I'm not god." So glad you got the right kind of help. Great description of your ordeal and how your peers viewed it.