One morning I woke up and I couldn't move any of my muscles. When I tried, I experienced shattering pain.
My doctor said it was all in my head.
I was in high school - a senior. Every morning, I woke up, and slid out of bed to the floor, then slid down the stairs - because I couldn't stand up. I also could not brush my teeth or my hair. In the morning my muscles were locked tight, and any movement made me weak with pain. As time went on throughout the day, my muscles "thawed" somewhat, and, by evening, I could walk and brush my teeth. In the morning, my muscles hit the reset button and it started all over again. I must have missed the school bus a hundred times.
Finally, my mom got mad, and told the doctor she KNEW the pain wasn't in my head, and demanded that he do something about it. My mom is very shy, especially around doctors, so, this was very unusual. She was really worried. The doctor - present at my birth and those of my brothers and sister - wasn't up to it, and referred us to his new, young assistant doctor.
He listened to my heart - his eyes widening with alarm and disbelief. He shot geezer doc a sort of a ticked off look.
"Have you ever had rheumatic fever?" he asked me. "No, never!" my mom replied. (I don't think she knew what rheumatic fever was. I certainly didn't.)
"You have a very serious heart murmur, " he said to me.
"What does that have to do with all this pain I've been having?" I asked him. I wasn't following him.
"Well, I believe that you did have rheumatic fever about eleven years ago, and it has caused this pain - that's rheumatoid arthritis." I couldn't believe it - I already had an old lady disease at the age of 17. Oh, holy crap!
"It has also damaged your heart," he explained. My mother's mouth fell open and she quickly covered it with her hand. "When you get strep throat and it isn't treated," the young doctor continued, "it seems to go away, but it doesn't. It goes inside your body and destroys tissue - about eleven years later."
My mom was freaking - I could tell. Even though she didn't make a sound.
"You hardly ever see it any more," he continued, "because strep is easily treated with pennecillian."
He instructed my mom to give me aspirin for the pain, and to wrap my musles in heating pads. He also told her I had to be taken to the hospital for testing right away, and then to a cardiologist.
The test at the hospital (my first fluroscope!) confirmed that I had inflammatory arthritis in all the large muscles.
The cardiologist didn't earn any points with me. He sent a letter to the old geezer doc beginning with, "(She) is an overweight, muscular female."
If you were around in those days, you will remember that the look at that time was emaciated with no visible muscles and no hair anywhere on the body except the head. And the hair on that head had to be straight, long, and blonde. I had dark, curly, brown hair, thick eyebrows, and glasses. I thought I was truly hideous.
I hated the cardiologist.
He told me to come and see him in twelve months. He wrote a letter to my college to be, saying that I could take gymn. "How bad could it be," I thought, "if I can't even get out of gymn!" He also put me on prophylactic penecillian, "every day, for the rest of your life."
"Oh, and, one of these days," he tossed over his shoulder, "you're going to have to have that valve replaced."
That night was opening night for our senior play. I was Bloody Mary in South Pacific. We were all pretty nervous, but our production was really good. After each of my solos, "Happy Talk" and "Bali Hai," I got an ovation. It was intense!
Afterwards, many of the cast and crew gathered around me. They made a circle around me, singing, "Bloody Mary is the girl we love, and ain't that too damn bad!" It was one of the high points of my young life.
Afterwards, one of the tiny, pre-growth spurt boys playing a soldier came up to me, and said, "Um, they asked me to ask you."
"Ask me what?" I said, clueless.
"To ask you," he said, "if you are dying."


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Comments
Doc said no fall from bed.
Ya dead if Ya bump head.
Wren. We 'bumped' on OSer feed.
Coming close to dead is big Trauma.
It's often 'stuffed' off to ponder later.
`
I love these post than give human insight.
You share your most intimate life events.
Please don't share what happens in bed.
`
Blaming
a gorgeous buxom blogger
for the reason he crashed
BMW
ps us dark curly haired muscular chicks rock!
Bless you for your strength! r.
art james, our paternal guide through the
absurdity of life. And what absurdity!
"I love these post than give human insight.
You share your most intimate life events.
Please don't share what happens in bed."
hmmmmmmmmmmm.
gorgeous buxom blogger! you!
the difficulty diagnosing your physical problem
is alot like the mixups that happened to me
regarding my mental ...quirks....
i am bipolar, always have been, but no one told me
til i was 33.
after i had ruined my life.
the emaciated look doesn't do it for me.
it used to, but not anymore.
in the real world, the world i believe in, this happens:
they say
""Bloody Mary is the girl we love, and ain't that too damn bad!"
this is your best piece yet. among quite a growing collection!
art james, our paternal guide through the
absurdity of life. And what absurdity!
"I love these post than give human insight.
You share your most intimate life events.
Please don't share what happens in bed."
hmmmmmmmmmmm.
gorgeous buxom blogger! you!
the difficulty diagnosing your physical problem
is alot like the mixups that happened to me
regarding my mental ...quirks....
i am bipolar, always have been, but no one told me
til i was 33.
after i had ruined my life.
the emaciated look doesn't do it for me.
it used to, but not anymore.
in the real world, the world i believe in, this happens:
they say
""Bloody Mary is the girl we love, and ain't that too damn bad!"
this is your best piece yet. among quite a growing collection!
Art, I will try to keep my bed outta you head. Sorry you bumped.
James, you are a phoenix, rising from the ashes of your ruin. A phoenix can't become without the flames.
I love you all.
Please keep in touch with me. Love being part of this. I really think that there are so many people with much to say and teach us.
I like your tutorial for us today. Needs being said. You raise such great points that should be out there: sometimes, I feel that we are not as sophisticated and aware as we'd like to think ourselves, guys particularly. Live and learn and be your best.
Thanks for reaching me.
So glad they found out.
HUGGGGGGGG
Did you have the valve replaced? (Sounds so casual, like with a car...)
Do you still have muscle pain? I remember when I was a kid that there were a number of my contemporaries who had rheumatic fever and had to stay in bed for years... And people died of blood poisoning. Good God, I must predate penicillin.
Disturbing when doctors proclaim "It's all in your head." Many in-your-head situations have, with progress, been found to be 'real'.
Well, if you're a fitness teacher, you must have overcome this whole thing to a good degree.
So glad you can write about this awful experience with humor and I know Myriad asked but I will too - did you have the valve replaced?
You're lucky Wren that your mother overcame her deference to doctors and got you shunted of to the young assistant.
To keep me calm and rested I was told to lay in bed and try not to think of a large white elephant. That was the doctor's idea of meditating I guess. It was the 1950's.
It was more like some sort of Zen torture.
That said, shocking story- mainly the "all in your head" analysis. Yeah, I slide down the steps for fun and attention... wow.
Not much more to add, but glad I found you here at OS. You have very muscular blog fingers (and mind).
D
Interesting post, enjoyed. Amazing how insensitive people are to young people. (doctor, mom)
I did not take any offense, it just shocked me. Because, I thought, "Am I?"
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when they asked u if you were dying?
good gosh! those glasses!
Has it changed?
Seriously, Wren, I couldn't believe it. Hope all's well and that's behind now.
Rated♥
Bravo to you for beating the odds.