"That woman was there.." Our sweet lady with Alzheimers Disease had somehow found her way into the bathroom with the mirror at the Day Center. We have another bathroom without a mirror for people who are disturbed by mirrors. This lady had just recently become very sensitive to mirrors. She was shaking and scared. I helped calm her down and redirect her to other more positive places to be.
She and another severely affected lady cling together sometimes. Holding hands and smiling. They both have devoted husbands and it is so tragic to see the steady decline. What stress and pressure this horrible disease imposes on people. It just is NOT FAIR.
I knew another Alzheimer patient who would try to see behind mirrors. He was sure there was a person standing there. We had to rig up a covering for the mirror in his room. We also rigged up patterns in front of other patients' rooms so he would not wander in and try to get in their beds or mess with their stuff.
I just read that having a RED plate makes an Alzheimer patient eat more. It is something to be avoided by a person trying to lose weight but a tragic turn of this disease is that they cannot eat. They want to eat on some level but the logistics of it all escape them. Eventually they forget how to chew and swallow and that is a common cause of death as they curl into a fetal position.
I cared for a lady who was curled into an arched back position. She is the most tragic person I have ever known. She was frozen in this position for the six years I worked in the nursing home. Her mouth was open and when we dropped food in she swallowed. She was not spared the death of not being able to eat. Her eyes showed her terror but we included her in all our activities. Her big hospital bed was right there in the dining room and living room for music and parties. Eventually she passed away. It took a long time.
When you think you are just fine maybe you should take a walk thru a nursing home. Look in some of the rooms and remember how wonderful this country is to take care of people. We do not hide people away in closets and pretend they are not human. We use our taxes to help places stay in business where there is care for some of the most horrible things we can encounter as humans.
Next time you look in a mirror imagine what it would be like to see someone you do not know staring back at you. Who will be there to calm you down and sit by you until you can carry on? What will the toll be on that person if they have to watch you go into this terminal spiral downwards into chaos? Alzheimer disease takes your words and garbles them so no one knows what you are saying. Who will be there to nod their head and make you think they understand even if they don't?
Anxiety. You think you know what it means to worry? Try worrying if anyone knows where you are. Imagine not knowing where you are or how you got there. We give notes to people who ask the same questions over and over and over again. " Your family will pick you up after lunch."
"Is that today? How do they know where I am? I have to call them. Do you have a car you could take me home in? I need to go outside to see if my car is there. You won't let me do that? What kind of place is this?"


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I hope that my family will never allow that to happen to me.
Where is the mercy of sustained suffering, anxiety and pain?
None at all.
Re:The Mirror. I watched Bea,(my Mom) avoid the mirror and pictures of her younger self. She knew what was happening..the woman in the mirror was her nightmare self. The beautiful brunette of her youth had died a long time ago.
"Elsa’s friend Ann never grew old. Elsa says if she didn’t have to look at herself, there is no reason to believe she is old either. She detests the old woman with wild hair and etched face that shows up in the looking glass. She wishes she would get out and go to another room." From the Turning...the story of Elsa Barron.
Zanelle...I so admire your dedication and care to these poor souls.
Love and Blessings to you.
http://www.youtube.com/watch?v=xrD14GreZ4k&feature=related
HUGGGGGGGG
Seems that there is the same controversy with birth and death...when does life start and end?
Lezlie
My grandfather was one of the kindest souls I ever knew, and in his Alzheimer's, he remained kind and gentle and generous and pleasant to the end. I am working on cultivating that now, in me, so that I can enjoy life more no matter what stage I am in.
""Next time you look in a mirror imagine what it would be like to see someone you do not know staring back at you.""
Your work is to be thanked, and admired!
Thank you for the informations, the questions, the tears. So rated.
My father died of dementia. My BIGGEST regret is that I didn't murder him.
I lacked the moral courage to put him down, because I was afraid of jail.
If hell were not fictional, I would be doomed to go there.
As a nation, we need to learn a little more about dignity, and a lot more about death.
Why do we allow this to happen, and call "LIFE" sacred when we piss on it so?
I'm not talking about setting these folks on fire, I'm just talking about one last shot and some peace.
Where is our courage?
Doug I agree that just like birth, death should be a choice. It is very confusing. In primitive societies they would just put the suffering person in the group and let them go naturally somehow. I don't know. I know it is very very difficult to die in this crazy medical world. Back to basics? I don't know. I just don't know.
How sacred is life? One little drop of life left is sometimes very precious if you want to make it that way. If you are afraid you will miss it.
R
It's time stories like yours are published front and center as we need to acknowledge and address how tough it can be to be elderly and ill, how crucial it is that there are plenty of funds for care of our elderly too.
I used to work in a similar place. This "What kind of place is this?" is something we heard too.
I remember on Christmas day we could never say it was Christmas day or people would become to upset and disoriented, wondering why they were there. So it was always "the christmas season" which was easier on the psyche...
I was inspired, though, by those patients who could somehow keep this amazing sense of themselves despite all of the confusion and the forgetting. I learned that there is still some part of ourselves that remains when everything we think of as identity falls away...memories and psychological defenses.
One man who couldn't remember how to eat watched people painting a bench outside and walked over and picked up a paintbrush and started painting away. Muscle memory lasts..he had been a painter. This excited us so much we let him paint the bench again and again.
One day I was sitting watching him finish painting it again, and I said to some ladies who were also watching, "isn't that a nice color? Doesn't it look better?" And one of them looked straight at me. "Well it should. He's already painted it six times."
Sometimes it's amazing that things get through the curtain. I appreciate every tax dollar that is spent to keep important places like this running in humane ways. Your post is heartening.
This was cringe-worthy, zanelle. That's a huge compliment.
My partner's mother essentially starved to death after forgetting how to eat, despite the best efforts of nursing home staff. Fortunately, she had (while still in possession of her full faculties) left instructions that she was not to be fed via tubes, so she was spared that suffering.
I agree with Poppi. If all technology does is buy quantity of life without quality, it's not good for much...
You wrote: "We use our taxes to help places stay in business where there is care for some of the most horrible things we can encounter as humans."
I know for a fact that the great majority of nursing home residents are having their care paid for by Medicaid. It is true all over the country. And yet we still hear uninformed and uncaring people, and politicians, calling for cuts or privatization of these programs.
For-profit nursing homes are a huge industry in America. They have powerful lobbyists that help them get their way in regulatory matters. And yet, where are the voices those lobbyists in our national debate over how we pay for health care?
Not a peep out of them for preserving or even improving Medicaid.
Why?