I am devastated

Fri, 7 Aug 2009 17:08:02 -0400

A couple of months ago, my son was diagnosed with hypertrophic cardiomyopathy sub-aortic stenosis severe. Although he is asymptomatic, our lives have been turned upside down. Doctors. Hospitals. Painful testing. Medication. He is two years old.

It causes muscle thickening in the ventricles of the heart. Have you ever heard those stories on the news about the kid playing football or basketball who drops dead? He probably had this disease. You can just be going along, and then Your Heart Just Stops.

I am trying not to think: THIS CHANGES EVERYTHING.

But it does. I want it to be me, my heart. A word to God: take my heart. Heal his heart and take mine.

I'd like to hear from ANYONE out there who has been through this or is going through this. I'm begging you; I need support.

Please. I'm all alone and this is just too much for me. My friends and my family have never dealt with this and can't help me at all. I need to hear and be heard by someone.

Please.

The Easter Egg Hunt

Sat, 8 Aug 2009 17:08:12 -0400

The boys climb over each other to

Grasp the eggs with dirty hands extended.

Into the basket they are tossed

Without regard.

My sweet baby and I cling to the fringe

Filling his basket with eggs and yellow flowers.

We are not the hunters as we

Gather our treasures

In the sun.

vera war's Open Salon Blog

I am devastated

The Easter Egg Hunt